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Immune /natural killer cell treatment when ttc or pregnant (aka the 16th pred thread!)

992 replies

sunnyday01 · 05/06/2015 19:22

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

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Tryingno1 · 13/07/2015 11:31

Hi hula. Aw poor ds? Is he ok? I can imagine its terryfing even though a minor op. But he will be fine, it's just your anxiety which will be the hardest part. Hope it goes smoothly and enjoy ur holiday and try not to worry too much. Sorry it's a bfn :( but...there was only 1 egg. Hope the 10mg makes another one for u!

Oh yes determined-acu helps me with AF. Like when I wanted to avoid d and c etc she always managed to induce my bleed - maybe conincidence but even when I was waiting for af to get ivf started it came the day after I saw her (it was scheduled to, but I felt better thinking I was doing something to help it along!) Infact maybe I should see her I get this one going too...

Hula2 · 13/07/2015 11:18

Hi Ladies,

Sorry i ve been awol, am away on hol and been having probs logging in/getting on and just wrote a big post then lost it so hope this one makes it.

Snoopy and Dr - sorry you re dealing with preg announcements, its never easy, def do whats best for you and dont worry about other people.

Rosa lovely to hear your updates, hope your 20 week scan gives you reassurance. Can t believe you re nearly half way !

Sunny good luck tomorrow, everything crossed for you.

Seeking - puppy is sooo cute. Nothing like puppy cuddles to cheer u up.

Determined - what a pain to have wacky cycles. Def could be the steriods. Acu sounds like a good plan. Hope you get good results.

Trying - good for you throwing everything at it now. Sounds like you and dh are very strong you really deserve to get there. Great news dh sperm has improved.

Afm - having a lovely time on hol but as expected bfn. Just waiting for af then onto 10mg of letrozole (how high can you go ?). Also crapping it a bit as DS is having a small op under GA next mon and altho its just a minor thing it still scares the living daylights out of me...

Hi to anyone else i ve missed.

Determined123 · 13/07/2015 08:20

Nope still on it trying and it made no impact before so I don't think it's that...I think it's a combination of all these supplements tbh and then steroids. This month I couldn't pinpoint ov (never happened before) so think maybe it hasn't happened this month?!
Take it easy in the gym...just getting your body moving is enough and a little sweat on will work wonders xx

Tryingno1 · 13/07/2015 08:02

Sorry determined no idea! Have ur periods for more irregular since coming of the metformin? I seem
To remember you coming of it?

Right to a day of being busy til dh gets home...not been to the gym in
Over 4 Months! Should be interesting! Not sure how long I'll last!

Determined123 · 13/07/2015 07:03

Thanks Rosa, I will google those. I've also read high vit c helps and I'm going to restart acu this week as had a break for past few months...cycles were much better when I had it reguarly.

Ha ha deffo not that reason...dtd has been minimal lately (poor dh) with protection...I was not taking any chances...oh how things have changed Grin x

Rosa27 · 12/07/2015 23:10

Determined - think there are teas and herbs you can get from Neal's Yard that can help .. Unless there's another reason ..?x

Rosa27 · 12/07/2015 23:08

Seeking - what a gorgeous wee puppy. Wish we could get one - we both work too long to be fair I think.
Agree on scans in some ways but having had 2 MMCs I'd never go more than 2 weeks until 12 as I've seen HBs at 7 that were gone at 12 week scan and a 9 week scan would have saved me 3 weeks of false happiness and greater pain. No right or wrong way but each of our individual past experiences determines our future coping strategies. Night all x

Determined123 · 12/07/2015 23:02

Ahh seeking! Little pup is adorable...I really really want one, working on dh is s full time job!

Drttc - so sorry for the preg news...when I've had that (and will get loads more soon as I gave friends trying) I just use it as an excuse to book fun things up, hen dos, baby showers anything where a group of ladies of a certain age and it can be pretty shit for us rmc'rs as babies are talked about too much. And as Rosa mentioned deffo keep away from any bad vibes, you need lots of positivity round you right now!

Random question, anyone know how/tips to get a period to start...on day 36 now, longer cycle ever...what the hell is going on?!?!?

Drttc · 12/07/2015 22:27

Thanks Rosa :)

Drttc · 12/07/2015 22:25

Hi Trying, I started bleeding at 6 weeks 1 day I believe! As your hcg is dropping your progesterone probably is too so it should happen soon-ish...

Rosa27 · 12/07/2015 22:23

Sunny - Mr S would have to consider all your history, but your intralipid timescales are like mine so you might get to avoid the last one.
Drttc- so sorry your dealing with these feelings. I can relate if course as at 39 my friends have kids going to secondary school now and most have completed their families before I've even begun. Sadly I didn't meet my DH until 7 years ago not we've had 6 years of this journey. I promise you will look back and feel much happier if you focus on your amazing DH- holidays etc, whatever quality time means to you. People having kids don't have as much time for that and many other things.. So when you are blessed (hopefully v soon) you will be much stronger to cope. Having said all that.. Life's too short to spend it with negative energy-esp when you are going through this- so def find a way to ditch the hen do! Take care x

Tryingno1 · 12/07/2015 22:13

Ps DRtCC when did u start bleeding? I've still had nothing-just back cramps. Not had this kind of miscarriage before....

Tryingno1 · 12/07/2015 22:07

Scans r so awful aren't they? There was a study which showed though they massively improved rm rates by reassurance! But they massively stress me out!

Ur doggie is very cute :) and I like the name! Glad u found someone to talk to in RL, it's hard when no one gets what it's like to loose.

