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Conception

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Requesting referral to a fertility clinic

114 replies

Frettchen · 24/04/2014 15:59

So I finally feel ready to start things rolling (long story short - looking to get pregnant on my own, using donor sperm. Diagnosed with PCOS last year - treating with Metformin, but stopped taking it for stupid reasons. Back on it now.)

I called my chosen fertility clinic yesterday but they don't allow self-referrals, so I've made a GP appointment which is in a fortnight. I figure I just have to go in and reiterate my position, then ask for a referral to the consultant/clinic? Presumably the GP will give the clinic my medical history, or I'll sign something allowing them to have it, so I won't have to be re-diagnosed on the PCOS front...?

I'm going to ask to be referred for IVF, as I don't think I'm ovulating properly, even when I was taking the medication, and it seems like the IVF is a more reliable option for my situation.

Anyone else currently in this situation/has been here? How long does it take to be referred?

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Edenviolet · 16/03/2015 17:10

Thanks, iam going to be on 112.5 it gonal f to start, really worried it will still be too much!

Frettchen · 16/03/2015 10:18

Thanks for the lovely comments, Salad - I'll definitely keep updating, if only because it's an easy place o keep a sort of diary of what's going on.

Waiting - I don't know yet what my doses will be. I just know that they're going to put me on the lowest dose, and they're going to schedule in an extra scan during stimulation just so they can keep an eye on things. I'll post an update once I've got my schedule to let you know what my meds are. Good luck to you for April, I definitely get the anxious thing. I'll be sticking around here, so do pop in for a chat any time you need one.

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Edenviolet · 15/03/2015 09:18

Just out of interest what drugs/doses will you be on? I have pcos and high amh (63.5) and am worried about ohss. I start my cycle in April and am anxious and would be interested to find out what doses of medication others in same situation are on

SaladBeach · 14/03/2015 15:38

Hi frettchen just stumbled across your thread and have to say, how patient you have been! You did amazingly well to lose that weight Flowers Please keep updating us Smile

BlueKarou · 14/03/2015 13:45

Still waiting, only on day 24, so probably another fortnight to go before I can request all my drugs be sent out.

I popped out yesterday to get some more conception vitamins and to pick up my usual regular vitamins, as I usually do, then realised my regular vits have vitamin A, and are not recommended for pregnant women or women attempting to get pregnant. Sneaky vitamin A!

Frettchen · 03/03/2015 13:14

Last bloods came back without any issues, and I have been matched with a recipient, so will be sharing my eggs 50:50 with her. It would be too tight to try to turn it all round for this cycle, so I'm waiting until the end of the month, when AF is due, and I can then ring them up and get sorted out for all the drugs and the timetable etc.

All going well, I'm looking at egg collection at, roughly, the end of May; about 13 months after starting this thread.

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Frettchen · 27/02/2015 12:26

Well, it's all getting very real.

I went back to the clinic yesterday and signed another forest's worth of forms; this time covering all the egg-donation side of things. They'd got the results for almost all of my blood tests; just a couple more to come, and then they'll look at when to book me in to get this thing going.

At the moment timings look like I'll either start down-regging in 2 weeks or, more likely, in 7-8 weeks. My cycle seems to have got itself comfortable at about 39-40 days, which is in many ways good as I have longer between periods, but when waiting to start IVF it's suddenly really annoying!

But yes, it's all about to kick off, I'm just waiting on dates. I've got a sniffer of Synarel ready to start either day 21 of this cycle or the next. Somehow actually having the first of the drugs has made it seem real. I'm about equal parts excited and terrified!

My AMH is high, and with the high follicle count in the last scan, they'll put me on the lowest dosage of drugs so as to keep risks of OHSS nice and low.

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Frettchen · 27/01/2015 11:26

Definitely feel like things are moving now.

Yesterday's scan went well. I was most anxious about the roads and getting there on time (it's an hour's drive on notoriously bad roads) so I got there 20 minutes early and they were running about 10-15 minutes behind, so there was extra waiting!

Then my full bladder (an anxiety thing - I can usually pee like a trooper, but get me stressed and it doesn't want to leave!) and slightly hidden right ovary made the scan trickier than it needed to be, but we got there. I have 20 follicles in my left ovary and 12 in the right, which is a good sign that although covered in cysts, they're doing their job.

They took some blood too, so they'll get all the necessary tests done over the next 4 weeks before I go back to go through my second planning meeting.

