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TTC/ pregnancy on Prednisolone or similar part 3

993 replies

freelancegirl · 22/11/2011 16:20

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

OP posts:
hopefulfor2nd · 02/12/2011 11:08

Am an avid lurker but I'm here sharing all the highs and lows and thinking of us all.
Scooter - So pleased to hear from you! Yes, it is lonely and it certainly helps getting a load of your shoulders if you ever feel u need a rant on here.
Ari - I totally understand what you mean, I've said it myself several times!
Being in deepest Devon I don't expect I'll ever get to a catch up so please give us a running commentry! Its so fab to be with other women in the same boat.
Personally I'm gearing up to the idea of attempting to get my meds from somewhere(!) and getting ready for the New Year. I'm scared about it all. I'm wary of starting it, getting pg, and then going down my usual route and having it all over again. But I know thats exactly why we are all here, together, to give one another help,love,support and advice and that with Mr S's help it giving us all the best help.
Waves to everyone!

p.s also ickle bit worried about the £££!!! Xmas Smile

ChoccyPud · 02/12/2011 11:05

Hey Scooter nice to see you back - do come along on Tues and you be however you feel. I'm determined to go regardless of scan results tomorrow simply because I know everyone will "get" however I'm feeling, so you may not be the only not-exactly-happy person there don't worry!

Thanks all, I think it was blood sugar this morning btw I do get that if I don't eat for too long and I woke up really really early today. It was the heartburn pains that got me this morning. Never felt anything like it :(

Ari good that it seems to have stopped and try not to set too much stall by the back ache and cramping it may just be things moving around. Fingers crossed.

Must get on with work, huuuge pile of stuff to do today. Which is a good distraction frankly.

Arianrhod · 02/12/2011 11:01

free no, I requested testing on all of my MCs but it was refused every time, even the third where the surgeon did actually request testing of the foetus on my behalf but told me the lab was 99% certain to refuse - and I didn't ever get any follow-up letter, so I assume that's exactly what happened.

I'm assuming my eggs are problematic purely because of my age. I'm 44 in a few weeks, and all medical wisdom everywhere says a woman's eggs decline in quality at a hugely rapid rate after about the age of 38. I think it stands to reason that I'm going to have a much higher chance of chromosomal issues then, it just seems cruel in a way that I may well have this "unfussy womb" thing where my body seems happy to start a pregnancy off no matter what. As you say, we still have the same chances as anyone else of a "normal" miscarriage, and I assume that also means I have the same lack-of-chances as any other healthy 44-year-old woman with decreasing quality of eggs. shrug But I knew this when I started this road, I just hope I didn't miss my chance of a good egg in one of the MCs that may have been caused by NK cells/thyroid issues etc. Only time will tell, I guess.

freelancegirl · 02/12/2011 10:10

Scooter! Crossed posts. So good to see you here. If anyone can understand exactly what you're going through it's us. There are if course myself abs others here who have miscarried on the treatment too so know what a double blow that is. We are here to take the slings and arrows together! There are going to be BFP's, BFN's, TTC nightmares, babies and sadly probably more miscarriages here as we go through it all. We are here for all of it! And in RL too if you can make the 6th. We can have a chat about your next step. Remember mr s has other things up his sleeve such as additional meds xxx

OP posts:
freelancegirl · 02/12/2011 10:03

Ari have you had any of your previous pregnancies tested for chromosomal issues? Just wondering why you are so sure your eggs are not up to scratch. I suppose as well as all the other issues all of us have the same chance as anyone else in the general population of having a 'normal' miscarriage, because the baby just isn't viable. It does seem doubly cruel that we have to possibly deal with that too, but I guess in a way it is also some comfort - as in of the handful of miscarriages we have each had theremight be one or two that just weren't going to happen. I like to think my last one was like that. I know that I miscarry this one it willbe far worse, having already seen a heartbeat and knowing there is actually a baby there.

