Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

Thanks trying and Rosa!

Lillies hope you're okay and know you're in our thoughts!

What a busy weekend and monday!

Well I've seen Dr S today and he's put me in the very high NKC category and also complex. Said my response to the treatments (in the blood test) were disappointing, but he's treated people like me before and is positive about it. I asked him what statitistic he's put me at in terms of his patients success rate and he said 70%... So not 85%, but I guess 70 is a number I can work with. I figure at 28 I've still got some time to figure this all out and seeing him now is a good start :)

Waiting on af (was due today) and then we'll be TTC this month! Bit scary but I'm excited to start treatment. I'll be on 25 prednisolone from ovulation and continue with that at bfp in addition to cyclogest & Intralipids every 4 weeks until 16 weeks...

Hi girls

Drtcc good luck for this evening. I hope mr s has a plan ready for u and u feel confident with it when u leave.

Lillies I'm so sorry you had some more blood. I hope ur keeping busy and the next few days don't feel like a total Eternity. I have everything crossed for u

Determined let us know wot mr s says, hope ur levels haven't changed too much. I totally understand re burying head! It's a coping mechanism we have to do from time to time. I hope ur keeping busy...

Af just finished here. Cycle 9 here we come ugh! Had a great weekend at hen although shattered! Felt guilty yest as I drank a bit too much, but then thought whatever-no drinking hasn't help me! So maybe drinking will?!

Oh Lillies i m sorry, the limbo is the cruelest part of it all. Just hang in there till your next appt, it could still all be fine but i know that sometimes allowing that hope just seems to give yourself further to fall from. Keeping everything crossed for you and sending a big hug. x

I hate all this limbo, and that with limbo you get false hope. Nothing's happened for a almost a week and then it's appearing to start again.
I'm not very well either this weekend, first time in ages I've not been well, thought it was because of the steroids.

And today, just as an extra kick in the head, I wipe more colour. Frick.

Just popping in to say happy Mother's Day to the most amazing mummies I know! Just because we are not all holding bundles of joy we are all mothers!
Take care and pamper yourselves today!
Love to all x

Exactly rosa, you could be the exception! Fingers crossed.
Hey everyone, how's your weekend going?
No news Here, just constantly going to the look to wipe and check! Also occurred to me, that I've brought this worry on myself really, asking for the early scan. I could just be doing the usual worrying waiting to see mr s, instead I've given myself extra! Just got to wait til Thursday. If all is well then then the local midwife wants to see me the next morning and I'll have to arrange for intriplalids on the following week. I've already got an appt to see mr s arranged, in fact maybe I should organise the infusion ASAP to ensure I've an appt the same day. They refund the cost if it's not needed. I'm 4 hrs or so away so really need it all done together? Thoughts? I can't jinx it, can I? Whatever's going to happen will happen regardless.
Xx

Hi everyone.. Sorry I'm so busy right now it seems I'm falling into a weekly pop in habit. Lots been going on ..Lillies, my heart goes out to you- I had 3 weeks of limbo last time where I was told to expect the worst but not to give up hope, and my accu lady kept telling me my pulse was still good and to talk to the baby .. It was the hardest thing ever. Of course staying positive helps you, but it's important not to forget there's very little you can do - except distract yourself with box sets. I hope you know for sure very soon and everything crossed for you.
I've just got af so back on SO drugs from tomorrow and upping dose to 75mg as only had one follicle first time. Need to order ovitrelle and arrange scan and figure out all the timings .. Feels hard to go through all knowing it's usually 5th cycle it can work and this is only 2nd. You never know though I suppose.
Sorry for everyone who is out this month but drtcc, you'll feel better knowing you're on the recommended treatment.
Determined- absolutely understand your need to stay in the bubble as long as possible - make the most of it.
Hope - looking forward to your update :) Trying - hope you're doing ok? X

Hi trying, no specific date for me just a phone call with suggested course of action. 2 weeks would have been this week so results will be in. I haven't chased as I have my head in the sand...not ttc and no results make for a lot less stressful life as soon as I get them it will probably mean getting back on it, more expectation, disappointment, upset blah blah blah. It's such a negative way of looking at it but I think i still need time. If I don't get preg I can't lose anything. It's a way of protecting myself I guess!

Hi drtcc. It's prob the only time u felt
Happy to see a bfn! Let us know what mr s says hope he has answers for u!
Determined are you getting your retested results then too?

As for me, tested today and got bfn (10dpo) and I'm hoping it's right so I can start proper treatment with Dr S on Monday. Still had a tiny bit of spotting today which is unusual but I just don't know what to think anymore!

