Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

Hi rosa! I didn't have my intrallipds until I was seven weeks pregnant if that helps. Have you had the second blood test results back yet. So hope you get them before the end of the day!

Hey there, you haven't lost the plot I was the same. For preg 4 I was reticent to go and Rush up to have intralipids when I only just spent £400 in mc 3 5 weeks prior! I asked Dr S if I could have it the following week and it was also due to work reasons I could t get there and he was absolutely fine with it. Can't remember the days/dates but I wasn't trying that month so didnt deffo know for sure until 12/13dpo and that was New Year's Day... Think I may have phoned 2nd jan which was a Friday for the following week...Mr s seemed cool with it. Hope that helps a bit?! Sending you some irish luck...last day of hols today xx

I know. I think they had some pre-written prescriptions but ran out. So if he signs first thing Mon I could get a Tue but only if they arrange a courier which costs over £300. I'm hoping in the circumstances they pay.. I can see in one hand I might look unreasonable to ask this for the sake of waiting another day .. But if I was meant to have today then it's 5 days late and I have no idea if that will make a difference. I'm on the complex programme and didn't tolerate Humira or hydroxy well so extra keen to get this. I just want to do everything right .. I hope you all understand but tell me if I've lost the plot!
Sunny - nothing sounds crazy to me anymore! Everything crossed for you on Tues. Hopefully the sunshine is helping the PMAs too. X

Hi Rosa, I think 51 is great for day 13. To be honest, I can't really remember when I went for bloods in the first week. I think the first time when it was around 200 was somewhere between day 15 and day 18 - not very helpful I realise! I'll go back through my posts this afternoon to see if I mention it. Either way 51 is good according to everything I can see online. Have to dash as need to collect my little man from nursery but will write more later. Will write back to your other message too. It is all looking really good and so I'd go and organise your intrallipids!

Just been told as Mr S is out the country he can't sign any prescriptions for intrallipids until next week..! They are all great - but I do think they need to look into their holiday cover situ.. Hmm. Hoping it doesn't make a difference ..

Thanks Sunny - will call and ask.. May just do anyway.. It's a lot but a drop in the ocean as we all know ..

How's things with you?x

Wee update from me.. Tues would have been 13dpo and hcg was 51. Hope, think you said yours was 200+. Hmmm. Anyway had blood taken again today and so if get results tomorrow they should be in 200s I think. Nervous. Also Mr S said to no ok intralipids for tomorrow of Sat if I had a positive today.. I did but do you think I should wait for blood test results tomorrow afternoon first? Any advice gratefully received.. X

Thanks Hope. It's great you've local advice, and agree I should do anyway. First milestone is end of the week. Scared to write I've no spotting in case I go to the loo and jinx it! Hi everyone else and sorry for too much on me. Wishing for promising news soon for all if you.. I am faaaar from complacent here :-/ xx

I think definitely do the intralipids, even though they are massively expensive as they will give your body that extra boost. Where are you having them done?
If your bloods are being sent to the EPU first thing then you should get them back later that afternoon and def on Friday if not. I had mine done at the EPU on the Friday morning and they called me that afternoon at 4.30pm. The good thing is that you can call EPU and get results direct over the phone on Saturday morning if needed though.
Hope you aren't too stressed. How is the spotting? Xx

Hi Hope- think it's just I invalidated the first cheapy by leaving it in too long. They didn't have my results when I called at lunch time and was in meetings until after they closed so will get tomorrow. I hope I get the results for tomorrow's test before weekend so know before intrallipid if things are looking ok.. Though guess advice would be to do intralipids anyway? Thanks for travel advice. My accu lady says she knows people who miscarried after a London flight - and I did after a Croatia to Edin flight so def not up for the risk. At least not in first 3 months (hard to imagine getting past that!) x

Hi rosa, the positive test this morning must mean your HCG levels are rising! I am so excited for you! I so want this to work!
I know there is nothing more annoying than being told you shouldn't do something when you have to do it but if there is any way you can avoid flying I would. There is a very early business train from Edinburgh that gets you into London for the start if play - I take it a lot as refuse to fly right now. It might be 5am or something but I would say worth it. I really don't want to scare you and it is probably just coincidence but three of my early miscarriages happened directly after flying and I was told that it could be causing a problem by the doctors - they just don't know enough about it. I guess we all have to make our own decisions about things like this though so just wanted to give you my perspective. If it isn't avoidable then I'm sure it will be ok as pregnant people fly all if the time. I am probably one of the most paranoid people in the world about stuff like this too!
Did you get your first hcg results back yet?

Thanks Hula- just feels too surreal right now and don't yet trust it.. And such a long way to go, but really appreciate all the lovely comments. I'm so emotional! I did another cheapy test this morning and it was a faint positive. So maybe I really am and hcg levels just still quite low. Took all your advice and started asprin and progesterone last night. I had a message from Mr S too who said keep taking medication and if still positive Thurs, arrange intralilpid for Fri or Sat.
I'm now just worried about loads if things and prob just need to chill out! I've to get a filling next thurs and worried that might be bad news. Also have to travel to London twice this month and my accu lady thinks people should avoid flights if suffer RMC- esp in early days. Hmm.
Trying - agree with Hula on second test. I know someone in London who went two different places and had different results .. I think zita west was the last though and think you've been there? X

Hi rosa, I stopped aspirin before my BFP too but started it again after positive test and I'm still on it. My feeling is that it is a good idea during pregnancy but I worried about it affecting implantation before for the same reason as you, mixed advice. Your second blood test is tomorrow isn't it? Will be thinking of you today? Are you doing any more tests this morning?

