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Original poster

RESPONSE trial thread

984 replies

Marchgirl · 04/05/2015 19:50

For anyone who had joined or is thinking of joining the RESPONSE medical trial for recurrent miscarriage

OP posts:
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17
LouiseM1987 · 28/05/2015 14:48

March yes I do have acupuncture I'll mention it to her next time I go. Joy I had tiredness up until 2 weeks ago and I've now got no symptoms I'd give anything for my tiredness to come back just so I can sleep ! Kazz I'm going to look in to it tonight thank you. Also going to buy that pillow spray later. Xx

Kazz2112 · 28/05/2015 14:45

I started to see a hypnotherapist after my third miscarriage to get over a blood test phobia. It's really helped and I still use her cd to listen to now. It sends me to sleep in minutes and helps with any anxiety. Something similar would help. Hers is on Sound cloud which you can download on your phone.

clairemorgan81 · 28/05/2015 14:02

March what kind of acupuncture do you have?x

Joy2713 · 28/05/2015 13:07

I always have trouble sleeping (up until I feel pregnant and now by 9pm every night I'm out if it) sounds easy but just concentrating on taking deep breaths really helps me, as i stop thinking, and my nan always used to say starting from the toes up do like relaxation techniques, whether this helps I don't really know! Glad everything is alright otherwise though.

Good Luck for tomorrow Girlie, got everything crossed for you xx

Original poster
Marchgirl · 28/05/2015 12:21

Do you do acupuncture louise? There are points they use that can help sleep, and also with anxiety etc, which might indirectly help. Along a similar theme, have you tried the headspace app? They have a free download of 10 x 10 minute meditation sessions that I found useful. To join fully is a bit pricey but these are free and you can just use them over and over again

My only other suggestion would be to do some physical activity if you're able (even just walking). I often find i am mentally exhausted so feel incredibly tired but not physically tired enough to sleep. I feel for you. Everything seems so much worse when you're tired x

OP posts:
LouiseM1987 · 28/05/2015 11:10

Hi ladies I'm not sure if anyone can help but thought I'd just ask... I'm having really bad difficulty sleeping at the minute because my brain is constantly on. I'm exhausted to the point in at work now and on the verge of tears because I desperately want to sleep ! Can anyone recommend anything that actually works ? I'm tempted t go to boots to buy a pillow spray that's £16 (as its he only one that says safe during pregnancy) I've been having bad pains so the lovely trial nurse got me a scan yesterday and everything is fine which I thought would help me sleep but it didn't ! I'm so tired I'm ready to have a hissy fit/crying fit/melt down hope everyone else is ok ! Xx

girliesaints · 27/05/2015 19:03

Amazing Choccy. Enjoy every moment x

Scan isn't until Friday this week, thanks for asking x

clairemorgan81 · 27/05/2015 17:27

how wonderful choccy feeling baby. best feeling in the world xx

Choccywoccydodah · 27/05/2015 16:55

Just nipped on, JOY JOY JOY! Double congrats to you!! Amazing news!! So so happy for you!

Girlie, have you had a scan today or have I missed that?

Indie fabulous you're off the jabs now! Enjoy your hol and telling everyone!

Welcome sushi, so sorry you're here :( I'm down the road from you too in a town beginning R :)
I think amazing things about cov, D and L are amazing and I truly believe like Louise I have the drug. After 8 consecutive early losses it's too much of a coincidence. 18+4 today and I felt a proper kick 2 days ago, not just the butterflies. I was in bits as never ever thought I'd feel that again x

Original poster
Marchgirl · 27/05/2015 06:18

Welcome sushi, hope you find lots of support here as you go through your next pg. It's a great group. I'm dying to know who is on the drug! As you probably already read if you've read back, I'm now off the trial as I've had results back from nk cells testing which show i need treatment (not compatible with the trial), but this group are such a lovely bunch that I'm hanging around (plus if the treatment doesn't work I'll go back to the trial). Best of luck. Hope you're getting good support IRL for your most recent loss Flowers

OP posts:
Indiedog · 26/05/2015 22:53

Hi Suzy, welcome to the thread, but sorry I've had to find yourself here.
It's been a great place for support, to sound off, and quiz others what's going on!
It has helped me realise that I'm not a wally for feeling all over the place, and that my anxieties change as times goes on!

I took my last injection yesterday! So today is my first day without one! Its been on my mind, but as I have always said, I take it in stages, so this week is day by day.

Indiedog · 26/05/2015 22:45

Oh joy, that's amazing news. Congratulations. You must be on cloud nine!