But no, it doesn't sound callous saying if it is going wrong you want to get it over with as soon as possible. I felt exactly the same with the last one. A friend sent me a rather sharp text when I said this to her, saying she thought I should have counselling to see 'if I actually wanted baby at all' with that attitude! I tried not to be too harsh on her about this as there are very few of us who know what it's like to be lining up yet another pregnancy loss and wanting to get it out of the way as quick as possible! But we here know exactly what that feeling is like.

OP posts:
Arianrhod · 02/12/2011 10:02

Oh scooter, welcome back, we've missed you and all been wondering how you are!! How are you feeling? Cr@ppy, I'm sure. Huge virtual hugs, and you be just as miserable as you like, we all understand!

scooterchaser · 02/12/2011 09:56

Hi,
I missed everybody. Miscarriage is so frigging lonely in RL isn't it.

Thanks for all the earlier messages, actually means something coming from people who truly know what it's like.

Anyway, I was thinking if it's ok duggs could you add me to the contacts list for Tuesday. There's only a small chance DH will be home in time for me to get out but if it's not too much like a bad penny turning up, I would like to try and come if I can. I promise not to be too miserable :)

Arianrhod · 02/12/2011 09:45

Morning ladies, thanks all for asking how I am. Well, normal night of waking every goodness knows how often but dreaming (as you might imagine) of miscarriage, but that's it, nothing else overnight. No real change this morning however, still got chronic lower back pain and mild AF-type cramps, with the lovely extra addition of a sicky headache. No spotting when I got up, but I am expecting it, I didn't used to get spotting first thing after getting up, it was always later on after I'd been up for a while.

Good suggestion about the acupuncturist but to be honest ladies, I don't see much point (if you'll excuse the pun) of throwing good money after bad. I don't want to stop this if it's down to a chromosomal issue, which I'm convinced it is. Not meaning to be fatalistic, but I haven't thought this pregnancy was right right from the beginning, and I just don't want to delay things that will still have the same outcome eventually anyway. If it's wrong, then I want it sorted out as soon as possible, hope that doesn't sound callous?

Had a chat with DP last night about this whole thing; he still wants to keep trying but is very concerned with what I'm putting my body through, with the repeated MCs and the drugs. He asked if there's no way eggs can be tested for chromosomal fitness, so I explained the only option would be what duggs mentioned, the new IVF testing Array CGH. I also explained we'd be looking in the region of £7K a go, which effectively puts it right out of our reach. :( I did gently point out that it may well be this never works for us - time is very firmly against me, and I really can't take MC after MC due to bad eggs.

Anyway, playing the waiting game again, only this time waiting for my body to get with the plan and sort itself out. Ho hum.

cheerful I want to be where you are ... oh the bliss to have to worry about getting sunburnt! :)

choccy that doesn't sound good, although if you say it's been a side effect of pregnancy for you before, maybe it IS a good sign? :) Take care of yourself, and watch out for that blood sugar dip!

snoopy I always start testing with OPK about CD10, so that sounds about right if you usually OV somewhere in the middle of your cycle?

digi do you usually react to Chinese like that?? That sounds quite alarming, what do you think would trigger that reaction? I didn't know you could get that from a Chinese!

free ironically it was me that wanted some glaring signs yesterday. Guess we should be careful what we wish for, since I got my glaring signs after all (although not in the way I meant!). As for feeling pg in the second trimester ... from what I can remember of DD, I did indeed feel pg almost all the time after about week 14 or so I think. But it was all new to me then, so I was very aware of any differences in my body. Now, I think I would doubt anything I felt was necessarily pregnancy-related, I might well be blaming it on the pred! If I ever get that far again, and I'm not feeling too hopeful for that right now, understandably.

Cheerfulcharlie · 02/12/2011 09:00

shivering does burn a huge amount of calories, Free!

freelancegirl · 02/12/2011 08:52

Awwwww. Sitting in the garden?!

