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Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

991 replies

sunnyday01 · 06/02/2015 20:10

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

OP posts:
Drttc · 25/03/2015 22:52

So so sorry Lillies. At a loss at what to say...

Remember to be kind to youselves (both you and DH). Be gentle and do whatever you need to experience a bit of peace and comfort. Whether it's having cry after cry, and/or arranging for a babysitter while you and hubby cuddle over cheese and wine... Stay strong and continue to support each other xxx

Hula2 · 25/03/2015 22:24

Oh lillies, so so sorry. Hugs to you andyour family. Xx

Determined123 · 25/03/2015 21:18

Trying I wrote a long post to you earlier but lost Internet and the post! Anyway I'm pleased you got your ivf appointment. I know it's not really want you exactly want but it's a step in the right direction and a back up if you need it. And so many times that elusive bfp pops up just before Ivf startsSmile x

Determined123 · 25/03/2015 21:15

Am so so sorry lillies. Am devastated for you. I hope all goes as well as it can at the epu and you can get tested.

You and dh look after each other as best you can at this time Flowers ?xxx

Tryingno1 · 25/03/2015 20:47

Oh lillies. I'm devastated for u. So so sorry. Hope all goes well tmrw.

I know u asked a while back about d and c. I've had 2 -they were fine. Over quickly, no issues after. its emotionally less traumatic than medical management (I found). Make sure u stress u want it testing, as they struggle to do this for some reason-wrong pot/not enough specimen etc. I've not been able to have results with mine.

I'm so so sorry xxxxx

Lilliesandchocolate · 25/03/2015 20:25

Bad news for us. No longer a heartbeat. To be expected I think as the dates to measurement we're so out.
Obviously gutted.Awful news to be told so far from home.
My local epau have told me to come in tomorrow, to hope for a eprc on the emergency list. But already wiping a huge amount of brown and even had some red bleeding since the scan so will have to see what happens overnight. Desperate to have the procedure so it can be tested.
Am now home to pack a bag and de-nail varnish.
Thanks for all your thoughts xxxxxx

Tryingno1 · 25/03/2015 12:59

Thanks determined
My ivf appt had come throughBlush
Not sure what to feel...
Let's see what they say about that tube and if it's really what's holding things up...or I should just keep going.
I hope it just happens soon, but have accepted that ivf may be what's needed...so maybe SO like Shehata suggested tooo...or maybe SO with IUI which I think there is more evidence for....to be honest I'm open now to anything as long as I get a BFP and it sticks! This jounrey is getting longer and longer, every time I think I must be near the end another muscarriage or now-no bFp! Not my time for my baby yet...must be patient
X

Determined123 · 25/03/2015 12:51

We'll done trying ;) all the dtd will help to lose some pounds too Wink

Fingers crossed for you!! Xx

Tryingno1 · 25/03/2015 12:35

That message made no sense!

It meant I've just finished a week of DtD (well 4 days but feels like 7)

And

I've started ww...

Tryingno1 · 25/03/2015 12:20

Good luck lillies thinking of u...x

I've finished after week of DTD! On the pred and being a good patient this month! Only started weight watchers and nice to see the pounds slowly coming off!

Determined123 · 25/03/2015 09:21

Good luck today lillies! Thinking of you Smile xxx

sunnyday01 · 25/03/2015 08:46

good luck today lillies!

All ok with me, just on AF and back on the SO drugs for a few days!! Got my scan next thursday and then will be back in the BD routine for a week or so.

OP posts:
Drttc · 24/03/2015 19:34

Good luck tomorrow Lillies :)

Tryingno1 · 24/03/2015 11:47

Hi lilies-it's so hard to stay sane in a time like this! Ur doing great, keep postive and update us after u see mr s

Good luck drtcc! U usually catch quickly so hopefully a bfp on the board soon!

Hi to others-how are we all?

Drttc · 24/03/2015 10:10

Here here, Lillies!

It's tough but we need to be kind to ourselves. If we were taking care of a friend with the same issue would we put them down and worry them? No! Not only because it's cruel but because there's no benefit from it, only harm.

CD8 for me so the the DTD has begun!

Lilliesandchocolate · 23/03/2015 21:48

We will all of us get through this and achieve our dreams - is what I meant to write.

Lilliesandchocolate · 23/03/2015 21:46

You're right, we've got to go through it to get where we want. Our third baby isn't going to get here without all this. We do have to go through it. I found it scary starting to ttc, then scary that we hadn't fallen pregnant quickly as usual, and now we are pregnant I'm terrified! Seriously terrified.
But, this is what we have to do, this little bean is fighting and so I am fighting, whatever happens. We've been through hell of a lot to get our kids, and I did get through it. If something awful does happen, then it'll be horrific but I will get through it. I have so much to keep going for.

We will get through this part and achieve our dreams.

Still spotting the brown, seeing mr s Wednesday, intripalids at home Thursday if all well x

Drttc · 22/03/2015 19:38

Glad you're doing well Lillies! I'm sure Mr S will be able to enlighten you on Wednesday. Yikes to the leaving the house at 6am though!

I'm a bit nervous about ttc! Things have just been so great lately and we're about to go on a long holiday (nearly three weeks long) to Asia... I don't want anything to rock the boat! But if we don't try we certainly won't get where we want to be... So will just need to hope for the best. I've been looking up the hashtag #rainbowbaby on Instagram to help me think positive :) So many sad stories on there too though!

Lilliesandchocolate · 22/03/2015 12:56

Hey everyone, how's your weekend going? No news here, still lots of brown on wiping. Trying to stay positive after Thursdays surprise but it's just so hard. I'm worrying, waiting,wiping, driving myself crazy. Trying to distract myself but when you can feel what's happening below my mind instantly races, I'm finding it impossible to forget what's happening. I'm sure I'd be better better if it wasn't for wiping brown all the time, studying it for any changes!
Off to see mr s Wednesday. Think it's the new clinic, clock house clinic. We have to leave the house at 6am!
X

Lilliesandchocolate · 20/03/2015 20:38

Here's hoping mr s is the man with the answers again!
Sunny - they just said that Wimbledon couldn't keep up with supply demand, I think h@h is going to cheaper £280. Can't be long before the new clinic is open?

X

sunnyday01 · 20/03/2015 16:14

I'm so pleased fir your Lillie's, know it's early days still but it's looking good at the moment x

Wonder why they stopped using wimbledon, was ok there when I went (although I was just put in a random room with no place for OH to sit etc)

OP posts:
Tryingno1 · 20/03/2015 15:09

Yes Mr s will def give u that reassurance. He does it all day so sure ur dates will match up. Even a mm here or there makes huge diff at this time...so keep holding onto fact that ur bean is growing and stay postuve
X

Lilliesandchocolate · 20/03/2015 14:15

Thanks trying, I'm seeing mr S on Wednesday so will be having a scan and consultation then. Found out they've now stopped doing the drips at Wimbledon, now using health care at home, so all being well then intripalids at home by the end of the week. Spoken to the office today to get the ball rolling, although they weren't confident of h@h cancellation/refund procedures if bad news. Will be asking them when they ring to arrange.
I'm hoping mr s equipment will be better and will be able to measure me more accurately to my dates so I can stop that worry!

Tryingno1 · 20/03/2015 13:23

Yes! keep thinking postive...a heartbeat is always a great sign...So many women spot in pregnancy and all turns out ok. When is ur next scan? Try relax (if u can!).

Lilliesandchocolate · 20/03/2015 11:45

Still have brown when wiping so won't be relaxing anytime soon but got to have faith! X