SushieS · 26/05/2015 21:57

Haha! I'm never there the time I'm meant to be either! Thank god she's so chilled.
Thanks for the tip, I'm hoping the acupuncture has prepared me for the injections!! Xx

LouiseM1987 · 26/05/2015 21:23

Ah suzy how spooky yes I was running late for my first session 4 weeks ago ha. I'm always late. She's lovely too. :) small world ! Yes I'm there tomorrow no doubt I'll be late again again ! The only thing I get with the injections is a pain when I inject but I think it's because it's so cold so I leave it out for 15 minutes before I do it now and it's absolutely fine.
The support is amazing ! And all the women in Coventry are lovely and really wish successful pregnancies for us all I think they suffer with all the pain and anxiety we have. Xx

SushieS · 26/05/2015 21:07

Thanks Girlie and Claire.
Really hope everything stays positive for you Girlie...totally agree about the support though, one phone call with Debbie today helped ease all the heartache and frustration I've experienced over the last 3 years. It's great to know there are people out there that want to help.xx

SushieS · 26/05/2015 21:01

Hi Philippa and Louise, thanks for the welcomes Smile
It's great to know that this trial is working for you.
I bizarrely feel a lot more positive for coming on to the discussion and considering joining the trial...finally feel I'm giving the useless doctors at my surgery a big twos up!!
Louise, I think I have spoken with Sharon about you as told her about the trial and she mentioned someone joining new that was on it...Just wish I'd joined when I had the call back...oh well. Were you running late on your first session? If so I was there with needles in my ears, forehead, back, feet and top of head!!! Shock I'm going tomorrow too as I do think it helps stay positive.

Has anyone experienced any side affects?
Suzy xx

clairemorgan81 · 26/05/2015 20:56

welcome sushie sorry you find yourself here. I'm currently ttc after 3 miscarriages last year the last one being end of Dec. support is great and we all know what a tough time it is, lots of positivity with ladies being pregnant. for me the extra scans and support is why I think it's worthwhile. Hope you join up and get your bfp whenever your ready xx

girliesaints · 26/05/2015 20:45

Welcome Sushi. I would echo positive words of the other ladies but also to add in my case it's looking like it won't end in a successful pregnancy however the additional support I've had and hopefully continue with afterwards, means it's been worth it for me.

LouiseM1987 · 26/05/2015 20:31

Hi sushie Sorry you are here :(
I'm currently just over 8 weeks (I'm not day counting as I don't want to think about it too much) but I'll be 9 weeks on Thursday according to the trial.
I'm from Coventry so I Know D and L and can honestly say they are the best !!
I would recommend the trial personally as like Philippa said I believe the the injections are what has made me stay pregnant. I've got to 10 weeks before but it died at 6 weeks and last week I measured a few days behind so I am further than I ever have been. I am also having acupuncture in leamington on a Wednesday evening :)

philippa88 · 26/05/2015 20:06

Welcome sushie!! Sorry to hear you're joining us for all the wrong reasons :(
There's loads of support on this thread and all us girls know how difficult ttc and pregnancy can be.
I'm currently 5+3 on the trial and the furthest I've ever got is 5+4, so once tmrw is over I will breathe a sigh of relief!! The injections are what I believe are keeping me pregnany, all the previous 4 seem to have been very weak, but this one is quite the opposite!
Joy I love that scan photo, you're one lucky lady! Xx

SushieS · 26/05/2015 19:52

Hello all... Just been reading through this discussion as considering starting the trial on Monday. Currently on my 5th miscarriage, (happened Monday after seeing a heartbeat at approx 9 weeks) am 37 and live in Leamington. I joined up previously but was 3 weeks pregnant when I got the call back and had started acupuncture so thought I would give that a try instead.
I've never posted on a discussion, always watched from afar...but after speaking to Debbie at Coventry hospital (she's lovely) and reading all the positive comments on here I thought it would be good to get your feedback and comments on the trial. As I said, I've never posted, so apologies if waffling or if I've said too much, also have no clue on all the pregnancy abbreviations, so please bare with me!! xx

girliesaints · 26/05/2015 18:54

Joy, something must be in the waters down Southampton way! Amazing news x

LouiseM1987 · 26/05/2015 18:29

Congratulations joy ! What a lovely exciting surprise xxx

Joy2713 · 26/05/2015 18:14

My cousin has twins and so does oh cousin so im guessing so! Im still in shock...

RESPONSE trial thread
clairemorgan81 · 26/05/2015 17:43

ahh how lovely joy thats great! twins are the bestest (I'm oneSmile )x

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