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Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

Original poster

Recurrent miscarraige ? What tests are available before giving up?

59 replies

oinker · 08/01/2007 12:56

I have had 5 m/c's and 6 losses. All in the last two years.
I have undergone numerous tests including all the blood test for me and DH. This concluded that my blood wa too thick and therefore prescribed baby aspirin and two daily injections of heparin upon conception.
I still m/c a further two times.
During last pregnacy scan I was found to have two fibroids and scar tissue. A HSG test done (pump dye into uterus and take xray pictures). This concluded distorted uterus, fibroids and scar tissue. I was then told I would need a therapeutic hysteroscopy (camera/cutting gear thru uterus under general anaesthetic) to correct uterus and remove fibroids and scar tissue. before they would concsider op I was told to loose weight. I did and still am.
I had an operative hysteroscopy last thursday(camera into uterus and photos of uterus and fallopian tubes done) Conclusion.... I have tiny kink in utuerus,fibroids and scar tissue so insignificant the consultant doing tests stated that it would be more harmful to operate. She states this detection is not the cause of my m/c's and that it must be else where.... She is not recommending surgery. Should I be happy or even releived?
But where is the problem? What other tests can they do? Have I reached the end of this journey?
Is anyone else out there going thru or has been thru this?
I really need to hear from you..
I hope someone out there can help.

OP posts:
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firststar · 18/01/2007 16:18

Message withdrawn

heresfor2007 · 18/01/2007 14:37

From what I gather Oinker, acupuncture partly helps just by destressing and relaxing you. I have heard that it can be recommended by fertiliy clinics to encourage ovulation - but at the same time not heard anything linking it to ovulation in non ivf cases. I did start a thread a week a so ago about acupuncture and there was a lot of positive response from people who have used it. I will let you know how it goes tomorrow and what she says.
I think I am not going to get the Lesley Reagan book just yet. Hopefully there won't be any problems with my next pregnancy and I won't need to, but if I mc again then I don't know if I can just settle with the 'bad luck AGAIN' answer and will be looking for some more answers.

rahrah1 · 18/01/2007 12:22

HI there - the book is an insight into M/C, gives you reasons and puts in to perspective, she has proved research into a majority not being down to a recurrent issue and gives you stat's and percentages. It's a good read if you are looking to put things into perspective, but at the same time it has lead to me self-diagnosing and phoning up my consultant again...

I have just phoned someone about reflexology, she has been recommended by the fertility clinic and is a midwife. Maybe you could contact your clinic Oinker and ask them if they have anyone.

Original poster
oinker · 18/01/2007 12:02

I am thinking of accupuncture..
Where is the best place to find info about their sucess rates etc?

OP posts:
heresfor2007 · 18/01/2007 10:47

Hi Oinker,
I'm glad that the consultant has believes that the next time you see her you will be pregnant. It's hard when you are not given a reason, but you will juswt have to believe in what the consultation has said as she will have seen hundreds of women similar and I'm sure she wouldn't give you false hope. The fact that she has said that loosing some weight may help the situation then there is something that you can focus on that may help the situation and give you more incentive to loose weight which will probably make you feel better in itself as well.
Frisbe - that is interesting and positive about your friend - I am having my first acupuncture consultation and session tomorrow morning. Even though I have been given no reason for my 3 mc's I have this feeling that something isn't quite working right in there, so hoping that acupuncture is going to help.
Rahrah - this Lesley Reagan book, what is it actually about - does it give you positive ways to prevent mc or does it just give you some reasons for it?? I am considering getting it but it is so easy to get obsessive with looking things up and I have only just got my head around the fact that hopefully next time there won't be any problems and to just try and forget about the past and be positive.
Anyway, enough about me - good luck everyone, Oinker, I hope when you go back in the summer you will be having a sucessful and healthy pregnancy.

Frizbe · 17/01/2007 22:59

That's good news then Oinker sorry to keep popping in on this thread, but I just thought I'd share another friends experience recently, who had two miscarriages then she took a course of acupuncture and 2 months after completing it, she's now 9 weeks pregnant again and awaiting her early scan, she's previously miscarried at 8, and the person doing the needles said her system wasn't working well enought to sustain pregnancy the two previous times, etc etc, so might be worth a look if no ones tried it?

rahrah1 · 17/01/2007 17:59

Hi oinker

I know it is hard when you are looking for answers, but it really is good news.. If there is nothing wrong with you, there is no reason why you will not be able to catch without M/C next time.

