TTC/ pregnancy on Prednisolone or similar part 2

TTC
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC/ov 1st Nov. Trying new drugs & Pred.
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Arianrhod - V High NKC TTC/cd9/ov 1st Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Digitalgirl - High NKC - BFP cycle#2 - 15+2 Due 16/04/12 next scan 7/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid
Comedy 8+5 due 1/6/12 scan 2/11
Scooterchaser 4+3. Due 01/07/12. Scan in two weeks

Hi ladies, haven't been on here for a while and there are so many posts to get through! Glad to hear there are more BFPs so good luck to everyone who has got passed the first hurdle and let's hope that the rest of us will have our BFPs soon!
Good idea t have the list of which stage everyone is at as I was forgetting who was pregnant and who was TTC!

Attempt number 3 to post. Have list tidied and put ttc ladies in order of when they'll be testing. Have put pg ladies in order of due date/how far along - and especially for snoopy I've put my bfp cycle number!

TTC
Freelance - V High NKC TTC/ov 1st Nov. Trying new drugs & Pred.
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Arianrhod - V High NKC TTC/cd9/ov 1st Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Digitalgirl - High NKC - BFP cycle#2 - 15+2 Due 16/04/12 next scan 7/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid
Comedy 8+5 due 1/6/12 scan 2/11
Scooterchaser 4+3. Due 01/07/12. Scan in two weeks

Was told by my acupuncturist that the diagnosis of high nk cells is probably just a means to prescribe the steroids and that actually even though 80% of women may test for high nk cells (regardless of fertility history) it doesn't mean the steroids aren't doing their job. And the AN doc I saw yesterday agreed that it really does seem like steroids are a miracle cure for so many things (rmc, exczema, athsma etc). The only problem is long-term use has such bad side effects (diabetes, osteoperosis etc).

TTC
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Havingkittens - High NKC TTC again from November
Freelance - V High NKC TTC/ov 1st Nov. Trying new drugs & Pred.
Arianrhod - v High NKC TTC/cd9/ov 1st Nov
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids

BFP
Digitalgirl 15+1 Due 16/04/12 next scan 7/11
Scooterchaser 4+3. Due 01/07/12. Scan in two weeks
Comedy 8+5 due 1/6/12 scan 2/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid

Mr S hand wrote the relevant ranges on my notes too.
He told me that a previous pregnancy may have triggered the NKC . I had a mc, then got pregnant again with ds and had him with no major problems. Mr S suggested that my pregnancy with ds may have triggered it and that the previous mc may have been casued by something completely different. Speculation of course.

Does our elevated NKC level have any other implications for our long term health apart from TTC? I should really have asked this at one of my appointments but completely forgot.

Freelance - I would recommend acupunture. Not doing it now as we can't afford it but I would if we could. I have had it for several things in the past and always found it helpful - and incredibly relaxing, which is always good.

Comedy So sorry for the loss of your son, I can't begin to imagine the stress and pain you have endured. Whatever I've been through doesn't even register compared to your situation.

Nice to see the BFP list growing - where you three ladies V high or high and on what cycle did you get a bfp?

Thanks Ari. Enjoy the Halloween party...it's absolutely chucking it down here too.

Btw Mr S wrote exactly the same on my NK test results re the different levels for high/v high etc.

PS what is BC? Baby centre? Can someone post a link please? :)

Duly copied and pasted below Blue Peter stylee with iPad - not easy!

I've always read that stress affects conception/ implantation but whether that is due to stress causing increased NK cells therefore more chance of zapping it before implantation or early on, I don't know.

Comedy I had a monster thirst when I was pg earlier this year and only got shaky or icky when I hadn't eaten for a while. If you keep eating little and often that might help morning sickness as well as regulate sugar if that's the issue?

