Immune/natural killer cell treatment when TTC or pregnant (aka the 14th pred thread)

Thinking of you today trying xx

Determind you poor Thing with the headaches I has one off a couple of days but luckily gone. Have you spoken to Louise about them? Could she maybe suggest anything?
Hoping you feel back to normal self soon xx

Determined ur hormones are still all over place but u got the pred etc and ur going through so many diff emotions. It's natural to be feeling not urself. Ur fog may have lifted but u will feel the haze for a while. Hopefully in a bit u will feel better and ready for Ttc again! Hope u have something nice planned this weekend

Dildoos hope af comes and goes soon and ur cycle sets back to normal. Glad u been resting and looking after urself x

Sorry not sport!!

Sport missed your bit about af, have you had any cramping? X

Hey Dildoos glad you have managed to get some decent sleep! And feeling better. Sleep is a miracle for me I wish I could buy it in bottles!!
I am ok thanks, been struggling with lots of headaches (still) and I am sure that's why I am feeling a bit down with it. I just feel drained and no energy. I am sure when I feel better I will be more up for more tests/trying ttc or whatever but for now I am just taking it one day at a time!

Xx

Hula that's fantastic that you have a little break! I know you miss the little one but if it's anything like my nieces/nephews and friends little ones the grandparents get so excited and they all have a fab time doing fun things. It will be so nice to spend time with DH too doing fun things.

Trying I am keeping everything crossed for your scan tomorrow xxx and and I think counselling is a good thing too. Getting some of the emotions we have been holding and talking to someone outside of our family and friends I think will be really beneficial!

Your DH is right, is he going with you tomorrow? I am pleased you have some date nights and fun things to look forward to! Life is for living and ttc, fertility and rmc's have become all consuming for us all I think at times.

Best of luck for tomoro, thinking of you xxx

Hi all ,
Thank you all I am feeling 90% better after sleep sleep and more sleep!
Still unsure on my next step!
Sunny glad your appointment went well and so for next month I keep everything crossed!
Good luck for your scan tomorrow trying, here's hoping for the kindest answers and treatment plan for you as I think you've had your fair deal of misfortune when it comes to TTC! I am screaming 'ENOUGH ALREADY!' In hope someone is listening!
How you feeling determind?

How are you rosa? Hope?

Nothing to report here other than af due tomorrow and still ok red bleeding? Will it ever come ? X

Hi girls

Thanks for ur kind and supportive words. Got my scan tmrw am. I literally have developed a scan phobia. I've had about 1000 and each time it's been miscarriage, retained products and now this. (Except Once where there was a perfect heartbeat at 6 weeks). Lying on a coach looking at the ceeling while someone faffs about down there FILLS ME WItH DREAD.

Will I need surgery, will hormonal support be enough, will I need ivf. Who knows right now! I'll only know about appt with lower (more thousands spent on this quest!). So for now I need to calm the hell
Down! I've booked in with counselling in 2 weeks for first time. I need my hope back-it's literally disappeared. Is bloody exp! But she's meant to be v good, my acu lady suggested her.

Determined-it's so pants to keep urself lifted. It's so so hard. My DH said today-look our baby will come one day for now lets try enjoy Eachother as we will never get these days back and we make Eachother happy and right now lets just prop ourselves up on Eachother and keep going. I suppose focussing on the good things u have in life can make things easier? Me and DH have decided a weekly date night! Dinner/cinema/drinks wotever just something midweek to get out of house and spend time
Together. I suppose it gives me something to look forward to? Right now I don't want to speak to anyone except him or My Parents anyways.
(And u girls)!

Sunny have u started the hydrox? It's well Tolerated usually so u will be fine!

Hula that sounds Lovely! And very much needed! Make sure u thoroughly relax and like I said, enjoy the good things we have in our life's.

Dildoos and rosa how u doing? Hope I hope moon face gone!

Anyways will post tmrw with rpt scan results no doubt in floods of tears acting desperate and with all rationale thrown out the window!

Sunny sounds like your appointment went well and great to have an action plan.

Hope lovely to hear all going well with the little one on board.

Trying - hope you re ok and good you ve not got long till another scan. Sounds like you ve found a top guy for it too.

Dildoos and determined hope you are ok and you Rosa, this is a hard journey.

I feel i need to live life a bit more and so we have just booked a weekend away just dh and i skiing, yay, slightly scared as 1st time been away from ds for more than one night or more than 20min drive but know he ll have a great time with the g.parents and it will be so nice to have some time with dh. Definetly will ease the blow when af shows up this month !

Hi Ladies

Trying I am so sorry you are having to go through this, at least you are getting answers. Are your periods painful at all? I am glad you have the right specialist on side if it is that. (Am so sorry its just another thing to deal with on this nightmare journey we seem to be on).

