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Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

991 replies

sunnyday01 · 06/02/2015 20:10

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

OP posts:
Hula2 · 24/04/2015 20:29

Sasha hope you re ok and today was as easy on you as it could be. Thinking of you.

Hula2 · 24/04/2015 20:28

Rosa so so pleased that your scan was all good !!! Been thinking about you all day but couldn t get online. I understand about not wanting to get your hopes up too much but you ve got your foot one step further up the ladder to your take home baby and thats worth celebrating. Hope you can have a relaxing weekend with your dh.

Rosa27 · 24/04/2015 17:50

Thanks Determined. I do hope I can now continue to pepper this forum with positivity and avoid any more stressful meltdowns. You guys really, really help as I know you get it.
Happy weekends everyone xxx

Determined123 · 24/04/2015 16:39

There literally aren't any words!! That is the BEST NEWSWink so so pleased Rosa xxx

Rosa27 · 24/04/2015 15:17

Oh thanks Drttc. I'm too petrified to celebrate. Still worried about the colour and the twangs and my heart is racing! They are thinking of moving my original scan that was next week to 8 weeks now so I have a long fortnight before the next milestone probably assuming everything did still go ok. I wish I could believe this was going to be ok.. I really, really want it to be! X

Drttc · 24/04/2015 15:04

SO HAPPY FOR YOU ROSA!!!!! Amazing news!!! Happy dancing for you!!!

Could it be one of subchronic bleeds people also talk about? Xx

Rosa27 · 24/04/2015 13:59

Well people... I'm in utter shock. The brown and the pain are exactly like before all my miscarriages and perhaps a sign things are going wrong BUT my scan showed everything is exactly as they would expect at 6 weeks.. Even a heartbeat.. So I have hope! In shock and can't really take it in. Had contacted the hospital about a D&C was so convinced and been seriously thinking about adoption. It's still so very early and I can't get my hopes up, but so hard not to a bit now... What a roller coaster !!
Sasha- thinking of you today. You haven't tried the immune therapy and I hope for both our sakes I can give you a reason to be positive about the future too. Look after yourself and allow yourself the time you need to wallow etc.
hi everyone else x

Hopender · 24/04/2015 06:30

I'm so sorry to hear that Sasha. It is so unbelievably rubbish. I have had seven miscarriages but I'm now six pregnant with my second son so I do believe there is hope for people like us. It is bloody hard though.
Rosa, I only just logged on and saw your posts. I will be thinking of you so much this morning. My sister-in-law had bleeding all through the first three months and I had spotting intermittently. I know it is never a good feeling to see it though even if things are absolutely fine. See what the scan says and know that we will all be here for you. It is unbearable but you have been so strong already and I am sending lots of love and positive thoughts your way, xxxx

Hula2 · 23/04/2015 20:16

Rosa glad to hear you re home. Praying for positive news from your scan tomorrow but sending strength to bear it ifs not. x

Hula2 · 23/04/2015 20:13

Sasha so so sorry. No one should have to go through this. I hope it goes ok tomorrow and sounds like once you feel strong enough then immune testing would be the way forward. Take care of yourself. Big hugs.

Rosa27 · 23/04/2015 16:47

So sorry Sasha. You're right. It really does fucking suck. So cruel. Also feels crazy in this day and age we still have so many unknowns and need to suffer so much. Hope things go smoothly and quickly and you can recover and look forward soon.
I worry I will be in limbo before in your boat... Anyway at least nearly home. Take care x

SashaKerr · 23/04/2015 15:00

This reply has been deleted

Message withdrawn at poster's request.

Rosa27 · 23/04/2015 14:27

Thanks guys.. I'm not sure how I feel yet. Even if I did know, no way of knowing if it would be genetic every time again after or not.
I didn't know the size of the eggs had anything to do with things though.. Must look into that. It was my 2nd cycle of SO and one was large and was told 'could go on its own' and another they hoped I would get with ovitrelle. I had two others deemed two small. I have 5 antrals on each side which in told is not bad for 'nearly 39'. Who knows though! I just don't want this to be all I remember about 'some of the best years of my life'. But I know why we do this... And of course would all be worth it IF.....

