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Conception

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TTC/Pregnancy on Prednisolone or similar part 4

993 replies

digitalgirl · 19/12/2011 11:28

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

OP posts:
hopefulfor2nd · 16/01/2012 18:29

Hey kittens, the only signs which made me think I might be were occasionally sore boobs and I'm also sometimes getting "sensations" in my womb area. Of course, this are also pre af feelings so Que my fears of another chem.

You've still got plenty of time, so u think you'll test thurs? It ain't over til its over!!

My cousin has had fertility issues forever, I think its a endo type thing. Anyways my aunt passed in Sept and my cousin was preg within weeks. She's more than delighted as she had accepted it wouldn't happen and we all so pleased after all that's happened. I'm hoping for the same thing for you kittens x x

Havingkittens · 16/01/2012 18:19

Hopeful I think I'm 8 or 9dpo so will be testing in a few days. My luteal phase seems to only be about 10-11 days and I don't feel in the slightest bit pregnant so I'm not holding my breath.

hopefulfor2nd · 16/01/2012 18:16

X posts with free. I decided to go with my bum as I've an erosion and don't want to make it bleed and have more reason to freak out! . Not the most pleasant thing to do! How do most use it? I haven't noticed a smell or any kind of discharge from it. X x x

PQ77 · 16/01/2012 18:15

free - you've outed me!! of course I have the rest of the series and you are v welcome to them Grin

PQ77 · 16/01/2012 18:12

Trying to think what to say hopeful - I know the c word isn't right but I am v pleased for you!! If I get a +ve test this week it will be the 8th time I've been pregnant, so I do really empathise with wanting to protect yourself. But you have a lot of people here who understand that feeling perfectly and are wishing you all the luck in the world.

Hi and welcome cinny. so sorry about your losses.

hopefulfor2nd · 16/01/2012 18:11

For now anyways! Just day by day, could still be a chemical at this stage. That's the worst part about all the tests, we can't pretend we don't know what's happening and we have to test so early.
Thank you ladies, its lovely to have u all around.
It's my first cycle if treatment and I know its not worked for everyone first time they've fallen pg. I just have to be pessamistic, its only day 2 of knowing and I'm very aware of my foo foo and what's going on! Def sticking with its the first step. And its a long road. It may all be over this time next week.

Am I right in thinking a few more a testing this week? Bloomin phone won't let me scroll back x x

freelancegirl · 16/01/2012 18:09

Wow Hopeful, well done. I too didn't want anyone to congratulate me and I dealt with it by telling those who were in the know that I had 'managed to conceive again' rather than 'I'm pregnant'! Seemed to help me in the very early days. It's a great step though and I am very pleased you have made it. I am so sick of the Cyclogest, I think others have said this too. The smell seems to stay with me most of the day! Can't wait to be off it. But it's not a bad thing to be taking on the whole.

Welcome Cinny! Yes dive right in and join us! Sorry about what you have been through but yet it is incredible to all be here helping each other along. I started the initial thread with the hope that other people MIGHT be out there and join in and look at us now - we have around 25 people on here and are not far off 4000 posts all together. It's so good to have the support.

Digi, no I am hospital-less at the moment still! ALthough I am away from home so have not been able to check my mail. I did have those initial blood tests done with my GP (blood sugar, and a few ones like syphilis and HIV as far as I remember) so hopefully that means it is ok. I will get onto it as soon as I get home though. Welcome to the third trimester!!

PQ yes it was a TIA. She had one a few years ago and recovered well but this time she has other things going on and is a bit frailer. Not so bad for someone who will be 97 in March and still got her wits and sense of humour about her. I guess that's what we can all hope for! 9/10DPO is still very early as you know. Let us know how the rest of the week pans out!

Oh btw PQ Thanks for lending me that book - I devoured it page by page! Loved it!. Am hoping you have the next one...? Grin I think I am in love with Edward now, along with the rest of woman-kind who still thinks she is in high school

Hi Snoopy glad you are feeling a bit more positive. I am not sure about Pred come down as the last time I came off it I had just had the EPRC so I guess I wasn't exactly in the happiest pace. I am still getting very tired in the evening and have had a bit of limb ache. My eyes still have huge dark circles as well, which I definitely didn't have before this pregnancy.

Huge congrats to Coconut too for reaching viability! It is another milestone.

Thanks for doing all the list stuff Digi. You are so good at it and it is great to have it to refer to. Am wondering when Cheerful and I are brave enough to go up to the third trimester, or do we not have a choice when we hit 13 weeks? Am still confused whether it is the end of 13 weeks or the beginning. Either way, I am 13 tomorrow! It seems strange, the buzz of the scan having gone now and not having another scan for a week or so yet. I have that inter-scan worry that it has all gone wrong and I am oblivious to it.

