Immune /natural killer cell treatment when ttc or pregnant (aka the 16th pred thread!)

Thanks Trying! I think if I'd not had my levels checked if be more hopeful about the CB ticking over. Of course it would be an amazing blessing for things to be okay, but statistically it would be one of those miracle success stories. I'd be lying if I didn't admit a part of me is hoping I'm wrong & that I experience that miracle though.

Collection on Thursday - such a big moment! Your future baba could very well be in that bunch... How amazing! I watch Giuliana & Bill and they even made a video for their son (didn't know the gender of course) the day they did the egg collection. Crazy!

Rosa, wow. What an idiot. Besides being misinformed, what kind of medical professional would consider that an acceptable way of dealing with someone in your situation. I really do wonder how/why some people get into these fields. Surely her priority should be keeping you calm & feeling safe? ARGH!!!! Everyone is entitled to their opinions, but if she's upset you, she's simply NOT doing her job correctly.

Thanks for the good thoughts Hula. Sounds like a very nice & well deserved holiday indeed! Sometimes we just need that time away. I've bed trying to be gluten free for about 7 weeks now & know it's hard to be completely 'clean'. I figure that a little trace here & there is still far better than large amounts... So you're still doing well! I do wonder if being GF will help me have my baby. Feel positive about that change overall.

I agree rosa! Have u watched the documentary waiting for a heartbeat? There's a lady on it and after 8 miscarriages St Mary's put her on pred even though they don't approve/are totally anti it. Surprise surprise she had her baby! I just hope I get another BFP so I can be another pred happy story!

Oh my typos.. So many, so often - have they got worse since I have been pregnant, is this the 5% of my brain that's lost?!

Thanks Tryinb and Hula.. You've made me feel like my emotions are justified. She made me feel so pathetic. She said I was 'vulnerable' - implying had been taken advantage of. Of course I'm vulnerable after recurrent loss.. But I'm not stupid and made a very informed decision. As you says Trying- nobody can judge unless you've been in our position. I personally could not get pregnant without doing something differently. It could be luck but having had heartbeats twice so close to the second trimester my money is my treatment had helped. So wish I could prove it! X

Oh my god Rosa poor you ! That was so not what you needed. Sounds like you were dealing with a dinosaur of a consultant and her comments were very irresponsible. I would ignore it, that fact that she can t see the benefits of the harmony test, a non invasive test with 97-99% for three trisomys that is far superior to the scan plus current bloods they do for downs is ridiculous and just shows she s out of touch. And its not just doing it to decide if you would terminate it s also to know and be prepared if you choose to continue and it had picked up one of them. Re immune treatments its not just Dr S doing it, many ivf clinics are too, would she be scrutinising would they had done if someone had done it thru ivf ? I d seriously ask to see someone else next time if you can. Hugs

Also how unhelpful to ask if u would have terminated?! How the hell could to u answer that!!! U don't know how you would feel. Maybe u would maybe u wouldn't. But if it was a severe signifcant problem for the babies sake maybe u would. But it's such a stupid nonsensical question.
I want to make a complaint about her. She's really wound me up! Maybe the hormones in me?!

Rosa I'm outraged for u!!! So unhelpful. Instead she should be congratulating you for getting this far and be happy for u. This attitude really really pisses me Off! Yes there is not that much sound data...but that's how medical innovations start. And the risks are minimal-im not aware of any with intralipids at all? To be fair, maybe you would have been ok with no tx this time around but are you going to take the risk after all the heartbreak?? It's ok for her to sit there and judge. She's just worried you for no reason. I'm very cross for u!!!

Also, I'm no longer under mr shehata, and I'm having the EXACT same tx. It's not like he's the only one in the uk doing it. And my ivf clinic has 10 clinics in the uk (CARe) every single one does all these tests and treats with pred and intralipids etc.

Hula, bet u had a great time away! I wouldn't worry about enjoying some yummy pasta now and then! Hope u r well rested-has SO started for u??
Thanks for ur story about ur friend, I'm feeling totally fine about the follicles as I do believe it only takes one. Plus sometimes there are more eggs there, sometimes less so I won't know till Thursday. It's just the lining, but hopefully it will grow!

Hi all. Drttc- I'd also be hopeful... Though cautiously optimistic I think is the right phrase!
Thinking of everyone - Trying fingers crossed for you with your collection this week..exciting. Hope goes well.
I've had an NHS appointment with a consultant today and feeling a bit angry / upset. Again I was reminded they don't support the immune treatment we get. Was even told the intralipid infusions are not helpful and risky after I told her my next was tomorrow. She said there was a recent report out to confirm she could send me - then decided emotionally that probably wouldn't be helpful. Um .. Too late!
She said there's no scientific evidence for our treatment. I explained how many years Mr S has successfully treated people like us but she dismissed this by just saying 'she knew of him well'. It's just really thoughtless to pass remarks when I'm committed to treatment and already experiencing so much anxiety. If anyone knows of any compelling evidence please let me know. I totally believe in Mr S and admire his approach. The NHS didn't dip prof cyclogest until very recently. I'm sure it's just a matter of time before pred etc is added to their list. Thank goodness some doctors work with science not just following insight from the past. If would be too late for me. She didn't even seem to support the fact I had had a Harmony test. I asked did she think was a waste of money and she threw a counter question to me - well would you have terminated if there was a high risk? Ultimately they decision would be much more confidently made with Harmony than normal scans. And personally I wouldn't want to risk a miscarriage with a diagnostic scan. Some higher risks in normal scans are more accurately presented as very low risk with Harmony and it was just the other day the BBC said NHS are looking into providing it!
I feel a bit better getting that all off my chest- sorry!! X

Hi guys,

I m back from the wedding in italy, we all had an amazing time and was a great break from thinking about ttc etc (altho was ov time and managing that while sharing a room with ds was a bit tricky ! )

Also had a few gluten/diary lapses as some pasta was only option but back on the wagon now !

