Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

Hi freelance. I am the snoopy from a few months ago. I hoped I would be coming back with a success story but it wasn't to be. I'm rubbish at keeping up with threads, what with wirking shifts and all.

Thank you all for your kind words.

hope when did you start treatment if you don't mind me asking.

It makes me so happy to see so many of you with success stories. Is everyone under Dr s or did anyone go to Coventry? I understand there are slight differences in the regimen

I know Hope.. Feeling lucky now! He's home with the box of delights now, what a star. Seemed to even enjoy the trip, spotting bunnies running round the car park! Xx

That is good news Rosa. Phew! Xx

Just reading back, and saw your post snoopy. You are going through something horrible at the moment but you will come out the other side, and have your baby. I had three miscarriages in a row before my son, and then four more in a row, including two a month apart, before this pregnancy. I have spent a lot of time feeling pretty damn miserable over the last few years so I know what it's like to feel really bleak. I feel like I'm coming out of that time now though and getting back to the person I was before RM struck, and I really think it will be the same for you too. Your happy ending will come. Have a big hug and don't give up, xxxx

Thanks Trying .. And Hope .. Really sweet of you. I'm just off the phone to the Royal infirmary. They very kindly said they would give me a box of 15 to see me through .. My lovely DH is going to drive there now ..maybe I would be fine but Mr S had seen the source for my 5 week bleed and was why told me to stay on 2x day otherwise would have reduced to 1x. Don't need another reason to worry!
Hi to Free too - I was wondering if you're still there, if you ever produced the film you were making? I often think how powerful and amazingly helpful it would be to capture some of our collective experiences for those that follow.. X

P.s. Thinking of you trying. I hear so many positive IVF stories all of the time and I so hope, and think, this will be your time. Sending lots of hugs, xx

Hi Rosa, I have some left that you can have. Only trouble is that I'm in Gifford, East Lothian, so a fairly massive drive at this time of night. What about 24 hour pharmacy? Sure tomoz morning will be fine though, xxx

A big list that is. And sorry for multiple typos.

Just saw tbe threed on active convos so thought I would say hello. So pleased to see its still going and there are more pregnancies on here! We used to have a big just of all the people who have had babies on the treatment on the thread but it's long gone. There are scores and scores of us though. The thing is very few of us need to be here once we have had a baby and are of course rather busy...

I would say to Snoopy (we used to have another Snoopy ages ago and I often wonder how she is - would love to hear if you're ever lurking snoopy!) and others going through worrying times is that I have the utmost faith in Mr S treatment. I was diagnosed with some of the highest nkc levels they see in the clinic and on the treatment I've been able to have not one but two Pred thread babies at age 37 and 40. You really can get there. Too busy to lurk much but much love to all of you xx

Don't worry rosa, just get it first this tmrw am! If u lived closer I'd come give u mine!! Ur placenta will be making enough after 9 weeks and it's only a few hrs, deep breath and don't panic.

I've spent a small fortune on acupuncture in the last 8 months but I love it, it clears my head, helps me relax and I have faith that it's doing me some good both physically and mentally. Next scan is Thursday evening , feels so long away!

Eek.. Just realised Boots didn't put more cyclogest in my order and totally out :( I meant to take every night and morning. If can get more tomorrow do you think will be ok - or any other ideas at this late hour??!

just realised I'm to totally out of cyclogest and meant to take every night and morning ... Do you think I will be ok without one dose tonight if can pick up more tomorrow??

• sad news (not dad news). Really sorry - will start checking before I post!

Trying - think you meant 'Snoopy' not 'Seeking'- though pretty sure everyone will know that so sorry for picking you up ;) Hope side-effects ease off- nausea is tough. I'm loving ice in drinks, cool melon and sorbet right now for all that. Sadly also have a biscuit boost addiction- 2 a day and have to stop myself having more!
Snoopy - really sorry to hear your dad news, and also what you're going through. My third hit me hardest too.. You think 'third time lucky' and surely this is it.. Every time. It does souvd like you really need the treatment though and it wouldn't hurt to find a way to take things easier too so you can look after yourself too. I know it's hard to look after yourself in some jobs but you just have to- some of us, me included, learn the hard way.
If you scroll back to last page I think you'll see our histories .. I'm pretty similar to you with number and type of loss and also results from Mr S.. But please don't think you left it too late.. I'm 10 years older so you can imagine how often I've wished we'd been younger too - but we only met 6 years ago and been trying over 4 - but critically there's nothing at all you can do about the past - but loads you can do to be happy and give yourself an excellent chance of a family in the future. Listen to everyone here, but also Mr S who famously doesn't give false hope. Take care for now and don't go near work until you're ready.
Hula- sorry just realised didn't reply to your q about gender. I always think I will have a boy but be delighted with either... We eill find out in 2 weeks. Think will tell family etc after that if Harmony results ok (pleeeeease!) x

Ur still in the midst of it. That's when it's the hardest...so so hard. take ur time to come out of this haze, and hope will be there again....

Thanks trying. I think I just freaked myself out reading about balanced translocation. I know that even if that was the problem most people will still have a healthy child if they just keep trying,

I don't know why I'm so doom and gloom when there are so many success stories. DH wouldn't let me give up if I wanted to, I'm just scared of more pain.

