TTC/ pregnancy on Prednisolone or similar part 2

Oh Puree I am so sorry to hear that. Was that your first one on the treatment? It happened to me too if that is any consolation, I know when it happened to me too I found it really hard to track down other people from whom it has also happened as so many of the stories read 'got treated, had a baby'. But I have since looked into it and it's not completely uncommon. The best thing is to pick yourself back up and try again, which you appear to be doing. But it's awful, I know. I don't have any appointments lined up until I am pregnant again, so I won't be there to see you on Monday! But good luck with it all.

Digi how about putting the baby in a drawer to sleep? I've always found that quite cute :) Glad you are getting stretching pains, I think it is a good sign. I am definitely posed to post Dr Beer's book to my friend if the worst happens. She feels there is no hope - been given a scan at 4.30pm so we will know more then.

Hi guys

This thread moves so fast - I was about to post last week to say that I matched up with scooterchaser exactly - yay scooterchaser- but sadly mc over the weekend. which takes mc to 6 in total. So pretty devastated - my hopes were so high that this one was going to be the one.

best of luck to everyone with twinges and aches and odd pains. I looked back at my diary from when I was pregnant with my DS and I had constant back ache and cramps in the first trimester - so it can be a really positive sign.

will see Mr S on Monday and hopefully waving to a few of you in his clinic. I'll be the one with the out of control toddler in an inappropriate setting so quite easy to spot.

I've taken the liberty of adding myself to the TTC list below.

Tuesday 1st Nov List

TTC
duggs1976 - High/V High NKCOv 28 Oct. Pred.TTC #1 Testing 11th Nov?
batteryhen - High activation NKC, factor v leiden. TTC#1 Testing 12th Nov?
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC#1 /ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos.
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC/ov 1st Nov
eurochick - awaiting first appointment (in Nov)/cd9/ov 31 Oct-2 Nov
ChoccyPud - V High NKC / TTC #1/ 4th Pred cycle/ov 3rd Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)

BFP
Stogan - V high NKC - BFP 9/7/11 cycle#2- 21+3 Due 10/03/12
Digitalgirl - High NKC - BFP cycle#2 -16+1 Due 16/04/12 next scan 7/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks - 13+0 next scan 15/11
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 10+0 next scan 7/11
Comedy - V High NKC - BFP cycle#2 - 9+4 due 1/16/12 scan 2/11
BrownieGecko - High NKC, Hypothyroidism, & Glucose Introlerant. BFP on cycle 3 of Clomid - 8+5 next scan on 2/11
Scooterchaser - V High NKC - BFP cycle1 - 5+2. Due 01/07/12. Scan 10/11

iggi Oh honey, it's really really hard to resist The Fear. I think we all have our MC 'warning signs' from previous experiences that just happen to crop up in perfectly normal pregnancies (which, btw, is what you are having). Mine is headaches and also Sinister backache. Some nights I have back twinges as I'm trying to fall asleep - I wake up and realise they're gone. I agree with the others that there are plenty of much more likely reasons why you are having an upset stomach. Hope your new job can distract you enough today. Your next scan is on Monday right? Do you think you can hold out till then?

free oh that is very sad news about your friend . I would definitely plonk the 'Is Your Body Baby Friendly' book down in front of her, along with Mr S's number and also the ARGC (they are one of the best fertility clinics - Dr Dimitri is a consultant there who treats for immunological issues).
As for your spunk/ewcm conundrum - I think just keep going til its not slippy anymore. I usually find that the days leading up to ov are the slippiest then ov day itself is not normally that slippy but cervix is always wide open. But then not sure if you ever got as far as cervix position checking!

Had a bit of Fear myself last night after realising that I'd not felt any flutters for a few days. Had quite a lot of aching yesterday, so just think my womb is expanding a bit more and maybe baby has a little more room to swim around and isn't able to touch the sides as much! Oh well, will find out how everything is doing on Monday. Poor DH got it in the ear about how Bloody Disorganised our tiny house is and how the hell are we going to fit a baby in with all it's crap on top of all the crap that we're already drowning in...think I was feeling a bit overwhelmed.

