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Conception

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Immune /natural killer cell treatment when ttc or pregnant (aka the 16th pred thread!)

992 replies

sunnyday01 · 05/06/2015 19:22

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

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Tryingno1 · 06/07/2015 16:34

Ps re the chinesse herbs there was a alert from my ivf clinic saying couples with good results were having strange fertilisation rates and they discovered they were on herbs. These herbs can be really strong and unmonitored levels of strong meds so just be weary! I don't know much about them but that's what the letter said from my clinic!

Tryingno1 · 06/07/2015 16:27

wow sounds great DRTCC. all those supplements sound really good, i might go on them too if this one doesn't work out. i didn't really take much except pregnacare and omega 3 this time., Glad ur appt with mr S is soon and i hope he has some ideas of what can be altered for success next time. or possibly he doesn't think anything needs doing. also sounds like u have loads planned, thats def the best thing to do. before you know it you will back on the TTC wagon with a BFP, I'm sure. and i hope its a sticky one. we need some more positive vibes back on this thread!

im not sure when ill get them, the blood taking lady said they would go with the last van to another hospital so may be tmrw am but possibly by 630. GP said likely tmrw am. ill ring them at 615 before they close and see if there is a result. either way not the longest wait which is good. yeah, its unusual how different GP's are. I've got to same mine are excellent , but diff areas have diff rules about what they can and can't do.....ive been lucky they even prescribed all my if drugs like hydroxy/pred/asprin etc so not had to pay private costs to IVF clinic. they wouldn't do my clexane but I'm going to try for that one again!

sunnyday01 · 06/07/2015 16:21

yes, you need to think where you are, you got a bfp and that is great compared to where you could be!

Might wait until wednesday and see if anything turns up then i might have a moan!

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Drttc · 06/07/2015 16:15

Awww trying I can really relate to all your worry! It's hard not thinking about what you want more than anything. Good luck on your hcg- I'm certain you'll be fine! So great that your GP got it done... I had to pay £50 a pop at a clinic. I think I need to change GP's! When do you hear back?

I'm well! I'm getting ready to ttc next cycle. Will have been on ubiquinol about a month on CD1 (for egg quality- ideally you want to be on it for 3 months), folate at the same time (better than folic acid supplements if you have issues absorbing), NAC supplements today (sound amazing), acupuncture & potentially Chinese herbs start thursday. Will be seeing Dr S on CD10 as well so have asked him if there's anything for me to do in the mean time as I want to start ASAP.

Once my cycle starts I'll also have loads of fun distractions (house hunting, hen do, 2 weddings, holiday planning) so I'll think it'll be a great month :)

Tryingno1 · 06/07/2015 15:28

overall though I'm so grateful my first cycle gave us a BFP. i could be in a very different situation this week worrying why it hadn't work etc.
I'm on all the drugs and i shouldn't really be so worried and anxious. need to put a lid on it!

Tryingno1 · 06/07/2015 15:25

i just had my first one. my gp is SO efficient. i rang him and within 5 mins the forms were ready and waiting.
next one will be wednesday at 230 so 48 hours later. luckily I'm at a course so i can just escape and get them done, wouldn't be possible at work.

Im not blaming(!) but the spanner in the works with my DH testicular failure has DEF added a huge amount of stress to us both. i found ivf OK, as in it wasn't nice but i thought to myself i can do this again if i need to.......but now the thought of us not having infinite chances despite being youngish has freaked us both out and we feel we have a lot more riding on each BFP now (although emotionally every BFP for jus all is the same)

my DH has his urology appt in 2 weeks so will be interesting to see what he reckons......

are u going to say something to the office?

sunnyday01 · 06/07/2015 15:11

i must admit i have been a lot calmer than i thought i would. my symptoms, when i have had them have been come and go - one day my boobs hurt the next they don't, some days i have nausea and can't eat certain foods (today its sandwiches!) and some days i don't. Sometimes i wonder if the symptoms are in my head!

It's so hard around your previous dates, especially when time drags! when are your blood tests?

