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Conception

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Progesterone

34 replies

mascaraisamust · 14/09/2015 16:44

Asked this on the infertility thread too but would appreciate if anyone has any advice on here.

In short: Pg level of 1 on day 21 bloods, told annovulatory cycle and abnormal result so referred to a 'fertility specialist'. That cycle I got a bfp Confused, gp doesn't give me progesterone despite result and I miscarry at 8 weeks (although suspected before this). 'Fertility appointment' gets cancelled and rebooked for November!

Questions:

  1. The 'fertility' appintment is a gynae appintment and nurse led? What does this mean?
  2. Will they help me if I got a bfp and miscarried? Or will they fob me off with 'your obviously capable' and wait until i miscarry 3 times?
  3. I'm convinced with progesterone things would have been different. I have a short LP and obviously the result was extremely low. How can I get progesterone? The gp said they couldn't prescribe.
  4. If I have to go private whats the process? Anyone done this in the Midlands?

Anyone in a similar boat, been prescribed progesterone, got an tips?!

Thanks all x

OP posts:
ibelieveinmagic · 15/09/2015 21:01

I went to see a private GP in Nottingham (not a fertility one, just a normal Dr) and he was outraged at my treatment by the NHS but said that he couldn't help me, he could only refer me privately to a fertility specialist. He was really nice though and actually didn't charge me for the appointment which I couldn't believe.

I hope you get somewhere with your GP, to be honest though I wouldn't hold your breath. It's like banging your head against a bloody brick wall.

I will let you know how I get on x

mascaraisamust · 15/09/2015 20:57

ibelieveinmagic you have just retold my story! I was also spotting and I was just told to 'wait it out and see what happens' as it was my first. I also got my BFP when my fertility appointment letter came.

What has happened to you SIL sounds like what I'm expecting to happen from reading around.

Looked at private appintments and they are around the £200 mark, I can't risk going to one and being sent away for that amount.

My gynae appointment has been rearranged for October... I've booked into my gp in two weeks time as I want to know my options.

Hope everything goes well for you in Thurs. Fingers crossed they listen!

OP posts:
ibelieveinmagic · 15/09/2015 20:34

Hi mascara

Don't ever really post on here but our stories have some similarities so thought i'd shout up!

We had been TTC for a year when I went to the GP in January and she arranged to refer me. Unbelievably (people say it happens all the time but I didn't believe it) I found out I was pregnant the very next day. The reason I went to the GP was because I thought AF was coming as I had started spotting, as I do every month.

The spotting carried on and despite me asking for progesterone support my GP (a different one as I had moved areas in that time) refused. I carried on spotting and went on to lose the baby at around 8 weeks despite seeing a heartbeat at an EPU scan the week before.

I have self diagnosed I suppose but I am sure I have low progesterone which causes me to spot for up to a week before AF arrives. I am highly suspicious that it was the cause of my mc. I have had my progesterone tested and it was fine but I am sure it must be able to suddenly drop one day and that must be when my spotting starts.

Have been trying for 5 months since my mc and had no joy, still spotting excessively every month before AF. Have been to my GP and also paid for a private GP appointment. Both said they are unable to prescribe progesterone and that they can only do so under the advice of a fertility specialist. Honestly I am at my wits end as I am convinced that progesterone may be the key to not only preventing a mc, but actually me conceiving in the first place!

I have been referred again and actually have my initial appointment at the hospital this Thursday. Like you, I am concerned that they are going to send me away because I did manage to get pregnant. I guess I will soon find out.

There is nothing more frustrating. I feel like we are just being left to fend for ourselves and i'm really anxious about the appointment.

Also, my SIL suffered 3 mc in a year. On her 4th pregnancy she was prescribed progesterone by her GP (who sought advice from a fertility clinic) and she is now 20 weeks. May be a coincidence but may be the key for people like us.

mascaraisamust · 15/09/2015 20:18

Mum doesn't seem to do it unfortunately.

OP posts:
mascaraisamust · 15/09/2015 18:43

Thanks Rooibos, it's worth a try.

OP posts:
RooibosTeaAgain · 15/09/2015 18:30

There is the private clinic MUMS in the Midlands. they offer private blood tests and scans - no idea about prescribing medications though.

mascaraisamust · 15/09/2015 18:29

Oh and the desperately trying to find someone to prescibe it before my next bfp is exactly what I'm doing now tea

OP posts:
mascaraisamust · 15/09/2015 18:27

Thanks tea, it is so frustrating and I worry that Gps think I'm clutching at straws when asking for progesterone. They didn't offer to check my pg levels when I was pregnant. For now I've got a gps appointment to voice my concerns with DH and my gynae one has been now been moved to october.

I've been ttc for 10 months. Im worried I'll get another BFP again and not sustain it.

Tea I hope everything works out for you soon. Thanks x

OP posts:
Teakind · 14/09/2015 22:26

Hi, I could have written that first bit myself! My level came back as 3 and was told I hadn't ovulated but I got pregnant that cycle but miscarried at 8.4 weeks.

I also have driven myself nuts with the thought that had I been given progesterone supplements the outcome could have been different. I've since had a second miscarriage but prior to it going wrong I was desperately trying to find a doctor who would prescribe me progesterone to try and stop it happening again. However, I've spoken to two Doctors (including a private one) and they both said low progesterone is a sign of a failing pregnancy rather than the cause. Ironically with second miscarriage I paid for a private blood test and my progesterone was high. (Of course, this is just my experience and someone else may have seen a doctor who thinks it can help)

How long have you been trying to conceive? I had just been referred after a year when I got pregnant the first time and i kept my referral. If you have one booked for now, hopefully they will take your full history and progress accordingly. I'm not sure what a nurse led appointment would be like but maybe that's the way your local area does it?

I'm really sorry you are going through this. Miscarriage is heartbreaking and I hope they help you at your appointment.

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