Help protect children from gaming harms.

Take our survey

Please or to access all these features

Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

TTC/Pregnancy on Prednisolone or similar part 4

993 replies

digitalgirl · 19/12/2011 11:28

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

OP posts:
snoopygirl · 24/01/2012 12:04

Hi,

just mailed midwife at nlc. I asked her advice re taking the letrozole on day 2 for sup ov and about booking in for follcle scan next week and she said the recommendation is to take a month off as the chance of miscarriage is increased. I don't want to take a f**king month off!!!!!!!!! I haven't got a spare month!

aarggh ..... as far as I know Sue carried on after her chem last month why not me?

Arianrhod · 24/01/2012 12:00

I know exactly how you feel choccy, it's almost as if time has stood still for me, but absolutely flown by in relation to everyone else! How bizarre ...

ChoccyPud · 24/01/2012 11:55

It's so hard to keep up with everyone though! Also it shows me how out of it I've been with eg Battery suddenly quite a few weeks pg. I'm thinking how did that happen?! Where's the time gone?! It must be 2 months since my last mc already. And I feel like its been (another) total blur. Don't remember much of our London night out for instance. :(

Oh well best look forward- it's less than two months til March. Not that af has turned up and was due yday. Pah.

batteryhen · 24/01/2012 10:59

I think it is really lovely that there are so many of us to offer support and advice :)

I think I will take the vits all the way through. On the advice sheet from Mr S it does say to stop at 12 weeks but to carry on with a pregnancy vitamin & omega 3? So may as well just carry on as usual!

My tablet regime is : cylclogest first thing, pred and vit d3 at breakfast. Aspirin at lunch, pregnacare at dinner and another cyclogest and clexane at bedtime. I need to carry on with the aspirin until 34 weeks and clexane until 6 weeks after the baby is born ( if I get that far!)

Buster76 · 24/01/2012 10:57

Morning all!
Blimey I cant keep up with all the news!
Nice scan news coley
Glad all ok with the uterus duggs
Yeeehh 2nd trimester free and no more steroids!
Sorry to hear about the chemicals Sad
Hope alls well with the scan tomorrow battery
Hello pebbles

Well I'm confused.com!! Second month of 'trying' CD16 today, usually 32 day cycle. Started using opk CD10, no smiley face yet, however had some bleeding this morning - should be ovulating really!? What is going on?! Help!
My first cycle of steroids made me a week late! Dont know what is going on! Should we continue to try? Or should I give the steroiods a miss this month?

One born every minute on again tomorrow. Torture myself again!! I should be use to it now, I'm a neonatal nurse!

Hello to everyone!
xxx

eurochick · 24/01/2012 10:36

free I was the same. The first night on the pred was the worst for me and then I wouldn't say I slept well, but I didn't sleep quite as poorly as that first night.

LOL@the "handling fee".

I cannot believe how many of us there are on this thread now! There are 28 entries on today's table!

freelancegirl · 24/01/2012 10:19

It all made sense to me! I think I will take mine throughout too, although not beat myself up if I occasionally miss a day. I was a bit worried about missing the Cyclogest last night though. Although a lot of the times people only seem to be on it until 12 weeks anyway, as I think the placenta takes over hormone production around that time doesn't it? Either way I will keep popping those pessaries until 16 weeks or more just in case.

I find the first couple of days on the Pred are the worst sleep wise, then you start to get used to it.

Arianrhod · 24/01/2012 10:13

Argh sorry all, utterly rubbish day so far, brain is obviously frazzled since I just reread what I posted and noticed a positive surfeit of "throughout"s. Forgive the disjointed posting! How can just one day of 25mg pred cause interrupted sleep? Yet it did .. I was awake at 2:30 and again around 4:10, after not being able to get to sleep until about 11:30. One tiny tablet caused that??

I shall try to make sure my postings at least make some kind of coherent sense before hitting the Post button!!

Arianrhod · 24/01/2012 10:10

Morning all! Just thought I'd say, when I was pg with DD I took pregnancy supplements right throughout, as well as Omega 3 throughout, because I didn't see any reason to stop them. After all, your body is nourishing the baby right throughout, right? And Omega 3 is critical for good brain development, which continues in the baby right throughout the pregnancy, obviously. I did mention to Mr S about this some time back when we were discussing supplements, and he was ok with me continuing with Omega 3 throughout a pregnancy - should I ever get that far of course!