TTC
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Havingkittens - High NKC TTC again from November
Freelance - V High NKC TTC/ov 1st Nov. Trying new drugs & Pred.
Arianrhod - v High NKC TTC/cd9/ov 1st Nov
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids

BFP
Digitalgirl 15+1 Due 16/04/12 next scan 7/11
Scooterchaser 4+3. Due 01/07/12. Scan in two weeks
Comedy 8+5 due 1/6/12 scan 2/11

Morning all - like the idea of a list as our little community grows! Sorry can't cut and paste properly on iPad would someone mind adding me in please
Comedy 8+5 due 1/6/12 scan 2/11. Thank you.
I have also wondered about the link between stress and high NK cells - I was very lucky and had a son then daughter eighteen months apart with absolutely no problems and it was only when TTC after DSs death that I then had six miscarriages - I do wonder if it was just that I'm getting older and autoimmune problems get worse or whether life events can cause NK increases?
Separate question (more side effects I'm afraid!) - is anyone becoming more sugar intolerant on the meds? I have had some shakiness after sugary foods and am very thirsty all the time.
As Halloween draws near a big good luck to all those TTC! Cropped tops at the ready ....

Adding myself..

TTC
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
ChoccyPud - V High KNC / cd7
Havingkittens - High NKC TTC again from November
Freelance - V High NKC TTC/ov 1st Nov. Trying new drugs & Pred.
Arianrhod - v High NKC TTC/cd9/ov 1st Nov
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids

BFP
Digitalgirl 15+1 Due 16/04/12 next scan 7/11
Scooterchaser 4+3. Due 01/07/12. Scan in two weeks

kittens didn't think your comments were cold at all, needed a voice of reason, I am usually much more forgiving of people and it wasn't her fault it was just that I was so frustrated she didn't understand how important it all is. Do you think Annabel is the right person to speak to? I could leave her a message but I don't want to be a nuisance and maybe she can't tell me anything either?

snoopy sounds like its been a really tough time for you, I hope things are looking up now with your house situation. I don't think there is an exact link between stress and NKC because mine have soared between July and October and although I've been quite ill in that time I haven't been as stressed as I was when my first lot of tests were done. I will ask the question though when I next get the opportunity.

ari happy pumpkin carving - hope the rain holds off soon!

Morning here's mine added:

TTC
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
ChoccyPud - V High KNC / cd7
Havingkittens - High NKC TTC again from November
Freelance - V High NKC TTC/ov 1st Nov. Trying new drugs & Pred.
Arianrhod - v High NKC TTC/cd9/ov 1st Nov
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids

BFP
Digitalgirl 15+1 Due 16/04/12 next scan 7/11

Maybe we've all got pretty high counts due to all the stress of this. I know the five times I have miscarried have all been in last 3 years when building our house and another next door, financially I never been so worried in my life, lived in caravan on site 4 14 months and nearly lost our plot of land because our mortgage was throu an Icelandic bank which went bust! So as a friend said maybe the time wasn't right before anyway.
Is there any research into stress levels and NK cell counts?! There are a few on BC board with borderline results and apparently Dr S treats them anyway as he believes the pred helps conception - that what I read anyway.

Here we go, have added Cheerful. Don't ask me why I am awake this early when I don't have to be and am not on bloody Pred!

Cheerful I don't have the copy of my results with me but I really want to check them out now. I seem to remember there being a normal range on there but then there not actually being a percentage like you have! I know he said I am in the top 5% of people he sees, which is obviously not so good. Hence the new treatment after the last time didn't work. I guess we have all had those suspicions too but I do know of a friend who has just been to see him and was not diagnosed with high NK cells. But there is never just one way of looking at things, particularly with experimental treatment. It's just one person's research and opinion against another's sometimes I think. So we have to go with what we feel is right for us.

I have completely forgotten about acupuncture. Maybe I should make time to get back there, what does everyone think?

List:

TTC
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
ChoccyPud - V High KNC / cd7
Havingkittens - High NKC TTC again from November
Freelance - V High NKC TTC/ov 1st Nov. Trying new drugs & Pred.