Have a good week everyone, determined hope ur feeling ok about wed appt let us know how it

xxx

Seekingmiracles · 12/07/2015 21:15

Also- talking of scans. I'm tempted to talk to DrS about not having as many scans next time. I need to have one at 6 weeks for NHS to prescribe Fragmin, but then I don't think i want another until 12 weeks. The scans just give me anxiety and lead me into a false sense of security. I'd rather not know. Obvs if I have bleeding then I may change my mind but i'm hoping the next time will be a little more plain sailing!

Seekingmiracles · 12/07/2015 21:12

Hi Ladies,
i'm taking 300mg CoQ10. Also weaned the same as the others have said. Drs gave me 5mg tabs and I dropped by 5mg every 4 days.

Drttc- it's so hard when people announce their pregnancy news. I'm litterally surrounded by pregnant people. Know a fair few due in Jan when I'd have been due. Girl at work is 9 weeks along. Its everywhere. But i've kind of accepted that i'm different. I'm on my own path and shouldn't compare. I will get there but I will see alot of babies born in that time. Sucks though!

I went for dinner with a friend who's also had a mc - we sat, got drunk and slagged everyone off. Felt lovely to moan and know she was on the same page! Wink

To give you all a smile - here's my puppy!! Get him in two weeks!! Meet Loki Smile

Immune /natural killer cell treatment when ttc or pregnant (aka the 16th pred thread!)
Tryingno1 · 12/07/2015 20:37

I've drunk a lot last 4 days! I'm off the vino now (until my holiday next week anyways) from tmrw and back on the salad avacado and grilled chicken! Sad

Drttc · 12/07/2015 20:32

Trying, I'm with you on the hcg! Was glad I got them done & avoided being caught completely off guard. Will always get them done now.

Sounds like a good plan! Maybe some vino at the end!

Tryingno1 · 12/07/2015 19:02

So glad I had my hcg levels done. I would be having my scan tmrw. Nothing worse than bad scan news. I don't know why the empty uss screen is just so heartbreaking. I'm off from work tmrw and home alone. Seriously need to think how to keep busy and not break down! I'm thinking gym spring clean and cook?!

Tryingno1 · 12/07/2015 19:00

I think we all feel the same way...it really is so hard. Just have to get through one day at a time. Accept news like this will upset us and then move on when we are ready.
hugs Flowers

Drttc · 12/07/2015 18:16

Thanks Sunny & Trying! It's just so hard hearing it. Of course I want people to have babies, but I wanted to be able to 'fix' this first. I don't want to be left behind when it's something we want so badly :( I feel bad saying it but I don't feel that way towards people that I know have struggled... They give me hope! But the thought of now being surrounded by expecting couples who were like us, except not 'broken' is devastating :( Arghhhhh I guess I'm broken in more ways than one.

Tryingno1 · 12/07/2015 17:29

Oh what shitty Timing drtcc. I'm
Sorry :( . When ur trying so hard to keep ur chin up and be brave the news of someone getting preg sucks (sorry it just does) then if it's someone u have to see and don't like its def worse! Can u get really drunk at the hen and have fun!?

There's no way to deal with it, except that her pregnancy has nothing to do with your chances and sucess in the futre. It has no bearing. Stay away from Her and do what's right for ur mental health. That's most Imp now.
I've left facebook! Every single person I know is preg or has a baby. I was the first to get married too.My 2 besties got Married this year and I'm Waiting for their accouncements too (I'll be so happy but can't Help feel sad for Me and dh-our meets ups will change from
Dinner and Shopping to talks of babies :(.....For some reason everyone Else can pop them Out around me except me ;(

It's just shit drttc! Try keep ur spirits up u have been so postive despite ur last mc being so Recent. It will work out for u, its just when. I find all u girls wonderful strong and it def makes it less isolating knowing we are in this together. Although I wish all ur lovely Ladies were not having this heartache xxx

Thanks for the pred advice rosa and sunny. And good luck for wed sunny x

sunnyday01 · 12/07/2015 17:25

Oh drttc - it is do hard and I have been where you have been - both my best friends have had babies in the time we have been trying and they are now both expecting their second babies. I don't think there is any tried and texted formula on how to get through it - I found the hardest bit was them telling me they were pregnant - once I got used to the idea I was ok and happy for thrm but appreciate these are my friebds and not someone I don't like/doesn't like me! Do you have to go? Can you not fake a sickness bug to get out if it?

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Drttc · 12/07/2015 17:16

Well it's finally happened... My husband's best friends wife is 3 months pregnant! She doesn't like me (has told people) and now I have to go on a hen do with her next weekend & pretend I'm not affected. Feel like I've fallen into a pit of hopelessness. I feel like my time has run out & it's finally going to happen... I have to watch everyone around me have families. I'm so sad & don't know how I'm going to keep it together in public.

sunnyday01 · 12/07/2015 17:02

Yes it is a shame we are not all the same - may make things easier! My next intralipid will be at 13 weeks 2 days, which means my last would be at 17 weeks - do you reckon they will say don't have it as it's late on?

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Rosa27 · 12/07/2015 16:18

I know- everything happens at once! Puts things in perspective though.
Will be thinking of you on Wed - lots of positive vibes.
I was also ok for 4 months on hydroxy and was losing handfuls daily at 5 months.. Conceived the week after I stopped and then Louise says the intralipids should take over. I started them a bit later as Mr S was on hols so on the end didn't need my last infusion. It's a pity we don't all have the same the immune profile so can have the same answers!