Active discussions

Help protect children from gaming harms.

Take our survey

Please or to access all these features

Talk
Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

Original poster

Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

991 replies

sunnyday01 · 06/02/2015 20:10

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

OP posts:
Drttc · 07/03/2015 10:47

Okay let's add ages :) anyone who would like to include their age (or be added to the list), just copy and paste this list with your info!

List

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday - high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 - 3 mc. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells.

Hula2- one DS (took 18mns with low amh but no other probs), one MC, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Hopender · 07/03/2015 10:24

Thanks Drttc! We should maybe add ages too. I'm 38. My experience has been that if you keep at it, then it does usually work out in the end. Beyond bloody hard though!

Drttc · 07/03/2015 09:03

Amazing!! Hi ladies :)

New list!

2nd trimester

Hopender- 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday - high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 - 3 mc. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells.

Hula2- one DS (took 18mns with low amh but no other probs), one MC, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

WTTC
Drttc- awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Hopender · 07/03/2015 07:09

Add me too! I joined at the same time as most of these ladies!

Second trimester - 7 miscarriages, one DS, expecting second! Dr S said I had high gliadin antibodies. Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin!

Thanks hula! I'm 20 weeks now. The fear doesn't completely go away but I'm feeling much more hopeful! I'm still following everyone's progress and know there will be more bfps soon! Lots of love to you all!

Tryingno1 · 07/03/2015 00:45

Sorry last one 6.5 weeks!

Tryingno1 · 07/03/2015 00:44

Hey guys!
Add me!

Trying - 3 mc. 5.5 weeks, 9 weeks, 5 weeks. High nk cells.. Ttc

Hula2 · 06/03/2015 23:09

Hi DrTtc,

You can add me !

TTC - one DS (took 18mns with low amh but no other probs), one MC, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

Hi everyone else and Hope hows it going ? You must be well into 2nd tri.

I m on day 1 and praying for a more sensible cycle this month.

Drttc · 06/03/2015 21:50

Great! We can wait for the retest as that'll be more up to date :)

List:

TTC
Sunnyday - high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

WTTC
Drttc- awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Determined123 · 06/03/2015 21:36

Oh yes please...thanks for sorting!! Put my original results/diagnosis if you need it?!

WTTC-awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.
;)

Drttc · 06/03/2015 21:31

Cheers sunny!

Thanks determined! Want to join the list? Oh good luck to you! Will keep an eye out for your results.

Determined123 · 06/03/2015 21:20

Welcome Drttc, sorry to hear about your loses but you have found the right man to help you ;)

I should be getting my second round of tests next week too! Fingers crossed for the 16th for you!

X

Original poster
sunnyday01 · 06/03/2015 21:12

TTC
Sunnyday - high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

WTTC
Drttc- awaiting Dr S results, 3 MCS

OP posts:
Drttc · 06/03/2015 20:31

Thanks hope and sunny :)

Ah so I guess it can go either way depending on my results... Really hope I can start this month :(

Well if we'd like to get a list going I'm happy to start? I'd be in the waiting TTC group!

WTTC
Drttc- awaiting Dr S results, 3 MCS

Above WTTC could be a TTC, followed by the other categories (increasing the further the people are into pregnancy). Will be very cool to see people progress!

Original poster
sunnyday01 · 06/03/2015 20:01

Oh and I think the list like they used to do is a great idea!

OP posts:
Original poster
sunnyday01 · 06/03/2015 20:01

Hi drttcm welcome to the group. I have high nk cells and I have to have intralipids at 4,8,12 and 16 weeks - I think you would need to ask him about going away when you find out your results as it may depend on what he finds as to whether you need to be here or not.

OP posts:
Hopender · 06/03/2015 19:57

Oops meant to actually say something... I had my first intralipids at 7 weeks if that is helpful. Dr S says I have a gluten intolerance that triggers an immune response to pregnancy rather than highNK cells though...

Hopender · 06/03/2015 19:55

Welcome Drttc!