BFP
Digitalgirl 15+1 Due 16/04/12 next scan 7/11

Hello everyone! Great idea to do a list, I can't keep up with us all either. I'm writing this from the phone so can't copy and paste the list but would someone be able to add me as ttc with ov due around 5th nov. V high nk cells ( will only be taking intralipids plus acupuncture)

Has anyone got the actual copy of their results? When my gynae (who is a recurrent miscarriage specialist) saw my nk results from Dr S she was 'hmmm , that's strange there is no reference range printed on there'. (she's open minded and would let me do the pred under her if i wanted too but is not exactly enthused by it all). This got me looking at my results again. I was told by Dr S as my activation absolute count was 2.11 I was 'in the champions league' yet there is no reference range mentioning this on the results. Not saying he's not right by the way. But on the line under that it says' total cd 69 cells 0.45% ' and below that it says that normal is less than 1%. Does that mean I'm normal or is that a completely different result? I don't know I guess I'm just a teensy bit suspicious that it seems almost everyone has a nk cell level that needs treatment. Am I being too cynical?

Great to hear the pregnant ones are doing well and fingers crossed to all those ttc this cycle!

PS Kittens hash on the Mac is Alt 3 :) #####

Maybe a BFP date would be more comfortable for some of the pregnant ones if not yet ready to put an EDD? But great if you all feel up to an EDD! Here's myself added. Hello Kittens too, sorry you are feeling a bit low. You have so much to deal with at the moment. Ooh Snoopy I had nits several times as a child in Spain (not sure if being in SPain had anything to do with it but it felt at times it was rife!). I used to be quite expert at spotting them in others :) CD is Cycle Day - ie from CD1 the first day of proper period. UCL is usual cycle length (I think).

Ok here's the list:

TTC
ChoccyPud - V high nkc / cd6
Havingkittens - High NKC TTC again from November
Freelancegirl - V High NKC TTC again from 1st Nov. AF due approx Nov 16th.

BFP
Digitalgirl 15+1 Due 16/04/12 next scan 7/11

Feel free to add to it y'all! It will be great to be able to glance back to ensure we know where each other is at.

Oh good I haven't completely offended everyone! I was thinking to keep the list a little simpler than the recurrent buns one as that's quite a hefty one and isn't something that's easy to update daily. Of course people are welcome to put as much detail as they like (how many dc they have, how many mc they've had, what extra treatment they're on) - but didn't want anyone to feel they had to put their history down if they didn't want a daily reminder. The pg lot don't even have to put a due date down if they feel that's too much. Whatever works for everyone!

I think the easiest way is to copy and paste and add yours on until we have a comprehensive list. Might be tricky keeping the CD/DPO etc up to day though!

TTC
ChoccyPud - V high nkc / cd6
Havingkittens - High NKC TTC again from November

BFP
Digitalgirl 15+1 Due 16/04/12 next scan 7/11

On the "Recurent Buns" thread the stats are a little more detailed. Not sure if you want to go that route or just keep it simple? If you want more info though someone's going to have to tell me where the hell the hash key is on my MacBook 'cos I'm buggered if I can find it!

Hey was just in bath having hubby de-nit mine and sons hair!!! (hope that hasn't put you off your dinner!) and was thinking try as I might I can't keep up with you all and would hate to offend anyone by sayin something insensitive not knowing history etc
so yes up for a list. will add tomorrow.
what's cd/ucl thou?

List fine by me. Good idea given all the pg brains/Pred brains here! Tech question tho: do we need to type it every post or is there a quick way to do it?

V high nkc / cd6

Sorry Kittens, I'm getting in a muddle!! I know someone asked the question about retesting and I'm tired (I blame that bloody pred and cannot wait for a full night's sleep). [hconfused]

It must be a massive weight off your mind to know that you're able to fly until so late into the pregnancy and will be able to spend time with your mum. Really glad you've got family to offload to as well as you've got so much to deal with at the moment, you must feel like you've got the world on your shoulders.

I think the idea of a list is a good one. There are so many of us now and it is getting confusing. Will add my details if other people agree.

Scooter - I totally understand your concern about people not getting things right. After some rubbish experiences with hospital communication I feel the same, and this is so crucial you have to feel like people are doing things right. Good luck following it up.

Have a good trip Freelance.

Lurking on the train to Liverpool so no time to post properly but I was thinking about a list too, just as I keep getting confused as to who is pregnant and who is doing what. Will add my details later or tomorrow