I have heard people being given a variety of different meds to help build lining and then its worked out fine so I am staying positive and keeping my fingers crossed for you

Sunny - sounds like a good appointment with Dr S. I am so pleased for you and now that you have a plan of action!

lovely to hear from you hope, glad things are progressing nicely!

How are you doing Dildoos?

Thanks for your support Hula, Rosa. Means a lot. I think I will be better when I feel better and my head stops hurting....good luck for the next couple of days! Rosa I know what you mean about happy memories...need to get some fun things in the diary...I feel like I am wishing my life away a bit at the moment and not really 'living'.

waves to all/anyone I have missed xxx

Hey sunny. Ok, glad u feeling ready to go and u can go back on SO. Hopefully u know wot dose works and it will happen v soon for u!

Thanks so much for the advice too. I'm def gonna talk to mr s once I've had my repeat scan,HSG and 3D uss from mr lower. . I have my uss scan nhs and now having a private one on Friday. I'm not gonna lie, in terrified I have ashermans will need major surgery and will never get my uterus to a state where I can try again. I keep wondering wot my Periods used to be like but for the last 2 years I've been preg of miscarrying and before that had the mirena so they were light. So really my periods 4 years ago I have no memory over! I have a proper bleed but maybe it is lighter. Anyways, must try keep calm and see what my next tests show. Mr lower is uk asherman specialist so at least I've only got a week or so to see him.

Hope lovely news. So happy for u! Ur little one must be excited too!

Rosa-when r u testing? Are u gonna go for SO?

Oh trying, I am sending you such a big hug. I know you must be feeling really crap right now but hopefully knowing the problem will help you to be able to solve it. I don't know much about this issue but I have seen loads of things online about building womb lining so hopefully it isn't too difficult.
I have had so many low points and false starts over the years but yesterday had a scan (almost 16 weeks) and baby is doing really well. I know I mentioned a few weeks back about the possibility of abnormalities but it looks like everything is just fine! If it can happen for me (expecting second DS) after seven losses then I know it can happen for you guys too. Sending you all so much love, xxxx

I am a November baby actually 18th which I share this date with the birth of Mickey Mouse sorry everyone needs a claim to fame! Xx

Hey Dildoos, Trying, Determined, Hula, Hope, Sunny and everyone else.

It's so cold outside, maybe it's not helping - you know I don't know many people born in October

Trying - what a nightmare it is to juggle all the info, tests, work and trying itself.. I feel for you. I'm in same boat though as only one cycle behind since treatment and 3rd MMC and seem to be infertile as well as having a hostile uterus/ overactive immune system. I don't think will test as know my body so well... Trying to figure out all I need to do if I go for SO later this month... Work trips will need to cancel, things will need to get from Boots, nights we absolutely need to be together etc.. Will be interesting to see the scan though...
Dildoos.. It's important to feel mentally recharged (at least a bit, if not fully) so think you're being very sensible waiting a but to see how you feel when drug effects wear off. Plus I always think.. What IF we don't ever get lucky... I want some happy memories sprinkled in around this time... And the happy times should help everything else anyway.

Well girls.. I know ALOT of people born in Nov so maybe Feb conception is going to be lucky for us x

Hula fx for your BFP this month ! We need some good news! ( sorry not too much pressure there ) xx

Bless your heart , more knock backs is not what you needed! Le,t us know how Friday goes, hopefully you'll be on IVF list and you know what they say about Sod's law and all! You'll fall with a good sticky bean! Xx

Hey girls,

Sorry alot of you are having a rough time.

Dildoos i can t imagine the emotional roller coast it must be with everything u feel after a mc plus coming of pred and progesterone - u are a strong lady and completely understandable u need some breathing space.

Trying - sorry to hear about your lining. Were u on pred this month? Try not to think the worst like scarring etc, more likely hormones out of wack somewhere. I know how devastating test results can be. I remember getting my amh 4 years ago after 18mns ttc, it was 0.5 and i was utterly devastated and thought that was i had no hope of concieving naturally or maybe even with ivf. so next month went to ivf clinic for 1st consult, didn t know it but was actually preg with my ds at that appt. My repeat amh that month was 3.1 so my point is don t get too disheartened by just one test, these things can change so much even just month on month and worse case if u did need ivf you are young so will have great quality eggs and then immune treatment to back things up.

Sunny - hope the appt went well.

Determined - hugs to you. This journey is so hard that is so understandable to feel like giving up but you are Determined and u will get there, you all will.

Hi to Rosa, Hope and anyone i ve missed.

Afm cycle behaving so far thankfully, am 6 dpo, not taking pred (or aspirin, keep having panics about taking anything..), not sure when i will test as just hate early testing.

Hugs all round.

Good idea to give urself a break dildoos. U need to recharge and then evaluate what u want to do. It's such a shitty time. I'm Sorry :(. The cloud post Miscarriage is so so sad.