I have been looking desperately for something to be wrong with me, I am currently on the theory of having a hormone imbalance.. I phoned my normal consultant with that today. He is on holiday and blatantly does not want to speak until I get pregnant again. But I have been referred to the fertility clinic again, as I am not as confident that will get pregnant. A scan showed PCO and ovulation issues and had fertility issues when trying for Bertie.

But if you have found someone that you trust and can go with their diagnose that is great. I think that's what I need to be honest... trust in someone.

I'm really pleased for you. Will you still be logging on? You said you are not going to TTC for a few months.

Take Care XX

Original poster
oinker · 17/01/2007 17:33

Well...That's it...Done.

I had my appointment. There is absolutely nothing wrong with me. There will not be an operation.
She suggested that I carry on with my diet and loose as much weight as possible as this could be a factor. They expect me back by the end of June slimmer but pregnant. I will have to still do the heparin and aspirin when I get pregnant. I will do it as I have nothing to loose other than the weight. If that fails then at least I can say I have done everything possible.

Thanks for all the support throughout this past week. I really do appreciate it.

OP posts:
rahrah1 · 17/01/2007 12:13

Hi oinker, hope I have logged in on time to catch you... Really hope the appointment goes well... thinking of you and wishing you all the best.. XX

firststar · 16/01/2007 14:06

Message withdrawn

Original poster
oinker · 16/01/2007 10:59

Peterjones.......

Thankyou.. You have really eased my nerves. I was really dreading hearing what she had to say. Thanks

You have really reasured me.

OP posts:
PeterJones · 16/01/2007 09:12

Oinker

I have only had one miscarriage but have been seeing Lesley Regan privately for 12 years now as I have had various problems. I also know her quite well adn am involved in rasing money to keep the recurrent miscarriage clinic open. Believe me she will try everything with/for you. I know of a patient of hers who had 9 miscarriages and two live births and they never found anything wrong. And if she tells you to stop trying, then you wuill be the first person she ever has done...........

rahrah1 · 16/01/2007 08:47

I saw some of the program but switched it off after a while, as things like that start my imagination running...

I think that some of the consultants will try anything, where some of the experts have trialled things and found them to be of little success. But the treatment obviously works for some. There is one bit in her book about hormone treatment where the success rate against the time, money and distress for the doc and patient outweighed the procedure they had developed. It is difficult to accept that they can just discount something that may just be the thing that works on you.

It seems to be a minefield out there of different ways of thinking.

Original poster
oinker · 16/01/2007 07:16

Did you see BBC1 Panorama last night?
Lesley Reagan was on it (for about 30 secs)
Unbelivable...

Mind you some of the stuff which was being questioned is what I had been told thru the NHS.... Like....HYSTEROSCOPY...Clears everything out of uterus and makes pregnancy more probable..
This was really laughed at.... I really want to beleive it's true. I had searched on here and there were several hits about successful pregnancies on chat froums. They wouldn't lie....

OP posts:
rahrah1 · 15/01/2007 18:22

Had last test on the 8.01, which showed PCO.

My consultant that I had in my pregnancy has released me now, and I am now going back under the fertility consultant.

The consultant that completed the scan has recommended clomid, but I suspect I will need my hormones testing first.

I have the fertility appointment on the 23.01...

So all happening pretty quickly. I will update you after I have my appointment...I hope he has a plan of action.... Otherwise I am going to lose it!

Original poster
oinker · 15/01/2007 18:12

Yes, I have the book. I have been re reading it just to refresh my memory on things she does and beleives in b 4 actually seeing her.

I can understand your DH. Until you get a definate NO I would keep trying and beleiving that you will have your very own baby one day.

Are you waiting on tests or results at the moment?

OP posts:
rahrah1 · 15/01/2007 17:10

Hi oinker, we are in slightly difference circumstances, as neither me or my husband have any other children. It must make the situation harder for you..We have discussed adoption too, but my husband is not so keen at this point. I said maybe if we adopt, then we would not be too fussed about having our own and if it then happened great and if it didn't then that would be fine, because we would have a child. But my husband reckons this is the wrong way to look at it.

