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TTC/Pregnancy on Prednisolone or similar part 4

993 replies

digitalgirl · 19/12/2011 11:28

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

OP posts:
ColeyOz · 11/01/2012 17:06

Sorry about double messages- on my phone!

ColeyOz · 11/01/2012 17:05

Thanks everyone and fantastic news Battery!! You had a slow one to start but now is nice and strong:)

Snoopy- it wasn't me as my OH couldn't make it today. I headed into a room next to waiting area around 2 for my Intralipids. I had a red cardigan on. Hope your appointment went well today.

Free- pregnancy often causes increased discharge so it's probably nothing to worry about. Good luck for tom:)

batteryhen · 11/01/2012 17:02

Thanks for the thanks :)

free I could have written that last bit of your post. On the way back from my scan I really noticed feeling very wet with lots of pains too. I was convinced I was bleeding actually - but all ok still. The nurse said inthe epau that increased cm is entirely normal. If you are concerned - you can get a little swab to rule out any infection?

ColeyOz · 11/01/2012 17:02

Thanks everyone and fantastic news Battery!! You had a slow one to start but now is nice and strong:)

Snoopy- it wasn't me as my OH couldn't make it today. I headed into a r

freelancegirl · 11/01/2012 16:57

Battery that's great news! Sorry - crossed posts before. Yes it is amazing how this pregnancy started off for you. It just goes to show that sometimes we can know too much too early with all our modern technology as everything was clearly spot on at that early stage too. Great news!! We will need to do a good list update with new scan dates on there soon.

And Stogan thanks for that too. Did you have it earlier on too?

My GP clearly thought it was unconventional me asking to go to a hospital outside our area but she says she will put the referral through and ask. Of course she says my local hospital has to agree to fund it but I did point out there would be no additional treatment once I have stopped seeing him privately. I have cancelled my booking in appointment at my local hospital and also my nuchal there. No point, when I am having it tomorrow privately.

snoopygirl · 11/01/2012 16:54

Coley Great news on your scan. I was sitting in reception at around 2pm - there was a lady and OH looking very pleased and excited before me - was that you?

Got the pescription for the Letrozole and Ovitrelle to start next month if no BFP this week so that's good.

On the taking Pred for 14 days issue - he said again to me today (and I think we have had this conversation before) to test 10dpo and if no BFP then stop the pred but this doesn't make sense if in frees case she got her BFP on day 14?? Surely you would want to keep taking just in case, unless you are having terrible side effects?? That's what I have been doing.

Stogan · 11/01/2012 16:47

YEY great news battery !! Grin

Free I'm with u on the leaking, last 3 nights I've been convinced my waters are breaking, I've been having coughing fits and when I cough I'm leaking water !! Time for the tena lady Grin !! X

freelancegirl · 11/01/2012 16:35

Coley that is brilliant news!! So pleased for you. Hope you enjoyed your random few hours wired up to a drip. When are you seeing him again?

Euro on my protocol he says take the Pred for 14 days - doesn't say anything about testing on 10DPO. I did start testing then but was getting BFNs anyway. I started the Pred on what might have been 1/2 DPO (the day after twinges started) just so I could go on for 14 days and not stop and then get a BFP. So if you have only been on them for 8 days that is still really early.

Digi that's good news about work, great that you can freelance too!

It seems we have all found ERPCs easier to deal with than the natural route. My natural one at the start of the year was horrible - proper full on contractions and everything. Actually I've been feeling paranoid today as I have had some muscle aches in my thighs. Probably just the muscle aches from coming of the Pred but I always worry they are going to go into contractions again. Although thinking about it, the pain started in the uterus area before it spread down my legs and back.

Sorry, this is a bit of a TMI conversation but I might need your thoughts on it. Another thing that has made me worry today is slightly wet pants - ie watery cm. I have been thinking up until now that one thing that has been different for this pregnancy is that I haven't had any (just white cm - probably the Cyclogest too). The last two pregnancies I did have more watery stuff and in retrospect I have kind of related that to a sign of problems. So having a bit of wetness today freaked me out. I googled it and it seems normal but half of me worries it is is amniotic fluid and a sign things have gone tits up.

Oh well, only a few more hours to wait for the next scan. Of course the next worry is, if it is still alive, what might the nuchal reveal. Oh to be a happy, optimistic pregnant person!

batteryhen · 11/01/2012 16:34

cornflakes I am so sorry to hear your news :( I have had 2 ERPCs' and recovered physically very well. I ovulated 3 weeks after the first, and 7 weeks after the second (I was further on then). Please do try and take some comfort from people like digi iggi and free, who really are leading the way, ( I don't mean that to sound patronising or insensitive) I hope next time is the one for you xx
coley fab news - I know the feeling of shock!

I had my scan today too at St Mary's. All was good, a nice strong heart beat and measuring 8+3 which is bang on. It is so funny that I had the slow hcg to start, and then measured a bit behind at my last scan, but all seems ok for now :)

I have a scan booked at my local epau next week and then St Marys again the week after. I might cancel the epau one as I am not a fan of too many scans.

I hope everyone else is ok xxx

digitalgirl · 11/01/2012 15:32

Great news coley!

OP posts:
Arianrhod · 11/01/2012 15:14

Woohoo coley, fantastic news! :)

Stogan · 11/01/2012 15:02

Congrats coley fab news xxx

ColeyOz · 11/01/2012 14:39

I've just seen your post cornflakes and I'm so sorry to hear your news. Lap up as much pampering as you can and allow yourself to feel sad:( We are all here if you need to vent! Fingers crossed for next time.