Hello to anyone I haven't mentioned. Hope all is well.

snoopygirl · 16/01/2012 17:58

ooh hopeful really pleased that you got through 1st stage!! I know how you must feel that's how I would approach it...but you are pregnant woo hoo!

digitalgirl · 16/01/2012 17:47

hopeful Grin squeeeee! Not saying the C word, but am excited for you having conquered the first hurdle of the pred treatment - actually getting pregnant! How many dpo are you? Will add you to the BFP'ers on the list...

Welcome cinny! Glad you found us and hope we can be of some support to you. Whereabouts are you in your cycle now? Waiting to do another superov or waiting to test? Interesting that your body hasn't reacted to the drugs, have you just ovulated normally then - is Mr S upping your dose each cycle? Do you have PCOS?

OP posts:
Havingkittens · 16/01/2012 17:41

hopeful congratulations.

Welcome cinny

hopefulfor2nd · 16/01/2012 17:38

Hi cinny! I remember the relief of finding this thread as well.

I got a positive test yesterday morning, so started cyclogest last night - that's an
experience! We not getting excited, letting the our parents use the c word, just seeing this as the first step. And being realistic that it might not be the first first step.
Don't want to sound awful its just we've been here 5 times and I'm trying desperately to protect myself. I'm terrified really!
How's everyone else today?
X x

cinny76 · 16/01/2012 16:51

Thank you.

I have had two MMC (last ERPC in July 11) both losses had heartbeat confirmed at 6wks scan and then nothing at 8/9 week scan. DH and I were heartbroken as (as I am sure your aware) doctors do not seem very concerned after 1 (and even 2) miscarriages. I was told it was one of those things without rhyme or reason. I sought advice and decided that although there are many women who have a far more heartbreaking story than I, I didn't want to wait for the NHS to help me after a potential 3rd MC. So I found Mr S.

The tests highlighted high level of NK cells. I have 3 cycles of 25 Pred & super OV. I am 10dpo with a negative pg test and Dr S says I should stop pred at 10 days after ov. So I am waiting for AF to start fourth cycle. I should mention that so far I haven't super ovulated! My body seems to ignore the super drugs...so I am monitoring this too!

snoopygirl · 16/01/2012 16:48

hello Cinny,

Welcome to the thread and hope you find some support here. I too had never talked online about anything and feels a bit weird at first but am now addicted (well to this board anyway).
There are lots of things I wouldn't have even know to ask Dr S if not for this board and in fact when I go to see him I barely have any questions!
If it helps in our quest then long may it continue.

(Wow am sounding like the old positive me again! Doom and gloom over for now hopefully Blush )
x

igggi · 16/01/2012 16:35

Hi Cinny, welcome, just tell us a bit about yourself and your situation.
Smile

cinny76 · 16/01/2012 16:13

Hello All,

I have never posted or talked online before, so please stay with me if I make mistakes! I recently stumbled upon your first thread via google search and literally could not put my phone down. I was fascinated and thrilled to find such detail out there from ladies who are going through the same thing. When I reached the end of the thread I frantically tried to find similar and have now found your current thread!

I just wanted to say, thank you for the insight I have gained so far. Reading the good (and bad) news has really helped me understand things I didn't even know to ask! I have found it very reassuring. I can't believe so many people see Mr S! Now I have found the new thread I am hoping I can join....assuming that I have done this correctly!

Stogan · 16/01/2012 16:00

YEY Digi a third tri friend woo hoo. So pleased for u Hunni and so nice to have someone here with me, I'm pleased it's u also as u give me mindless amounts of advice re birth etc !!! Thanks again Thanks xx

snoopygirl · 16/01/2012 14:02

Digi your comment - rather than sitting there making me feel as though I needed to come up with things to say.........I too had a few sessions when first marriage breaking up. and what you said was exactly how I felt and stopped going. I think you probably need to find a counsellor you gel with as I didn't with her. It's not an easy thing to get to grips with I don't think...maybe I wasn't open enough to whole thing??

snoopygirl · 16/01/2012 13:56

Morning all,

Sorry about moaning yesterday, feeling a bit better but maybe because I have a bit of space on my own.... just feel headachey and tired but have lot of congestion on chest which is making me feel crap too.

digi no there is no sign of anything.... i have run out of sticks which is stupid so have ordered some and DH is getting me some for later. Just strange that there is no spotting this month which is common for me in run up to AF. It could be AF messed up and just coming later I spose.