Looks like tomorrow is a big day for scans and stuff so good luck sunny, seeking and trying.

Trying 12 follies sounds good. A colleague had ivf at 35 but had 3 eggs 1st attempt and 5 on second. All went to blasts and she got her baby from 2nd go so it does just take one and hopefully the oestrogen will do the trick for your lining. Good luck with the egg retrieval, hope it all goes ok.

Drttc i m still keeping my fingers crossed for you.

Snoopy don t let work decisions affect your recovery, they ll just have to manage without you. The puppy sounds like a great idea !

Hi to anyone else i ve missed.

www.accessdata.fda.gov/cdrh_docs/reviews/K112870.pdf

Drtcc I had a quick look into he clear blue fda pdf file. It clearly says that it should pop up saying 2-3 weeks when you are 4-5 weeks preg. So u r totally right on track. Think postive!

That's great drttc! That's totally a normal response on a clear blue? I would be being hopeful? Are u going to book a scan for next week?

No more scans for me, just collection on Thursday! He's going to give me owstrogen tablets post collection to help thicken it up. I have a slightly tilted womb so people have struggled to get a accurate reading to the honest...I just wish I didn't have this to think or worry about! Let's hope she scanned me wrong and it grows another 1/2 mm next few days.
Agh!

Determined are u out there? Thinking of u!

Thanks ladies- I'm fine! No symptoms, no nothing. Feel exactly how I do on regular cycle days (not AF days). Clear blue finally ticked over to 2-3 weeks when I was at 4 weeks 6 days (am now 5 wks 1 day). That means I'm over 200 hcg- which is very crap for 5 weeks! Just waiting now I suppose, though it is easy to ignore when pain free! I'm wondering if it's a blighted ovum...

Good luck on your scan Seeking! It's gone so well & you're nearly at that safe zone... Yay!

Hope you're feeling better Snoopy... I know work can be rubbish!

Trying, fingers crossed that your lining is nice & thick when you have your next scan!

Hope everyone is doing well (Hi Rosa & Sunny!) and has a lovely Tuesday x

Not stupid at all! Totally normal! U sound mega calm and together. I wish I was less anxious at the moment! Hope today flies by for us all, and u sunny!

Scan isn't until Thursday evening Trying.... I just find I question my positivity in the few days before hand! Stupid I know!!

What time is ur scan seeking? Best of luck, I'm hope all will be well, but it's sooo terrifying!!! Do come and Give us the the good news. :)

I'm getting my usual pre-scan jitters again! It's amazing how you can be fine one day and blithering wreck the next!
I'm sure everything will be fine Trying. Hope work takes your mind off things and you find some inner zen!
Hope you're ok Drttc x

Thanks snoopy. The nurse and my acupunture lady seem to think the number of Follicles is good. I think I just would have preferred great or amazing rather than good!!
It's just my lining im worrying about. But sup it can still Grow in the next few days.

How r u ? When r u going back to work Hope that they r off ur back xx

Try not to be too down trying. My knowledge around Ivf isn't great but from what I've read most doctors tend to err on the side of caution when it comes to meds in the first cycle because they don't want to do more harm than good. So it's good that you've been feeling so well and you haven't had any adverse reactions and remember it only takes one good egg!

drttc how are you feeling?

How's everyone else today.

I seem to have developed a rash all over my right forearm. Don't know what's going on with my skin at the moment. My OH forms haven't been filled in yet and a job I was going to go for has been advertised today but now I don't think I can go for it. So sick of miscarriage ruining my life

Pot luck!

Thanks seeking! I Know of people with hardly any follicles who get BFP and some with many and bfn. So it's just pop luck! I was so proud as to how chirpy I was! Seem
To have lost my zen. I'm back at work tmrw till Thursday so hopefully will distract me!
How r u doing and u drtcc? Still keeping strong I hope x

Try not to be disappointed Trying. You never know how things might pan out. You still have a few days for your lining to thicken up and the extra oestrogen will do the trick. Just remember they know what they're doing and have probably seen and had success with worse results. Keep positive Hun. Like Drttc said, it only takes one egg! Will they put one back in or are they going to put two in? Will keep everything crossed for you.

Thanks drttc. My lining has always been a drama I had a HSG done a few months ago as I was worried about ashermans syndrome after my 2 d and c. I didn't have it..but my lining is always between 6-7 when 8 and above gives better pregnancy rate. The consultant said it should grow a little in the next few days as my natural owstrogen surges just before collection.
I thought that this might be my cycle as I've gotten preg before and hoped my body would remember how to do it. Feeling worried now...but yes you do only need one...and so much of it is pot luck. I'll know more on Thursday once I know how many eggs they have collected as sometimes it can be more or Less than what is seen on scan....

Trying, sorry you're disappointed with your scan :( I don't know very much about ivf, but I do follow a lot of ivf-ers on Instagram... One running theme seems to be that all it takes is that ONE special egg! There are women who are really disappointed with their numbers post egg retrieval/fertilization, then have a successful pregnancy. I know having many of them increases the odds, but it's really no guarantee. It's all about finding THE egg that will be your rainbow. Also, there's no reason to think the extra oestrogen won't give your lining the boost it needs. And of course, this has been a first go, so dosages can be changed if need be. I know it's not a perfect result, but this can still very much be your cycle!