Page 30 | Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

sunnyday01 · 2015-02-06T20:10:37+00:00

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc Newcomers very welcome

Tryingno1 · 11/03/2015 13:02

Good luck with ur results! Let us know! Hope ur feeling ok about it
I'm just on af so nothing to report!

Drttc · 10/03/2015 22:02

Hey ladies! Just wishing everyone good luck with wherever they are in their journey :) Just lurking as no news here... Will have results Monday evening I hope!

Tryingno1 · 09/03/2015 22:26

I know! Tell me about things taking forever!
I do say that don't I! I got to be right one month!

Original poster

sunnyday01 · 09/03/2015 22:17

You say that every month trying!! I'm not holding out for this month - would be nice to happen so quickly but I don't think the odds are in my favour!

I feel much better about the results now - even though I've had a mc in the treatment - I know gears wring and feel I'm doing as much as possible to resolve it! You have to test after 10 days in steroids but it seems to take firever!

OP posts:

Tryingno1 · 09/03/2015 20:57

Sunny I was the same! I was totally confused! Oh enjoy urself! I hope u catch this month! I have a feeling u will!

Drttc · 09/03/2015 20:04

Awww no! Hope you're feeling better about the results now.

Eeek! How exciting! Wow next Thursday sounds so close! Definitely going to be living through you for the next couple of weeks :-D

Original poster

sunnyday01 · 09/03/2015 19:24

Not long to wait now - I was really nervous too and convinced myself that they would find nothing so when I was told I had high nk cells I was really upset, I couldn't take all the info in and cried nearly all the way home!

I ovulated yesterday/today so in full swing of DTD at the mo - lol no secrets on here! Started my steroids today too. Will be testing next Thursday!

OP posts:

Drttc · 09/03/2015 16:16

Hi Sunny,

My appointment is on Monday the 16th! Getting a bit nervous... Don't like the unknown!

How are things with you? Are you in tww?

Original poster

sunnyday01 · 09/03/2015 06:20

When is your appt drttc?

OP posts:

Drttc · 08/03/2015 21:49

Lilliesandchocolate, yes I remember your previous names :)! Glad to see you're doing so well!

Interesting about the intralipids possibly being given to everyone now. If I get a bfp next cycle the soonest I'd be able to get to London for intralipids would be at 4 wks + 6 days... Ah waiting for these results has be fixated on TTC!!

Lilliesandchocolate · 08/03/2015 21:22

Hi drttc, thanks, I was inspired by what was then on the kitchen table! If you've been lurking for a very long time then you'll recognise previous user names hopefulfor2nd and hopefulfor3rd.
My levels from my last test were 238 and 1.19 aggressive, I was on high treatment. I had several tests done but only NKC came back as an issue. This was in end of 2011 and I fell pregnant on first attempt and it worked brilliantly. I was tested again last year on wanting to try for a third child and my levels had gone up to 341 and 1.26 aggressive which puts me in complex high treatment. Not sure how high 341 is within that level, I must ask on my next appt. I was very nervous about going up the levels and now needing intripalids but having had one lot I can say it's really simple, just a slight cold sensation. It did leave a bruise on my arm, never had one from giving blood.
I believe that intipalids have been introduced to all/most levels now? Thought I was told that, could be wrong! Don't even know how many levels there is!

Drttc · 08/03/2015 19:31

Hi lilliesandchocolate, love the username! Thanks for the info. What were your test results? And wow congratulations on your pregnancy! Very inspiring :)

Lilliesandchocolate · 08/03/2015 18:55

Hi drttc. I had to have intripalids within a week of my bfp, so will depend on your levels. I remember waiting for results, hoping for answers.
I love getting my acupuncuture, £40 down here but do get half back on insurance. Can't afford weekly though.

Hope everyone's ok, sorry about the bfn rosa xx

Here's the list with me too.,

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
6 weeks - lilliesandchocolate (32) 1 mc, 1dc, 5mc, 2nd dc on pred and cyclogest and the vitamins. Now hoping dc3 happens with pred,cyclogest,intripalids and the vitamins.

TTC
Sunnyday (32 yrs)- high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 (30 yrs old)- 3 mc. Ttc since April 2012. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells. Pred and intralipds.

Hula2 (39 years) - one DS (took 18mns with low amh but no other probs), one MC at 9wks, ttc no 2 19 mns (12mns since last mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids) about to do Humira for cytokines.

Rosa (38 nearly 39yrs) - 3 MMC (11.5, 6.5, 7.5). 6 months ttc on treatment. On complex programme for high NK, cytokines and thyroid antibodies (hydroxy, pred, intralipids)- had allergy to Humira. Also on SO programme.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Drttc · 08/03/2015 15:21

Thanks for the explanation sunnyday01. Sorry about your mc :( Fingerscrossed for you next cycle. I agree that it must be reassuring to know eggs are there waiting!

Original poster

sunnyday01 · 08/03/2015 14:56

SO is basically assisted ovulation - DR S doesn't use clomid as he doesn't like the side effects so uses a drug calked letrazole instead. The likelihood if multiple births is very small on SO.

