DLA Wait times part 20… (2023)

@hearttied my son doesn’t have an EHCP either. I just keep getting fobbed off by the school. He’s in the last year and is so overwhelmed with every bit of school, he just can’t cope. He won’t go anywhere with anyone but myself and a few family members (apart from school but I take him and pick him up) and even I struggle to get him to leave the house. It’s his safe place.

I think you’re right, it really is luck if you get someone who understands. Good luck next time you apply.

Thank you @Keddie So sorry to hear that you’ve been at a funeral today xx

Really hope we get through before they go home x

@Billie1993 @Rebeccanew @Pumpkins3 I have not heard anything at all, just got back from a family funeral on hold now will update you all xxx

Just on hold to try and get an update before the weekend. Been on hold for 37 minutes so far. Wonder if I’ll get through before they close 😬

Scan date 12/7 and been with DM since Monday x

Yes. When in school with no EHCP he was awarded middle rate no mobility. Then when we re applied he was in college and couldn’t complete a journey alone, so he got mobility as well. I was gobsmacked. I don’t expect he will get that next time as it’s a lottery who you get to assess the case but it was welcome for now.

@Mrsstephens04 I agree! These last few weeks have been awful. I'd expect to wait a fair few weeks but 17/18 wks wait is shocking. And the fact all this waiting could end in a decline.
I don't expect to hear out till the last week or November to be honest.

Best of luck. I have everything crossed for you. I always remember "explain it like they've never heard of it before" being drummed into me by a disability expert. I have the same issue with lack of understanding / awareness and late diagnosis after years of suffering and not being believed. I was diagnosed at 49 with my condition - EDS - whereas my daughter was diagnosed aged 10.

@crazytimes20 I know our house buybwas also completed in 13 weeks and we had loads of issues holding us back on that bug it still didn't seem this long this wait is just ridiculous it honestly feels like the end of a pregnancy like the last few weeks where you no you COULD go into labour any time but you just don't know when 🤣 I've never been a very patient person when it comes to waiting! 🙈

Hi I’ve missed 2 calls off this number rang back went straight to voicemail mail 07597 399230 do u get called off mobiles xx

@Mumzieof1 hey you have the same scan date as me and same day that went with a dm! I was told to day up to 10 days for them to make a decision. Good luck. Il keep checking here to see if you receive a text lol x

Scan date 14/7

I rang before an the lady said it's been with DM since Wednesday and they usually take about a week to decide so she'll put a note on system to her for me to receive a text when she does decide.

Good luck everyone!

Hi all
Congratulations to all who have been awarded, and so sorry to all who've been declined.

My scan date was 22/8 so still a long wait.
I think the longer it goes on, the less I think I'll get it.

Sent lots of evidence from professionals, even saying the extra care he has through night and about a rare genetic condition that he has. I filled form in and wrote 5 extra pages of 24 hours in our sone life. They'll just see an 11 year old, where we live with an 11 year old who needs extra support, has meltdowns, learning delay,l dyspraxia and a brain that doesn't send signals when he needs a poo....so much mess to clean up, washing snd showering in night and so much upset.

@RainbowZebraWarrior

thanks that's really helpful. i will list each point and challenge it.

i think they just don't know what his condition is (he's very young to have it as normally diagnosed in teenagers/adults after years of misery with symptoms).

That's awful and so unfair. MR is Mandatory Reconsideration. You have to contest each point that they have said your child doesn't qualify on. So use any evidence you have to make them reconsider (it goes to a different decision maker) Yes, I think you can do it by letter and set out all the reasons why you disagree.

@crazytimes20 I think I’m still in shock. I had given up for today but yes it feels like such a weight off! I am so happy for my boy 👦
@Mumma3girls I know I do too. It’s so unfair.

@RainbowZebraWarrior

i was just really explicit on the form as to how the condition affects his life day to day by describing the symptoms and how i have to support him every day to manage them.

what does an MR mean?

the letter says to ring or write. can i just type a letter of appeal? i don't want to do anything over the phone as i don't trust how it will be documented

@Mrsstephens04 oh yeah for sure! I think it's disgusting the waiting times are terrible. Never known out like it. My mortgage was sorted sooner than this!! It's appalling.

I'm going to ring either Monday or Tuesday.

@Jude82 congrats to you too!

I feel awful for those being declined who obviously deserve this too- the system is so wrong and unfair 😪

@Jude82 congratulations! Bet it feels nice that the wait is finally over 😊

@crazytimes20 @Mumma3girls I'm still totally going to ring up again next Friday when il be 17+2 this waiting with no news is exhausting 🙈

20/07 here rang yesterday said should go to dm next week 💀

@Mumma3girls congratulations! Same last txt date as me 😊

Can someone tell me the difference between CM and DM av rang today and she's sed mines with CM and I should hear no later than the end of next week BTW av rang everyday this week and am not even sorry 😂 scan date 18/7

Just got the txt!! 🎉 He qualifies!! Not sure on rates but my son has been awarded! Over the moon! 27/07, txt dates 02/10 and 23/10, I’m in Newcastle. Rang yesterday and was with DM. I’m not ringing today to find out rates, don’t want to take the shine off the good news by sitting on hold for hours. As long as he gets something to help then I’m happy with that. I think he will be LRC but who knows. Thankyou so much to you all for the help and support! ❤️ 😊

I posted back on thread 18 I think it was but then life got crazy, just been catching up.

@Mumma3girls that’s amazing news! I also have the same scan date and last text date as you so I am feeling more hopeful that my decision isn’t too far away.

I haven’t called or attempted to call as of yet and I don’t know if I want to, especially after reading how so many of you all have been spoken to. Keeping my fingers crossed for us all x