Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

I dreamt of my ivf consultant last night who was telling me it was all going to be ok! (I've lost the plot !)

I know rosa, I can completly understand. I hope the next 7 months fly by. At least we are all excited on ur behalf ??

I know, will feel that way when he or she is safely in my arms. I'm just a nervous wreck and know this is it for me so can't see me enjoying the pregnancy .. Will try find a way though.
Don't worry Trying .. One day you're a million miles away then (a month later) you're nearly half way through the first trimester. I didn't feel this would ever be me, you know that, hang in there .. Xx

I'm a million trillion miles away from where u r ...who cares if I'm 30 (soon to be 31)!

Sounds like you ve got it all well organised trying and wow they expect 15-25 eggs must give you a great chance of some super embies.
I sooo hope this works for you 1st go.

Thanks Rosa i remember about ur allergic reaction to humira, i m grateful i did nt get that and yes goes to show still can happen with raised cytokines.

I think i will give the SO a go and if it doesn t work out then at least i won t be thinking what if. Will have to be the cycle after next.

As you say if its meant to happen it will and i remind myself this when i look at ds and think i waited two years to concieve him and i wouldn t change that for a instant so its been nearly two years now for no 2 so lets hope a little bro/sis will be on its way soon !

No rosa, u have got here! Who cares when and how, as long as u get ur little Cutie baby. I'm sure it's all Going To be fine for u. I really do. I'm looking fwd to hearing u enjoying ur pregnancy and believing its ok!

Trying .. I've a REALLY good feeling about this for you. You're so young still too so I'm sure you'll get lots of good quality eggs so even if you were unlucky first time (but sure you won't!) you'll be 2nd time lucky and have other options for future. Part of me of course wishes I had done this years ago now ,. Worried about quality of eggs. Anyway great to hear it's all starting to happen for you xx

Sorry for mammoth post

Ur not being a downer at all. We all in this together for the ups and the downs. Glad can keep TTC, rosa had high levels too but couldn't take humira and look at her now! and SO obv worked for her too. So maybe it's worth giving it a go?? Saying that sunny got preg without trying but took 5'months on SO-so who knows!? If it's meant to happen it just does...

In ok actually, feeling postive and ready to go! I'm on the progesterone pill and metformin at the moment. Ones progrsterone stops on Sunday, I can expect a bleed 2-4 days after and then literally the injections start and within 2 weeks it's all over! So actually it's not that bad...ive taken off time for when I guesstimate egg collection will be - as ive heard its a bit sore for a few days (they collect about 15-25 eggs if all goes well in my age group!). But other than that I don't think I need much time off as I'm part time and have mon/fri off which is amazing for this.. My lovely mum is gonna bring over lots of food so I don't need to worry re cooking (don't fancy my husbands attempt however sweet it may be!). I luckily have a paper work session in the week so can sneak off for scans which take a few mins and intralipds will be at home at weekends Fridays and Monday's ??. So don't think it should be too bad juggling work. the short protcol (which im on) is really quick and over before u realise. My colleague did it last year and has a lovely little boy and I didn't know she was doing it at time but she somehow managed to with full time work and just booked a week off and coincidently it was egg collection week. I just hope it works, if not u take 2/3 months off and I'll just go again. And keep going until one works?!!

So sorry Hula .. Rubbish news :( I don't know if you remember or even knew, but I only had the first Humira shot as had an allergic reaction to it. I paid again to get bloods tested to see how the one shot had affected me - it had only taken me from 40 to 38. So I'm at this point without cytokines being treated further.. Though not entirely sure if pred, intralipids, or anything else helps.
Stay positive - I'm sure that helps, hard as we all know it can be! Xx

Thanks trying. Yep still ttc as now they advise you to keep trying while taking it (thankfully as i don t have time to hang about) I m ok tho seems everytime i try something it doesn t go as planned (steriods screwed my cycle and humira made my levels go up!), was planning to give SO a go and now wondering what ll happen with that...anyway don t want to be a downer, if the worst news on here is my cytokines going up then i m happy with that as long as all keeps going well for our lovely pg ladies.

How are you doing ? You must be starting your cycle any day soon ? Have you got time off work ? I bet its hard not too feel overwhelmed, i think for all of us, wherever we are in this journey its just head down and take it day by day.