The Donor Coordinator, who I had my scan with, mentioned that they do have an unusually high number of donors at the moment, but she's hopeful she should be able to match me up with a recipient in the next month so after my next appointment we might actually be ready to go!

Am trying very hard not to get my hopes up, and to be realistic that the success rate is around 50%, and I'm doing everything I can to make this work, but sometimes it just doesn't. Pragmatic thinking all the way.

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Frettchen · 23/01/2015 14:28

Well my e-mail seemed to work; I'm booked in for a scan and blood-taking on Monday - massively last minute, but luckily my boss is ok with my suddenly taking a day off. Don't want to make a habit of it though, esp as we're low on staff, so it's a bit noticable when people are suddenly taking random days off.

Will then have a follow up appointment at the end of Feb to go through the egg donation side of things.

Just need to remember not to come to work on Monday, and work out something fun to do with my afternoon off.

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Frettchen · 14/01/2015 17:58

Oh no, Tinker that's not good. Good that they've raised it again for you, but a shame you've lost the time.

I'm not sure when my consultant gets back involved with things - everything seems to be sorted out with the nurse and the egg co-ordinator at the moment. I do still have his secretary's details, so that's definitely a good call. I hadn't even considered going to them. Thanks for the advice!

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TinkerBlue · 14/01/2015 17:18

I feel your pain, just found out that a referral I've been waiting for two months for has got lost in the system. They can trace it back to Dec 5th then the paper trail ceases. Therefore they have decided to raise the original referral request again. Bah! I have been chasing it consistently, I found my consultants Secretary's contact details online eventually. Don't know if this is something you could do? Also, my gp' s practice Secretary is a mine of useful contacts and information my new best friend Wink
Hth Flowers

Frettchen · 14/01/2015 16:49

Thanks for setting my mind at ease. Being forgotten about is something fixable. Better that than just generally being delayed and terrible at communication. I'll give them a day or two to reply to my e-mail, and if they don't I can call them on Friday (as am off work that day and it's awkward finding private places to make calls when I'm in the office)

I feel very much at the mercy of the clinic. I've done all the research I can, and yet I'm still waiting on their every word because I've never done this before. Who has?! They have been really good the times I've seen them. I just don't like the loss of control. Hopefully if egg donors are in such short supply then once they're back on the ball they can sort things out for me and some other lady/couple can get their chance too.

One of the pregnant family members I mentioned is my best friend and the person I would usually be sounding off to about how unfair it all seems, and how it's totally my turn next, but as she's just discovered she's pg with her 3rd, I'm going to have to rein in my whinging. It's totally my turn next in my circle of people - no one else gets to cut the queue!

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Nomio230 · 14/01/2015 16:28

I would definitely be hassling the clinic by now. It sounds to me like someone has not done their job properly & you have been forgotten about. I have heard that egg donors are in short supply, so would have thought that they would be eager to have you.

I know what you mean regarding everyone else having babies. Even though you are happy for them, you sometimes want to stamp your feet & shout "I want one!"

Frettchen · 14/01/2015 15:54

I don't know if this is typical of fertility treatment as a whole, or whether I'm a particularly unlucky one, but I've heard nothing from my clinic since the end of October. I was in on the 29th to sign all the forms and go through the process, it was bad timing cycle-wise, so the nurse was going to call me the following week to organise coming back in for a scan and blood tests. Only that never happened.

Then I got distracted with the sperm ordering, and then Christmas happened. All the while still no contact re: scan/bloods. I don't have the nurse's contact details, or really any one person I can contact about my treatment. I've finally plucked up the courage to 'be a bother' and have e-mailed the main info line of the clinic in the hope that they can direct it to the right people.

It's frustrating because I know that a lot of this hinges on there being someone out there who wants my eggs, and nothing will happen until a recipient is found, so the sensible part of my thoughts is pointing out that it will never be a quick and easy process, but I have no idea whether they've even started looking for that recipient.

In the mean time I've been looking at the timelines. If, and this is unlikely, we got everything going in time for my next cycle, I would be looking at egg collection just a couple of days after my 30th birthday. I know it's just a number, and 30's young and all those things, but it's another landmark to pass with no progress.

I'm mostly venting my stress now, just because I don't like the waiting and the not knowing if anything is happening. I have two family members who have announced their pregnancies in the last few months, as well as seemingly countless people on that awful facebook who are either expecting or have recently had their babies, and I'm genuinely happy for them, but each one just makes me that little bit sadder that it's not happened for me. I know it was my choice (if choice is the right word) to go it alone, and that I'm lucky to only have the PCOS on my list of medical maladies. I just wish it could be easier.