I have to say, I rattle with the supplements I take every day :( And to think, before I got pg with DD all those years ago the only thing I ever took was one multivit and one evening primrose oil a day. How things have changed!!

kittens good luck with the foam (I understand the ewwwww) and I LMAO at the 'handling fee' Grin

/waves to all

freelancegirl · 24/01/2012 10:02

No, Battery I think I am carrying on with that. A lot of people take it throughout pregnancy. I am still taking:

AM: Hydroxy (initially Mr S said until 16 weeks but he is still deciding)
Mid AM: Aspirin (due to stop at 20 weeks)
Main Meal: Pregnacare plus Omega 3, Vitamin D and Selenium. I think I will ask Mr S about this lot. The selenium was just something I added myself after a bit of Dr Googling.
Bedtime: Cyclogest (scheduled to stop at 16 weeks but I am away that week so might stop at 17 when I come back)
Bedtime: Thyroxine (as I always do)

Are you going to stop the vits? I know most people on the thread have. Anyone else carried on with them? I have to admit I am rather fed up of them, but feel they might be good to take anyway. Before all this miscarriage business I was taking a variety of sports/fitness aiding supplements so I guess there's no reason I can't carry on rattling.

batteryhen · 24/01/2012 09:47

free Have you stopped the pregnacare too?

freelancegirl · 24/01/2012 09:39

Pico are you under Mr S as well? The first scan will be to check it is in the right place, look for a heartbeat etc and the next ones are to check it is growing and all looks good. I know the tendency is to think why do I need to have them but if there are things that look a bit concerning he can address them - so well worth doing all scans scheduled.

As a 'front inserter' with the cyclogest I would say just lie down and pop it in like a tampon. Do it last thing at night and then you have more chance of it being absorbed.

£10 handling fee is a bargain Kittens. I like a happy ending Grin

May I ask what the foam injection is about? Am trying to figure out whether it could be rmc connected but can't quite make a connection...

Good luck tomorrow Battery! I am worried re Friday too. Yesterday, being my first day without the Pred, I also forgot to take my aspirin until I went to bed and only realised this morning that I had forgotten the Cyclogest!! I popped one in this morning to make up for it. But it seems I was rather unusually relaxed about the meds.

batteryhen · 24/01/2012 09:34

kittens Grin What a bargain! Goof luck with the foam!

Havingkittens · 24/01/2012 09:18

Just a quickie from me as I'm getting ready to go and have a load of foam injected into my womb Shock - I'm slightly "eeewww" at the idea of that foam coming back out again!

So sorry for PQ and Snoopy, how bloody frustrating to have a glimmer of hope dashed like that. God, this really is a rollercoaster isn't it?

Battery, I still have IBS on the Pred. Like you, anxiety can bring it on big time and I don't think the pred side effects help at all. I hope all goes well with your mum's op.

I had a reply from Cheryl yesterday that gave me the right giggles. I had asked her the price for a semen analysis. Apparently it's £150 with an additional £10 handling fee. Grin I think £10 is pretty good for a hand job. Maybe they do a special offer after the first £150 you spend. They may want to re-think their terminology. lol.

batteryhen · 24/01/2012 09:17

free It's all such a worry isn't it? I feel ok this morning, tummy is still a bit sore from my IBS attack yesterday, but I suppose the scan will tell all tomorrow.
picolina - Excuse me asking - but where are you putting it? Front or back? I used the front for the first day then decided I didn't want anything irritating me up there and used the back. I have to do it twice a day too so am quite used to it now. Top tip is to lay on your left side to insert it , that way the colon etc lies the right way and makes it easier for insertion :)
Didn't say hello to pebbles before Hellooooooo!

picolina123 · 24/01/2012 07:13

hi digi,
i think im starting my 7th week this week, not sure why they are doing it , prob to confirm heartbeat? i have another one in two weeks then im not sure whats going to happen.

i have a question regarding cyclogest pessaries, ive noticed they are getting a bit harder to put in , any tips? its been easy so far. i have to use them till week 16.

Pebbles73 · 23/01/2012 23:18

Thanks for adding me on the list Digi have added my details. Feel like I have now 'officially' joined.

Free defo feels a bit strange communicating like this and particularly calling
you Free! :)

Glad to hear I am not the only one not keeping up Coconut.