OP posts:
Cheerfulcharlie · 02/12/2011 08:44

choccy that sounds pretty horrible. What do you think it was - low blood sugar? I have had a few have-to-eat-something right-now instances but it's not been too bad. I'm also not really having many pregnancy symptoms other than sore boobs. In the last few days I've felt a little more tired maybe and a fleeting moment of possible nausea (or possibly my imagination?) but that's it. Also, this is what I find most strange, is that I've been very level headed, quite chilled out, I don't feel at all tearful or emotional, only very slightly snappy and that's only when people deserve it like stupid people in coffee shops lying to me about soya/ cow's milk. It is a little unsettling, I thought I would be a bit of a nervous wreck by now.

Free is correct choccy, as I'm abroad I'm 4 hours ahead of you lot. I'm sitting in my garden at the mo, trying to balance getting my vitamin D intake and not get sunburnt at the same time ;-)

ari how are you this morning? Hope it's getting better.

freelancegirl · 02/12/2011 08:16

Ooh Choccy that doesn't sound much fun. Are you feeling ok now?

Actually I have to say I needed a Dr Google session last night as I could swear I was feeling some numbness in my feet and also in my lips. Can exist in both pregnancy and also as a Pred side effect. Am thinking the least amount of time we take this stuff for the better. Hopefully for all of us that means tapering off when we get to a successful point in the pregnancy.

I know this must be really irritating to the TTC crowd but every morning I wake up thinking - I really can't possibly be pregnant. It just seems so far fetched. Does anyone else get that? I wish (who said this yesterday) there were some glaring signs. Even when I do get signs they are just not glaring enough. A growing bump and kicks would do it I guess. Do the people in the 2nd trimester FEEL pregnant all the time? How does feeling pregnant, well, feel? Are you always aware you're pregnant or are there times you don't notice anything?

Oh, Cheerful is abroad Choccy :)

How are you today Snoopy? Nice to have too much vino! Enjoy it while you can. I am not sure about Ovulation being affected but I think I went for CD16 after I got a few twinges on 14. I didn't want to do it any earlier as I worried I might have to stop before I was sure it was negative. But don't worry as what Mr S says it is not an exact science.

Digi looking forward to spot checking on Tuesday :) I have some too. I have three rather fetching ones in the cleavage.

It's strange isn't it Brownie how you can have 3 mcs under St Mary's and STILL they don't believe and test for NK cells, even though the tests showed the 'products' were normal. How awful that must have been for you. I am not sure what to say in terms of going back there, do you really need to? I felt good being there as for me it doesn't have bad memories yet but the thought of walking to my local hospital and going to their EPU (the scene of my bad memories) is highly unappealing. Maybe you don't even need to go - I mean the only test you might not have had is TEG when pregnant - although maybe they did that too? And the only thing they can give you is additional scans.

Ari I hope you have had an okay night and that things have calmed down rather than got worse. Cheerful makes a good point about the acupuncture, worth making an appointment? Please keep us updated.

Hello to everyone else including Breezy! Do come back and chat, it does move fast around here but we are all here for each other and hand holding. Let us know how you get on with the testing and do definitely organise those intralipids xx

OP posts:
ChoccyPud · 02/12/2011 07:51

Just had a rather scary 20 mins... Was drying my hair when suddenly got strong heartburn pains across my chest and felt v hot sweaty and giddy. Rushed downstairs to pop an Omeprazole and summon dh back from the station just in case I was going to pass out or something. Dh found me bent over in the kitchen chugging a digestive biscuit and fed me cereal and OJ, after which I felt ok. Turned 6 weeks yesterday which was about the time I started having to eat breakfast ASAP on getting up or I'd get really dizzy last time. So kind of a good sign I hope...! Could do without the scary chest pain though :(

Ari how you doing this morning?

And Cheerful 5am? Seriously?!