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Frettchen · 20/11/2014 20:56

Oh gosh, I don't think 'strong' is the word, though I thank you very much for being so kind.

This so far has been the easy bit; I'm careening forward on determination (also known as stubbornness) and a healthy lump of denial as to how hard it's all going to be! It'll all change once I'm matched up and things start. That's when it's going to get terrifying.

I'm not really on my own. I have my mum at hand for support, and can call on my best friend for pretty much anything. Plus for any questions or midnight panics there's always Mumsnet, right?!

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Nomio230 · 18/11/2014 18:47

Wow, I have just read all your posts & I am in awe. You seem so strong, going through all this alone, losing weight & still managing to buy a house at the same time. I fall apart every time I see af!

I really hope that someone picks your eggs soon & that your donor sperm work.

Frettchen · 17/11/2014 14:42

Knew this surreal day was coming but...

Today I'm buying sperm on the internet. Danish sperm, no less.

At first was pleasantly surprised at how little it cost... Then got the secret bonus amount invoice which covers stuff relating to UK laws on 10 families per donor, which bumped it up to just over what I had expected to have to pay. But yeah, that's going to be all sorted once I've paid the second amount.

Just in time as well; I exchanged contracts on my house this morning and will get the keys on Friday. This is good; it means between sorting out the new house, moving, and Christmas I'll be nicely distracted and not waiting for a call from the clinic to tell me they've found me a recipient. (Surely there must be someone out there who wants my eggs!)

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Frettchen · 30/10/2014 15:12

Kitten nursery sounds fab! I've got my heart set on there being a book nook or 'library' somewhere in the new place, even if it's just a corner with bookshelves and a beanbag!

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juneybean · 30/10/2014 12:52

Aww good luck with completing, very stressful isn't it! I wasn't even in a chain! I've turned spare room into nursery for the kitten so that's been kind of therapeutic :D

Frettchen · 30/10/2014 12:16

Really sorry to hear things haven't worked for you yet, but congrats on the house and the kitten! Hopefully the change of location might prompt some better luck for you.

I've been living at my mother's for the past 3 months after selling my old place, and should hopefully complete on the new in the next fortnight. The hardest bit will be holding off on designating a room to be the nursery until there's actually reason to do that.

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juneybean · 30/10/2014 12:04

I had two DIUI but both failed, have bought house and moved in earlier this month, have just bought a kitten to stave off my broodiness as cannot take time off for the next few months so will perhaps try a third DIUI next summer.

Frettchen · 30/10/2014 12:01

Hey juney how are things with you?

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juneybean · 30/10/2014 11:49

Hi Frettchen we were emailing earlier this year. Great to hear things are moving along for you :)

Frettchen · 30/10/2014 11:40

After what seems like forever, things are finally moving.

The long delay was basically me losing weight. I'm now down to a BMI of 30, and am continuing to work on getting it lower (under 25 is the longterm target but that goes on hold once I start the IVF) but am at last able to get on with things.

I went to see one of the clinic nurses yesterday to talk through the process and to sign a large number of forms. Seriously - I'm buying a house at the moment and didn't have to sign half as many forms for that!!!

Anyhoo - I need to go back for a scan and another blood test (hepatitis and hiv results only last 6 months and i started all this about 5 months ago so they'll need to get that done again) - could have had the scan yesterday but due to house/nurse/work stress and my defective ovaries, I'm over a week late for my period, so she wouldn't have got a good look at my womb lining. Any tips on encouraging my late period to arrive?

Next up will be the choosing of the sperm - my clinic don't have any in stock because there is this massive shortage of UK sperm, so they've suggested I take a look at the European Sperm Bank. Window-shopping for sperm is a new level of weird, especially given the vast level of details they give you (if you pay for it) luckily not all of them can be shipped to the UK so that's narrowed down my choice.

Once I've sorted my sperm and got the scans/blood tests done then the only thing left is to wait to be matched up to an egg recipient. They can't start my downregging and everything until there's someone lined up to receive half of the eggs, so it's probably going to be a case of waiting a little while longer.

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Frettchen · 29/07/2014 11:33

Hi Cherry, thanks for commenting.

My BMI is down to 32.4, and I've lost 1 of the 2 stone I need to lose, so things are definitely progressing, if not as quickly as I would like. I know there's no safe way to rapidly shed the pounds, and this (calorie-counting) is working at a healthy rate, I just wish it wasn't taking so long. Another month (at least) before I can start all the tests etc for being an egg donor, and then getting on with the IVF.

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