Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

Cautious congrats Rosa! Am so pleased! Yes keep taking the meds as per your protocol and I think a CB registering is v v positive as they are less sensitive. Also cheapies are notorious for inaccuracies/less dye. Frer I used and like hope was a bit obsessed watching the colour progress!
I can't really comment about sporting achiness as never gone the whole hog but o have googled the hell out of it and seems normal part of baby nestling in there!! I have had 4 mcs...2 spotting and 2 not...I have a theory that being on aspirin and the blood being thinner has something to do with it (my theory nothing docs said).

For the so risk do they mean hyper stimulation? I have read you need to drink lots of water for that!

So pleased for you rosa...try and stay positive as these few days like hope said are nervewracking xxx

The first few days are by far the most difficult so you just be as kind to yourself as you can. It is great you have a good GP who will do early bloods. The level of them doesn't matter at this stage, just the progression, so ideally they will be doubling. Actually mine weren't quite doubling but it seems to be working out ok!
The FRER are the first response tests. I obsessively did them every morning to see if they were getting darker. It took ages! They are very sensitive though so for me worked well. It is still so early and so I think it is great news your GP's test came up positive. I'm sending you all of my best thoughts! And don't worry about the spotting. I had some too! Give me a shout with anything at all, xxxx

Thanks Hope- don't you think faint with achey and some spotting = bad news? I so want to be positive in every way.. But scared. What's a FRER test? Sunday and Mon I used the conception indicator Clear blue and it said 1-2 weeks. I'm only 26 days today. The very cheap today didn't register, but whatever GPs use showed a faint line. I should get my HCG test back tomorrow and apparently (according to my accu lady) it should be at least 500 for a strong preg. And will need to double.. So need another blood test Thurs. X

Oh wow rosa, I've been checking Mumsnet to see if there had been any news from you. You should absolutely be taking everything. The night before I saw Dr S for the first time after my BFP I almost didn't take my medication as I was so sure I'd miscarried. I had such a surprise when he told me there was a heartbeat. Can you do a FRER test in the morning as then you can see if there is a progression? You can also compare them with other tests online. The internet cheapies didn't really work for me before AF was due. I am crossing everything for you. I think you have every reason to feel positive although I know how hard it is. Sending a big hug, xxxxx

Thanks Determined - virtual hugs much appreciated. Feel need more now.. Having tough time. As ever things happen when it's holidays.. Long Easter weekend, Louise away for a week and Mr S out the country. I'm only on day 26 but my day 10 of pred (Sun) I tested + with a clear blue and again yesterday (day 11). BUT today with a cheapy I tested neg. no idea what is going on and if to keep taking pred, start cyclogest and arrange intralipids. I managed to see gp and got a faint positive urine test an hour ago and will get hcg blood test results back tomorrow- need to go Thursday to see if doubling. I've twinges on left side and very slight occasional spotting. Guessing its prob bad news (but then I don't know what good news feels like!) should I take pred tomorrow and progesterone tonight? Does anyone think this sounds like a chemical... Or an ectopic?! My gp said to call if pain gets worse as have had SO my risk is higher.
Sorry for a me me me post.
Hope everyone had a lovely sunny Easter and happy healthy living is doing wonders for everyone. X

Hi ladies, sorry not been on for a while...spent all of last wknd celebrating (drank and ate far too much) despite a crappy cold (which has finally gone..nearly 3 weeks...and I have an aggressive immune system...Err) and then been mental at work and now driving off to catch a boat for a few days in the Emerald Isle (dh driving).

Trying - am sure you are feeling she'll shocked and trying to deal with your emotions etc but once the dust has settled I am sure you will gain some clarity and get your energy back to deal with the next steps. I know it doesn't feel like it but I think it's great you have more answers. How is dh dealing with it? Who are you getting your hla and lad testing with? I'm sending you big hugs...you will get your baby I know it! (Ps there are some supplements/vits called fertilisan (come from Germany) that are supposed to be very good for male fertility. It won't help with every sperm issue but always good to do all you can.

Sunny glad you got a nutrition appointment booked! Think you'll find it useful. Can't believe they've lost she test! I would go mental!!

Lovely to hear from you hope!! You really are giving me errr hope ;) it's so exciting!!

Hey there hula...is humira and injection?? If so can dh do? I hope you had a lovely ski trip and feel rested?

Drttv have a fab time in Japan and China, always wanted to go especially Japan!

How you holding up lollies? I hope you have some family time this Easter and are being kind to yourself?

Rosa sorry about your meltdown - huge hugs think of it as a good release of emotions. I don't think the pred helps imho and seems crazy we need to be relaxed to concueve yet pred makes is tired stressy anxious (and for me mental) I know it's easier said we have to try and not have regrets about what's happened or worry about missing opportunities or things we can't control (wow maybe meditation thins meditation thing is working...or someone has stolen my phone?!) but stay positive, there are so so many positive stories out there at all ages and issues! And options...if it's something you would consider (Ivf) I would enquire so you feel in control/making progress. I hope you have something nice planned for the weekend?

