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TTC/Pregnancy on Prednisolone or similar part 4

993 replies

digitalgirl · 19/12/2011 11:28

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

OP posts:
Coconutfeet · 23/01/2012 19:59

So sorry to hear about the chemicals. It?s just such a disappointment. Really hope your cycles get back to normal nice and quickly so that you can move on.

Welcome to Pebbles. Sorry you find yourself here but do make yourself at home! I can never keep up with the messages either as don?t have time to access MN at work.

Free ? Hurrah to a pred-free pregnancy. Does it feel strange?

Duggs ? Great news that you have a problem-free uterus.

Glad the scan went well, Coley. I think I didn?t see Mr S at 14 week, or was it 15. That was the last appointment though as he signed me back to the NHS after that.

Hope the TWW isn?t too much torture for everyone who is waiting. Fingers crossed for some good news soon.

I?m feeling really fed up today. Put an offer in on a house last week and have heard today that they vendors have decided not to sell after all. Really disappointed. There is precisely nothing else on the market that we?re interested in/can afford, and I?m worried about time running out and losing out buyers and being stuck in a one bed flat with two kids. Having thought that we could easily rent if we can?t find anything, I?ve had a look around and realised that it?s going to be nigh on impossible to find anything as we?re in the middle of the Olympic zone and everyone who has property to rent is planning on cashing in by renting for thousands of pounds a week. Gah!

Pebbles73 · 23/01/2012 18:56

Thanks Duggs just wasn't sure if I was meant to stop drinking completely so glad to hear I can still have some wine :). Glad everything was ok today and you can carry on ttc next month. I will be starting next month too.

ColeyOz · 23/01/2012 18:54

I also wanted to check with you ladies in your 2nd trimester about whether I need to see Dr S at 14 weeks or not. What is the reason for that appointment?

ColeyOz · 23/01/2012 18:51

Hi all - sorry I haven't updated yet! The scan went well - its really starting to look like a baby and moving around with a lovely heartbeat:) All booked in for my nuchal/12 week scan at hospital in a few weeks too.

Duggs - that's good news that all is OK with your uterus. At least you can stop worrying and concentrate on the NKs:)

Sue and ari - I really do feel for you during the 2WW - i found it absolute torture. Looking forward to hearing your news.

Hope everyone else is well:)

hopefulfor2nd · 23/01/2012 17:35

Missed pq post, sorry to hear af arrived hun. Hope its over quickly and onto next month! I've always read that you're more fertile after a m/c so maybe the same for chems? Actually, I always felt the same loss for chems as later m/c, it doesn't make it any easier. X x x

Stogan · 23/01/2012 17:31

Yey duggs

lurking for exciting scan news from Coley hope to hear soon as the matchsticks holding my eyes open are soon going to cave under the pressure of my sleep deprived existence !!! Wink

hopefulfor2nd · 23/01/2012 17:29

Yay duggs! Good news x x
Snoopy, sorry to hear its def been a chem. I've had a few and its horrible to start bleeding so quickly. In my cases, I was only knocked out a few days, bled slightly heavier but was able to continue ttc next month no probs.

I've got a horrible tummy bug, freaking out that Todays pred won't have had chance to work. But nothing I can do, so fingers crossed x

Meeting at 5 urgh!
Waves to all x x

snoopygirl · 23/01/2012 17:11

Well done duggs. One less hurdle to climb as it were.

Just got blood results back and as expected HCG level had dropped to 2. So I am armed with my Letrozole and Ovitrelle injection down chemist waiting to be picked up. No panic for that yet though as still no proper period but will be iminent I'm sure.

Waiting to see how Coley got on with scan. Looked up on list earlier and can't believe she is 10 weeks, it flies by when it's not you. When it is you every day seems like a week!

good luck ari and Sue lets hope this is your month.

Arianrhod · 23/01/2012 16:34

Bugger, hit Post before I finished. duggs just wanted to say excellent that they didn't find anything!

