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Conception

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See all MNHQ comments on this thread

RESPONSE trial thread

984 replies

Marchgirl · 04/05/2015 19:50

For anyone who had joined or is thinking of joining the RESPONSE medical trial for recurrent miscarriage

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Kazz2112 · 16/06/2015 19:24

Hope you've been ok today girlie and have done something to take your mind off scan day.

I'm totally confused now as to what I should be doing when. Af arrived last Monday morning but the pains started Sunday afternoon so wondering if I should count that as cd1? Either way I'm either cd 9 or 10 now and I wanted to try to do the SMEP this month but I'm that case should've started ttc yesterday! Aaarrrghh!

Then I'm not sure when to start opking again. I was cd 16 last month so I may start on Thursday! Why can't this be easy?!!!

Marchgirl · 16/06/2015 08:54

Big hugs for today girlie. I found scan day really hard for the ones that I was booked in for x

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girliesaints · 15/06/2015 20:16

Hi all. Been away for a few days but have had my Pom pom out cheering from the sidelines.

March, massive hugs lovely lady x

Size, don't panic, I'm sure you will bond with your baby when they arrive, however if you are worried, I would mention it to mw at next appointment to see if they can provide any additional support.

Cow, welcome and hope you're finding the injections ok.

Tomorrow should have been 12 wk scan, instead looking forward (!) to next appointment at rmc next week. Grgh!

sizethree · 15/06/2015 17:27

Thanks girls. Sorry I didn't mean to be quite so ranty! Hope I don't come across as too aggressive. Quite the opposite really.
It's comforting to hear you understand too. I feel like a freak a lot as I hsve s few friends having very normal (and unexpected - grrrrrr!) pregnancies and I can't bare to see them as I don't want to eirry further by comparing.
It just seems like there's always something new to worry about.
I'm akready feeling a it sad that I don't think k could cope with anther oregnancy ever if this goes wrong. Or even if this does go well, it's very unlikely I'll cope with having a brother or sister for this baby.
It's just such a tough journey. I've said it before and I'll say it again, these lucky women who sail through pregnancies without a care in the world do not know just how fortunate they are. My one wish in the world would be to be one of them.

clairemorgan81 · 15/06/2015 17:19

I really feel for you size. I hope you can at some point relax a teeny bit and enjoy your pregnancy. I first felt my ds move the week of the scan but it's so irregular and for a few weeks I used to worry about it all the time. big hugs.
philippa it's so understandable it a such a scary time for you all x

philippa88 · 15/06/2015 16:40

Hi sizethree.. I totally know how you feel and I'm only 8+2! I feel quite unattached too which I know is different being much earlier than you, but it doesn't feel like this is happening to me. We have a scan at the hosp on Thursday and I'm already convinced it won't have grown or something. I just can't imagine a baby even entering our lives. This in turn makes me feel so guilt as I should be overjoyed!! I dare say after your 20 week you'll be reassured, but I don't think you'll stop worrying. All we can do is try and distract ourselves and let time pass as quick as it can. Hugs xx

sizethree · 15/06/2015 13:58

March I know who you mean and dislike her with avengance.
I had the misfortune to meet her earlier in the year at my first Recurrent Miscarriage Clinic. She was awful and was very dismissive of the Response trial. I was already about 8 weeks pregnant and she insisted on taking my bloods again for the recurrent miscarriage tests (eventhough I'd had them done recently and had explained that) and then put the massive stresses into me by mentioning my last loads had a chromosome 16 disorder and it's likely my DH and /or I were carriers, possibly affecting future pregnancies. I left in tears avd when my husband called her 3 times over the following week to find out more info (he'd missed my appointment) she never ever returned his calls nor have we received a follow up letter explaining that actually our full genetic karyotyping analysis turned out just perfect. Witst bedside manner ever and startlingly lazy when it comes to any patient care contact. I'm so sorry you have to deal with her too. You'd think there's nothing that could make recurrent miscarriage worse, but she sure does. What a Bint.
Sorry for the rant but I feel your frustration!
Would you be able to take part in the next stage of the Response trial? They are loosening the criteria and honestly it's the best medical care I've ever had. Like chalk and cheese from bitchface.
Anyway, thanks ladies. I just feel like a big drama queen. I ain't know what it is. I'm just so unable to see past losing this baby and I'm terrified. I opted out of the screening tests at my 12 week scan as I'd decided i wouldn't TFMR and would obsess about the statistic given. So I have no idea what's going on in me.
I've begin to feel a bit of movement but it's do dooradic it makes me worry too.
I thought I didn't want to find out the sex, but wonder if I should as of the scan goes ok then I'm worried about not being able to bond with the baby as I'm in such self protection mode I feel very unattached.
I think as I don't have a child yet, I don't believe that I can carry to full term and have a real live take home baby. All I've ever known is bad news and I just can't let go of the fear.
I'm hopeful that if Thursday goes ok I'll eventually be able to relax a little. It's really exhausting being this wound up all the time avd effects sleep and work and relationships with friends.
I wish I could go to sleep for the next few months and just wake up one day in November with a new born baby in my arms.

clairemorgan81 · 15/06/2015 13:39

what a bloody joke March. how you feeling x

clairemorgan81 · 15/06/2015 13:38

hi size so nice to hear from you. in sorry your still finding the anxiety difficult. totally understandable though. hopefully Thursday will help. Is it just the worry that something is wrong?x

Marchgirl · 15/06/2015 13:37

The fear is completely understandable after what you've been through size. Don't feel silly or bad, it's what we're here for. Hand holding for Thursday. Hopefully after that you will feel able to relax a little bit more. Will you find out the sex?