Hi Trying - good plan to get dh tested again as i agree quick 3 pregs doesn t really fit with a low sperm prob. Had he been ill or had a fever ? Did he have the sample analysed straight away or could there have been any delay, from others exp on here of them losing tests you could imagine the poss of delays in analysing if it was nhs. The ivf clinics are usu really good at looking at them straight away. Fingers crossed it s good enough to not need icsi.

Just stopping by and saw your news Rosa. So pleased and keeping everything crossed for you. I d agree with everyone else to take everything inc the aspirin, it helps good placental blood flow and reduces pre eclampsia risk and i think most controversy is around it affecting implantation which has already happened. Really really hope this is a sticky one for you, you deserve it. x

Thanks Hope and Trying. Agree with everything Hope said about IVF. Of course not looking fwd to drugs if I need but the process of being taken care of and relative success was making me feel more positive.
By the way I stopped asprin a couple of months ago - for no particular reason other than I was given mixed advice. I might start again now- what do you think? Cyclogest tonight .. Joy. Hope doesn't give me more spots. Whet with the pred bloat, the hydroxy hair loss I'm already a stunner..!
Thanks for reassurance on hcg levels Hope. Will stay in touch xxx

Sending you a big hug too trying. Everyone I know who has had IVF has either had it work first or second time and I know five different people that did it. You so deserve good news soon too and it will happen for you, xxxx

It is so good that you have the IVF appointment through too. Hopefully it will help you to know it is there. If you work in politics then I'm sure this is a crazy busy time for you but just take the time whichever way you can. There is nothing more important than this. Having said that, in some ways it is good to be busy! As you say, it could be a long week...
Meant to say, my hcg levels were only 200 and something on day 13.

Oh that's wonderful news rosa! Ur one of those who gets the BFP when the ivf appt comes through! It's natural to be totally worrying urself, but ur on asprin and that will def make u spot. Plus spotting is normal in early preg for most! It's just us lot that worry! Also ur on all the treatment and its ur turn to give us good news! Keep us posted tmrw! Yay
Don't worry about work, that comes second now.

Yes rosa, done a whole load of bed time reading. It's taken a long time to get my head around it. I'm hoping I can start mid may. Im just waiting for some miscarriahe immunology bloods to come back-they went to Chicago too! I also want another sperm check for DH-3 pregnancies in one year but his count is so low now we can even have st fwd ivf?? Having isci..we can't get our head around that....saying that it has taken longer this time so obv something has changed. His count has magically dropped?! After taking all the supplemtns?

I'm feeling a bit better about it all, after the initial shock. At least it's not months of waiting for a bFp and from St to finish its a one month protcol and I'll know soon enough. If it doesn't work it's only a few month break, and we go again. Now I know a natural pregnancy is bascially off the cards I have no choice but to get on with it

Fingers crossed for u rosa, good news is due and I'm sure it will be urs

Achy feeling could also be everything bedding in. I had it with my son too. I found it stopped around 16 weeks.

Meant to say, the achy feeling is a great sign too! I had full on period pains and back ache until I was seven weeks. I rang Louise and she said it was the cyclogest which I think was the case.
I wish I could make this time go faster for you. The waiting is torture but this proves that your body can get pregnant. Also it is still much more likely that this pregnancy will work out than not. I have everything crossed and more! Xxx

Thanks Determined - it really, really helps to have you girls here, I can't tell you! Apparently SO can slightly increase risk of ectopic preg so I've to call if pain gets any worse. This could be a v long week... And then who knows. I'm going to try wfh tomorrow and rest more. Have London trips coming up.. My accu lady said I should avoid but not sure how supportive work will be .. This could go on... Really hope this is good news and it's contagious for you all x

Thanks Hope.. Really appreciate it. Will try find these in Boots tomorrow. I'm shattered as had 3 hours sleep and was in work early to sort a visit from the PM of all things!
I was a bit cheeky with the bloods as I just called to book a test with the nurse (my liver result was a bit high so stopped hydroxy and wanted to see if better- and asked if she could do HCG too). I then saw a GP on call who was so helpful and offered to do the bloods anyway. She didn't know anything but kept calling consultants to get answers. If only all docs were so lovely and helpful. My IVF appointment came through for early May. We do need to pay, even on NHS it's £4.5kish. So at least that's lined up too.. Lots to read though. Trying, have you got your head round it all? I think you were maybe lying low for a bit though so hope you're well if so.
Determined - hope the supplements are good. I made the most scary looking juice at the weekend which took my DH a day to get through but I had in seconds. Apple, carrot, cucumber, celery, kiwi, courgette, broccoli, lime and both macca and spirilina powder. Yes it was greeny brown and not the most delicious but really virtuous! X