TTC/ pregnancy on Prednisolone or similar part 3

YEY digi for the baby kicks, isn't it awesome !!! The strangest feeling ever but fantastic too. X

Hello, wishing I was coming to the meet, would be lovely to meet you all.
Told some friends when out for dinner tonight - find it hard being asked stuff about when I'm going to stop working Other people are a thousand times more positive about my pg than I am! Think I'm going to book a private scan for next week, when I'd be 15 wks. Wore a maternity dress today for first time, made me look enormous! But that's quite nice.

Updating my testing and ovulation date:
Wednesday 30th November

TTC
Waiting to test
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1 test 4 dec
Suemays - V High NKC TTC#2. OV 23 Nov, testing on 7th December, pred cycle no. 3
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov 4th cycle of pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Test 10 Dec

Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)

eurochick - TTC#1 Awaiting NKC results/ov 28-30 Nov.
Snoopygirl - V High NKC TTC, #2, ov 10th Dec ish
Havingkittens - Upgraded from High to V High NKC TTC #1
pureequeen - High NKC TTC #2 again from January (BFP cycle one but mc)
Hopefulfor2nd - High NKC TTC in New Year
BFPSeeker -

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 25+4 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 20+2 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 17+2 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 14+4 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 14+0 anomaly scan Jan
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid -12+6 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 6+3 Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 6+0 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 5+6 Scan 8/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 5+5 Scan 3/12

Thinking of Scooterchaser

Free dress sounds lush, will have a look in a minute!

I also echo all the sentiments about having each other to talk to. I am finding this a lot easier than before mainly down to all of you!!!

Thanks digi. We need these kinds of reminders. I guess we were also " supposed to be having kids in our early 20's biologically - don't know about anyone else but I hardly knew WHERE I was during most of my 20's let alone where I was headed. My auntie - not a blood relative - told me out of the blue she had 7 miscarriages, 3 still births and she is a mother of 3 -40 somethings and a grandmother to 5. She was a nurse and am sure started in her early 20's but she was quite matter of fact and said back then they just said wait 6 mths an try again. Not an awful lot of progression over past 40 yrs then but her eyes widened when I explained about the cocoon thread. She said her mother hardly knew let alone anyone talking about it. I guess women over the ages have had to carry many burdens and I have to say -later life stage families (late 20's onwards) - and other modern afflictions -PCOS etc) are def the curse of our generation.
BUT we r lucky enough to have got this far with the best attention in the world and each other so we can smile to ourselves for that. Strong women the lot of us x

Ah and Charlotte St Hotel is minutes from my office so I'll be there super early too!!!!

Just got home from work and am so very very sorry to read about your loss scooter - thinking of you x

Hi to everyone else and very much with you regarding the very big space these pregnancies / TTC are taking up in our brains. Amazing we hold down jobs really!

Sorry if I've said it before but free I've had a lot of pain on lower left to the point where around 7 weeks I thought it was ectopic but was told that it could partly be caused by constipation - which made a lot of sense for me!

Looking forward to meeting some of you next week - I won't be able to get in until closer to eight I think x

Have been trying to get my head around the stats and at a glance, despite the recent tragic events - we're still doing rather well for a bunch of women with killer wombs.
I think iggi in particular is flying the flag for those who are embarking on their second pregnancy on treatment. Without wanting to put any extra pressure on you iggs getting to second trimester is an amazing achievement and something that all of the women in the first trimester look forward to.

I also wanted to say to those worrying about miscarrying around the 8-9 week mark, my last mc was detected at 8+3 with the baby measuring 8+1. I wasn't on the treatment, but if I was it wouldn't have made any difference because the karyotyping revealed the baby had triploidy - a chromosomal problem. There was nothing I could have done to prevent that from happening. And I think that's the key thing to try and hold onto - you are all doing everything possible to make your pregnancies work. Sometimes that's not enough, but it won't be because of anything you are or aren't doing. As difficult as that is to accept - it means that no amount of worrying wil make the slightest bit of difference.

I know how hard it is getting through those first few early weeks. It's really unsettling when one of us miscarries, especially when they're 'close' to you in pregnancy terms. When Georgie (from the first thread) miscarried I felt the rug had been pulled from under me. She was only a week behind me - I felt that the same could easily happen to me. But it didn't and I'm so so grateful...and I hope that I too can be one of those that offer you all hope that there is life beyond the first trimester. If it's not too unsympathetic to say, I felt the baby kick lots today. And it really made me smile that this baby is reminding me all the time that they're still there.

So gutted I can't come to the meet, would mean a days travel for me

Hope u all have a fab time and can't wait to hear how it all went ! X

Oh hot Ribena, that's been a fav drink of mine since I was a child. Yet you mention it to most people and their noses screw up like I'd just suggested they eat marmite and dairylea on toast. Which I can also recommend

Following on from the more positive vibe - those up for the meet up next Tuesday how about Charlotte street hotel - in Charlotte street - googe st tube. It does afternoon tea as well as wine so caters for all. I'll be there from 6 ish so folks can join anytime.