Unfortunately the consultant has been fecking useless again (i think you have the same one, so you might appreciate the frustration). She's still not replied to the letter and follow up email sent by my gp 2 weeks ago to ask about her opinion on the steroids. She's already told me she doesn't support the protocol so I didn't hold out much hope but not even replying to the gp is just rude! But then, it took her weeks to get back to me last time I was mcing and asked advice, so don't know why I expected any more

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sizethree · 15/06/2015 13:16

Fucks sake March, it's just so inexplicabley unfair. I'm so sorry you're going through this. I really hope you're getting looked after well by your DP and HCP.
Sorry all for being a bit quiet on the thread, I've been reading but not feeling up for contributing.
Still massively anxious but feel silly as I'm having a much easier time of things than many of you. I just wish I could curb this deep down worry that something is wrong.
I have my 20 week scan on Thursday morning and can barely function this week for fear.
I hope I'm not being insensitive, I know I'm very fortunate to have reached this far in pregnancy, but the same fears I had in early pregnancy are still very much with me.

philippa88 · 15/06/2015 10:01

So sorry to hear this march, thinking of you xx

clairemorgan81 · 15/06/2015 09:26

I'm so very sorry March how disappointing and harsh. Hope your being looked after big big hugs x

Marchgirl · 15/06/2015 08:58

Miscarriage no 5 (chemical). Test virtually blank this morning and started bleeding in earnest. Meds stopped now so just waiting for the horrendous hormone crash Sad

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clairemorgan81 · 15/06/2015 08:37

How's bleeding/have you tested again march?
still spotting and bfn for me af due tomorrow or wed x

Choccywoccydodah · 15/06/2015 08:18

How's things this morning March?
Claire any change?

Kazz2112 · 14/06/2015 12:18

Oh March that sounds so frustrating. I obviously didn't mean you too. I hope you get a clear answer soon one way or the other and obviously really hopeople that it's good news. Hang in there!

I often find it depends on the announcer how it effects me. 2 colleagues got pregnant just after my first mc. One in a loving relationship after being with an awful bloke for a few years and I was over the moon for her. The other - a girl who had gotten pregnant to 'heal' her relationship with her husband after she'd been caught cheating. It just feels so unfair!

clairemorgan81 · 14/06/2015 09:11

Oh March you never know, I'm sorry your going through this it must be awful for you x

Marchgirl · 14/06/2015 09:00

Thanks claire, i know you didn't mean me, but i also know it still bloody hurts, even if it's someone you are happy for. Anyway, it's looking like I might be joining you again next month. Line is no darker this morning, possibly even a bit fainter. I think it'll be away by tomorrow.

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clairemorgan81 · 13/06/2015 20:36

oh I did not mean you March, not for a minute. I'm honestly so pleased for you ladies on here. yous deserve it more than anyone.
pleased bleeding has tailed off a bit, there's a good chance its implantation so take it easy and let's keep our fingers/toes/everything crossed its a sticky one xx

Marchgirl · 13/06/2015 19:20

I'm sorry claire, I know how hard it is to hear Sad.
Bleeding had tailed off a bit so going to try and stay positive. Doing everything I can so just got to hope now.

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clairemorgan81 · 13/06/2015 19:05

it's so hard when people announce their pregnancies kazz , I hate how it makes me feel. Hope your okay.

I'm with you March, ttc is a right head f* I'm on a right downer with it all. I'm so fed up.
I really feel for you, hows bleeding?x

Kazz2112 · 13/06/2015 17:32

Got another 6 days before I start opk testing again I think. If it's the same as last month smiley time is a week on Tuesday. Hope it's not late because DH is going away the weekend after (so am I but he's going abroad so that's the bigger problem!)

I think that'll be the weekend the baby bomb will be dropped if he's right

Marchgirl · 13/06/2015 16:39

Sorry nothing is happening for you today claire Sad. And sorry about the potential baby bomb kazz. Hopefully next cycle will be the one for you both. This ttc thing is just crap. I hate it! A world away from how dd happened. Feel so lucky but a bit guilty that I had such a naïve pg with her.

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Kazz2112 · 13/06/2015 15:59

Finfers crossed for the lucky socks March.

Me and DH have just met up with his best friend to watch a cricket match. Don't think he expected me to be here and there was a bit of a strange conversation about where his wife is. DH reckons he has a baby bomb to drop on us. :( honestly not sure how id deal with that atm. They already have 2 girls. Selfish of me but its so unfair

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