Immune/natural killer cell treatment when TTC or pregnant (aka the 14th pred thread)

Sunny- you're in my thoughts.. Everything crossed for you. I will never forget my last 3 week wait to know if the symptoms were bad news or not.. It's agonising. BUT.. So many times they are NOT bad news.. You do need to stay positive and distract yourself. TV series that have helped me include Mad Men (did all series in a week!) and Scandal. The Good Wife is quite good too.
Suemays... Thanks so much too.. Lots of extra info to add to our collective encyclopedias! Congratulations on getting there- so happy it was a story with a happy ending. Seriously we should all write a book of experiences.. There is such a gap in the market and I know I'd buy it!
Hula- thanks for the link. Sounds good and would be good to get Louise or Mr S view. Wonder ok if taking asprin too...? Do you know if it's expensive.
Hi Trying, Determined, Hope and everyone else.. Hope you're all doing ok. I'm emotionally volatile right now- seem to have a crying episode in the evening quite often... Not sure what's going on but hope I can move on to a better phase! Jan blues nearly over.. Come on Spring, sunshine and good news! ??

Oh and suemays how did you find taking dhea ? Did it affect your cycles and which supplement did u take, i ve considered it because my amh is also low.

Also had anyone looked into or heard of wobenzyme ? Came across this link:

natural-fertility-info.com/fertility-wobenzym.html

What do u think ?

Oh sunny i m so sorry you re in limbo. It s amazing how slow the days go when you re in this situation. As trying said with three follicles then there is the twin possiblity and lots of women bleed throughout the 1st tri and things are ok so stay strong and i ll keep everything crossed for you.

Hi Mackoo - good to hear you ve got a plan of action. I had borderline cytokines so held off on humira to try pred a couple of months but am retesting in a few wks and if they are worse will prob do humira.

Determined - hope you are doing ok, its good you have your hol and def good to enjoy the some freedom with the food and wine, the whole tcc thing can feel so restrictive sometimes.

Hi to everyone else, afm i m waiting to ov and hoping my cycle bounces back to normal after last month's 12 day one, so far on day 11 and just had a little ewcm so fingers crossed. Spoke to Louise and she said it wasn t the pred but i m not convinced...! 15 years of 28 day cycles plus or minus a few days and then a 12 day one after the pred seems to much of a co incidence. Interesting what you were saying Suemay and thanks so much for sharing. I feel uneasy with any drugs (and think i m quite sensitive to them too) so nice to know there are other options too like the intralipids 3 monthly. I wonder if Dr S would offer that if i can t tolerate the pred.

This is such a hard journey but we ve just got to stay strong and believe that when the times right it will happen for all of us.

:(
I want to say it might be ok. But I know for us when we see the blood it means one thing. But u never know, it might. Alsooooo u did have 3 follicles could it be a twin? That happens too-that u sadly loose a twin early on. And one stays on. U won't know anything for sure till ur scan

Lots Of hugs. God it's shit on here at the moment for some Of us on here.

Try again. If u fail twice then he tries hydroxy. Has the spotting stopped?

ha ha - I knew what you meant - thanks for your support trying :) x

PS add pate to that long food list! he he!

Sorry I mean a distant nightmare in time to come when u have ur baby
It is nightmare right now!
Ur being very brave x

Ha! It's ok. Indulge now and go get the bluest cheese u can find! Lots of hugs. It's so sad :( but this will have all been a nightmare for u in time to come.

Thanks Mackoo, its so pants but getting better/easier each day that passes! I will always be sad for what could have been but I am trying to be positive.

Yes I am trying - its snowing loads right now (in France) so staying in...hence why I am MN so much :) I know what you mean...today I feel the best/most relaxed i have felt in the last few weeks. (Finally I thought the fog would never lift). Not thinking about every little feeling or twinge or analysing everything and not being on pred is a massive bonus - about the only positive I can find with this crappy heart breaking experience).

(P.S - am seriously going to have to run about 5 marathons when I get home as I cannot stop comfort eating/drinking! Whoops )

Are u still away determined? Hope u managed some more vino down u! I find the part post miscarriage the freest I am! I have sex when I want, drink coffee have alchol and choc! Plan holidays etc. it's so bittersweet. But use it as time to recharge and decide on ur next step On action.

Hi Determined, thanks for your reply! Yes, it's reassuring to have a plan of action in place. At least we're doing something about it...

I went through the older posts and read about your MC :((( very sorry to hear about it. Hope you're better and hope you get a sticky BFP soon x

Hi mackoo - Glad to hear from you and that you now have a plan of action in place! Feels weird but kind of good to get answers doesn't it!?

X

I was exactly the same. If I didn't tell anyone it wasn't real so couldn't go wrong! And I feel the same about letting people down but we are not! Far from it. Those around you will be so proud of what you are doing and going through to make this work (whatever the outcome). Like trying said spotting is ok and symptoms fluctuate at the stage too. You only need to google it and millions of women have had both and be fine.

Just dug out an old email from Louise for you and you can go up to 2 cyclogest a day if spotting. I didn't get to that stage before I knew it was over but if it was me I would do one am and one pm!

Sending you lots of e-hugs...I wish I could take some anxiety away from you I know exactly how you feel-keep as positive as you can xxx

Hi ladies, I posted here a while ago. Hope everyone's well!

Just had a follow-up consultation with Dr Shehata this morning and found out that we have high TNF and high NK cell count, so starting Humira soon, followed by pred!

Hope we all get our BFPs soon :)

Don't say sorry! I can understand not telling anyone...in fact I think hope and determined held off too....it's natural.
Ur not letting anyone down. It's just shit luck. I'm so sorry.
Could it just be a bad egg? There's always a 20
Percent chance of miscarriage anyway?

Anyways none of this miscarriage talk. U are hopefully fine. I really hope u r x

I can totally understand. I broke down last time and I couldn't deal with the anxiety at all. It's so so hard. I'm terrified of falling preg again. I'm so sorry.
But try stay strong, u got over hurdle one of getting preg. And up the cyclogest and speak to Louise. Prob will have to wait till 6ish weeks for a scan so they can see something meaningful. Can u book that in now so u know u have a scan to see how things are?

Just tell urself u did everything u could. Ur on the pred. And it still isn't over - think postive (totally impossible I know)

Maybe the pred has made the boobs disappear. Oh it's so stressful and crap.
I suppose at this stage they won't see much on a scan. But honestly spotting doesn't mean it's over.

Oh sunny. So I don't want to sound cliche but a lot of women spot and are ok. Is it still happening? And is it fresh?
Pred can make symptoms too?
I really hope it works out, and def up the cyclogest it will do no harm and its what mr s advises too.
I have everything crossed for u.