With angel babies in the sky, some of us expecting rainbow babies, others still ttc and definitely swi!!

Hi people,

Hope you're getting some answers, Cheese.

I have tried to ring the consultant but she's not in until the afternoon. I left my number and hopefully she'll ring me back. I spoke to the Fetal Medicine midwife, who wasn't especially helpful. She said I could have a CVS now, which has a 1 in 50 risk of mc, or wait until 16 weeks for the amnio, which has a 1 in 150 risk factor. She was horribly patronising, clearly didn't know anything about my past history and refused to tell me my exact results or which doctor had the lowest rate of miscarriage. She was doing that horrible treacly "I am so sympathetic" voice and explaining as though I was 4 years old. "Now you see, if 10 women all had a risk rate of 1 in 10, then 9 of them would have perfectly healthy babies" - oh really? You don't say! Gosh, I hadn't worked that out for myself in the 14 hours since I found out from Triage what your cryptic message meant! "Now, you need to go away and think about all your options and discuss them at home" - what do you think I've been doing all night?

Sorry, slight rant there. I was also thrown because I hadn't realised that the blood tests were analysed at RIE, which is the hospital where Thea died, and it was a RIE MW who called me. I've been going to St John's instead, and it just seems to me that every time RIE gets involved in anything they fuck it up. I want the consultant to organise an amnio at St John's, but if it turns out that it would be quicker to go to RIE then I guess I'll have to.

I don't really have a clue what I'll do if the test comes back positive. I'll cross that bridge if I have to - and maybe I can stay safely on this side!

too I have been thinking of you all night and added you to my prayers (just incase they work). I do really understand how you are feeling, I am awaiting my DNA results this week that will tell me if I have a 1 in 4 chance of this baby having Thomas's condition. However, I entered this pregnancy knowing the potential risk. You have had an awful shock. So hope a plan is put in place for you today.
cheese I cant believe that you are taking yet another blow, my heart goes out to you. Really hope that you get some answers today. Sending both you and too super strength.
angel 2 weeks today!!! How bloody wonderful.
Hello to everyone else

Hi girls, I haven't been around over the last couple of days, been working long days at work so haven't had chance to get on.
too I am sorry that you are facing this uncertainty now, it's just not fair, we all have enough to worry about without other things being mixed into the equation. Have you tried to ring your consultant this morning? surely he/she will understand your need for further information asap x
cheese what were your numbers? I have hypothyroidism and as long as you are aware of it and treat it it doesn't affect the pregnancy. I am sure it's a similar thing with hyper. Hope you get answers today also x

too and cheese thinking about you both (((hugs)))

angel wow those two weeks will fly by.

Not much happenning here, indigestion seems like a small complaint compared to what you are all going through.

too and cheese my thoughts were with you all night, I hope you are coping as best you can.

tooIm glad you have found a section of mumsnet that can help in this situation, mumsnet really is a godsend. sending lots of hugs and positive energy that it all turns out ok.

Too I have everything crossed for you and dh, I understand how you must be feeling. Zoe had DS.

cheese I hope you get some answers and the treatment you desreve.

Angel wow 2 weeks to go!

Duh. ... ELCS !! Appears I m still tired!!!

Oh I did sorry!!! Didn t mean to drastically reduce the odds!! Was tired!!! Blue my ELSC is 2 weeks today. Xx

Too hope you can work through this & as someone already said "1 in 9 " chance of being ok. Hope you 2 are strong enough to come through this. All my love & hope for you xxxx
Cheese hope you too get some answers soon.you re in my thoughts. Take care xxx
Hi Razz I m ok thanks. Just very hot at work .
Hi all hope everyone else is ok? Glad it's cooling down it's way too hot for work. Just had my reflexology which had helped greatly with my cankles!!! Xxx

Oh Cheese . I don't know what that means, but I hope the hospital/consultant will say it's going to be okay. I wish there was someone up there who would just go okay, enough's enough, let's leave them alone now!

I had a call from the gp and looks like I'll be calling the hospital tomorrow, they checked my thyroid with TSH, T4 and Thyroid perodoxaise antibodies which came up abnormal. I got the actual numbers and have been googling but I don't really know what do think. Dr said they will decide what to do but I'm really worried. It's something to do with hyperthyrodism, the list of complications includes stillbirth... At least I heard back tonight though. I'm seeing the consultant on Friday if I can't speak to anyone before then too.

Thanks guys. I'm just not managing to think positively. I feel like I've used up all my being brave and positive already. It hurts too much to think that it might be ok, because I don't know that and I might cheer up only to be told for certain that it's not ok. Does that make sense? DH is being very brave, although he has cried a bit too. I've discovered a whole section on MN devoted to antenatal tests/choices - who knew, eh? I seem to keep on finding the sad parts of this website.

Too just wanted you to know I'm thinking about you and hoping that everything turns out ok. Stupid saying try and stay positive but hopefully the odds will work for you. Lots of love and hugs xx

Hi lovely ladies - coming on here with the way the thread moves is a hit and miss right now! in process of moving and so dont have much time to get on with packing and work!!! blahhh blahh blahhh, but i do hope you are all well and taking one day at a time, time is so moving right AngelGeorgie!!!!!
and wow seen a few numbers of weeks and just thinking wow milestones everyday!
Too- whoop on the 14+4!!!!!!!!Im so sorry that you are going through this not knowing and i hope it works out for you!sending praying to you and yours x
green - what a total stupid comment to pass regardless of the reasons he thinks wow no matter what is it your childrens fault??????
cheese - 16+1 - whoop! ( flutters will become stronger soon)
Razz - hope your well.
Blue - i have all crossed for you that you will have your BFP real soon july 2012 babies right!
big hi to all not mentioned my brain is like a bucket with holes!!!!!!!!!

Oh too, I just dont no what to say to you. Life really is so very unfair. How is hubby coping?? I had an amnio when I was pregnant with Thomas, it was all so surreal I was totally numb and felt nothing. No problems afterwards though (from the amnio anyway). Are they going to give you another scan??? The choices we all make during our pregnancies are so very individual and so I dont feel it would be much help to tell you what I would do. Sending you and your DH hugs and positive vibes and of course praying for the best.
Take care of each other.

Too I can't imagine how difficult it must be for you right now and you really don't deserve it. If you decide to go for the amnio could you go private as I think the results would be in sooner, I know at the place I linked to they have preliminary results after just a few days and do the amnio on the same day as they find a problem. I guess check the miscarriage rate by the person carrying it out too as they do vary.

I suppose one problem would be if you do have to wait a few weeks that you'll be even further on and that would be worse having to make any decisions then. I just hope it's good news for you.

Pretty sure will have amnio. They didn't check for nasal bone, no - or at least, no one mentioned it. I'm 14+4, so they might not be able to redo the nuchal test. I'm in Edinburgh, so London is a bit far.

I'm not ok. I don't know what to do if it's positive, and I can't stand the thought of waiting for an amnio date and then for the results to come back, while worrying if I'll miscarry as a result of the amnio. I also can't stand not knowing, and having to spend the rest of the pregnancy wondering.

Too Massive hugs, how are you feeling? Do you think you'll have an amnio? Did they check for nasal bone etc at your scan? Not sure exactly how many weeks you are now but you could opt for a second opinion at www.fetalmedicine.com/fmc/ if you're anywhere near London, they are amazing and also do amnios (they have a lower risk than nearly everywhere else from them too iirc).

too hope you are ok?

1 in 10 risk of Down's. The nuchal measurement was fine - it was about 2.2, which is perfectly normal, so it must have been something in the blood test. I have to call back tomorrow to discuss amniocentesis.

too I hope you find out what the call was for, please don't worry.