Hula2 · 23/04/2015 14:14

Rosa just popping in to say hope you re ok. Sending hugs.

Ps i can completely understand about the testing so at least you can have an answer to why and think i would make the descision to go for that if it was possible. Take care of yourself. x

Determined123 · 23/04/2015 13:35

Forgot to say I am a great believer of you need to do what you need to do...if you need testing for your sanity, hope, grieving, whatever you must push for it...you still have a chance though (but I know how it feels too when you think you pretty much know :( ) hugs xxx

Determined123 · 23/04/2015 13:33

No I didn't, the only one I thought was t quite right was #3 (as did SO and I just had the feeling the eggs weren't right, massive in fact!). I know any of them could have been genetic but generally mine have all had the exact! I mean exact same pattern (plus my nk cells have gone mental now) so I believe it's most likely immune...with #4 I didn't go to epu and don't think my GP even knows...I just was so fed up and done with it all.

Xxx

Rosa27 · 23/04/2015 13:13

Determined, I know you know. Did you find out it was genetic? Think I'd need to know something could be different if could bring myself to try again....

Determined123 · 23/04/2015 11:35

Don't be sorry we are all in this situation together! It's so unfair! I would have that scan just so I know...good or bad as I feel it's better to know. I'm pleased your dh is with you and sorry you have a long train journey when you just want to be home.

I know that numb feeling but I can tell you it gets better/easier. Sending you lots of hugs xxx

Rosa27 · 23/04/2015 10:48

Thanks so much everyone. It feels like all my other miscarriages though. I'm so glad my DH made it here.. We are just psyching up to travel to Kings X and get the long train back to Edinburgh .. Praying it doesn't all happen on the journey. Have a scan in Edinburgh at 11 tomorrow but don't expect will need it. What next? Not sure I can believe it's worth continuing right now.. Feeling numb as well as sad and scared. I'm so glad there are people that can relate to this.. Though so sorry at the same time as means you've all suffered too x

Drttc · 23/04/2015 10:20

So sorry you're going through this Rosa :( As Determined said this can be completely normal! Even people in this group have gone on to have healthy babies post bleeding scares. Try to make yourself as comfortable as possible. Get the robe and slippers on! Relaxing a bit can only help. Hope your DH has given you a comforting cuddle during this tough wait xxx

Determined123 · 23/04/2015 09:19

Rosa sorry you have this anxiety at the moment :( it's awful (as you know I got that t-shirt twice on the plan). you know it's not over till it's over, miracles happen and the symptoms are all normal for pregnancy! I know there isn't much I can say or do right now to help (such a waiting game) but you are in my thoughts and prayers and really sending all the positivity in the world Flowers xxx

Rosa27 · 23/04/2015 07:41

Meant 11weeks of course. DH arrives soon. Worried about all this happening in my long train journey tonight.

Rosa27 · 22/04/2015 23:34

If be 6 weeks on Fri- still so so early but my usually relatively flat tummy is anything but.. It's like I was at 11 months!
I just have to pray this is one of these cases of false bad alarm. Other people get these. I just never have. Anyway. Off to sleep as pred will wake me at 3 at the latest then my DH arrives 730. Thanks for writing tonight. Means a lot x

Hula2 · 22/04/2015 21:47

That s good if he can come and be with you. What a nightmare this all is for you. Will you be 6wks tomorrow ? Could you try and get a scan somewhere in London ? I had a viability scan with the fetal medicine centre in harley street with ds and i think they do them from 6wks. Stay strong, you ll be in my thoughts.

Rosa27 · 22/04/2015 21:19

Thanks Hula for your support x