I've been doing SO since seeing dr S - he usually says round 4-6 are the months when it is most likely to happen, and if it doesn't happen in 6 months then it is unlikely to happen for you on SO. I fell pregnant on round 5 but had a miscarriage. I'm now back on it and hoping we are successful again.

It's quite a bit if effort (and money) as you have to go for a scan, you get told when to DTD and then you have to do an injection to trigger ovulation. However I like the certainty it gives me that I know I have egg(eggs) each month and the day I'm ovulating. I asked dr s if there was anything I could do to speed it up as was nearly a year without a pregnancy when I saw him and he suggested SO. I also think it would be worth doing before ivf - but I'm no expert!

OP posts:

Tryingno1 · 08/03/2015 13:43

Sorry about ur bfn rosa. Hope ur not too gutted, rem it takes a few goes to work out best dose etc. fingers crossed for u soon xxx

Drttc · 08/03/2015 11:47

Hi Rosa! Thanks :) Good luck to you as well! I'd love to try acupuncture but assume it can get quite expensive...

Trying, why are you not keen on SO? I know absolutely nothing about it... Is it clomid?

The other day I thought to myself 'how cool would it be to try clomid and become pregnant with twins!' Of course that's silly and I'm sure it's not as simple as that... But having multiples would be great after all the heartbreak!

Rosa27 · 08/03/2015 10:23

Welcome drttc - hope this new chapter brings you luck. Hope- brilliant all still going well :) Hi everyone else. I had my first bfn on SO and been waking really hot during night. Starting accu again so here's to a new month.

Here's the list with me too.,

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday (32 yrs)- high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 (30 yrs old)- 3 mc. Ttc since April 2012. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells. Pred and intralipds.

Hula2 (39 years) - one DS (took 18mns with low amh but no other probs), one MC at 9wks, ttc no 2 19 mns (12mns since last mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids) about to do Humira for cytokines.

Rosa (38 nearly 39yrs) - 3 MMC (11.5, 6.5, 7.5). 6 months ttc on treatment. On complex programme for high NK, cytokines and thyroid antibodies (hydroxy, pred, intralipids)- had allergy to Humira. Also on SO programme.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Tryingno1 · 08/03/2015 08:16

Hi drttcc. I've been with him for 8 months. I went to see him in July after mc no 3 after nhs tests showed nothing was causing them. I then started ttc again in August/sept. After getting preg quickly 3 times I haven't managed to get preg so still waiting. Mr s wants me to do SO i think, but im not so keen...so waiting it out...But don't worry it's not his plan thats not be getting preg, as I haven't followed it for the last few months! And nearly all the ladies on here have gotten preg following it !

Drttc · 07/03/2015 19:01

Tryingno1, how long have you been with Dr S?

Hula2 · 07/03/2015 18:53

Hey trying glad to hear the counselling helped.

Go sunny go !!

I ll add my age (might have to update it in a couple of months, ahh!) so here s the list:

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday (32 yrs)- high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 (30 yrs old)- 3 mc. Ttc since April 2012. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells. Pred and intralipds.

Hula2 (39 years) - one DS (took 18mns with low amh but no other probs), one MC at 9wks, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

Original poster

sunnyday01 · 07/03/2015 17:27

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday (32 yrs)- high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 (30 yrs old)- 3 mc. Ttc since April 2012. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells. Pred and intralipds.

Hula2- one DS (took 18mns with low amh but no other probs), one MC, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.

OP posts:

Original poster

sunnyday01 · 07/03/2015 17:26

It's been lovely and sunny here too - been for a two hour walk around some lakes near to where we live - was lovely! Feels like spring is on it's way finally!!

Lovely to hear from you hope, glad all is going well x

I've been thrown out this weekend as I was advised to do my ov trigger shot this morning at 10am which means I will ovulate about 10pm tomorrow eve (normally have to take it in the evening) it's really thrown me for when to do the BD!

OP posts:

Tryingno1 · 07/03/2015 15:18

Hi hope! Lovely to hear from u? How r u? So Glad it's all going well ;)

Hope ur all enjoying sunny afternoon! It's sunny here for once anyway...

I decided to go for counselling yest. See if I can unload from stress and stop me being obsessed with ttc! Was really helpful-anyone inclined I would go for it!

Tryingno1 · 07/03/2015 15:17

2nd trimester

Hopender- (38 yrs old) 7 miscarriages, one DS, Was on pred, cycolgest, baby aspirin and intralipids. Now only baby aspirin! (20 wks)

1st trimester
Coming soon!

TTC
Sunnyday - high nk cells - hydroxy, pred intralipids - 3 mc (1 on treatment) also doing super ovulation - round 1 (got bpf on round 5 last time)

Tryingno1 (30 yrs old)- 3 mc. Ttc since April 2012. 5.5 weeks, 9 weeks, 6.5 weeks. High nk cells. Pred and intralipds.

Hula2- one DS (took 18mns with low amh but no other probs), one MC, ttc no 2 19mns (12mns sinc mc), low amh, borderline cytokines, high nks, on complex nk plan (pred, intralipids), about to do Humira for cytokines.

WTTC
Drttc- (28 yrs old) awaiting Dr S results, 3 MCS

Determined123- awaiting (retest) results. 4mcs (2 on treatment). PCOS, Borderline NK Cells and v.high thyroid antibodies.