Cheerfulcharlie · 02/12/2011 05:11

ari sorry to hear about your cramping & spotting. You have an acupuncturist don't you? Do you think it's worth scheduling an emergency appointment, see if she/ he can calm it down? Hope it eases off soon.

digitalgirl · 01/12/2011 23:12

Busy thread tonight.

ari oh feck, I really hope you're wrong. But I know that feeling where it just all feels so familiar. Will be thinking of you. Hope you get through the night ok.

breezy welcome to the thread! A line is a line, definitely not a pred thing. What brand test are you using? I found first response comes up stronger than other brands. Fingers crossed this is a sticky one for you.

Had Chinese tonight and have swollen up like a balloon. Giant feet and hot tight hands. Maybe won't have it again. Haven't been on aspirin since the weekend and various unpleasant symptoms have cropped up including a huge massive spot on the side of my face. Which will probably still be there on Tuesday.

snoopygirl · 01/12/2011 22:22

Mega post.. too much vino whoops...

Hope it's nothing more than spotting ari fingers crossed for you.xx

welcome breezy* hope you find comfort/help/few laughs from this thread. tentative congrats on your faint line!

Feeling emotional today don't know why. Son upsetting me a bit a moment. Just his behaviour. He is having his monthly push the boundaries. Also finding it upsetting about scooter. Can't stop thinking about her. It's playing on my mind. Have convinced myself Dr S is some kind of miracle worker, as at the end of the day there are alot of success stories....sorry don't mean to be selfish.

I am also envious of your meet up in your furry coats! I am also about 1.5 hrs on train. I could come but that time of night is not good for me. If theres another meet maybe an afternoon meet could be sorted so maybe some of the out of towners can come and have time to get back home. Or we could sort one heading North a bit . Hope you all have a few laughs anyway and look forward to the mass posting!!

AF finished for me and ..here we go again.. I don't know when to start testing for Ov does it make it early as well as late?? Shall I just start at CD10ish? Pissed off with this already and barely off the starting block yet..stomach already resembles someone who is 6 months gone! Does it go down in the 2 weeks after af...mine hasn't. Saying that pot bellies run in my family which doesn't help.

BTW Spurred on by talk of kittens pic I signed up to a photoweb page today with password. I know some of you will want to stay anonymous but it's always nice to put a name to a face IYKWIM, especially for those who can't meet up. PM me if you want password to upload anything.

Have a good night all
x

Stogan · 01/12/2011 21:43

Oh ari hope ur ok Hunni, hoping it's all alright for u , everything crossed x

Welcome breezy always nice to welcome new people x

Great news on your nan free, hopefully being at home will make her feel better quicker.

Waves to everyone else ! X

duggs1976 · 01/12/2011 21:22

brownie you've had 3mc with st marys? Crikey.
I have to say they totally missed my pcos. ( I think I've said so many times now) but they still disagree (didn't even re check) only know because dr s saw it. Doesn't fill me with confidence. But Like free said no harm in free scans . .

So brownie what is st m attitude to your 3 mc under their care? More hugs and tlc? Brilliant. It sounds like 1811 not 2011.
Sorry I'm a bit angry that you've just had asprin and had to go through that. And to think when dr rai had a right cob on when he knew I had seen dr s!! Ahh Sad

No problem if u can't make it on the day enough of us can so just come along if u can x

BrownieGecko · 01/12/2011 21:03

Ari am so sorry you are going through this :(, stay strong am keeping everything crossed for you x

Free I am very nervous about my appointment with St M on the 13th as I had 3 mc's with them on aspirin and they never found anything except my last mc at was genetically normal which surprised them. They then agreed there was something else causing them. Not sure about how they will react to drugs I have been on but also think they just want us to be successful so here's hoping.

Welcome Breezy hope we can be of some help. I agree with Free about booking in your Intralipids.

freelancegirl · 01/12/2011 20:44

Good points Choccy for Ari re the spotting and also for Breezy re the intralipids. When I got the BFP I booked the intralipids in straight away. OK it is a risk that you might pay for them and it be a chemical but I wanted to get in there as soon as pos. Give them a call tomorrow Breezy and book it in.