Hi seeking-thank God for acunpuncture. I don't know if it does anything for me except calm me the hell down and make me see my future positively. I hope urs does the same and keeps that bean strongly in there. When is ur next scan?

Seeking so sorry ur on here again, I do rem when u were on here last and have wondered how u were doing. Please try not to loose faith, Mr Shehata has worked wonders with so many on here and hopefully he will with u soon too. U just need the strength to keep going. At ur Rmc clinic they will test for translocation on the nhs (well they did at mine). Even if u have one u are entitied to one plus ivf cycle on the nhs. Regardless, it's rare and its hopefully ur thyroid and nk cells that need dealing with and mr SHehata will tweak his programme for u. Sorry u find ursrlf here again . As for work, just do what feels right. I regret being guilt tripped to go back too, all that happened was I got cross at myself struggled at work and people noted I wasn't mysrlf and gossip began. This time, I come first. So do whatever feels right for u. (Although I know that's harder said than done, my DH is on strict instructions when I get a bfp to be in charge of me going into work! As I seem incapable of calling in sick!)
rosa, book a scan so u can have a few mins peace next week
Happy bank holiday.
I'm feeling sick again from my increased metformin dose! .

Thanks Rosa and Trying. I know the stats and there isn't any pain, but the fear is there and I don't think that'll ever cease! I've got acupuncture in half hour so I'm hoping she can work some magic.
I'm willing you all the luck in the world too rosa, you're so close. Don't lose your positivity.

snoopy - I'm so sorry you're here. It's a shit place to find yourself. BUT we all know exactly how you feel and although this time hasn't worked out, I'm sure Dr S has you on the right plan for the future. I know right now it's so raw and painful but the odds are in your favour. You WILL have a baby. You just have to find the strength to continue. And that's what here for . I only joined a few weeks ago but the ladies have been amazingly supportive.
Sending you big hugs.

Hello everyone, I've posted here before but unfortunately I'm back. I don't know if I'll be able to keep up with you chatty lot or if I'm currently in the right frame of mind to reciprocate the amazing support you guys offer here but I need your help.

I'm 29 and I'm going through my third miscarriage in six months.

My first was a mmc at 11 weeks in December 14. The second was at five weeks in February. This one got to six and a half weeks before I had brown spotting which is now bleeding and HCG level falling.

A GP has now referred me to rmc clinic so I'm waiting for that.

I had a feeling something wasn't right after the second mc so I paid to see Dr Shehata privately. He diagnosed NK cells and recommended steroids, intralipids, aspirin and cyclogest. Unfortunately I was already pregnant for the third time so didn't start the steroids until 4+4 and this is how its ended.

My maternal health history isn't great auto immune wise. Between mum, aunties and grandma they have psoriatic arthritis, Addison's disease, fatal childhood leukaemia and sarcoidosis.

I have been diagnosed hypothyroid, although it apparently isn't auto immune and is well managed.

I just feel lost. When I look at my future I don't see anything. I regret not trying for kids sooner and I'm petrified that I'm never going to have children.

DH is trying to be positive, we can get pregnant which is a huge hurdle for so many but how many times can we go through this. What if I have a balanced translocation, I can't afford Ivf.

I feel as though my whole life has been devastated. I'm a police officer on a response team answering 999 calls. After the last two times I was railroaded into going back to work when I didn't feel ready because we're so short staffed. but I'm putting my foot down this time and calling OH. I don't think I can go back. I feel like enough of a failure personally without having to deal with all that. The doctor in a and e couldn't believe I was still working shifts.

Anyway I've waffled enough, I just needed to write some of it down.

Please tell me I can have a baby.

Oh dear - my grammar and use of bold in both posts is a mess.. Sorry

meant - googled your situ to* death!

Trying - I know, and thanks- I've years of pent up excitement to release if I ever lose the fear!
Seeking - it's likely ok. I've googled your situ death before having been there and you can find good and bad stories.. But seems bottom line worth remembering is, after you've seen a heartbeat it's always way more likely things will work out, and of you're not seeing fresh blood and experiencing painful cramps you're not miscarrying. Missed miscarriages are the evil silent type I fear having had two .. But you're being closely monitored so just keep positive, drink lots of water and we will all will a good outcome. I've stressed today as preg symptoms disappeared again, totally. I don't have my next scan until 5/6 at the moment which is 2 weeks today.. Long wait for me! Might try get one end of next week for sanity. X

Sorry for the brown seeking, constant worry. Could they see the source of the brown? When is ur scan? It's prob just old blood ESP as ur on the clexane and asprin. Hope ur ok, have u moved home yet?
I'm waiting for my injection teach!

Sorry your cytokines haven't gone in the way you wanted Hula, but as the ladies have said it can happen either way - Rosa is proof of that!!

I've got a bit of brown gunk again today - do you reckon the internal scan could have dislodged old blood?? It's not dark, or particularly heavy just brown tinged. Sorry I know that's TMI! It's never bloody ending this stress!

I hope you're dream is a sign of things to come Trying! A good omen!!