Those further away we will fill u in with updates. X

I am thinking of scooter lots today too :(

I worry about the whole 12 week thing - if the placenta is supossed to take over around 9 weeks - why did I lose both my last pregnancies at 10 and 12 weeks? I worry that it's not my NKC causing the problem and the the programme won't work for me. I realise also I need to get a grip as I am not even pg yet ....x

Thanks for the update free .sorry I'm on ny phone and can't work out how to copy and paste. I read a study they did on intralipids and the NK levels were still reduced after 4 weeks in all the women. Many more had reduced levels for several weeks more too. I had my first intralipid at 3w 5 days, so was just going to go 4 weeks later but I doubt a few days earlier or later would do any harm.

And I agree with you Ari re dating I was saying that exact same thing to dh last night wrt free's LMP being earlier than mine but ov later and her having seen a hb yday... Total headfuck

Agreed choccy, I am relieved in a way that we do have to go for such frequent appts. I cannot think past next week, one week at a time.

Yes free, completely distracted today :(

Was just thinking, it's weird how we get dated, going on LMP rather than OV date where known. I know some people obviously don't know their OV date, but where they do, you would think that would be used? I'm apparently classified as 6+0 today because my LMP was 19/11, but I OVd 3 days late on CD17 rather than CD14, so on 04/11, which surely will put my bean (assuming there is one) back on dates? In other words, come next week at my scan when figures say I will be 7+0, in actual fact little bean will only be .. what ... 6+4? So less chance of seeing heartbeat anyway? sigh As has been said truly so many times, this really is a headf*ck ...

Forgive the pun but I really think we just have to take baby steps towards the safer (but still not guaranteed safe) ground of post 12 weeks or at least 10ish when the placenta's taken over. I think my brain now refuses to try to compute anything more than the next scan/intralipids whatever. Which is why it's good IMO that Mr S regime requires us to go for appts every other week at least.

Pure, I'm really surprised your counsellor was surprised you weren't excited. It's actually very difficult to get excited about something that quite frankly has a pretty high chance of ending in heartbreak. Not getting excited is self preservation. I believe it would almost be dangerous to get too excited as the fall from being on a high is so much worse. Anyway, plenty of time for excitement later in the pregnancy.

I suppose we all protect outlrselves in different ways but I wouldn't have thought lack of excitement would be an unusual response in the circumstances.

I decided to move my scan to thurs 8th. I should be 7 wks by then and if all is ok then will go ahead with intralipids 5 days later. If it's a dodgy scan and I need to give it another week for a re-scan that should still be ok for the intralipids if I do need to go ahead with them.

appalling spelling. this makes me realise how much I rely on autocorrect at work...

ari what you (and everyone else) says is so true. My husband and i have been having relationship counselling (as my dad's recent death and all these mc have taken a pretty horrendous toll on our marriage) and the counseller could not believe how "unemotional" and "unexcited" we were about our last positive pregancy test. She thought we needed to contact the miscarraige association for specialist conselling - I had a look on their webiste and they refer you to Relate - which was who the counseller was with!

At least everyone here can understand the cautious day by day (minute by minute) approach...

Yes, I've been thinking exactly the same as you both, free and choccy ... how fragile this whole process is. 9 weeks is my danger point too, having had two scans both at 9+4, one where the baby had died 3 weeks earlier (and I started spotting sometime in week 7 but didn't know what it was) and one where the baby had died just 5 days earlier. The 7 week scan I'm kind of neutral about - there will either be something there and growing, or there won't. But it won't mean anything much, since I got past this point last time and it still went wrong.

It's just the frightening thought that you can have a scan and see baby with heartbeat, then a mere few hours later it all just stops, falls apart. We all are in that horrible position where we know anything can go wrong any time, but to have such reassurance cruelly dashed in just the space of a few hours - as choccy says, how cruel this whole thing is.

As you say free, and exactly as I was discussing with my acupuncturist just last night, I'm taking this one week at a time, one scan at a time, and looking no further than what is happening in the coming week. I can't at this stage imagine getting past 9 weeks, and I'm really not trying to look that far ahead. IF it happens, I will consider myself blessed beyond measure - but I'm only too painfully aware of how easily it can all crumble. Again.

I've been thinking the same as you free about how quickly it can all be ripped away from us. It's a wobbly enough time as it is and it's so hard to not spend the whole time panicking and stay neutral (still can't quite say I'm optimistic about this pg, it almost feels like tempting fate to even think I'll get to 8/9/12 weeks... ). I've got no plans to see GP until at least 8 wks for instance.

I guess I'm just being thankful that there's been no more spotting and just waiting for Sat. I only saw a sac at 6wks earlier this year so don't have anything to live up to in that sense- if it's in the right place and not def bad news I'll be ok with that. anything more, or a hb, and I'll be dancing around for the day. Wouldn't change or guarantee anything as we know only too well but it's a step to tick off and keeps the hope up.

Thank feck we've got each other I don't know what state I'd be in now without you guys. I hope scooters out there lurking and knows we're all thinking of her. I've been teary so much today reading the posts. Awful just awful news. So cruel this process is. :(