Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

Oh rosa, I know how horrible it is and I'm sending you such a big hug. It is awful you are going through this. I lost all my pregnancy symptoms at six weeks and it was enough for me to tell DH and my mum that I had definitely miscarried. I wouldn't even discuss the possibility that I might not have done with them. You are going through something horrible at the moment but soon you will better know where you are with things and that will help. In the meantime get through it whichever way you can. Just don't stop taking the medication! I almost stopped it the day before my good scan as I thought there was no point. Nightmare!

Oh Happy Birthday Hula!! Sorry you got a bfn but glad some positive news with progesterone results. Hope you managed to do nice things and you can at least enjoy a drink. Really hope the next month works out for you. I'm 40 in just over a year and still no children. I wonder if it will never be now of course. My worrying symptoms continue. No breast tenderness, nausea and feel I'm peeing less. Brown comes and goes - as it did before other miscarriages. And on top of dull cramps, and just feeling less pregnant I have had a headache which I never get. I was hysterical crying last night but think I needed it- it had been such a build up of keeping it together and this journey has been years, I just felt if this is it how sad it's all for nothing. But at least somehow my DH and I have got through it and stronger. I'm do lucky to have him.
Hope I so appreciate you trying to keep me positive but for all the reasons above I just feel I can't. Plus I just mentally and emotionally can't do the yoyo-ing anymore. I feel I might literally go mad. I don't know what I will say to you all if I get to my Thursday scan and things are miraculously good.. I guess I will continue to be a nervous wreck until I had the baby .. But though it pains me to think this never mind write it, I feel the signs are preparing me for the worst.
Hoping everyone else is doing ok xxx

Well girls today i turn the dreaded 40 and just got a bfn , expected it as didnt feel pg and i m 14dpo so af should arrive 2morrow and then need to take 2nd dose of humira. On the positive side got my progesterone result from day 21 and it was 64 so at least thats ok.
Really hope i m not going to run out of time tho.......anyone take or know of any sucess stories with DHEA ? Dh is happy to give it another 6mns and then that ll be it and since we ve decided against ivf just feel i want to do everything i can to help it happen naturally.

Rosa hope you are bearing up. Hugs to you. X

Hi rosa, the increased cm is a good sign. That happens at the start when your body is making the mucous plug. I would argue that the spotting isn't an issue when accompanied by a good scan. My spotting was just brown when I wiped after going to the loo. Freaked me out massively but it was nothing. Could your spotting be a bladder infection? It doesn't sound like a miscarriage but i know they are all different. It sounds to me like your body is doing lots to get ready for the baby! I know how hard it is though. I spent most of the first 3 months being really anxious about miscarrying and even now worry about everything going wrong. My DH still won't discuss names because he is worried about tempting fate. I think we worry as a way of protecting ourselves but also because our bodies like to torment us! When is your next scan? Just have one every week until you are at 12 weeks. In the meantime you are doing everything you possibly can be, xxx

Thinking of you Rosa and hope you can distract yourself a bit today. Just hang in there. Xx

Thanks Hope. Was your spotting brown (and 'coffee granule' like- this Is how I've read online it can be described!) Mine has been and last Wed started with lots of cm too which I also doubt is a good thing- which was why was so shocked to see a HB. I had a good scan at 7.5 with first preg.. Then must have failed at 9.3 and picked up at 11.5. So I agree with what you're saying, just know Fri was a snapshot in time. I've so many feelings and symptoms telling me this is failing and nothing positive anymore except no red blood. But all my miscarriages took a while to actually happen - most being 'missed'. I had a massive breakdown last night and just feel numb today. Going to try do some work from my bed on my laptop but it's hard to care about anything when you feel like this as I'm sure you all know x

Hi Rosa, I had loads of pains in uterus in first 12 weeks with both pregnancies as well as lower back pain. I also had spotting with this pregnancy which I'm wondering was to do with cyclogest. It is horrible you have to go through this but it is such a good sign there was a heartbeat. Even though you lost your pregnancies later than this before nothing changes the fact that the scan looked good. Did you have scans at this stage with your other pregnancies? I know with my miscarriages, even if there was a heartbeat something always looked off at the scan. The ones where everything was spot on at the scan worked out. Sending you a big hug, xxxx

Thanks Hula. It's just every sign is a bad one now. I've googled everything and seeing as I'm on a tmi theme .. When I put the cyclogest in I noticed my cervix had dropped which is meant to be bad news too.
I soooo hope I'm wrong but it's impossible right now to feel positive. I will send my wee bean my love anyway. I don't think I could wish for anything more but I really don't think I'm strong enough to carry on this particular journey if no reasons to do anything that might help more. Just so physically, mentally and most of all emotionally drained :( thanks so much for your kind words xxx

Oh Rosa it s just so hard and unfair that you are going through this. I can undrrstand why you are so scared but it s not over yet and that means there s still hope.

Maybe try and focus on sending all that love you already have to your little bean and if (and that is still only if) the worst happens you will know that your bubs could not have felt more loved and wanted that he/she clearly is.

You are so strong to be where you are in this journey that you must believe you can survive this, whatever the outcome.

I m praying so hard that everything is ok.

Hope you can get some rest tonight

Thanks Hula. I'm clinging onto hope but had a hyperventilating crying session and feel it's over... I have been cold and hot today and after bring constipated for days had loose bowels (sorry tmi). I can feel my uterus - not sore as such but it does feel more like it's breaking down than stretching. The tiny bits are brown and slightly yellow (again tmi sorry). I just feel so devastated naturally and again scared... My DH goes away first thing for work .. And not told anyone else. Thanks for writing. Appreciate it so much. I hope I'm wrong but now think the brown I saw earlier in the week was the start of things going wrong and perhaps it was cruel luck to see a HB. :( x

Rosa - hang in there. I had brown spotting with ds for 3 days after my 12 wk scan and could barley dare to breath but all was fine. It could be cervical irritation and not coming from uterus at all. I think progesterone supplements make that more likely esp if using them vaginally (could change to alternative route if so). Just keep breathe and keep positive thoughts. Lots of hugs.