Oh hula im sorry to hear that. How r u feeling? Are u still ttc?
Rem as we said we are all commited to the tx but also it seems to work for some without so just keep going! I hope ur ok xxx

Well ladies got my post humira cytokine results and looks like i m in the unlucky 5% that go up not down . Now 34 was 32 so at least not a huge flare but means another 800 quid on two more humira. Strangely enough i wasn t surprise and kinda of just knew thats what had happened. Oh well gotta just plod on, and they reckon it still works evevn for those that flare. Bloody hope so !!! Af due tues so will wait till then just in case....

Anyway still loving on the good news here, keep it coming ladies !

Just re-read my post.... Bloody auto correct!
mentally not one rally!!!

I also agree! So many women have no tx and are fine. Ive read of a few women in mumsbet who went solo and no tx as they got fed up and have babies! Infact one lady I was following has 2 now! And her NK were crazy high!?
I think as long as we r strong and keep going we will all get there..it's just a matter of when! (I hope this is true!)

I'm the same as you Drttc, I firmly believe that I'd have eventually got to the point I am without treatment it was more a case of damage limitation, giving myself the best possible chance and the fact that one rally and emotionally I'm not sure how many mcs I could go through.
I think I'll avoid the Doppler, I've heard they can cause unnecessary stress if you can't find the hb etc.

Fingers crossed for you in a week then, but like you say when it does happen you'll be over the moon regardless of if that's this month, or next.

Sunny, completely understand your worries. But even after all the money I've spent on medical advice & meds, a big part of me thinks that when it works, it'll work regardless for most people. I think this because (as we know) the stat is that 75% of RMC sufferers will eventually have a healthy pregnancy. In most cases this is without any kind of treatment. A few weeks ago a midwife told me that she thinks there are plenty of oeople walking around with balanced translocation who have never had problems, and thereby aren't diagnosed. Sometimes I wonder what the NK results would be on a group that hasn't had issues. Now don't get me wrong, I'm commited to this treatment plan. But it's more about doing everything I can to stand a shot, than actually believing it would never work without it.

Seeking, congrats on your scan! It's really great that you only need to wait a week until the next one. Have you thought about buying a fetal Doppler in a few weeks? I think they can start working at about 10 weeks...

Rosa, you're so sweet! It's starting to feel real now isn't it?! Wish the harmony results would come back more quickly. I guess it'll make week 12 all the more exciting! Have you thought about when you'll do the big announcement? Any guesses on the gender?

Hehe things are really kicking off I agree! Well, if anything, we can celebrate that their is baby dust all over this thread :) dances in it I've got about a week until I can test. I don't feel as desperate about testing as I've been in the past. I think after a while you just exhaust yourself and learn to accept that this whole thing is largely out if your hands. I'd love love love a BFP this month, but if it happens next month, I'd love it just the same. I can't wait to see a long list of preggers ladies on our list :)!!!!!

Very excited for you Trying, I know it must seem scary knowing that aside from the rm issues you've got ivf to deal with too but you're in the right hands, on the right protocol and we'll be here to hand hold when ever you need it. I have a good feeling about this thread now.
Positive vibes going out to all of you, it's amazing the strength you find when you need it.and you guys are some of the strongest ladies out there, still trying after everything.

Fab news seeking, just hang in there, you re doing so well.

Trying i just saw a nutrionist and she recommended biocare omega care which has 1050mg epa and 750mg dha per 5ml spoon ful and said to take 2-3 spoon fulls a day (so getting 2-3000mg epa).

Oh that's so encouraging Seeking - brilliant news. I know it only reduces stress for a few hours but try to focus on the fact things are looking like they are going in the right direction now x

I'm having my first intralipd next week, with ivf u have it just before ur ivf cycle. That means the rest of it is really close too!

Seeking great!!!! That's brilliant! This is becoming the BEST thread ever! Yay! Well done for staying positive, we can all do this. But yes SO STReSSull!

Determined Yep that's per capsule and I take one! When r u ttc? Is it june? Have u got an appt with mr s to discuss things?

All this good news is almost making me want to TTC again...

Woohoo! great news :) xx

OMG - this thread moves when you are not in for a few days! fab news Sunny :) god I am so pleased for you all and your great news :)

I asked Louise about flying when I was preg last time and she said fine (I know I lost it on hols but I knew before I went it was lost and believe it was nothing to do with the flight...preg test said so). Being on hols is a great time to get that all important tlc and rest and sleep etc!

Rosa I am welling up...I am reallt so pleased!

Trying - is that per capsule?

Thinking of you too seeking xxx