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Tryingno1 · 06/07/2015 14:49

hi sunny. i know I'm naughty! i was actually thinking before about u and how controlled u had been despite no symptoms! I've had days where the anxiety has been in background and I've told myself what will be will be and i can't do anything. and then today i just had a massive melt down (maybe as home alone and didn't have anything planned BAD IDEA, luckily busy rest of week).

had heavy boobs yest - although they were mildy heavy (!) and today they have gone. hence the panic. I've had 2 miscarriages at 5+4/5+5 which is what i am today and maybe thats set me into panic. no spotting (but I've had one mmc) but those cramps continue too..

its so hard NOT having symptoms. but then its also hard when they come and go?! but i know they can come and go and i also know the pred masks them too. oh its a bit of a head f* really!

i have scan at 6+4, 7+4 and 8+4 (if i make it past these few days) and i think that will keep me calm! will just need to find a way for one or 2 after that!

that is annoying about the scan pics, its been over a week hasn't it? have you explained to them why you don't want them in 2 weeks time and want them now? I'm sure they could sort them out soon for u.

hula are u on holiday? hope ur having a good time and enjoying urself. the weather is crap here now so well timed!

waves to others
x
sorry for being crazy (again!)

sunnyday01 · 06/07/2015 14:42

yes it is a bit annoying Hula! I'm not really sure if i want to 'complain' as such as its not the office's fault but i do want them!

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Hula2 · 06/07/2015 14:15

Sunny - thats a bit rubbish of them. You definetly have a point and when i ve had private scans at the fetal medicine centre i ve had the pics straight away. Hope they send them soon.

Hula2 · 06/07/2015 14:11

Ah trying, i hope you get some reassuring results. Its so hard but if its worrying you that much then maybe its good to check. I presume you ll go for another in 2 days to chk its doubling.

sunnyday01 · 06/07/2015 14:11

trying - can't believe you caved! hopefully it will put your mind at ease though. It is so very hard - like you i had no symptoms and wondered if anyhting was going on in there - for me i just had to keep my head dowm and get through those weeks by thinking i was doing everything i could. I think just me and the dh knowing about it also helped as we didn't really speak about it and just tried to get on with things as normally as possible - i distracted myself with reading and watching box sets, and even playing candy crush on my ipad!!

Even now after having two good scans, i worry - i worry that even though i have no blood i might have a mmc, or something else will be wrong. I think worrying is something we will just have to deal with. I thought after the scans i would be better but it hasn't really made a different, i'm just worrying about the next week and a half to the next scan and what will it show. I guess at some point we will just learn to live with the worry and get on with it! I wish i could fast forward time so i was at my due date!

Change of subject - i'm a bit pee'd off with the miscarriage clinic, i went for my scan over a week ago and still haven't recieved my pics. With my first scan it was a week until i got them. I contacted the office and they said they have to wait until mr s downloads them - that's fine and i know he is a busy man but its not cheap to see him so you would expect to get the pics quite quickly, plus in the line of business he is operating in, a lot can happen in a few days, let alone over a week and it could be very upsetting to suddenly recieve the pics in your inbox one day!

OP posts:
Tryingno1 · 06/07/2015 13:56

Caved. Getting them done now. Am having a anxiety filled day today :(
Really hate this :(

Tryingno1 · 06/07/2015 07:56

Thanks drtcc. I'm going to leave it!
How r u doing?

Drttc · 05/07/2015 21:27

I'm not sure about your GP, but mine wouldn't help me get an hcg. Said it was only possible in an emergency situation, from the hospital.

It's a decision that only you can make. You know the balance of curiosity, anxiety, or patience that you have!

Tryingno1 · 05/07/2015 21:16

Ok thinking no after writing that. I don't think I want to know!?

Tryingno1 · 05/07/2015 21:07

Girls I'm thinking of getting my hcg done tmrw and wed. Yes or no?
Yes - means il chill out! Was fine all weekend and am freaking out again.

No-hassle. Not sure if Gp will give me forms. If it's not risen enough not sure I want to know?! Or if it's boderline im going to freak out. If it's low they won't do anything till a 6ish week scan anyways and then reacan in 2 weeks to see change. As im not spotting so presume there is something in there

Agh! I didn't want to do one...but it feels v tempting now

Drttc · 05/07/2015 20:24

Came across this really inspiring blog by someone with recurrent miscarriage (along with ivf)! Thought I'd share :)

miscarriagestomiracles.blogspot.co.uk/2015/06/sometimes-our-plans-change.html?m=1

Tryingno1 · 05/07/2015 16:17

Good luck for it snoopy. U never know! I hope it comes good for u.