Drttc · 06/03/2015 17:41

How the treatment was working * not worrying lol!!

Drttc · 06/03/2015 17:40

Thanks for the reply trying :)

I've logged in to his website and in the treatment section it says that for normal, borderline and High NK there aren't intralipid at bfp... For high NK there's intralipids at wk 6.

Has that been accurate for you all or did patients get intralipids at bfp regardless of NK level?

I noticed on older threads they use to occasionally posts threaders progress which was so great. So they had a list that would be updated periodically of who was trying, bfp, 1st trimester, 2nd trimester, 3rd trimester, and given birth. It was such a great way to keep track of how the treatment was worrying for current patients!

Tryingno1 · 06/03/2015 16:06

Hi drtcc. Sorry for your losses. Please do join us!

Hmmm I'm not sure as he gives intralipids on a bfp....but he may be ok to delay it to week 5? If u have hugh tnf he will ask u to wait till he brings it down...I hope u do get bfp again quickly! good luck for ur results...

Drttc · 06/03/2015 14:44

Hi all,

Wanted to say hello! I've gone and read through (mostly skimmed) all the threads as it's been so comforting... Wow!

I'm 28 and TTC with my husband after 3 miscarriages. 1st one at 6 weeks, 2nd and 3rd at about 4.5 weeks. I seem to conceive very easily.

I've had tests done with Dr S and will be receiving results on March 16th.

I'm concerned he won't let me try this month because I would be out of the country during the time I would get a bfp... Does anyone know if he would allow me to TTC when I'll be out of the country until week 5? Don't want to wait anymore :(

Original poster
sunnyday01 · 05/03/2015 09:09

Hi Everyone - finally getting the chance to catch up after a super hectic few days at work!

Welcome Lillies - congrats on your bfp. Sorry Hula that this wasn't your month.

Trying - hula ia right its only one scan on SO usually day 10-12 of your cyckle. I think they can work out when you will ovulate based on the size of your follicles or something like that. I think in the early days of SO people used to go for two but im not sure if that still happens.

As for telling people, our parents know and close friends too - as a lot of our friends were having babies, the obvious 'when/will you have kids' kept cropping up so we decided to tell certain close friends - i don't talk about it lots to them, but it really helps me that they know as it avoids the 'why haven't you got kids yet' discussions. Its quite a personal thing though so i can understand why everyone is different on this!

I've got my scan tonight for SO round 1 again after mc in jan - i'm so out of the routine with it all even with just one month off! I'm sure i'll soon get back in the swing of it all. I'm not expecting much to happen in round 1 or 2 but will be interesting to see my response considering i took the drugs for 5 rounds just a few months ago! Wonder if it will still be in my system?

OP posts:
Tryingno1 · 05/03/2015 07:40

Morning lillies! I've just had cycle 8 :( and entering 9. usually gotten preg after 2 then 2 then 5. I'm having acu and still nothing! Hopefully my bfp is around the corner!

Have a good day ladies, I'm still tired from the hen party last week! X

Lilliesandchocolate · 05/03/2015 07:13

Morning! Our parents know and are helpful and supportive but don't think they actually "get" it, they didn't realise how unusual it was to have 5 mc. And I'm the same that I only want to talk about it when I do! When I told my friend of latest bfp I said that know you know, lets forget it but at least you'll know why I'm upset if worse happens.
Yes, it took about 6 cycles to fall pregnant this time, I was getting worried as I've never gone past a 2nd cycle before. Used to fall preg very easily, it was staying so that was the problem. I reintroduced the acupuncture in December, I believe that had something to do with it. I really recommend it, if only for a relaxing time each week to clear your mind.

Right off to sort kids into their book day outfits!

Rosa27 · 04/03/2015 19:49

Ps I'm also terrible at telling people. Even my family don't talk to me about it as keen this doesn't totally define everything in my life. DH and one or two friends, that's it. And you lot .. Agree, a total god send!