Arianrhod · 23/01/2012 16:33

choccy If I remember right free said that appetite thing happened to her with the hydroxy. I cant say it's happened to me but I never have much of an appetite at the best of times.. So how on earth I've managed to put on a stone and a half in the past 2 years is beyond me!! :) I need to get myself on the old exercise machine really, but finding the time is proving difficult.

digitalgirl · 23/01/2012 15:52

Yay for perfectly normal uterus duggs!

Yawn...have a 5pm client meeting. Who the hell thought that was a good idea?

OP posts:
ChoccyPud · 23/01/2012 15:38

Talking of random enquiries - Ari and Free- appetite on hydroxy. Total opposite to humongous appetite while on Pred?

I feel v little desire to eat a lot of the time which believe me is damn weird for me. Couldn't finish dinner the other night. Only thought of eating lunch on Sat when I noticed the time. The only thing that's changed since I noticed this is going on the hydroxy.

Hopefully this along with dragging my Mr Greedy belly down the gym will cause said belly to retreat a bit before it gets all Pred-ed up again.

Duggs glad you're out and have results. Another thing crossed off the list I guess?!

duggs1976 · 23/01/2012 15:02

I'm out of the hospital gown! Smile they didn't find anything wrong with my uterusGrin so i can carry on ttc as usual in feb! If I wasn't on dr s programme I'd be disappointed as no diagnosis. At least I've checked and can carry on with super ov. They won't let me go until DH arrives and god knows where he is on a40 somewhere? Waves to everyone and pebbles I drink ESP wine on metformin! Probably shouldn't but if I don't id be in the psyche unit Smile any scans today ladies?

Arianrhod · 23/01/2012 14:51

I think no-one can be thought of as an interloper to be honest, if someone has an enquiry about anything to do with the treatments we're discussing, whether or not they are diagnosed, then they're very relevant to this thread. I can't speak for everyone on the thread, of course I can't, but that's how I look at it.

eurochick · 23/01/2012 14:46

Thanks for the IVF advice Pebbles

Lotion I know how you feel. I joined the thread before I was tested to ask the posters here some questions but always felt like a bit of an interloper. Unhappily, I found out that I do belong here after all!

Free that is great news!

I am sure there were other people I was planning to reply to... I will check in again later.

digitalgirl · 23/01/2012 14:38

Good luck to duggs today

Thanks to ari and sue for updating the list.

free you are steroid-free today! Not long till you can stop popping the progesterone. Less than 3 weeks right?

Spd pain seems to have calmed down today. Have a spot in the ante-natal group physiotherapy class on Monday so hopefully learn something useful.

So sleepy at work...watching cartoons is not helping!

Also lurking for news from coley

OP posts:
Pebbles73 · 23/01/2012 13:54

Thanks everyone for welcoming me on the thread. Not sure I am going to be able to keep up with you, couldn't belive how many messages there were since I looked yesterday! I am not allowed to use the internet at work or use my mobile until lunch times (the company I work for are great but treat you like children in this respect) so can't read it until around 1ish.
Free I am so happy for you making it into the 2nd trimester and on your last day of steriods. You just have to try and relax a little now (prob fairly impossible I know!) as you are doing so well. :)
Good luck to the ladies on thier 2ww will be hoping to see good news.
I wish somebody had told me about the killer cell thing years ago, am so thankful to Free for making me go and test although I of course wish she never had to go through any of this herself.

Arianrhod · 23/01/2012 13:24

I'm not going to test until 12DPO sue ... given that I tested on the 'approved' 10DPO last time and got a faint line (that of course turned out to be an early miscarriage), I would utterly freak if I got another faint line on 10DPO. I've never had a good result before 12DPO previously anyway, so I'm just going to wait. That would make me testing on ... hmm .. Wed 1st Feb. But as I said earlier, for some reason I am in a rather "don't give a monkey's" frame of mind for some strange reason this time. I think I'm just utterly fed up of the whole thing - the stress, the worry, the huge amount of supplements etc I'm now taking every morning, the cost of the whole lot if I do manage to get pregnant again, which in all truth I can't really afford. The last lot rather wiped out my bank balance, plus it's OH's 50th early Feb so all my 'spare' money has already been spent until next payday in the middle of Feb. I'm honestly wondering how much longer I want to put myself through this. But we'll see :)

So how are you keeping yourself sane for the next week then sue? :)

suemays · 23/01/2012 13:00

Ari when are you testing? I am already getting fed up with the 2ww but have a week to go!

suemays · 23/01/2012 12:59

It makes you wonder if some clinics would rather take your money than do what is best for you. Anything to do with babies or children seems to be a license to print money!

