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TTC/ pregnancy on Prednisolone or similar part 2

958 replies

Arianrhod · 18/10/2011 09:55

Starting up part 2 of this thread since the old one closed at 1000 posts!

iggi lots of luck for today, hope it's nothing - I know it doesn't help but I know lots of women have spotting and/or bleeding in pregnancy and it still goes ok. Definitely call the EPU, get scanned - it's worth it, honestly, at least you will know one way or another. Virtual hugs coming your way.

free I also started AF properly this morning, so looks like we may be both importuning a friendly witch for a good fertility spell on Hallowe'en? I know exactly what you mean about the scary stuff ... a small part of me was actually sort of relieved when I didn't get a BFP purely because it means I don't have to go through the whole worrying about miscarrying all over again. Bizarre, but there it is.

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duggs1976 · 03/11/2011 18:51

Amazing news ladies so pleased for you and good news for us all to hear more positives! We need to talk about Kevin - great book for us lot would put u off kids for life. Well written didn't think as much of the film as so many significant parts left out. Tilda Swindon was amazing in her role but a bit odd if u just see film !

eurochick · 03/11/2011 18:13

iggi that's excellent news!

Brownie I read the Larsson trilogy this summer and loved it. I think that is a great way to pass the time on the drip!

I'd be happy to meet up with you guys too (work permitting - it has all kicked off a bit here!).

iggi999 · 03/11/2011 18:10

I am quite happy to be in the wrong on this one, Arian!
I do think they shouldve scanned me on nhs for my mental health if nothing else - it's a form of torture to be made to wait!
Next scan - er, Monday, in London!

Arianrhod · 03/11/2011 18:03

And ya boo sucks to the rubbish EPU who wouldn't give you a reassuring scan. I sometimes wonder whether the NHS is there to look after people, or just to do as little as they have to. What harm would it have been for them to scan you iggi to reassure you? You shouldn't have had to pay out for a private scan. But still, good news :)

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Arianrhod · 03/11/2011 18:01

Excellent news iggi!!! At the risk of saying I told you so ... I told you so Wink No, really, I'm so very pleased for you, what a fabulous thing to see. Have yourself a nice large congratulatory cup of tea :)

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iggi999 · 03/11/2011 17:59

Oh and a big Thanks for all the handholding from you guys.

iggi999 · 03/11/2011 17:58

Just back - clutching picture of LO, so not what I expected! Haven't had a private scan like that before, giant plasma screen like you're going to watch football, and me lying there with my eyes shut crying until she told me to look! Measuring 10+5, hb fine. (So for today at least) all is well for me.

BrownieGecko · 03/11/2011 17:58

Thinking of you both Iggi and Comedy x

Thank you too everyone for your congrats. It means a lot. Can't really believe it still, we have never had 2 positive scans in a row. Just need to make it to the illusive 12 weeks! DH and I still scared to raise our hopes this might work.

Sorry to the ladies who have had to join us and have recently suffered a mc. Sending you unmumsnetty hugs Puree & Lemon. As kittens says this thread has been a great source of comfort for us who have been doing the treatment and being able to share in our experiences. I had my second round of Intralipids this morning Coley and it was good. It doesn't hurt and you are there about two and half hours. Gave me the chance to lie down and read a my book which am finding hard to put down now. Have you ladies read The Girl with the Dragon Tattoo and other 2. Such a shame the author then passed away after they were published. He was a truly talented chap.

Puree it is absolutely normal you should find others pregnancy announcements painful. I think I would have run out like a blubbing wreck. I have a close friend who is now 28 weeks and is desperate for me to see her. As selfish and horrible as I feel, I just cannot bring myself to see her whilst I am desperately trying to cling onto a little bean at nearly 9 weeks knowing the next 3 weeks could go any which way.

I would be up for meeting in London, it would be nice to put faces to names that we have followed for some time now. Up to see the in-laws this weekend where I am going to have to pretend not to be green around the gills and the extra chubby chub chub weight I seem to be carrying is a little difficult to conceal :)

duggs1976 · 03/11/2011 17:52

I'd love to meet up. When should we aim for ladies next week or week after - is that enough notice? Smile

Welcome oz to the cocoon world . . You'll know what we mean. It's very comforting hereGrinSmile

Arianrhod · 03/11/2011 17:43

Woohoo, smilie face, smilie face!! It's ridiculous how relieved I am, I had a really bad feeling I wasn't going to OV this month for some reason. Hope DP's on form tonight Grin

Waiting to hear how iggi and comedy got on today ...

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Coconutfeet · 03/11/2011 16:13

A warm welcome to the newbies! Everyone's lovely and supportive on here, so you're in good company.
Puree and lemon - so sorry you've both been through it again. It's heartbreaking.
So sad for your friend too Free. She's lucky to have you on hand.
Comedy - you've had a horrendous week. I really Hope ofsted wasn't too painful. We're due s visit some time this year and everyone's really feeling the pressure.
I'm typing on my phone which always takes ages so I'll keep thisbrief and wave to everyone else.
Iggi - how are you?

Havingkittens · 03/11/2011 16:01

Blimey, that's weird, I don't remember posting that last message halfway through and then starting again Confused.

ChoccyPud · 03/11/2011 15:27

Welcome Coley yet another recruit to the cocoon beach house!

Yep I'm up for that free.

Am on iPhone so just a quickie (be lucky to get even that after days of swi my poor dh!) Wink. Trying to not mental by concentrating on work and not spending too much time on here...

Havingkittens · 03/11/2011 15:25

I'd be up for a meet up too, if I am not working late or away in France, both of which are slightly unpredictable.

Welcome to coley, you're in good company here. Like the others say, it's good to be amongst others who can relate to your situation and share gleaned knowledge/compare symptoms or experiences/have a rant etc.