Lillies I'm so sorry you're in the position! I know my most torturous miscarriage was when I just bled until 5.5 weeks, with stronger & stronger positive pregnancy tests because I just felt confused. I just wanted to know one way or another so I could carry on accordingly. I hope you find a definitive answer as soon as possible. Maybe get some hcg testing done?

Thanks to you both. It was really weird, I left feeling really confused. I feel really blindsided by this, thought it would be good or bad, never thought I'd be left in limbo.
No mention of heartbeat, no mention of actual measurements. Just that they couldn't see all and that my dates could be out. I know maybe by 24/36hrs but not a week. They didn't explain themselves and I left not knowing how to feel. My husband says it's all ok today, it's there, it's in the right place and we will see/know more next week.
I've always had miscarriages, never mmc so this could be a new thing for me.
Yep, roll on next week. I've got a very fractious toddler to distract me today!

Sorry to hear you are in limbo at the moment Lillies! Praying all is good and sending positivity your way! Like you said everything is ok right now so that's good! Hope you can keep busy this week to distract yourself xx

Oh lillies I'm sorry. I've had so many limbo scans and the anxiety is so high. Have u got an appt with mr s soon? Was it too early for a heartbeat to be seen?
I hope ur ok, keep strong I have my fingers crossed for u xx

Good to hear from you trying, fingers crossed for this next cycle. Thanks to you all for your wishes.
Ok news I guess. I thought we'd walk away with either good news or bad and we seem to have the middle road. The scan showed the sac with something inside but not as much detail as the doc would've liked. This, he said, could be due to my dates being out - I struggle with this - and the fact ive got a tilted uterus and it was difficult to see anyways. So, all I can take is that today it's ok. I've an appt for a weeks time to measure progress. They didn't say anything was wrong but they didn't leave me with any confidence either. Just want this week over please!
X

Hi girls.

Lillies I'm sorry u had some spotting. It's natural to go into panic mode but ur on tx, it worked for u before and bleddin in preg can mean nothing! When is ur scan? I hope ur doing ok...

Drtcc-don't worry if it is a bfp u can start treatment ASAP! Mr s is one of the few consultants who does pre bfp pred anyway so don't worry. U might not even need it! I did have implantation bleed with preg 2...it was just on my pants like a smear (tmi sorry!). Are u gonna test tmrw?

I'm ok, just finishing af. Saw a friend yest who had ivf and I confided in her about my trouble was nice to talk To someone in rl who has had difficulties although very different ones. She has a lovely baby now so worked out for her :)

I ve not had spotting at that point either.
Lillies good luck today. x

And thankyou for your thoughts! X

No experience I'm afraid drttc, the only time I ever had implantation bleed was with my very first pregnancy. I was on honeymoon. No idea on what day of my cycle - the days of just having sex!-it was but it was literally a pinpricks worth of blood that I saw in my underwear. If I hadn't had on white pants I wouldn't have known about it.

Thank Hula & liliesandchoclate... I'll try to stay rational. Do either of you have experience of spotting on 8dpo?

Will be thinking of you tomorrow lilieandchocolate!

Only 6.5 weeks, this last fort nights felt a lifetime. Will keep you informed!
And yes, don't panic drttc, I echo Hula completely. Get a first response test ready for 10dpo.
Xx

Lillies, sorry for the worry, fingers crossed you get the reassurance you need tomorrow. Good that it s stopped so far. How far along you are now ?

Drttc - don t panic, many immune docs dont start meds till bfp anyway so i d just test at 10dpo and if u get a bfp then ring Louise straight away and they ll prob already have the results and get u started on meds straight away if need be. I think Hope didn t start pred till bfp.

Thanks trying!

Lilliesandchocolate, sorry to hear you're worried. I'm sure you know it can be completely normal! With our histories we naturally want to protect ourselves though. There's no right or wrong reaction, you're entitled to every up and down emotion you feel on this journey. I'll have my fingers crossed for you to be told you can relax!

As for me, I had a tiny bit if colour when I wiped today as well... I'm worried it could be implantation bleeding! I'm not on treatment yet (was told to wait until my results). We had DTD 7 days before ovulation so surely it's not possible?! I know it MIGHT be but so unlikely. I don't want to have another miscarriage for being an idiot and getting pregnant without treatment :( Really worried. I'm 8 dpo now so too early to test sigh

Hey ladies, how is everyone? I remember going to get my results, so desperate for Mr S to have the answer. Don't know what would've happened if my results were ok. Remember sending my best friend a text after saying thank god, there's an answer and we've a plan!
Have been referred to my local EPAU tomorrow, due to my history and that I wiped some "colour" 48hrs ago. Back to normal since. Worrying but trying not too. If there's a problem would rather find out at home than 5hrs away. Sounds awful, doesn't it?, I'm afraid it's how I try to protect myself.