Arianrhod · 23/01/2012 12:48

And when you consider how costly IVF is .. why aren't ladies going for IVF routinely tested for this before they start the IVF process properly? Ok, I know it adds another £200-ish onto the cost of the IVF treatment, but given that IVF runs into the thousands, I'd say it's worth it?

suemays · 23/01/2012 12:38

Sorry meant to say Ari, not Digi!
I also wonder how many women could be spared this tragedy if they knew about killer cells. Plus how many failed IVFs are down to killer cells too?

suemays · 23/01/2012 12:36

Digi just moved myself on the waiting to test area:

Monday 23rd Jan
BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 33+2 Due 10/03/12 next scan 10/02/2012
Digitalgirl - High NKC - BFP cycle#2 28+0 Due 16/04/12 MW appt 25/01

2nd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 25+0
Comedy - V High NKC - BFP cycle#2 ? 22+2 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 21+6 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 21+2 next scan?
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 13+6 Next scan 27/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 13+4 Next Scan (15 weeks)

1st Trimester
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 10+2 next scan 25/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 10+0, Next scan 23/01/12
picolina123 - V High nkc, pred cycle 1
Hopefulfor2nd - High NKC - TTC#2. First scan 8/02/12

TTC
Waiting to test
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Suemays - V High NKC, TTC #2. Superov cycle 1, testing on 29th Jan

Waiting to ovulate
buster76 - V High NKC, Factor V Leiden
eurochick - High NKC, superovulation cycle 2, pred cycle 2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Snoopygirl - V High NKC TTC, #3
Cherrycheeks - V high NKC, TTC#2

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting hysteroscopy, then superovulation cycle3
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1 from March
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid

Good luck with all the scans today and this week. Duggs good luck with the op today!

Arianrhod · 23/01/2012 11:49

Just realised, if the dates in the list are correct, coley has a scan today? Let us know how it goes!

And choccy I know exactly what you mean, it's so sad that not many people seem to know about killer cells, but truthfully it's also really sad that the NHS don't test for this. How many people cannot go private, aren't lucky enough either to be able to find the money or else have insurance, and so don't ever have a chance? How many people would have that chance to have a baby, if the NHS would be more proactive about finding out the cause for miscarriages? Bad enough that you have to wait until 3 miscarriages before the NHS will do anything, but what they do just isn't enough in most cases. Heartbreaking, as you say.

Arianrhod · 23/01/2012 11:45

Updating the list, added 2 days to everyone. Hope I've done it right, apologies if I mess it up!!

Monday 23rd Jan
BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 33+2 Due 10/03/12 next scan 10/02/2012
Digitalgirl - High NKC - BFP cycle#2 28+0 Due 16/04/12 MW appt 25/01

2nd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 25+0
Comedy - V High NKC - BFP cycle#2 ? 22+2 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 21+6 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 21+2 next scan?
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 13+6 Next scan 27/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 13+4 Next Scan (15 weeks)

1st Trimester
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 10+2 next scan 25/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 10+0, Next scan 23/01/12
picolina123 - V High nkc, pred cycle 1
Hopefulfor2nd - High NKC - TTC#2. First scan 8/02/12

TTC
Waiting to test
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2

Waiting to ovulate
Suemays - High NKC, TTC #2
buster76 - V High NKC, Factor V Leiden
eurochick - High NKC, superovulation cycle 2, pred cycle 2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Snoopygirl - V High NKC TTC, #3
Cherrycheeks - V high NKC, TTC#2

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting hysteroscopy, then superovulation cycle3
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1 from March
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid