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Original poster

Ashermans Support Thread - for those seeking diagnosis, getting treatment or TTCing again after. All welcome.

131 replies

MummyAbroad · 10/11/2010 21:14

Not sure how popular an Ashermans Support thread will really be as the first time I started reading about it I felt sick with fear and flipped the computer shut straight away!

I've since got a lot braver and much better informed, mainly by the lovely people on www.ashermans.org and Dr Adrian Lower

So now I've been diagnosed (finally) and am having an operation on 16th November. Anyone want to keep me company on my journey through treatment and hopefully TTC again afterwards?

OP posts:
MummyBellsAllTheWay · 29/11/2010 18:23

Bump just to see if there is anyone else out there.

MummyinEngland · 18/11/2010 17:10

I have had treatment (hysteroscopy) and the doctor said that he got ALL of the scar tissue out! I am very pleasedGrin Grin Grin

I have had a coil fitted which will be in for 6 weeks while I am on hormone therapy and then after that I can start TTC Grin

MummyinEngland · 17/11/2010 16:59

Hi sh77

Yes you are right, there are only a few AS specialist in the country in fact. You can find a list of doctors and their contact numbers on the yahoo group accessed through wwww.ashermans.org. Adrian Lower only accepts private patients, as I have not been in the UK for a while I am not entitiled to NHS care so this is the only option for me anyway.

I had a hysteroscopy and division of adhesions with him yesterday and recovery is fine (feels like bad period pain but OK with paracetomol and hot water bottle) I am going back to see him tommorrow to find out what his prognosis is for me, unfortunately when I saw him after the op I was still groggy and forgot to ask how it went!

I am feeling very relieved to have finally had treatment though Smile

sh77 · 17/11/2010 14:59

I did lots of reading on this before my ERPC. It seems that there are very very few Asherman's specialists in the NHS. Adrian Lower is very highly regarded and uses minimally invasive techniques to treat Asherman's. I contacted him as my it took a v long time for my periods to return. Thankfully they turned up before I planned to see him. I think he only practices privately though - could be wrong.

Original poster
MummyAbroad · 10/11/2010 23:48

Hi Kat!

Thanks for bumping my thread Grin I hope I will be TTCing again soon. Some women do need more than one op though, but I have decided to be delusionally optimistic Grin (today anyway!)

I think it is something that doctors should warn you about after childbirth as well as mc, when the risk seems to be greater.

I had an ERPC a month after birth of DS and seem to have developed the condition then, I have since read many similar stories on ashermans.org. Apparently your uterus is much more fragile when all stretched out after a birth.

I definitely think that any woman who doesnt get her periods back after either situation should be assessed a lot more quickly than is the currant practice.

I can see how being handed a leaflet about AS right after your mc would be far too scary though...Shock Confused There needs to be a balance between not freaking people out unnecessarily and getting the right people the right treatment quickly. At the moment its all a bit slanted to one side.

wait till I rule the world though.... mwaoohahahahGrin

OP posts:
kat2504 · 10/11/2010 21:22

Just saying hi! Followed your tests and diagnosis on the other thread and think you are doing a fab job on educating people about this condition. I had never heard of it before.
I understand the fear but from what I have read the operation has a good chance of allowing you to ttc again? hope this is the case!
All the very best with the op, hope you don't freeze too much over in our colder climes. And well done for bringing this to our attention because it certainly isn't something the docs warn you about when you m/c.