pq was me on testing front - good luck for this week. Oh and I always have white fillings preg or not, dont trust the mercury ones. I need two at moment and been quoted £150 yikes!! Putting it off which know I shouldn't but when theres no pain all I can think about spending that toward is another holiday!

euro sorry about your BFN but things will be clearer on the next run hopefully. Just wish I had taken smiley face stick away on hol at Xmas as might have had better idea of when ov'd.

kittens I hope you find some answers with this scan.

free bet you can't wait to get off the pred, albeit scary. It's not caused me massive probs but def feeling more down when stopped taking them over the months - does it get worse the longer your on it? The come down that is. Hope your Nan is recovering.

coconut That's really sweet about your son

iggi How have you kept preg from DS? Are you quite neat? _ I would be size of house, in fact gone 10weeks people notice with me, pot belies run in my family which doesn't help!

Anyway, I ordered my Letrozole/Ovitrelle for the Sup Ov as the Letrozole needs to be taken from CD2, so panicked didn't have it ordered this morning. Ready for next round. If it doesn't work out this month I can't wait for the follicle scan! Womb cctv and all that, will be fascinating.

digitalgirl · 16/01/2012 13:45

coconuts congrats on reaching viability!

free I keep meaning to post about you not being under any hospital care yet. Did you ever have a 'booking in' appointment with a mw? You do need to get one sorted as they do a bunch of bloods at that stage, so even if it takes a few weeks to get your referral to St Helier's through it might be worth temporarily booking in with your local hospital and getting those initial blood tests done they can then pass the results over.

PQ yes, stupidly early to test! And thanks for the reassurance re: aspirin helping ward off PE. Felt a little dizzy at times over the weekend, but a rest on the sofa helped. I think I was just overdoing it and have to learn to slow down BEFORE I get to that stage.

iggi I wasn't planning on telling DS till about 20 weeks, but had to stop him from jumping on/kicking my belly. Also, extended family kept asking him questions about whether he'd like a brother or a sister once I'd announced at 13 weeks Hmm. Bit annoyed about that, but I suppose they weren't to know that I was trying to limit the amount of information I wanted to give him.

Re: Counselling, I had about three sessions with the NHS after my third mc. Tbh I don't think I got much out of it - I was able to talk quite openly with friends and DH and also vented a lot on MN. I actually stopped the counselling sessions once I had my fourth mc because I realised there was nothing to talk about. I was intent on pursuing the NK Cells route. My acupuncturist proved to be a really good counsellour too. For me, I just wanted to talk to someone who 'knew' about what I was going through and could offer opinions based on their experiences with other people who had gone through what I'd gone through. This is purely my own personal experience of it, maybe if my counsellor had been more involved in what I had to say rather than sitting there making me feel as though I needed to come up with things to say, I might have felt differently about it.

OP posts:
digitalgirl · 16/01/2012 13:28

Monday 16th Jan

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 32+2 Due 10/03/12 next scan 10/02/2012
Digitalgirl - High NKC - BFP cycle#2 27+0 Due 16/04/12 MW appt 25/01

2nd Trimester
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 24+0
Comedy - V High NKC - BFP cycle#2 ? 21+2 due 26/5/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 20+6 Next scan March
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 20+2 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 12+6 Next scan?
Cheerfulcharlie - V High NKC, MTHFR/TTC#1/ (metformin, intralipids, no pred). 12+4 Next Scan ?
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 9+2 Scan 19/01/12
coleyoz - V High NKC. TTC #2, BFP cycle2, 9+0, Next scan 23/01/12
picolina123 - V High nkc, pred cycle 1

TTC
Waiting to test
Cherrycheeks - V high NKC, TTC#2
Snoopygirl - V High NKC TTC, #3
Havingkittens - Upgraded from High to V High NKC TTC #1
Hopefulfor2nd - High NKC - TTC#2
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)

Waiting to ovulate
buster76 - V High NKC, Factor V Leiden
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
eurochick - High NKC, superovulation cycle 2, pred cycle 2

WTTC
duggs1976 - High/V High NKC - TTC #1 - awaiting hysteroscopy, then superovulation cycle3
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - TTC#1, review w/Dr S 14 Jan.
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC
Suemays - High NKC, TTC #2
Cornflakes30 - V High NKC, underactive thyroid

OP posts:
igggi · 16/01/2012 13:28

Thanks guys. My midwife already thinks I'm uber paranoid, but I guess I need to ask! It seems odd to have a local anaesthetic when I've been avoiding even paracetamol for months.
Regarding counselling, I'm pretty sure SANDS offer this (and they do support after mc as well as stillbirth despite the title). I am going to look for some - I realise even if I get my "happy ending" I will still have loads of unresolved feelings I need to talk about - or I'll let them affect me for ever I think. (Not saying everyone would be like this of course!)
I've noticed I'm the only pg with no 2 person who hasn't told her ds yet - maybe I am freakishly anxious after all!

