DLA wait times… part 22 (2023)

@Linacre96 ours was very different I guess it depends where you are in the country x

@Ilovemychildren123 I’m awaiting the last appointment with the autism doctor as she’s had genetics blood test and everything apparently all evidence has to go to a panel first

Can I ask how people are getting diagnosed so fast my son has waited 5 years already 😫. My daughter is on ADHD pathway and if I can get it to hurry along would be great

@Linacre96 fingers crossed for you we sent EHCP, EP Report, nursery SEN plan, paediatrician letters & Autism Diagnosis report and we were awarded HRC. Our son is only 4 so we went in for HRM under SMIbut didn’t get it so we are doing an MR for that I sent more evidence for it on Friday x

I’m ringing tomorrow to find out what my daughter has been awarded currently on MRC and she’s 5 in 2 weeks I sent in
-sleep diary

• ECHP
• EP report
• paediatric letter
• gp letter
• adsat letter(Autism)
• school letter
• health visitor letter
• dietitian letter

@Mummynic725 school drop off is 9am then a 10 minute walk to the office so earliest will be 9.15am.

@MangoPepsiLover best to call 9am on the dot only took me 7 mins to get through. When I called a 09.18am it took me 1 hour and 13 mins

@MammyAng84 so happy for you it was worth waiting that evening 👏🏽👏🏽🎉

@Mummynic725 I am going to try and call before my 11am meeting tomorrow I think.

I didn’t receive a txt throughout the whole 18 weeks & only found out by ringing again Friday

@MangoPepsiLover @Mumofepilepsy @JowoodyASDPDA im the 19/07 also waiting I think I’m gonna have to call in on Monday because I’ve saw where people have been awarded and not received a text or letter and found out over the phone before the 10-14 waiting period

2/08 scan date
text 9/10
text 31/10
Going to hold out calling till 18 weeks as getting through seems to take over an hour. Good Luck to anyone calling xx

@Anonymousks1984 im going to ring first thing in morning once I’ve dropped kids off, now I just have to wait for my sons new claim to be looked at scan date 1/9

It’ll be 15 weeks tomorrow for me, wish the waiting time was still 15 weeks😫😂

@JowoodyASDPDA Honestly she's the happiest girl in the world, she is so loved by her school, she's in constant pain but smiles through it. She's definitely taught me a lot about resilience. But if she had the diagnosis for the genetic condition it would make life easier for everyone as there's typical things that happen with it and medications she can have. But I can't afford private without the DLA.

@MangoPepsiLover Diagnosis always takes so long, far too long. My daughter is 11 and has a diagnosis of ASD/PDA. i didn't think things could get worse but the transition to secondary school has been horrendous. There are no local special needs schools with availability at her age and she wouldn't get a place anyway because no EHCP as yet. I've prepared myself for a fight if it gets declined. Good luck 🍀

Nope I think she was trying to get me off really quick as it was 10 past 5 on a Friday & I was a blubbering mess who kept apologising & asking her to repeat something she had already said 4 times

@JowoodyASDPDA I know it's driving me insane to! I'm already on UC as I had to transition over when I split with my ExH, but I need to cut my hours at work because of caring for DD, I'm constantly at the school for adjustments for trips or catching up on sleep because she kept me up at night and I really need a private diagnosis for the condition we think she has as she's been rejected by the NHS paediatrician again!

@MammyAng84 Did they say when you'll get the money?

I struggled cos the boyo was a preemie & we nearly lost him 8 times so every question that was asked nearly was relating to 2020 when this all happened so kept chucking them away to do another day but got there in end, Ngl I’m still doubting I heard her correct on the phone so until the letter landa on my doorstep or the money in the bank I’m not believing it

@Mumofepilepsy @MangoPepsiLover we all have the same scan date and the wait is driving me insane. I need to transition from Tax credits to Universal credit but need the decision from DLA before i can proceed 🤯

@MammyAng84 I get what you mean, I started filling the forms in at Easter and sent them back end of June/beginning of July, thats how long it took me, but I am a single parent and I do care for my dad and grandparents as well (unpaid I'll add).

I was the same, kept wondering if I wrote enough to explain or if I managed to mess up the forms some how, the longer u wait the more the doubt sets in. I know through all of this was I wished I had been quicker because maybe if I did it quicker we would of got quicker reply but now I’m glad I took that extra time if that makes sense xx

@Linacre96 hopefully it is the higher rate for u 🤞 I can’t see you getting a text if it’s stayed the same x

I am going to rung tomorrow to see they have had my new evidence

@MangoPepsiLover hopefully u will hear by Tuesday at the latest