OP posts:
freelancegirl · 01/12/2011 20:42

Re St Mary's Battery, this was my first appointment and on the blurb they send you (you have an appt there I think soon?) they say they can't treat you if pregnant. I was going to cancel but didn't get around to it and went along anyway. And actually they were fine about the pregnancy so I am glad I went. I did indeed tell them about the steroids (I told them about Mr S and all the medication I am on) and the doc I saw, Elizabeth someone, was fine about this. Duggs said that the doc she saw did mutter something about confusing the issue with two consultants though, and Mr S has muttered something along those lines to me too. I don't care though, I want to explore everything what I can!

As it happens there was nothing they could do for me. I had had all their tests done already apart from the TEG when pregnant (came back clear the same day) and they have just scheduled me in for an 8 week scan (if I get that far!) with their early pregnancy unit in the same place. My advice is go! Why not. Maybe there is something in their TLC theory? Whilst we were there, just after we had met for the first time in front everyone and had our lesbian furry cuddle, Duggs and I saw Lesley Regan come out of a room. We were whispering like she is some sort of celeb :) Oh the cheap thrills of a recurrent miscarrier...

BTW I had Pred Craze when I was getting pregnant both times on Pred. Not sure if I would have had it without the pregnancy as I have never had Pred without pregnancy.

OP posts:
ChoccyPud · 01/12/2011 20:41

Feck it indeed Ari that is shite. :( :(

Re your cramping, I was really quite crampy one day last week with the spotting but only one day and the red stopped after 2 days, dropping back to brown gunk. It could just be implantation. Yes until we go get scanned we don't know if its ok or not, but as you say in the meantime not a lot you can do except keep an eye on it and keep fingers crossed. Every pg is different; what was bad news last year may not be the same this time. As you know I can't bring myself to go back to the EPU due to previous experience so I can totally understand you just waiting for your scan with Mr S.

It's hard to be anything other than negative isn't it... Take time off work if you need to hide in your little safe bubble, and we're all here to chat/virtual hugs/vent at as you need xx

Welcome breezy lovely to have another Pred Thread newbie on board. It's great to know people are lurking and finding our chat useful in some way even if they think we're a bit mad sometimes! Anyway, a faint line is a line. Maybe go get hcg levels done, 48 hours apart, to see what's what? if you're having intralipids they should be done ASAP on a BFP so its worth checking. Good luck!

Coconutfeet · 01/12/2011 20:38

Oh Ari, I'm sorry you're going through this. I really really hope it all turns out to be nothing serious.

Welcome Breezy!

I'm not sure whether I'll make it to the meet up on Tuesday. I really want to come (and I love the Charlotte Street Hotel) but I've got a 7000 word essay to hand in next Friday and I'm struggling to get it done what with school being a bit bonkers at the moment. We're off to Bruges tomorrow for the weekend, which will be lovely I hope, but it cuts into work/study time. Anyway, what I'm trying to say is, can you put me down as a maybe?

Thinking about you this weekend Ari.
xx

batteryhen · 01/12/2011 20:34

ari Bollocks. I want to give you a big squeeze. It is all so shite. I am hoping obviously that you are wrong but also know you are in tune with your body too xx I hope nothing progress's over night xxx

breezy Welcome, pull up a seat :)

free can I ask you about your visit to St marys? Were you already a patient there, or was this week your first appointment? Did they mind that you were already pregnant? Did you tell them about the steroids? Sorry to ask so much xx

I have pred craze tonight, I am manic. Have only just sat down now. Weird.

Arianrhod · 01/12/2011 20:24

Thanks duggs but you know, it's not really strength. I am utterly, utterly depressed, but unsurprised. I have no idea whether I'm going to put myself through this yet another time, and I am dreading the next weeks. Las year it ruined Christmas for me and DP, and it dragged on until the middle of Jan, during which time I had my DD's 4th party that I had to stand smiling through and my own birthday which I had to pretend to be interested in for my DD. And I'm utterly dreading doing it all again.

Welcome to you breezy, come on in and join the merry throng. Don't mind me, I'm just having a minor crisis :)