I did the uss coz I just knew that I wasn't getting preg and there was something wrong. And I did it to try clam Me down! But instead it did the complete opposite. I've always been worried about scarring as both my d and c were done for retained products only a few months apart. Ur right, the oestrogen etc is def something I need to discuss with mr s. however I feel like getting more and more inpatient and can't keep waiting for a bfp to only miscarry again. If its not scarring, then I'll speak to mr s and try oestrogen patches while I look into and wait for ivf as they have months and months long waiting lists. Who knows I may not need it if my Lining behaves! Right now, I don't have any hopes! They are all in the dustbin!

Oh trying sorry to hear your news.
What a mind game for you right now!
I think the fact you have your steps on what your going to do is a vey good positive thing.
If a low oestrogen thing is causing it would oestrogen tablet form help?
How did you realise about your lining? Did you just book on for a scan as you had an inclination?
Hug to you what a traumatic time. Hopefully some positive answers will come on Friday . I keep my fx ! Xx

I think I need a little break at the moment but so hard to say as still feel a bit psychotic under influence of pred so I will re assess how I feel in a couple of weeks. Right here right now I don't think I am strong enough for another mc.

Sunny how was your visit?
Determind how you feeling now?

Hey hula, rosa and everyone else x

Hey girls

Dildoos-u sound like ur doing really well. It's so shit, sending u a cyber hug. Are u taking a break from
Ttc or ploughing ahead? Hope the bleeding starts and u can physically get over that.

Determined-it's natural to feel low and loose hope sometimes. It would be weird if u didn't! U have a good plan for mr s, just keep the faith that its gonna work next time.

Sunny-how did it go?

Rosa-when are u testing?

Hope-u must be like 16 weeks now??!

Hula-is af behaving? U must be half way through ur 2ww?

Ugh I have some bad news too. But not what we would expect in the RM world. I had an uss done a few days ago and my lining is prac non existent :(. I'm having one repeated on Friday but this could be why I've not gotten preg.

2 reasons for it that I can think r likely.

1-scar tissue post my 2 d and c. (Ashermans syndrome). Am
Seeing me lower in London in 2 weeks for a HSG and scan looking to see if I have this (and check my tubes too).

2-some weird hormonal thing that means my lining doesn't develop. Prob low oestrogen.

I've not spoken to mr s yet. Will speak to him when I've seen lower and know exactly wots going on. But, if its option 2-I think it's looking like ivf (it was v thin) with monitoring of my lining. If its no 1 it's major surgery.

Either way I'm feeling devastated. To top of the world of RM I now have some weird infertility problem. Im so worried that now i cant even get preg afer being mega fertile before! I've got secondary infertility but without baby one :(.
I've been goggling ivf clinics like mad for 2 days and looking up rates and its such a scary thought. I've pulled myself together today. And trying to keep things in perspective.

First step repeat scan Friday. Second step see mr lower.
Third step talk to mr s and see what he thinks I do from here.

I knew there was something up, I got preg so quickly before. Cycle 7 and nothing again :(

Sorry to be a moaner! Needed to get it off my chest!

Someone please bring some good news on this thread???

Determind your allowed to say what ever is on your mind on here! I hug you right back it's so rubbish right now for us all . I think the highs and lows are just so frequent xx

Good luck sunny - let us know how it goes - fingers crossed you get the info you need.

Dildoos I want to give you a big hug! This is all so crap. Even with all the grief and emotional pain you have you are also having to deal with the stopping steroids and hormones which is horrendous in itself. (I still have a headache!).

I know what you mean about not trying again...I feel pretty done with it all right now. I know I left my appointment last week feeling really positive but I am not sure I want anymore tests or anything. I know I won't but I feel like forgetting about it all! So sorry...came on here to offer my support but ended up whining!

xx

Hey sunny hope the appointment went well. Let us all know as eager to hear.
Trying I know I am not holding it together they have had to deal with outbursts of rage followed by tears, short staffed at work. However the pregnant receptionist has been my rock and very very gorgeously sympathetic she has had 2 MC and now about 28 weeks but she is allowed to be in my eyes as she is lovely.
I cancelled my 6 week scan and intralipids have been refunded. I didn't really see the point in going and paying to chat when I don't have any questions and at the moment I don't even have the urge to try again ( new feeling for me here and hoping it's the drugs coming out of my system as was on 800mg cyclogest up until Monday evening ) the bleeding hasn't turned red yet but actually due on af Friday so hoping that will clear everything. I am to do a home pregnancy test in 2 weeks to make sure negative.

How are you all anyways? X

Good luck sunny. Have u got a list of questions written down? Let us know how it goes
Dildoos can't bel u had to go to work. U sound like ur holding it together v well. How r u feeling? Have u got an appt with mr s?