Thanks drttc .. I know I can't get any reassurance here or by googling but on a Sunday there's nothing else I can do and my anxiety levels are through the roof.. Need to put some classical music on or something. If only a glass of wine were allowed! X

Hi Rosa,

From what I've heard it can go either way! Loads of women say they've had cramping and bleeding and been fine. It's always a wait and see approach :(

Has anyone had brown spotting and mild crampy feelings and gone on to have a baby? Googling gives me mostly reason to be anxious. I know I can't know until more evidence either way but bad feeling :( Def going to ask for another scan next week.

Ps I've got pink when I wipe now :(

Sunny, Suemays is right - there's def still things you can do to give you a good chance so try stay positive. To help with weight you might want to consider the Paleo type approach - even just cutting gluten might help. I wasn't trying to lose weight but did by cutting gluten which my accu lady said I should if have autoimmune issues. Sure you know all this but soup is amazing for being filling but not too calorific too. Hope in another month or so of healthy eating you both feel better and get some positive feedback from Mr S about trying again. I'm sure you will.
Thanks Suemays for what you said about me too.. I'm literally petrified. I know people say there's nothing you can do to affect things but I'm so scared to do anything!! I would love to think I could relax at 9 weeks if make it that far but my first stopped growing at 9+3 and found out at my 11+5 scan so will find it difficult until later if make it that far. Perhaps these stats are on treatment though and of course I wasn't then. I've not really got any symptoms which is freaking me out too - and I can't stop worrying 'what was that brown?' I don't know whether will help to find a way to get a scan every week (even if pay for some) or try get through the fortnightly ones. I guess will see what the nhs consultant says tomorrow.
Hi to everyone else x

Ignore my typos ladies- I type too quickly!!

rosa have been lurking for your news. So pleased you saw the heartbeat and that all seems ok at this point. I hope the books helped! I know that once you see a heartbeat and if you are measuring ok for the dates the chance of miscarriage drops. Mr shehata and Mr Nudweke both told me that once you get to 9 weeks with a positive scan the miscarriage threat is gone so you haven't got long to wait.
sunny a friend of mine had twins on ivf after being told her husband had a 1% chance of conceiving and her bmi was worse than yours. She lost two stone and then was successful on the first ivf round so it can still happen?
sasha I would def recommend private testing as the nhs will test you for the basic stuff (which will take ages) and then only offer low dose aspirin, clexane or progesterone. They won't give you intrallipids or any of the other drugs such as steroids that the private clinics offer.

So sorry Sasha :( This is a shitty journey for some of us. But all we can do is keep going. There are so man by success stories and what they all have in common is persistence after loss. I hope you can have some healing time that gives you strength for your next steps.

Hi Susie - welcome!

Sunny! God I can really relate to how your feeling right now. I feel very positive for others, but lately I'm struggling! Thinking about taking a break from thinking about these things as well :(

I've not been able to identify my ovulation (which has never been an issue) and it's devasting. I even ovulated fine in March after my last mc in February.... And now ever since I've been on meds I've suddenly not has CM! Bought CB digital ovulation kit and I've had no peak fertility smiley. Already on CD15, with a 26 day cycle... So this is just no good. I've always ovulated on CD12-14 like clockwork. Needless to say, with no ovulation, I'm not expecting anything to happen this month... So I may pass on the pred in the hopes my cycle will return to how it's been for 28 years! Big sigh.......

Hi, I've been lurking for a little while. I'm in the same boat as a lot of you.

I just wanted to say I'm so pleased for you Rosa & have my fingers x.
Sasha- sorry to hear that you had another MC. I see you're thinking about seeing Prof Quenby in Coventry- I saw her recently & would recommend Her- I'm happy to answer any questions if that helps.
AFM - it helps to know that other people understand what it is to go through this & that there is hope

Thanks Hope - I really won't feel reassured until at least past my longest miscarriage about 10.5 but it's starting to sink in again that there's a chance. I was 99.9999% sure it was over.
Sacha- yes, you, Hope and I all Edinburgh. I think there's someone else too. It's a long way to go but I really did do a lot of research and for me felt Mr Shehata had the most comprehensive outlook and very good reputation. Reading 'is your body baby friendly' and The Miscarriage Clinic website helps inform you of choices and also gives you hope.. Which helps heal as we all know. The weather isn't great up here right now, but when you feel up to it try go for a short walk as I found my endorphins nearly disappeared completely when I let myself stay couped up too long with box sets in bed. But whatever works for you. Huge hug xxx

Rosa, I am so happy for you!!!! I just logged on to check how your scan had gone and this is just the very best of news. I think I told you about how I was convinced I'd miscarried this pregnancy at six-ish weeks and then they found a heartbeat and I was so overwhelmed, happy and scared at the same time. For now just take it day by day and imagine your little bean getting stronger and bigger all of the time! Everything is looking really good!
Sasha I hope you are ok. I can really relate to that feeling of wanting to get tests sorted right away. I always had to have a plan (DH called it being manic too) after I miscarried and actually I think that was pretty constructive for me. I live just outside of Edinburgh in East Lothian but went to see Dr Shehata in London for testing and treatment, as many of the girls on here have done. But there are lots of options to consider and I guess the key thing is to find the right person for you. I wouldn't say that I ever massively clicked with Dr S but I have had success on his treatment plan and maybe that is all that matters. There is also a Dr Siobhan Quenby to consider but I don't know much about her. Sending you a big hug and lots of luck for the future.