Tuesday 1st Nov List
TTC
duggs1976 - High/V High NKCOv 28 Oct. Pred.TTC #1 Testing 11th Nov?
batteryhen - High activation NKC, factor v leiden. TTC#1 Testing 12th Nov?
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC#1 /ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos.
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC/ov 1st Nov
eurochick - awaiting first appointment (in Nov)/cd9/ov 31 Oct-2 Nov
ChoccyPud - V High NKC / TTC #1/ 4th Pred cycle/ov 3rd Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Stogan - V high NKC - BFP 9/7/11 cycle#2- 21+3 Due 10/03/12
Digitalgirl - High NKC - BFP cycle#2 -16+1 Due 16/04/12 next scan 7/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks - 13+0 next scan 15/11
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 10+0 next scan 7/11
Comedy - V High NKC - BFP cycle#2 - 9+4 due 1/16/12 scan 2/11
BrownieGecko - High NKC, Hypothyroidism, & Glucose Introlerant. BFP on cycle 3 of Clomid - 8+5 next scan on 2/11
Scooterchaser - V High NKC - BFP cycle1 - 5+2. Due 01/07/12. Scan 10/11

free I wonder if my logic might help your friend? IVF is such a big investment - financially, emotionally and physically - that I want to be tested for the immune issues before I go there because if my body is making embryos but they just are not implanting, there is no point pumping myself full of drugs and then paying someone 5 grand to create an embryo in a lab only to have that not implant. With four rounds of IVF she is further down the line to me but maybe it makes sense to spend some money on immune testing before putting herself through more IVF? In my case, if nothing shows, I will sheepishly say goodbye to the pred thread and believe it is truly just a matter of time as there is no medical reason why I shouldn't get pregnant by myself (or with IVF help). At least I will know. It's nothing like the emotional impact of a miscarriage of course, but it does make me a bit sad to think that my body might be booting out tiny embryos month after month.

iggy I really hope all is well.

Doh, and there's me a writing professional 'n' all. You just can't get the journalists these days!

Yeah, I feel awful for her too. It's bad enough having recurrent miscarriages but when you are having IVF to get pregnant in the first place it makes it even worse, if that can be possible.

I have never really been able to stretch my cm as it were but I have noticed that for two days around when I get the ovulation pain it's slippy upon wiping in the morning. BTW am I spelling slippy wrong? Wondering why it is underlined in red when I type. Surely it is a proper word?!

I am feeling a bit sad for my friend actually. I've just had a text message - from my best friend from school, the one who is having the bad scans after IVF - and she has started bleeding heavier now and is going to A&E. I do hope it all goes well for her but it's not looking good. Could be a haematoma? If she has a miscarriage I am definitely wanting to get her checked for NK cells. I realise it is a controversial area of treatment but she has tried for years to get pregnant, no seen problems, had four rounds of IVF with one chemical and now this.

Morning freelance - EWCM is stretchy and "the other" isn't. But I don't know if your EWCM would be diluted after sex and so not be as stretchy. Hmmmm. I haven't had EWCM for so long now I can't really give you any advice based on personal experience. I pretty much rely 100% on OPK sticks.

Morning Kittens - crossed posts.

I also just had a quick TMI question: how do you know if you have EWCM when you're also having all that unprotected sex...? I feel a bit, er, slippy this morning but no idea whether that's from last night or not! Damn, I guess I should poas to see if I am ovulating today. Might take one out of the cupboard now just to check. It's only that I normally get a lot of ovary twinges. The Fear now is that no real twinges means no eggs

Hi Iggi sorry you are feeling rough and now worried about it. The good thing about a stomach upset is that it really could be just that - a stomach upset. If it's not weird, hormonal, something you have never had before...? I second what everyone else has said to see if you can get a scan sometime soon. When is your next one due? So sorry you feel like this on your first day in your new job. Do come and chat for some hand holding if you get a break!

Great news Stogan on the heartbeat and the kicks!

Brownie the injecting in the bum thing doesn't sound much fun, no. If it's any compensation if you were seeing Mr S he only sees you up to 14 weeks (I think) anyway. So after that you're kinda on your own too. Good luck for the scan on Weds and for Comedy too.

Thanks Duggs for updating the list. I must say I find it really comforting to look at it and see other people with similar issues. I know we all have similar issues, that's why we are all here, but it is good to see it written down. Comforting to know there are other people who are still TTC their first. No-one has yet topped my NKC count of 3.79 have they yet? I think I saw someone on the baby centre with higher once and there was one girl on MN who was successfully several months pregnant. She must have had a baby by now I imagine.

