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Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

Original poster

TTC/ pregnancy on Prednisolone or similar part 3

993 replies

freelancegirl · 22/11/2011 16:20

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

OP posts:
Cheerfulcharlie · 30/11/2011 13:24

Scooter, I'm so so sorry. It's so cruel. I hope you're getting lots of hugs from OH. We're all thinking of you x

Original poster
freelancegirl · 30/11/2011 13:09

Thanks for doing the list Digi.

Am with you all in thinking a lot about scooter and what she must be going through. It is also so much harder having got to over 9 weeks as you would hope by that time that you could start to feel a bit more hopeful. Am thinking of all that time TTC and in the 2ww, all that time in early pregnancy when youre terrified, hopeful, can't tell anyone and just want time to pass. Also, from a selfish point if view too, it makes us all aware of how vulnerable we all are in this position. It's all just such a flipping nightmare!

It's lovely to see the list of second trimesters up there doing well and we all have to stay as positive as possible I guess abd just take comfort in the fact we are here and able to relate to each other and offer support.

I am still going for my scan with mr s on Saturday and will just take it one day at a time if nothing scary like bleeding and pain happens and one scan at a time too. I keep willing the baby to be strong and grow, fully aware that the first one of the year stopped growing at 7.3. Am even wondering whether it's worth having intralipids at 7 weeks rather than 8, just to give it that extra blast. See what mr s says, presuming it's all still there on saturday.

How is everyone else doing today? Xx

OP posts:
Arianrhod · 30/11/2011 12:44

Seconding coconut ... just so very sad this morning, and thinking of you scooter a lot. I know it's devastating, but I hope you and DH are looking after each other and taking as much care of you as possible.

Coconutfeet · 30/11/2011 12:41

Scooter - I've been thinking about you a lot since I heard your news. I don't know if you're still there, but if you are, I really hope you're holding up at such an upsetting time. We all feel so sad that this has happened to you. Look after yourself. xx

Havingkittens · 30/11/2011 12:35

Oh scooter, that's just shitty. I'm so sorry love. xxx

snoopygirl · 30/11/2011 11:47

Scooter I am so sorry darling. I have only just logged on today and shocked after your positive scan yesterday. In tears here, no doubt like all of us. Maybe when you are feeling in a better place, go and take choccy up on her offer. Theres nothing like a RL cuddle and a good blub with someone who understands.
Wishing your all the luck for the future and I can completly understand wanting to take time away from MN, hopefully we'll here from you soon though. xxx

digitalgirl · 30/11/2011 11:27

It's with great sadness that I update the list today...(free have put your new dates in according to yesterday's scan)

Wednesday 30th November
TTC
Waiting to test
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1 test 4 dec
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec

Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
Suemays - V High NKC TTC#2.
eurochick - TTC#1 Awaiting NKC results/ov 28-30 Nov.
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
pureequeen - High NKC TTC #2 again from January (BFP cycle one but mc)
Hopefulfor2nd - High NKC TTC in New Year
BFPSeeker -

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 25+4 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 20+2 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 17+2 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 14+4 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 14+0 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -12+6 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP cycle#1 6+3 Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 6+0 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 5+6 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 5+5 Scan 3/12

Thinking of Scooterchaser Sad

BrownieGecko · 30/11/2011 09:11

I am absolutely lost for words Scooter, I am so very sorry this has happened to you again. There are no words of comfort, just know we are always here. Look after each other. Huge hugs x x x

ChoccyPud · 30/11/2011 07:49

scooter I just saw your news... :( :( I am so so sorry, I can't believe it after your positive scan. I know as everyone else has said its a dark time for you but you know we are here if you want to talk, and when you are ready to start again. We've all been there.

I think I am right that you live not far from me as Redhill is your local EPU... If you want to meet up sometime do PM me, though I appreciate you need your space right now. Lots of love x

duggs1976 · 30/11/2011 06:57

Thinking of you at this dark time scooter. When u r ready , if u come back, you will be stronger. You conceive easily -( no consolation to anyone in our position), but we r the experimental guys and we will help in anyway - sharing info and just support. Hopefully u r getting lots of love and hugs in RL too. X

Stogan · 30/11/2011 06:45

Just woke up to scooters news, what happened? How can things seem so right an then go so wrong? I'm so so sorry scooter. Can only imagine how u must feel I'm in shock, this is heartbreaking. Massive hugs to scooter and to everyone as I'm sure ur all as devastated for scooter as I am, such an amazingly strong attitude though scooter. All the love and luck in the world to you honey xxxxx

suemays · 30/11/2011 00:40

scooter I am so sorry, why do we keep getting put through this????? You have got this far and found a plan that can work so don't give up now. In reality, it will only be a couple of months before you can TTC again. Dr S did say to me that the treatment is more experimental for women with v high killer cells so it might not work first time for me and that he may need to adjust the drugs, this might be the case for you too?

pureequeen · 29/11/2011 23:37

I'm so sorry scooter - I had been so pleased for you as you were my pregnancy "twin" for my last mc and I was thrilled that your pregnancy was progressing even though mine didn't work out (I think you get what I mean, am not v coherent at this time of night). I know that hideous "world going into slow motion" feeling you get when it sinks in that the pregnancy is over. Please stay around, you know we're here for you.

digitalgirl · 29/11/2011 23:10

Oh Scooter Sad
That really is incredibly heartbreaking to hear. I'm so very, very sorry Sad
It's so touching how you still try to look on the bright side about how this swings the statistics in our favour. Thank you.
Take care of yourself, and we're here for ranting and venting about rmc as much as for sharing the journey through treatment.

hopefulfor2nd · 29/11/2011 22:38

Words fail Scooter, just don't know what to say.
HUGE love

iggi999 · 29/11/2011 22:03
Sad I get so angry every time one of us has to go through this shit again. Why?
Original poster
freelancegirl · 29/11/2011 22:02

Oh no Scooter! What on earth happened? I realise you must be sure but, are you really sure?! I understand if you don't want to talk about it but we are all here for hand holding and all thinking about you xxx

OP posts:
Coconutfeet · 29/11/2011 21:49

Ari - There was some doubt as to whether I would be able to get a nuchal scan as the GP cocked up my referral to the hospital. When I mentioned this to Mr S, he said that I could go to the Fetal Medicine Centre on Harley St and have one done with the guy who invented the nuchal scan (whose name I've forgotten but it's a Greek sounding name - someone else on here will know I expect, as he's pretty famous). I think Louise said it was around £170. Anyway, that could be an option if you need it.

Because my referral was messed up, the hospital could only offer me a combined blood test which is done later on, as we were too late for the nuchal. I decided not to have any testing done in the end.

Free - I know you're not out of the woods yet, but how wonderful to see your first heartbeat.

Stogan - Great news on the test results too.

Arianrhod · 29/11/2011 21:45

Oh no scooter, no, that's just not right :( I'm so so very sorry .. what an absolutely shite thing to happen after such a promising scan. You take very good care of you, do whatever you need to heal you, we're always here and will always understand. Thinking so much of you, sending you huge hugs and much love.

ColeyOz · 29/11/2011 21:42

I'm so sorry Scooter:( Look after yourself - try to get as many answers as possible from your doctor. xo

Coconutfeet · 29/11/2011 21:38

Oh shit scooter, I'm so, so sorry to hear that it didn't work out. After such positive news today too. It must be heartbreaking for you to go through this again. I'm in tears just reading your post. Please take some time to be kind to yourself. I hope you've got good support at home. Sending you a massive hug. xx

cherrycheeks · 29/11/2011 21:37

Oh scooter, I'm so very sorry for you- big cyber hugs. :( :( :( :(

batteryhen · 29/11/2011 21:36

scooter ??? Oh no - are you absolutely sure? I don't want to sound patronising or make you explain things you don't want, but I am so sad for you. You poor thing :( Big squeeze. It's all so shit. xx

scooterchaser · 29/11/2011 21:25

Less than 8 hours after my promising scan, it's all over for me I'm afraid. Baby 5 didn't make it. My one slim hope is that I can swing the statistics in favour of you all, I really really wish you all the best with ttc and pregnancies and will probably find myself lurking from time to time to check how you are all doing, but I am going to duck out for a while now and try and get my head round all this, once again.
Love,
scooter x

Original poster
freelancegirl · 29/11/2011 21:17

Hello everyone, I?ve been chilling out for much of the day ?went for a very lazy workout after the hospital and then met DH in a coffee shop after work to debrief. Just done a bit of work and watched a chick flick. Trying not to think too much!

Scooter am so relieved your scan looked good too. How are you feeling now? I am definitely getting a lot more feelings down there this evening, stretchy pains and things. No more spotting at the moment. It?s such a good sign that the scan was ok. You really don?t have much longer to go until the placenta is firmly in control and NK cells are (according to Mr S when I interviewed him) rendered inactive. In fact don?t people sometimes have bleeding around the time the placenta is starting to take over? Maybe that is what is happening to you. Pretty sure that the placenta starts to really take over around the 9 week mark.

Ari I am not sure myself about the doctors however I need more prescriptions and was going to mention the possible urine infection so I have an appointment with her tomorrow and will of course tell her I am pregnant. Not sure what course of action that might trigger and yes it might mean that if I lose the baby I am faced with cancellations of appointments etc. But having never got as far as a booking in appointment (I am not even sure what it means!) I guess I will cross that bridge when I come to it/don?t come to it.

I do keep reminding myself that had I seen a scan of the first mc of the year at this stage it would still have been alive too. But at least I have something there (and in the right spot) this time.

Oh Cherry I know exactly what it is like to be obsessed with the TTC and whole shebang. I really think I caused myself to get RSI with all the obsessive googling I was doing! Thankfully the really sore hands made me back off a bit (that and the fact I think I had actually read everything there is to read out there on our subject ? who?s up for Mastermind??) and I am doing a bit less of it now. Haven?t yet googled heartbeat at 6.2 today but a friend said doesn?t seeing a heartbeat reduce the chance of a mc by a certain percentage? I think it does, but we have other special considerations don?t we unfortunately. I am not sure about when to start Pred but mid cycle seems pretty accurate enough when I have heard people ask Mr S about when to start if they were not completely sure about ov dates.

Great news about the levels Stogan, hope the itching eases up soon whatever it is!

Comedy that is a really lovely idea with the future children. Oh to imagine that one day we will all have kids and they might be reading about our superhuman efforts to get them here!

Still marvelling at Brownie?s encounter with miscarrying Rotweiler woman. It is really strange what life throws at us. Hello to everyone else and sorry not to name check all ? so busy here at the moment. Am grateful for having every single one of you though and it was so lovely to have Duggs for some hand holding this morning, seeing that dimwit here had completely missed the fact that I might have been up for an impromptu scan! Having a little laugh at you stroking your chin about that one Digi and wondering whether to mention it or not :)

OP posts: