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Conception

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See all MNHQ comments on this thread

RESPONSE trial thread

984 replies

Marchgirl · 04/05/2015 19:50

For anyone who had joined or is thinking of joining the RESPONSE medical trial for recurrent miscarriage

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clairemorgan81 · 13/06/2015 13:28

I've my fingers well and truly crossed for you March. why can't things just be easy for you.
what's your plan then- do you have to notify anyone?

nothing here just red/brown spotting x

Marchgirl · 13/06/2015 12:53

Line was a bit darker this morning claire (still ridiculously faint but at least visible to another human today) so I've started on the pred and upped the progesterone. More bleeding this morning though. So got my lucky socks on and everything is crossed. Just have to wait and see. Anything for you (or af?)

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Cowgirl0802 · 13/06/2015 12:30

I am 5 weeks so only early. Got the first scan next Friday just taking everyday as it comes. I have had the worst lower back pain ever though but everything else seems good x

Indiedog · 13/06/2015 11:15

Ah cowgirl, it is a funny of world, how things happen. Feb is obviously a good month for you.
How far along are you? Did you say you were randomised a week or so ago?

Cowgirl0802 · 13/06/2015 10:35

Thanks choccy I guess my son keeps me strong. I have always taught him to never give up so I guess I need to do the same. He really was a blessing he was born on the same day as me and my husband (8th feb) just hoping for another miracle as this pregnacy would also be due in feb. Smile

clairemorgan81 · 13/06/2015 08:35

how was test this morning March x

Choccywoccydodah · 12/06/2015 19:06

March so sorry you're red spotting (I'll say a quiet yay for now). Fingers tightly crossed for you. Prof brosens is lovely, I saw him after number 6 and offered nk test. He also did my 8 week scan on this one Smile

Cowgirl so sorry you're here, and for all your losses. Really really hope this is it for you!!! I've had 8 consecutive losses and that was a total head fuck, I gave up until I was told about the trial and had one last go (21 weeks tomorrow!!), you must have been extremely strong to get here!!

Claire still hope for you my lovely!

Joy so pleased you've got here. The 'time' is such a scary thing. Praying all ok in there. I assume you'll get extra scans with twins?

What's your weekend plans??
Lazy one here, haven't seen ds all week!! Only in the evenings.
Had a massage this afternoon however and fell asleep on the table!! Blush

clairemorgan81 · 12/06/2015 18:12

yeah they have to be done day 21 so that stupid doctor wasted your time I think. what a cheek.
I have asked again so hopefully they will to shut me up. I'm sure something causing it, surely if hormone related after m/c it would be gone by now as last m/c was end of Dec x

Cowgirl0802 · 12/06/2015 18:09

Thanks. I don't mind the injections I am used to them as had heperin injections in the past just to see if it would help but never did.

Marchgirl · 12/06/2015 17:56

You're right, I think it can be linked to mid cycle spotting. I had them tested by my gp but she was just humouring me, as I came to her in tears 5 days after last mc. She just did the test that day, which was totally pointless, even though I said shouldn't it be day 21. She was just trying to make me feel better I think. Came back normal

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clairemorgan81 · 12/06/2015 16:57

have any of you had progesterone levels checked? I have mentioned it before but my doctor doesn't think it's necessary as I'm ovulating. I've asked again as sure it can be linked with spotting and I am pig sick of it now x

Marchgirl · 12/06/2015 16:25

Welcome cowgirl. Gosh. What an awful time you've had. I really hope you are on the drug and this one works out for you. I think from memory that choccy has had a lot of losses as well and is now well along.
How are you finding the injections?

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clairemorgan81 · 12/06/2015 16:01

welcome cowgirl so sorry to hear about all of your losses. i really hope this trial is successful for you. congratulations on your pregnancy how Many weeks are you?x

Cowgirl0802 · 12/06/2015 13:55

Hi everyone I have been reading everyone's posts. I can't seem to find another other posts about the trial. I got radamised last week and have started the injections. I think this is my last hope. I tried everything else that I can. This is my 16th pregnancy and I have 1 precious 7year old son who is truly a blessing. I am based at St James in Leeds ??

clairemorgan81 · 12/06/2015 12:53

Ahh that's shit. my consultant is terrible and slow and you just cannot speak to her but once you do she's lovely. Yes email prof see what they say and tell dh so he's in the know.
there's still hope xx

Marchgirl · 12/06/2015 11:46

She is shit. Last time i rang her three times in a week to tell her about the pregnancy, let her know I thought i was mcing and to ask advice about whether to stop the medication. It took her a month to get back to me.
This time, my gp sent a letter last week on Monday asking her opinion on prescribing pred, and followed up with an email this monday. Still no reply. So she's actually the last person I'd contact!
I might email prof brosens at the Coventry clinic. He is a lot more caring!

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clairemorgan81 · 12/06/2015 11:19

is it worth speaking to your m/c consultant? x

Marchgirl · 12/06/2015 11:17

Sorry about bfn and brown spotting Sad. Still keeping fingers crossed for you x

It's enough to mark a pad and seems fairly steady. If it's darker then I'll start taking the steroids tomorrow and might increase the progesterone to see if that helps the bleeding. Not told dh yet Hmm

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clairemorgan81 · 12/06/2015 10:27

silly me March course I know your not on trial. I'm at work so not reading properly.
damn I'm so frustrated for you. so if darker line tomorrow what will you do and what will that mean? sorry I'm not clued up on it.
I'm so sorry your bleeding. is there quite a bit?

I'm ok brown and bfn but not surprised x

Marchgirl · 12/06/2015 10:22

Sorry claire, I've been very me me me this morning. How did you get on today?

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Marchgirl · 12/06/2015 10:05

No, I'm off the trial for this one because of the high nk cells diagnosis, so I'm a bit of a fraud being on this thread still!! But to be honest, even if I was on the trial i think I'd be holding off, as you only get one shot and it looks like this one can't be helped. I'll test again tomorrow and if it's darker I'll start my meds. Just a bit Confused and Sad about it all

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clairemorgan81 · 12/06/2015 09:53

Ahh March I hope your okay. have you called trial team?x

Marchgirl · 12/06/2015 09:49

11 kaz. There is quite a lot of very red blood and it's gone on for 4 days so i really don't think it's a sticky one

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Kazz2112 · 12/06/2015 09:42

Fingers crossed for you March. What dpo are you?

clairemorgan81 · 12/06/2015 09:05

wow that's great March,!!Ahh you don't know that March it could very well be implantation bleeding!x