That is very comforting Coconut about what Mr S said, especially as you didn't get treated until later than planned. I wonder what made him so sure you weren't going to lose the baby. Amazing stuff though. My mum didn;t have any pregnancy problems although I think it did take her a long time to conceive her first (my older brother) and then she just went on to have me. She didn't have any miscarriages but maybe I should quiz her more closely to see if she was having mysteriously heavy periods that might have been chemicals when she was TTC my brother. She does have arthritis so that is an autoimmune condition. I developed my thyroid problem really early, around the age of 21, and I was the only one in the family with a similar condition until around 4 years ago when my brother's thyroid went over active! So that's in the family somewhere but nowhere we can find at the moment. And of course it's autoimmune too.

Scooter I agreed it is so hard not to relate to your last pregnancies to see if there is a pattern to them going wrong. In both pregnancies this year I had a certain amount of hip ache. No idea what it was. I looked up SPD but it would seem it was way to early for that.

So CD15 for me today and still no idea if I am ovulating. A tiny bit of twinging yesterday but nothing to write home about. I guess I just keep on with the SWI. I guess I COULD always take my temps or pee on an ov stick but am just keeping it casual at the moment. I think I might start the Pred tomorrow though just in case and keep going until the 16th.

iggi, are you taking the Omeprazole with the prednisolone now? I can't remember if you are or not but I remembered you were having bad heartburn and bloating so thought I'd ask. Possible side effects of Omeprazole is diarhoea and nausea (charming trade off!). Also, there are a lot of sicky bugs going around at the moment. My OH has just had one. Being pregnant and being on Pred is a doubly whammy for compromising your immune system.

Try to stay positive. I know it's really hard not to compare previous experiences but hopefully this is something unrelated.

iggi hang in there and try to think of it as part of the pregnancy, hormones could be responsible for the sickness and imagine the cyclogest could be making normal sickness worse. It could also be a build up of the pred? I haven't suffered too much with the steroid related tummy troubles they predicted so far but expecting it to really hit at some point. Try not to focus on what happened in your previous mcs, I kept freaking out by getting the sinister backache I had just before my 2nd and 3rd but it hasn't persisted like it did before (and no bleeding with it) which is making me less frightened of it and I am starting to think of it as perhaps the more normal part of pregnancy, everything shifting about. Really hope you feel better soon but maybe ring the midwives to try to reassure you. It's really hit you at a bad time with starting your new job etc, are you feeling slightly anxious about it, imagine you have a brand new class? I know that nerves always go to my tummy and can't think about eating. Thinking of you today x

coconut your message was a godsend :) I am so glad to hear you've got so far and that Mr S was so positive. I have been convinced that he would see my results and write this one off. Had intralipids yesterday and saw on all the paperwork it's meant to be done a week ago, it's so expensive I wondered if I was throwing money (we don't have) after nothing but now feel more hopeful, so thank you.

Also went to church on Sunday and that always makes me feel a bit calmer - it's patience I really need now, time is really dragging, not helped by these gloomy dark days.

Fingers crossed for the SWIers and 2 week wait-ers, I had symptoms and implantation cramps from 5dpo so it's not so strange to be symptom spotting already battery, although I didn't get a BFP until 14dpo and a few negatives between.

Well good luck in the new job today hunni chin up and carry on and hopefully all will be absolutely fine but I'd def call EPU and see if u could go in a lunch break one day maybe? Just to give u peace of mind xx

Thank you Stogan, it just all seems too predictable that I'd get to ten weeks and something would go wrong.. Not sure if midwife would listen for hb this early? My eating has indeed been crap, very variable in terms of good food/bad food. Today it will be no food at this rate! I can't leave work today, first day in new job better get my fixed smile on.

Oh Iggi try to relax hun can u not go to a drop in to see a MW and have the heartbeat listened to just to reassure you? If it's any consolution hunni I had a bout of diahorea at 11 weeks lasted about 48 hours ( which was how I knew I was having my fourth mmc) so thought everything was over but called EPU and had a scan at which they actually dated me 12 weeks, so a week ahead of what I thought and they said it was because I had started eating "real food" ie veg after coming off the pred as all I had been eating was crisps and biscuits and the veg etc had given me the upset stomach and caused baby to have a growth spurt.
Sorry to go on but thought by drawing attention to my own panic and worry it might bring you some comfort and hopefully all is more than fine in your little oven !! Xx

Hello. Needy post here as I've woken this morning with the same upset stomach I had all day yesterday - yucky feeling inside, don't really want to eat (tho hungry), some diarhoea, bit of dry retching this morning. Am so convinced this is the start of the end. I'm sure I've had a stomach upset in the past when I've mc. I just can't focus on anything else, and I really need to.

Evening all. I'm just checking in quickly. It's been a busy weekend with visitors and trips out and this is the first chance I had to have a proper read through.

Scooter - I completely understand why you're freaking out. I don't know if you remember my story but I had an appointment with Mr S booked quite a long way in advance, because he was away and we were away over the summer. Anyway, by the time I got to see him I was already 6 weeks pregnant and completely kicking myself that I'd been so bloody stupid not to wait ( I think it was the fact that my birthday was looming, I was feeling a bit panicky and just felt that time was of the essence). Anyway, because of this, I didn't get any pred until then. Then my blood test results came through and I had v high activation of NKC and I had to have the increased dose but didn't start that until I was more than 7 weeks. I had intralipids the same week. Anyway, what I'm trying to say is that, so far it all looks OK for me and Mr S is very confident, so just because you weren't on the higher dose straight away doesn't mean that all is lost. He actually said, "Coconutfeet, I don't think you're going to lose this baby." I don't mean to be all me, me, me but I just wanted to try and reassure you that it can be OK.

Interesting that several of you mention your mums having mcs too. Mine had 3 mcs and a stillbirth and Mr S thinks it could be that she also had the Factor II gene mutation (sticky blood) and I've inherited it from here. Has he identified a link between any of your difficulties and the issues your mums had?

Got to rush off again. Sorry not to name check everyone. But I hope you're all OK and that the SWIers are wearing their warm vests and making hay while the sun shines (or whatever analogy is appropriate)!

Working on the pie chart ladies..

I've got my first apptm at St Mary's tomorrow.. backward - last ERPC 01 Aug and has taken this long to get a slot.

Meanwhile saw Dr S privately. I am not expecting much tomorrow, kind of just going to get into the system and would be stupid to miss the slot. However I know Lesely Regan isnt a fan of immunological theories so I am preparing to take whatever happens (probably not much) with a heap of salt.
This thread and you ladies have given me the strenght and proof that Dr S is the man who I would rather put my trust in.

Here is the list then.. with mine added.
A couple of gaps still...

TTC
duggs1976 - High/V High NKCOv 28 Oct. Pred.TTC #1 Testing 11th Nov?
batteryhen - High activation NKC, factor v leiden. TTC#1 Testing 12th Nov?
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC#1 /ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos.
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC/ov 1st Nov
eurochick - awaiting first appointment (in Nov)/cd9/ov 31 Oct-2 Nov
ChoccyPud - V High NKC / TTC #1/ 4th Pred cycle/ov 3rd Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Stogan - V high NKC - BFP 9/7/11 cycle#2- 21+2 Due 10/03/12 - 2nd cycle Digitalgirl - High NKC -BFP cycle#2 -16+0 Due 16/04/12 next scan 7/11 - 2nd cycle
Coconutfeet- V High NKC, Factor II gene mutation, underactive thyroid - 12+6 next scan 15/11 - ? cycle
Iggi - High NKC & Hypothyroidism - 9+6 next scan 7/11 - 2nd cycle
Comedy - 9 +3 due 1/16/12 scan 2/11 - / cycle
Scooterchaser - V High NKC - BFP cycle1 - 5+1. Due 01/07/12. Scan 10/11 -1st cyle
BrownieGecko - High NKC, Hypothyroidism, & Glucose Introlerant. BFP on cycle 3 of Clomid. 8+6 scan on 2/11

Good evening ladies hope I find u all well.

Been to hear our heartbeat again today but needn't have bothered as am sure I'm gonna give birth to Jackie chan the kicks I've been getting today !!!