ColeyOz · 11/01/2012 14:34

Hi all- just an update as I an having my Intralipids. Scan went really well! Measuring 8+1 and sting heartbeat of 158bpm:) I'm still in shock.

Mr S said the fact I've been feeling so sick on 40mg is a very good sign that baby is growing. I feel like I can breath easier now- next scan in 12 days.

Sorry for lack of personals but going to have a read through other posts now.

Stogan · 11/01/2012 14:07

Hi to joy and welcome to our lovely home !! X

HUGE hugs to u cornflakes, cAnt say anything that hasn't already been said just take care and look after that body so that ur next cycle u are ready and everything crossed it will be the one for you. XxxxX

eurochick · 11/01/2012 13:37

digi that sounds like good news.

iggi thanks. There is nothing to stop me taking it for a bit longer even if it delays my period, I suppose, save for my own desire to crack on with the next cycle at this point! I tend to get a shivery feeling as an indicator that my period is on its way and am getting the first waves of that.

digitalgirl · 11/01/2012 12:51

cornflakes so so sorry to hear your news Sad. Rest up, take as much time off as you need. I took two weeks off after my erpc, even though physically I could have gone back after one. iggi and free are both shining examples of pregnancy after mc on the treatment.

Good luck to battery and coley today. Thinking of you both.

Just had my HR chat - they're going to fill in an SMP1 form for me and I submit it to HMRC to find out how much I'm entitled to. I can do the odd freelance day at a proper freelance rate whilst on Maternity Leave though, so that's good.

OP posts:
igginezerscrooge · 11/01/2012 12:30

Euro I have actually heard that pred can delay a period, though it didn't do so for me. Is there anything to stop you taking it for, say, 16 days to be sure?

For me, a combo of repeated one-line tests and some periody feelings were the signal to stop.

eurochick · 11/01/2012 11:25

free thanks for your reply. I've been on the pred 8 days now. The info sheet from Mr S says to take it for 10 days and then test. But because I didn't realise I had ovulated at first (it was very late, I didn't feel it and my temp rise was not really noticeable for a few days) I didn't take the first one until 5dpo. I'm 12dpo now and would expect my period to arrive tomorrow or the next day under normal circumstances.

If pred doesn't delay your period, I can just keep taking it until it arrives, so i would love to know what other people's experiences have been on it.

snoopygirl · 11/01/2012 11:20

Thanks ari not looking forward to 2hr drive each way. Catch up later x

Arianrhod · 11/01/2012 11:10

cornflakes so very sorry to hear your news. I saw the post on BC and wondered if that was you. My first MC I had an ERPC and it definitely did make things so much simpler than I've heard others' natural miscarriages were, so don't fear you've become hardened to it all. I am still hopeful even after MCing on Mr S's treatment plan, I think in my case the egg was at fault rather than the steroids didn't do their thing. Hopefully the same is true for you, hang in there!

Welcome joy - I think the other ladies have covered it, but I would say if it were me I would definitely be wanting to get at least NK cell testing. Maybe you are just a very, very healthy person indeed, but not even catching a cold in 6 years seems too much of a coincidence to me, maybe?

/waves to everyone, snoopy good luck for your appt this afternoon!

igginezerscrooge · 11/01/2012 10:56

Hello, just saw Cornflakes' news, am so sorry.
When I miscarried after starting steroids I thought I was the one this treatment didn't work for, had very little hope. I know I'm not in the clear yet, but I never imagined after mc#4 that I'd be sitting here at 20 weeks. Don't give up just yet. I don't think you're hardened by the way, I too found my one ERPC easier in some ways - it drew a line under it more quickly, I think, and was less lonely than mc at home.

PQ77 · 11/01/2012 10:43

so sorry cornflakes. bring on sushi and soft cheese and caffinated beverages (not to mention alchohol). It is just so devastating isn't it when you have your hopes up that the treatment is going to work this time. But as everyone says we have lots of inspriation to draw from this board.

I found the recovery from my ERPCs fantastic, back at work a couple of days later etc so I hope you have lots of lovely sofa time. And getting your roots done! What a great idea. I don't dye my hair when I am pregnant in first trimester, or might be, so am beginnging to look a bit skunk like at the moment.

hi joy - sorry not much to add on the costs side as up to now I've been very lucky to be covered by insurance (investigation of and then treatment of mc as I mc on the first cycle). Will have to reach into my pocket for the first time this cycle unless I mc again. BUPA are begining to get a bit Confused about the constant claims for ERPCs etc. I had an argument with them the other day saying yes, it is indeed incredibly bad luck to have two mmc 5 months apart.

freelancegirl · 11/01/2012 10:37

How many days have you been on it Euro? I deliberately took mine a day or so after ovulation so I could definitely take it for 14 days before having to stop. I didn't get a BFP until 14DPO. Might be relevant to both you and snoopy. Hello Lemon and Hopeful too!

eurochick · 11/01/2012 10:24

cornflakes I am so sorry to hear your news. I hope your sofa time and pampering eases the pain a little.

I am at the end of my first pred cycle and I don't think it has worked. I tested this morning (12dpo) and got a BFN. I haven't felt any pg symptoms this cycle so I think I am out. Do most of you stop the pred before you get your period or wait until it comes? I'd like to get as much pred in me as possible as I started on it late this cycle as I didn't think I had ovulated, but I don't want to keep taking it if it is likely to delay my period and prolong my agony!

free I hope your GP is feeling cooperative. I haven't seen much evidence of the much vaunted "patient choice" on the NHS I have to say.