Monday 23rd Jan
BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 33+2 Due 10/03/12 next scan 10/02/2012
Digitalgirl - High NKC - BFP cycle#2 28+0 Due 16/04/12 MW appt 25/01

2nd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 25+0
Comedy - V High NKC - BFP cycle#2 ? 22+2 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 21+6 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 21+2 next scan?
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 13+6 Next scan 27/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 13+4 Next Scan (15 weeks)

1st Trimester
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 10+2 next scan 25/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 10+0, Nuchal scan ??
picolina123 - V High nkc, pred cycle 1. First scan 25/01/12
Hopefulfor2nd - High NKC - TTC#2. First scan 8/02/12

TTC
Waiting to test
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Suemays - V High NKC, TTC #2. Superov cycle 1, testing on 29th Jan

Waiting to ovulate
buster76 - V High NKC, Factor V Leiden
eurochick - High NKC, superovulation cycle 2, pred cycle 2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Snoopygirl - V High NKC TTC, #3
Cherrycheeks - V high NKC, TTC#2

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting AF then, superovulation cycle3
ScooterChaser - V High NKC - TTC#2 - on hols!
ChoccyPud - V High NKC - TTC#1 from March
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Pebbles - High NKC, PCOS - TTC#1

freelancegirl · 23/01/2012 22:06

Battery am having a little chuckle at the fact your posts are exactly the same as mine but just a few weeks behind :) My white cell count was a bit high too, but Mr S said that's nothing to worry about, and my worry like your IBS worry was that the allergic reaction to my wedding ring that I got with the first pregnancy of 2011 was a sign my immune system was kicking off too! And so far it seems it is all ok. Also still having those pregnant/non pregnant days. All the time. In fact it changes every minute. It helps me when I get people who are further down the line telling me they had the same thing! So I hope this helps you too. Gosh what a mentalling journey this all is.

batteryhen · 23/01/2012 21:23

Thanks stogan. They were only up a bit, my IBS is stress related too - my mum is going into hospital tomorrow for a big op so I am worried about that too. Along with the scan etc. I just have days where I don't feel pregnant etc so I am feeling anxious too about that.

digitalgirl · 23/01/2012 21:21

battery the IBS could well be a digestive thing from all the progesterone in your body. Not only is your placenta taking over and producing more hormones than your corpus luteum, but you're also taking cyclogest. Worth dropping Louise a line though and get her much more professional opinion on it.

OP posts:
Stogan · 23/01/2012 21:18

Battery my white cells were up after my booking in too , they wanted to re test me but made me wait all weekend, turned out it was nothing at all Hun sofingers crossed yours is the same xx

batteryhen · 23/01/2012 20:57

Hello :)

Hurray for coley and duggs. Really pleased for the good news today :)

A bit of a me worry and question........ For the first time today I have suffered a flare up of my IBS. I am worried my immune system is fighting back a bit? Am I worrying for nothing? I had my bloods taken last week at my booking in and my white cells were up a bit. I haven't seen the dr yet - just took a peek at my results ( I work there).

I have my scan on wednesday and am just a bit anxious.

Sorry for not name checking xx

digitalgirl · 23/01/2012 20:43

x-posted with free huzzah for having a hospital! I think I was booked in with DS when I was 16 weeks, having already had a 12 week scan. Didn't really make any difference. Think of all the women that move houses while pregnant and have to find a new hospital in their 2nd or 3rd trimester.

And lol at 'taking it all in my stride' - striding is exactly the sort of thing that is challenging me at the moment! But thanks for making me feel as though I know what I'm doing. I'm trying my best to enjoy and appreciate my life right now, as difficult as it might be. I'm so aware how much of this pregnancy has been about wishing time away...

Here's the list pebbles do you want to copy and paste this and add your details? Or else give us your details and one of us will add them for you:

Monday 23rd Jan
BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 33+2 Due 10/03/12 next scan 10/02/2012
Digitalgirl - High NKC - BFP cycle#2 28+0 Due 16/04/12 MW appt 25/01

2nd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 25+0
Comedy - V High NKC - BFP cycle#2 ? 22+2 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 21+6 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 21+2 next scan?
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 13+6 Next scan 27/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 13+4 Next Scan (15 weeks)

1st Trimester
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 10+2 next scan 25/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 10+0, Nuchal scan ??
picolina123 - V High nkc, pred cycle 1. First scan 25/01/12
Hopefulfor2nd - High NKC - TTC#2. First scan 8/02/12