Good luck to everyone having scans this week, I'm totally off all medication now so very nervous and scared as feel like I have no back up. 2nd anatomy scan next week may confirm my babs can survive on just me and not pred or intralipids (can't believe it !!! )

Been on drugs for so long I have lost part of my morning routine now lol !! Xxx

Hi Digi...I got a bit carried away when I added myself to the list :) I am 8+4 today, will be 8+6 when I have the scan. I think I must be the only one here that isn't with Mr S :(. I was at St Marys but we jumped ship and went to the CRGH at KX at the recommendation of our councellor. They said I had secondary infertility issues and that they would treat me. However they will only see me up to 12 weeks which scares the pap out of me. When I went to my local NHS hospital last week they said that my history was too complicated for them and they had no specialists and that I should consider staying in London!?! We definitely can't afford that so not sure what we will do. Feel a bit let down to be honest. Even with my past they said they would only scan me at 6 and then at 12 wks. So private scans it is.

I was only using the progesterone pessaries twice a day Free but then they added the injections which I have to say suck. My DH has to do inject me in my derrier and makes the clexane needle look diddy if that is possible :). If it means keeping the bean safe and sound then happy to oblige. As are all of us who are on the cocktail of drugs for NK etc. I just keep on reminding myself that I want to know I have tried everything possible in our bid to have a baby. That is all we can do.

What time is your scan Comedy on Wednesday? Mine is at 16:30. I will be keeping everything x for you.

Sorry hun it had to be done x

Hi all, list updated with my details. Historically I have conceived on 1st or 2nd month of trying/aiming properly. So am trying to keep calm and optimistic about this month, and def feel ready again. Again. And so far enjoying the swi-ing but then again it's only half way through the week...

TTC
duggs1976 - High borderline V High NKC TTC/ Ov 28 Oct. Pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Testing 12th Nov?
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC#1 /ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos.
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC/ov 1st Nov
eurochick - awaiting first appointment (in Nov)/cd9/ov 31 Oct-2 Nov
ChoccyPud - V High NKC / TTC #1/ 4th Pred cycle/ov 3rd Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Stogan - V high NKC - BFP ON 9/7/11 cycle#2 - 21+2 Due 10/03/12
Digitalgirl - High NKC - BFP cycle#2 - 16+0 Due 16/04/12 next scan 7/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - 12+6 next scan 15/11
Iggi - High NKC & Hypothyroidism - 9+6 next scan 7/11
Comedy 9+3 due 1/6/12 scan 2/11
Scooterchaser - V High NKC - BFP cycle1 - 5+1. Due 01/07/12. Scan 10/11
BrownieGecko - High NKC, Hypothyroidism, & Glucose Introlerant. BFP on cycle 3 of Clomid. 8+6 scan on 2/11

LOL. testing 5th November...? :) Actually you probably need to test before given that you're on Pred - unless you are one of the ones off Pred...?

eeeekkkk! testing 12th November?? I hope I can last that long .

2 dpo and symptom spotting already! feel free to slap me someone.

Here you go Battery I've updated the list and put you on there - guessing that's 14 days from when you were ovulating? But change it if you need! I have also added #1 for both of us. Anyone else do update stats and add #1/2/3 whatever too!

TTC
duggs1976 - High borderline V High NKC TTC/ Ov 28 Oct. Pred
batteryhen - High activation NKC, factor v leiden. TTC#1 Testing 12th Nov?
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC#1 /ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos.
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC/ov 1st Nov
eurochick - awaiting first appointment (in Nov)/cd9/ov 31 Oct-2 Nov
ChoccyPud - V High NKC / cd10/ov 3rd Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Stogan - V high NKC - BFP ON 9/7/11 cycle#2 - 21+2 Due 10/03/12
Digitalgirl - High NKC - BFP cycle#2 - 16+0 Due 16/04/12 next scan 7/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - 12+6 next scan 15/11
Iggi - High NKC & Hypothyroidism - 9+6 next scan 7/11
Comedy 9+3 due 1/6/12 scan 2/11
Scooterchaser - V High NKC - BFP cycle1 - 5+1. Due 01/07/12. Scan 10/11
BrownieGecko - High NKC, Hypothyroidism, & Glucose Introlerant. BFP on cycle 3 of Clomid. 8+6 scan on 2/11