From reading Prof Regans book, it has really helped.. have you got a copy yet? It really puts some things into perspective.

Wishing you lots of luck for your appointment, will be thinking of you. XX

Original poster
oinker · 15/01/2007 07:49

I had a long chat with DH..

He admitted that if he didn't have children already he would be totally desparate by now.. But he isn't He is going to keep going cos he does want a baby.
We have decided that we will go see the Prof and whatever she says we will do. We are going to keep going until I decide to stop.
We even discussed adoption. I am not 100% sure though...
Its too soon to think about it..

OP posts:
Original poster
oinker · 15/01/2007 07:44

rahrah1

I suppose in effect I have been doing them without being asked outright..

They tried me on progesterone suppositries from day 20 to 28 of cycle It resulted in me not getting pregnant for several months. I worked out that the progesterone was more or less acting as contraceptive.
During this trial I went to a lecture held by Prof Reagan. I managed to get to speak with her about it...Her response " The trial had been proven worthless!!, STOP" So I did. (and got pg but m/c'd)

They also tried me on aspirin, progesterone and 1 jab of heparin when pg... This didn't work

Then there was aspirin and 1 jab of heparin....

Then aspirin and 2 jabs of heaprin.....

Nothing has worked yet..

Docs have just said that maybe it isn't that the jabs and tabs are not working and it's just bad luck...

THAT DOES NOT HELP ME...

OP posts:
rahrah1 · 11/01/2007 17:29

Thanks for sharing that info Frizbe...

I wonder how you get on these types of trials...

Oinker, Prof Regan mentions quite a bit about trials in her book... she is a great believer in them. Why don't you ask her if it would benefit you.

Frizbe · 10/01/2007 23:48

nottinghamuni
Hi, hope you don't think I'm intruding on this thread, but I did mention previously about another mumsnetter who is under Nottingham Uni now, I've not been able to get hold of her, but thought you might like to browse the Nottm Uni site with the info on it.

rahrah1 · 10/01/2007 16:47

Thanks heresfor2007 and firststar.. xx

firststar · 10/01/2007 13:06

Message withdrawn

heresfor2007 · 10/01/2007 11:22

So sorry to hear what you went through Rahrah. I don't really know what to say but that I just hope that next time everything goes well - as you said on a previous message that your lucky number is 7. All you can do is just keep positive and believe that everything will work out in the end. It is so frustrating when they do not have any answers to give you. After my 2nd mc they said I had antiphospholipid syndrome so on my 3rd started taking clexane injections. Things didn't work out again and now they say I don't have any blood cloting problems and that there is no reason for my miscarriages. Even though I didn't want a blood clotting problem, at least it gave me an answer and I felt as though I was doing something positive to hopefully try and prevent it happening again. I so hope that by the end of this year so many of us will be celebrating a wonderful christmas and new year with a more positive start to 2008 (hopefully with lovely little bundles in our arms or at least healthily on their way.)
I think doctors etc can be so insensitive sometimes!! I remember phoning the emergency doctor when I started bleeding with my first pregnancy and I couldn't believe it when she asked me why I was so upset!!!! - because I was miscarriaging you stupid cow!!!

rahrah1 · 10/01/2007 09:18

Thanks Uki for your kind words, they would not give the baby the steroids until my membranes went, so that was at 23 weeks. But they did not seem to make any difference as the membranes went totally in one go. Most women (of course not me!) have some fluid left to maintain lung activity, but when the baby has no fluid left the lungs do not develop any further.

Thanks aswell for your kind words, I cant believe that doctors say things like that... Crazy... The problem is that you don't want to be a single parent when your in your fertile prime. Me and DH have only been married for 2.5 years aswell. So naturally puts you over 30, by the time you have finished uni, started career, paid of debts, travelled a bit, got married, brought a house... they should realise that they are working with modern society.. that makes me so angery!! In our next lives we might aswell stop our educations, not get a job, life on the social and have a baby by 16 - with someone we hardly know..

They did not complete tests on the baby, as he we viable and had no obvious chromosomes disorders. They can tell by features, size etc.. He was the right size and development for his gestation. He was also very active and responsive after he was born, so all good signs.