PQ77 · 16/01/2012 13:08

And thinking of you too free. There's great treatment for tia now (assuming that's what she has/had) - hope she is comfortable now xx

PQ77 · 16/01/2012 13:04

Just wanted go say hi and happy Monday while I had a moment. Nice man next to me in the cafe showed me how the free wi fi works. Am such a dunce.

Iggi - oral hygiene is impt! Thats why dental work in pregnancy is free - that said, I am not a good person to ask what she avoids...I've declined dental xrays when preg and asked for white fillings rather than metal. It's a local anaesthetic so I imagine it's fine. I have to have a local next week to get some more of that mole chopped out of my arm (not cancerous but the precancerous stage so they want to go back and take a nice chunk out this time)

Kittens - you asked a few days ago about counselling. I looked at the cruse website and it made me cry! Looked like a really good set up but I am first trying my workplace counselling referral system. They too asked if I had thoughts about taking my life, I said I was too tired for that; unfortunately the person taking the phone booking found my sense of humour a little
alarming. It's a bit slow as I now have to have an hour long phone assessment with a psychologist to see if I am REALLY sad enough to warrant the expense of face to face counselling

Digi - hope you haven't had any more dizzy scares. Fwiw, I read that taking aspirin to 20 weeks is protective against pre-e later, so that's something.

And whoever was asking - approx 9-10 dpo today so wasted a preg test this morning. Held to window for good natural light, under halogen light, put glasses on and consulted dh but no double line! Have had bad cramps since thursday but because of my endo I get them before my period as well as during implantation so can't tell.

digitalgirl · 16/01/2012 12:55

iggi does your dentist know you're pg? I saw mine last week and thankfully all was well. You have to be careful re: gum disease/infections in pregnancy as they're not good for the baby. Maybe call your mw if you're not too sure about the anaesthetic and to check which fillings are ok to have done.

stogan v exciting about drawing up a birth plan. Mine goes something like this:
Pain relief for first stage - will start off with breathing exercises, then graduate to G&A, then pethadine (only if pain is intolerable). Would like to try using the birthing pool.
Want to avoid epidural if possible as worried about not being able to push at second stage - however, will not rule it out.
Want to stay mobile and as upright as possible.
If baby needs monitoring I need to be able to lie in a comfortable position not on my back.
Any internal examinations must be done between contractions.
Second stage - didn't get the urge to push at all last time, would like to wait till body is ready to do this if baby is fine.
Need to keep to upright birthing positions that will not aggravate SPD.
When baby is born - DH to try cutting the cord (didn't want to last time). Want skin to skin and to try feeding ASAP, baby not to be 'washed'.
Third stage - Would like to wait to see if contractions start again for placenta and then give it a boost with the injection. Want to ask if breastfeeding will help stimulate this.

BTW stogan I thought I'd be starving for my GTT, but the sugary drink put a dampener on my appetite till after the last blood test so you might be ok.

coconut DS is also 3. Whenever he notices my tummy he likes to have a 'listen' or give it a stroke. I encourage him to talk to the baby too. He also is preoccupied with my belly button too, I think he thinks it has a direct link to the baby.
I think he's only just getting his head around the fact that it's 'coming' snoopy so I'm not being pestered for an ETA just yet. Any sign of a BFP/AF?

euro sorry to hear AF came, but hopefully this cycle will be a lot more easier to interpret with the extra monitoring.

free hope your nan recovers from her mini-stroke.

An old friend I rarely catch up with told me she was pregnant (first time, first baby) last week before she had her first scan today at 12 weeks. She texted me today and my heart was in my mouth when I saw a message from her. Thankfully it was good news, but I was surprised how nervous I felt in those few seconds...I don't think I could ever relax in that situation ever again (for others I mean, I'm hoping not to have to go through it again - although never say never!).

Will dig out the list in a mo.

OP posts:
igggi · 16/01/2012 12:11

Oh Stogan, how exciting! It IS time to get excited you know! I didn't have my head round ds's arrival till he was about a year old, perfectly normal Grin
Tell me, does anyone know where we stand regarding dental work in pg? I saw my dentist last week and he booked me in for a small filling - am now fretting about both the filling and the anaesthetic.