My £250 worth of supplements arrived this week...feel like an experiment though so keeping my fingers crossed this all helps!

Apologies if I've missed anyone!

Happy Easter all, stay positive

Xxxxxxxxxxxxxxx

Hi Hope- I'm ok but not feeling in the slightest bit pregnant. In fact don't remember any ov symptoms never mind any preg symptoms. I guess pred could mask them bit almost got it into my head I've got to try IVF. I think I need to pay no matter what here even before 40- that what seems to say online and still waiting for referral to come through. My cycle is usually 31 so testing on day 22 seems crazy as had the SO injection on day 11. I guess I will though so have some reason to stop pred which is not letting me sleep. I'm ok I guess but had a melt down last night and was upset at DH that we didn't try sooner and just feeling a bit bad now and sorry for myself. It happens from time to time and I am trying to convince myself it is better to have meltdowns now and then than none and then a proper breakdown - which must be a risk after all this when you have a full on job..
Anyway - sorry for getting dark. Glad you keep bring the light and hope :) happy Easter xxx

Hi rosa, how are you feeling this month? Will you test on day 10 or leave it a bit? Hope all well.

Thanks Trying. Hope you sleep well and feel less overwhelmed tomorrow.. You'll be absolutely fine and it's totally understandable you feel how you do today. I also hope I sleep .. Day 7 pred so no great hopes there. Can always research IVF in Edinburgh if not! X

Thanks hula and rosa. Yep he's already on every vitamin going and massively reduced alcohol after xmas. I can only presume they were shocking before!?
Rosa ur right. I think I'm just feeling overwhelmed the appt was 2 hours in total and lots Of talks of needles and injections and time of work. But I'm getting more miscarriage testing than already have which can only be a good thing. And I'll be on mr s plan too so here's hoping to it working. Plus no Tavel to london! They will do it for me all here and give me intralipids at home. I also suppose instead of waiting every month for a bfp at least now it's going to be speeded up. If I fail, well then I take a holiday and I start again! Once cycle has to work one day!? I think I just feel like its a double whammy? And today I'm feeling a bit fragile and like its the world saying - give up! U have too many issues!

Rosa-if there is a problem identified then U can get a cycle funded on nhs if under 42 (I think) If no problem (unexplained) I think u have to have been trying for 2 years (for under 35). If u look up for local ccg ivf guidlienes u can easily find them. Sadly NICE say everyone should get 3 on the NHS. But some areas give none or only one. And they all have different requirements-postcode lottery sadly. I found my ccg guidelines easily on Google. (I think Scotland has ccgs?) but just type in ur county and ivf guidlelines and it should Come up! I hope u don't need it though. Xx night (if I manage
To sleep!)

Trying .. You HAVE to see this as useful. I can so relate to how you feel with more 'bad news' but nothing has changed in reality, you just know more so can now increase your changes of success by getting taken care of for the whole process. Of course none of us wanted any interventions, but if that's what we need, we may as well look on the bright side that at least we will have the best chances we can get and more care WHEN we do fall preg. You've time on your side so consider even a month or so for yourselves. As you know, I wish I had that luxury but still waiting on IVF appointment anyway. Does NHS pay for first cycle no matter where you live.. As long as you're under 40?
Hope- always lovely to hear from you and that all is well :)
Sunny - hope they find these results- that's terrible!! My DH was told his were normal but on the low side of normal. He was given nothing in writing so asking him to get results emailed as now worried.
I hope you all have a very lovely Easter weekend.. You deserve it more than anyone - especially Lillies, but everyone of you as I know bad days continue to hit- sometimes for no reason- even after months.. But they get fewer and also more spread out. I remember someone telling me it does get easier.. And she was right .. But she had also given up completely and was in her early 40s having a long holiday in NZ.. She then fell pregnant naturally and with no intervention had a perfect wee boy. We need to find ways to relax and hope, without being anxious. Easier said than done, but not impossible. X

Sorry i ve been awol girls just got back from skiing and work is hellish busy.

Lillies so sorry for such a difficult experience. Sending hugs and hope you are recovering well.

Gosh Trying - what a bombshell for you and your dh. I guess at least it gives u some answers. Don t give up, your derserve this and you will get there. Is your dh on plenty of vits ? zita west do some good ones in their boost range with extra antioxids, expensive but sperm can really be improved with supplements/lifestyle stuff so maybe worth it in prep for ivf (i think sperm have a similar 90 day developement).

Sunny preg announcements can be so hard. Hang in there.