Havingkittens · 03/11/2011 15:22

I'd be up for a meet up too, if I am not working late or away in France, both of which are slightly unpredictable.

Arianrhod · 03/11/2011 14:48

Mmm Well I'd probably be up for it free, depending on working around DD's extensive social schedule (honestly, she has a better social life than I've ever had!), oh and DP's footy schedule (bah!).

I have to say, everyone someone mentions egging I'm getting a mental picture of a bunch of ladies all pelting hapless GPs with rotten eggs! Grin

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freelancegirl · 03/11/2011 14:41

Hi coley! Yes, do come in! We are in a virtual beach house having found some kindred drug necking, doctor bothering, lethal womb owning team mates and all here to swap stories, tips, random bits of (sometimes wildly speculative) knowledge. It's certainly wonderful to all be speaking the same language.

Sorry to hear of your losses. Interesting that you seem to have had mcs both before your daughter and after. What do you think made the difference?

Don't be worried about the intralipids, it's a bit weird having them (it was my first ever drip) but painless and quite relaxing in a way. The 40mg Pred isn't hideous either although for me it was a pain, to say the least, to have been on the steroids, got fat, grown a Moonface and then miscarried. thankfully mist people seem to be a bit more successful. But I am now eith you on the 2ww yet again. Do add yourself to the list! We have put them in rough date form - just copy and paste, or someone else will prob do it soon (am on iPhone at the mo). We are getting to be quite a gang!

Talking of which I was wondering if those of us who are London/ near London based would be up for a RL meet up sometime soon? I for one am definitely up for a good face to face full on conversation about egging :) anyone else in?

Purée (iPhone insisting on accent!) that's a heart wrenching situation. Hopefully it will be you soon xx

Also lurking for news of scans...?

Arianrhod · 03/11/2011 14:33

Welcome Coley, so sorry for your losses but you're in good company here :)

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ColeyOz · 03/11/2011 14:07

I forgot to mention that I have a beautiful little girl who is 20 months and have had 4 miscarriages ranging between 5-8 weeks. I was with St Mary's RMC before the birth of my daughter but have subsequently miscarried and went to Dr S. I have a history of autoimmune issues so I was convinced this was my problem and it definitely was! Fingers crossed his treatment works as I can see lots of success stories here:)

ColeyOz · 03/11/2011 14:05

Hi all - I've come across your thread and hoping I can join. Its exactly what I need. I've been diagnosed with very high NK cells with Dr S and am currently on my first cycle on Prednisolone during the 2WW. So far so good and no side effects but I'm scared about Intralipids and going up to 40mg. There is a wealth of knowledge here and I hope to contribute some too Smile

Havingkittens · 03/11/2011 13:17

Oh puree, what awful timing. Well done for keeping it together. Not sure I would've. Like free says, pregnancy announcements are hard enough as they are. Even when there are strangers too. Actually, even if they are fictitious TV characters it still gets me if I'm honest!

lemonsherbert welcome to the thread. So sorry to hear you are going through another miscarriage now. Like you, I attended the RMC at my local hospital and all the results came back clear. They recommended an empirical dose of asprin along with early and regular scans in my next pregnancy and like you, that pregnancy didn't work out. I managed to get my GP to refer me to Dr S on the NHS. Some GPs are more helpful that others in this respect I gather, I am lucky that mine is very keen to help me in whatever way I need when it comes to having a baby. So, the benefit of seeing Dr S on the NHS is that it is a hell of a lot cheaper, but on the down side, there is a lot more waiting. I think it too 3 months from referral to get my appointment. My test results were relayed to me by telephone appointment 5 weeks later and a prescription request sent to my GP. Those seeing him privately are asked to come back if they do not fall pregnant in the first month (is it? or perhaps the second?) whereas I didn't go back for a follow up until it was time for my 2 month break after 6 months on the treatment. They have asked my GP to refer me to their fertility clinic to see if they need to prescribe something to "help me along", whereas those seeing him privately seem to be offered this as a matter of course by him much earlier if they do not conceive. So, hopefully that gives you both sides of the coin.

As far as the "bad luck" theory, when I went to the hematologist at the initial RMC and was told the results had come back clear my OH said to her "So, are you telling us it's just bad luck then?" and she, refreshingly, said "No, having 1 or 2 miscarriages is bad luck. Having 3 or more means there is probably a reason, it's just that we don't know what it is." Although it didn't get us any further it was nice to have that acknowledged.

digitalgirl · 03/11/2011 12:12

Puree pregnancy announcements so close to MC suck Sad - I still feel a bit funny about hearing pg announcements in RL. Just mourning my own loss of innocence about it all I think. Hope you're bearing up ok today.

Thinking of iggi and comedy with their scans later on.

lemonsherbert They say 'bad luck' because they don't know what else to say. I don't think half of them believe it themselves. I know I don't believe that rmc is bad luck. Let us know how you get on, we're here if you have any more questions.

Good luck to all those languishing in the 2ww.

pureequeen · 03/11/2011 11:33

went home of course not went hope...

pureequeen · 03/11/2011 11:33

thanks for all the info about embryo screening - all makes sense that the process itself might increase change of mc.

I went to a dinner last night and two friends announced they were pregnant. went hope and had an incredibly vivid dream that everyone I knew was pregnant. everyone. Don't have to be Freud to work out the significance of that.

wonderful scan news brownie Smile

freelancegirl · 03/11/2011 08:42

I'm worried I haven't done enough too! And tonight I am away from DH so there is no SWI on CD17. I still had all those pre-af feelings last night to and have woken up bloated again. Day 2 on Pred. Gotta run, actual work to do today... xx