DLA wait times… part 22 (2023)

Hi, first time posting!
im 12weeks in scan date 8/9
ive recently sent off a renewal for my oldest soon, does anyone know if renewals are taking just as long?

@Mammalee5 yeah there's no chance I'm ringing what I am going to do though is send my extra evidence ive had since the claim shes been referred to camhs by alderhey and shes under the long covid and cfs clinic and and has anxiety management workshop by alderhey and they are also thinking she is asd/adhd so senco are now involved at the school and like all of you I have a lot going on and I now have proof of all of this so I'm going to send it all in good luck everyone xx
@funinthesun19 hey scan buddy I hope its good news whenever they decide to look at ours xx

@Laurenadele12 hi, I found out on Friday and the decision for mine was made on the Thursday I was 18wk 2 days. Hopefully you'll know next week.

1/8 scan date, 18 weeks Tuesday, what’s my chances of hearing this week?!😩 all I can think about now! Either way I just want to know now x

Your scan date and text dates are all the same as mine!

I think we may have another 3/4 weeks left yet. Maybe longer because of Christmas! x

@Dolliesmama I get that, my anxiety at being declined over rode my anxiety of talking to them at about 16 weeks lol.

@Dolliesmama thank you hun. We're managing to keep the meltdowns low, so long as everything is perfect lol. Any changes and it's very hard days. Because we home educate we cam adapt to their needs constantly so that really helps. Just tiring on little sleep. The money will help replace things constantly, afford their comfort reset foods more, 1 to 1 specialised tutoring etc. Nobody goes through this torture for no reason, all the kids need the help. I really hope everyone hears soon positive news x

I'm not calling them at all too anxiety riddled for that kind of thing ill just wait it out xx

@Dolliesmama it might have been, i believe they leave a message. Call at 9am Monday to check x. You're about 4 weeks behind where they're working at at the moment.(last week of july/beginning of August should be where most dm's are now) doesn't mean though that it isn't them. You could have one of the faster DM's

@Mammalee5 sorry that was for you but applies to all xx

Wrong scan date 24/8
@Sarahdestiny just read all that I really hope you get it you sound like super woman, infact everything ive read i think you all are xx

@Sarahdestiny it really is ridiculous, in June when it was about 12 weeks wait, the Gov pledged to hire more staff and bring the waiting times down... it's going well i see . I'm 18 weeks on Thursday for 3 of my children's applications. We had no idea we could claim. We have 2 children with autism and 2 with adhd/autism. (Waiting for my little girl to be 3 next year before applying for her, 3 applications was enough torture)We home educate so evidence has been statements from the clubs they attend rather than school, and evidence from their gp / early help assessor. Probably going to need to do an MR for them but hoping 1 of them will go through first time. They all have a lot of night time needs so put in diaries. I've been filming their stimming/ refusals to walk etc for a potential tribunal. My almost 3 year old also has severe motion sickness and eczema as well as PDA (and adhd/autism) my 4 year old has autism, non verbal to everyone but his close circle, severe stimming, sleep apnea and anemia, my almost 6 year old has adhd/autism , little bladder control, severe PDA, my 7 year old has autism, non verbal a lot of the time, everything has to be stuck to routine otherwise there's heartbroken meltdowns for days and shutsdown completely. All fussy eaters all tear clothes constantly, alll have sensory issues, all need things to be "just right" etc. They all have needs far beyond a child of the same ages. It's hard work but they're all my wonderful little geniuses

Its horrendous im literally getting loans to cover costs of what dd needs i am praying she gets it as im getting further into debt to try and cover costs for her.

My scan date is 25/8 2 texts 31st October and 21st November had a call from a private number yesterday that I missed, im kind of thinking it could of been them do they leave a message if they can't get through as I never had a message from them good look to all you parents waiting for what your kids need and deserve xx

@Looloo12332 @Mammalee5 yes the wait is ridiculous 🙄 especially if get rejected fingers crossed we all get awarded x

@Sarahdestiny my first text was 9 1/2 weeks after the scan date. Second was 12 1/2 weeks. Their system is actually rubbish because not everyone receives texts or even letters unfortunately

@Sarahdestiny it 18_20 weeks from them scanning the forms unfortunately.I would be in week 25 if it was when u called for the form.The wait is so long and is driving people mad xx

@Loumumoftwo oh right long wait ahead still for me then lol thank you xx

@Sarahdestiny its up to 20 weeks from your scan date unfortunately 😫
they are currently saying its 18 weeks to go to a decision maker and then 7-10 days for a decision after that. A lot seem to be awarded around the 18 week mark at the minute though x

This is 2nd letter I've had but have not recieved any text messages the whole way through so far how long after revieving this 2nd letter has people had there decision thanks xx

24/08 ...15 weeks this week since rang for the form
4/10 week 9 since scan date
Just wondering is it 15 -20 weeks from the day you started your claim or from your scan date

Also my son is autistic he is nearly 2 and already been diagnosed I have seen on here people getting awarded for there 2 year old but not mobility as they ain't entitled until they are 3 or 5 for high rate
And i have seen on here people have been told once there child turns 3 they will receive high rate mobility... I am just wondering is there 2 year old nearly 3 is that why they have told u that they are entitled to high rate mobility when they turn 3?? or is it because of the length of time they have been awarded they have already told you what mobility they will get cause I thought u had to re apply once they are 3 to get mobility side I didn't think they told you what mobility they will get until you have to reapply once they turn 3 for the mobility part

Hope this makes sense to someone lol 😆 thanks x

@Emma2345 have you had confirmation they have received the forms. I have sent mine the same day and worried they are lost

@MammyAng84 ah okay. Thank you 😊

@crazytimes20 i rang after a week to be told u have to give them at least 6 weeks if u haven’t heard anything, some people on here had payments quickly but I haven’t yet xx

@Tmxx Thankyou for replying and yes I get it for my younger son he is only 1 for breathing problems same as you constant hospital stays and appointments every single week we was in and it was costing so much their was times I wasn’t eating cos I just couldn’t afford too as I was paying for people to look after my other 2 children while i was in hospital, I waited till he was about 10 months old before I applied with him he is on constant inhalers both day and night 3 different ones and antibiotics 3 x a week and he had pneumonia 5 times in such a short space of time and requires Oxygen has loads of proof with him and consultant letters,, but because my other one is just suspected asd and not on medication or anything I just feel like it’s going to be a decline It just seems to be hit and miss with who’s desk it lands on😩 I don’t reckon al hear anything till probably march April time anyway seems to be such a long wait for decisions I only sent my form back about 2 weeks ago xx