Afm - cd1. Humira is sitting in the fridge so time to stop being a wus and take it .....!

Thanks girls. Ugh it's a rough road. I was worried I had developed some weird secondary unexplained infertility which would mean ivf would fail...or that I was having mega early miscarriahes...at least I know its a straight fwd sperm
Problem. And hopefully my uterus is ok and will accept an embryo. (Obv I don't know this but I have to think postive right?!)

Hope so glad all going well! Sorry u poorly! Have u chosen some names

trying it will happen for you, don't give up! I think you are closer than ever now with this news as it means the problems are going to be addressed. Well done for keeping going! I am sending lots of positive thoughts.
I am 23 weeks now so have passed the half way mark. In bed with laryngitis though which is a pain... Can't believe I am complaining about a sore throat after everything. Sending you all lots of love!

We get one cycle nhs wise. I'm happy to give them 2 goes before I move somewhere like argc which has good rates but sound like a mad clinic which would mean giving up ur life and living in London...I just want to stay as postuve as I can...hence less forums for me (after today!). I'm dreading the scans the pain the injections and how to do it all with work. I'm petrified this is going to be a 5 year long journey and I'm never going to get there in the end. I've just eaten a bag of mini eggs to feel better and now feel sick!

How was it gone missing again?! How frustrating! Def chase it up, I'm glad u didn't do SO as I wouldn't have gotten preg with it knowing wot I know now...so def make sure that's not delaying ur bfp...

I must say we both so shocked-3 preg in one year and his count is really low. It's not ridiculously low though but falls into male infertility needing isci.
Honestly I might go mad with all this! Glad I'm getting all the other tests done too...the miscariage world with ivf is a lot more advanced than the non ivf world. They do NK cells after 2/3 implantatiom failures or miscarriahes at my clinic and they knew of Mr s....so I'll be on the same tx plan more or less....

Really, sometimes I think I should just give up.

Oh one good thing!! I know why I'm not getting preg! I prefer having an answer

Hey girls.
Lillies - im so sorry once again. I hope u have recovered physically. Thinking of u
Sunny it's ultra crap. My SIL is about my have no 2 from the same time I've been trying for one. I want to scream!
Determined happy bday! Good postive attitude! Enjoy ur months off TTC.
Drtcc enjoy China and Japan! I've been to China and its amazing
Hi to others

So I had a bit of a bombshell today. Ivf appt. dh has low sperm count motility(boderline) and morphology(well boderline). So that's why we r not getting preg. The consultant couldn't really explain why we had 3 mega quick pregnancies (by quick I mean 2 months average!) but he said we it's still possible to get preg obv but rates r much much lower. So he's advised us isci.

I'm pretty upset. I was secretly hoping we would just get preg but the other 3 appear to have been flukes. There was some suggestion that maybe the poor sperm May have led to the miscarriaged. Feel like with infertilith and miscarriahes I'll literally never be with a baby. I feel like the world is playing a trick on me.

Anyways, what can I do. I'm having some extra immunology testing that Mr s doesn't do like LAD and HLA testing (I know Mr gorgy in London does them if u guys r interested). And then starting ivf/isci prob mid May ish. This is going to be a nightmare with work.

I'll pop into here now and then but I think I need some time to just get on with it and not obssess over every little thing. So I'll be lurking if not writing!

I'm hoping to see some Bfps on here soon and then some good scan news

Sorry to ramble on, brain is a mess!

Xxxx

On another note...

I'll be away in Japan and China for a few weeks!!! So don't think I've left the group- just going to be a bit quiet :) x

So sorry sunny :(

My friends and family haven't started having kids yet BUT as we've all just started getting married I'd be surprised if there isn't 1-2 announcements by summer, even more come Christmas. The thought absolutely devastates me. Of course I want them all to have babies, I just want to join them and have my own! I was also the broodiest in the bunch... Figures!

And in reference to Dr S payments... I agree they're excruciating! But I personally feel so desperate I'd probably hand over every pence I have. Not proud to admit that!

Hi ladies!

I've been lurking but not had much to contribute. Been a bit down because I've not had any EWCM for some reason (a first) which makes me think this cycle won't work for us. I've only had wet cervical mucus which I've read is okay but not 'the best'. What a let down :( !

So sorry Lillies, your updates brought back lots of painful memories, that to be honest I think about too much. It's not the pain and horror as you say, it's managed quite well (payment around happy expecting mum's aside!) - it's what it all represents in terms of hopes and dreams. We can only do so much though.. I only wish we had crystal balls...
When the time comes there are a few of us who can share SO and hydroxy etc experiences. Take care and hard as it, try to focus on the moment and look after yourself. Xx
Hi to Sunny, Trying, Hope, Determined, dttrc, hula and anyone else. On my phone and hard to scroll back xx