Good idea re the black pants! Except the progesterone leaves such an awful mess I need to wear a liner. I'm actually doing ok. What will be will be. I literally can't do anything else. I'm on every drug, I'm taking it easy but also trying to keep busy, I'm having my 5 a day plenty of wated and not getting stressed/rasing my bp (where possible). So it's out of my hands now. If it doesn't work, well then it doesn't but I can't have done anything else. And I justhave to wait another 7 longggggggg days for scan no 1!

Snoopysimaginaryfriend · 05/07/2015 08:33

trying I've found an internal job to apply for, just finishing off the application now. I don't think I will get it. I don't know how to promote myself, after six years of ricocheting from call to call you start think everything is normal and don't recognise the hard work you've done.

During last pregnancy I only wore black knickers to try and keep a handle on the knicker checking anxiety. It did seem to help a bit.

seeking glad to hear you are doing well. It's nice sometimes to get off the 'ttc-miscarriage wheel'. Dh said he noticed I seemed to have given up all the things that used to make me happy so I made a conscious effort and finished book I was halfway through and stopped after first mc.

Tryingno1 · 04/07/2015 22:24

Hey snoopy how was looking for a new job? I hope it gives u some
Focus and makes u feel
Postive the for the future.

Seeking that's great, thats exactly what u need right now enjoy ur house and some rose in the sun. Before u know it a few months will have passed. I often feel "free" those months, I eat drink and go wherever as im not worried about maybe being near ovualtio. and what a glass of wine will do.(when clearly it doesn't nothing but I am
Mental!)

I'm ok, plodding along. No symptoms feel really well. Just praying no blood when go
To loo, so far nothing. But obv that doesn't relfect what's going on inside just temp reassures me.

Hope everyone having lovely sunny weekends. Xx

Seekingmiracles · 04/07/2015 13:54

Hi ladies,
Sorry I've been AWOL.
Hope you have a lovely holiday Hula and come back with some good news!
Trying glad you've managed to get more sperm frozen. But hopefully you're not going to need it anyway.

Hi everyone else. Hope you're all ok. I'm so bloody busy, work and the house are taking up all my time!!

Snoopysimaginaryfriend · 04/07/2015 13:31

Oh hula I'm jealous of you going on holiday. I'm sat in an office on my own this weekend, next to a fan haha. Hope you enjoy it.

sw I need to stay away from books like that I think. I've already gone a bit overboard with the supplements this month and I still want to pick up some n-acetylcysteine because I read a study that said it increased chances of live full term birth by something ridiculous like 290%.

How are you doing trying. Those days keep ticking by.

I'm using my time alone to apply for another job. After coming back and reading all my emails I've realised we are sinking and sinking fast.

Tryingno1 · 03/07/2015 21:32

Hi hula thanks for asking. Sample was exactly same, so 2 straws frozen. So 4 we have is enough for one ivf cycle maybe just. They suggest you give enough for 3-5 cycles as a lot Of sperm die. Anyways I'm really praying we never even need to use it, But glad there are still a few swimming around!

Have a great holiday

Hula2 · 03/07/2015 20:43

Hi Snoopy, yep in the tww now (2dpo), just testing the trigger out, i ll be due to test on holiday so hoping i ll have plenty of distractions getting ready and being away that it goes by quickly. Good luck now you re back to ttc, hope you get a quick sticky bfp soon.

Swlondon nanny - hope it doesn t come to ivf for you. I ve read that book and it can be tricky to get 'good for you' toilettries from regular shops so i tend to get stuff online. I got a good trial pack of about six mini john masters organics shampoos and conditioners and they are the best i ve liked so far.

Trying - hope you re doing ok and your dhs sample is holding steady. Thanks for updating the list.

Hi Rosa, Determined, Sunny, Drttc and anyone else i ve forgotten. Hope you all have a good weekend.

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