TTC
Waiting to test
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Suemays - V High NKC, TTC #2. Superov cycle 1, testing on 29th Jan

Waiting to ovulate
buster76 - V High NKC, Factor V Leiden
eurochick - High NKC, superovulation cycle 2, pred cycle 2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Snoopygirl - V High NKC TTC, #3
Cherrycheeks - V high NKC, TTC#2

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting AF then, superovulation cycle3
ScooterChaser - V High NKC - TTC#2 - on hols!
ChoccyPud - V High NKC - TTC#1 from March
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid
Pebbles - V/High NKC? - TTC#1

OP posts:
digitalgirl · 23/01/2012 20:30

yay coley for good scan news!!! And well done for sorting out nuchal. Let us know the date so we can lurk accordingly.

coconuts sorry about the sale falling through Sad. Buying really is so so stressful. Is there any scope for you moving out of the area and cashing in on the olympic rental thing yourselves? Or will that affect DS's school situation?

snoopy sorry you got your CP confirmation today Sad. Bleeding will probably increase once you stop the cyclogest and hopefully cycle will return to normal pretty quick as it has for other on here.

PQ Sad that the same's happened to you too.

picolina I'll add your 6 week scan on Weds to the list. How far along are you now or are you waiting for the scan to get a measurement?

hopeful hope tummy bug clears up soon. Do you think it's maybe a digestive thing caused by all the drugs?

I have an alien in my tummy this evening. Seems to have acquired several more limbs than normal and is thrashing around in all directions at once. Currently cooking soup for tomorrow's lunch, then have to prep tomorrow's dinner. Then planning on going to bed as soon as possible after that.

OP posts:
freelancegirl · 23/01/2012 20:21

Great news about the uterus Duggs

Coley, great about the scan too! You must be so relieved. I think the regular scans with Mr S are just to check everything is going ok and to have a look at the baby. When would be the last time you were meant to see him? I have gone a bit off-piste as it were so am seeing him at 15 weeks and not sure what happens after that either.

Pebbles (feels rather funny communicating with you here rather than just texting as normal! But I am still here for both of course) noooooooo to the stoppng drinking! Even Mr S says it?s ok. Obviously he might not anticipate us being raging alcoholics but hey? Pebbles we also need to add you to the list now you have officially stopped lurking.

Sorry about the house offer Coconut. How frustrating they decided not to sell. I had a similar thing with DH?s flat the other month ? we agreed a sale and then just as we were about to exchange the buyer decided she didn?t want to buy! The property had been off the market for 4 months thanks to them. Hey you can rent my two bedroom with a garden if you fancy, we are going to be putting it up for rent soon at a standard, non-Olympic price. Nice area, close to the heath and good for transport. But only two beds. And I realise your preferred option is to buy.

I wouldn?t worry about tummy bug affecting Pred Hopeful. It takes a while to get out your system at the best of times.

Sorry it was definitely a chemical Snoopy, hopefully Hopeful is right and it will mean you are super fertile this month!

Good luck with the 2ww Sue and Ari!

Definitely a loss of appetite on the hydroxy Choccy. It?s great! Helped me lose a couple of miscarriage/Pred/pregnancy pounds before this pregnancy. Have put it back on big style but it was a nice relief from Pred Munching.

Digi I was sorry to hear about your sitting on the tube injury! How frustrating and painful. You?re doing so well juggling everything you have on at the moment. You really seem to take it all in your stride.

Lovely to wake up in the morning and only have a hydroxy and no Pred. My drug count is now down to a rather piddly 12 a day Grin

Two pregnancy things from me today. I received a letter from Epsom hospital with a date for a booking in appt, so I am now not hospital-less! Trouble is it is when I am away so i will have to call and change it for after Feb 14th. Means (if still pregnant of course?) that I will be 'booked in' at around 17 weeks pregnant. Is that ok do you think? I have had all the scans etc so it's no bearing on that. Still potentially worrying that the hospital is quite far away from me. But then I haven?t even thought of the possibility that I might have to give birth at some point, so I will get to that somewhere further down the line! Appointments I can handle.

Secondly I picked up my Doppler before coming to Nan's and have just used it for the first time. It took me a whole 6 minutes to get there but I think I found a heartbeat eventually! And there was a bit of random banging which I am not sure but might have been the baby moving around...?

Waves to anyone I have missed