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Dla part 14

109 replies

Mumatherwhitsend · 22/09/2023 14:57

new thread......

OP posts:
Are your children’s vaccines up to date?
zoeybrooks45 · 03/10/2023 15:27

trace34567 · 03/10/2023 15:21

SO Relieved just received a text message saying that my son qualifies for DLA only took 17 weeks and 5 days in tears writing this the fight is over and now we can get him the additional support he needs

Anyone know when you get a payment after this message ?

Edited

Please let us know scan date. Congrats, well deserved!

roki · 03/10/2023 15:26

thanks

roki · 03/10/2023 15:22

thanks for this infos, am sending new info tomorrow, i was going to use the other adress on the website.

trace34567 · 03/10/2023 15:21

SO Relieved just received a text message saying that my son qualifies for DLA only took 17 weeks and 5 days in tears writing this the fight is over and now we can get him the additional support he needs

Anyone know when you get a payment after this message ?

Salvor · 03/10/2023 15:21

roki · 03/10/2023 15:20

exactly, that what i did, am sending the extra info tomorrow.

Good luck!

roki · 03/10/2023 15:20

exactly, that what i did, am sending the extra info tomorrow.

Salvor · 03/10/2023 15:14

roki · 03/10/2023 15:05

hi i was on the with them this morning for the same issue about adding info. they told me to send via post, with a cover letter explaining what am sending, if that can help u

Thank you!

I'm assuming I just put child's name as a reference?

roki · 03/10/2023 15:05

hi i was on the with them this morning for the same issue about adding info. they told me to send via post, with a cover letter explaining what am sending, if that can help u

Salvor · 03/10/2023 09:50

I'm at the beginning of this wait! But can anyone help me with how I send more evidence? I have just received the supporting evidence from the school and support worker. This would be a huge help for the claim! I sent the form before this as I was sick of asking them for it!

Jude82 · 03/10/2023 09:24

I called this morning at 9am on the dot and got straight through for anyone who tries to call, this seems to be the best time. I got cut off after hours on hold yesterday TWICE when I tried in the afternoon! I got forms on June 19th and have scan date of July 27th. They have said it’s 18 weeks wait and so I’m looking at first week in December. I got a diagnosis of Autism for my son yesterday and there is no secure email to send his report as extra information for his claim, I now have to print it off and send it in. It is worth ringing though as they gave me an address that is not the free post address on the website. They told me to send it to Disability Benefit Centre number 4, Post Handling Site B, Wolverhampton, WV99 1BY. Just for everyone’s info

Judejane · 30/09/2023 12:14

Hi all, I put my claim in with a scan date of 27/07 so I have a while to wait yet but on Monday I have an appointment with mind therapies to discuss the outcome and potential diagnosis of a private (NICE recognised) ASD/ADHD assessment. I am preempting a diagnosis for my 9 year old and wondering what I should do if they say he has a condition. My application for DLA details my son’s difficulties and says he is on the CAMHS waiting list for neuropathways but if he actually gets the diagnosis on Monday how do I update my application? I’ve read so much on here about call wait times and not being able to get through by just calling them. Is there a form you can download to add extra info to an ongoing claim or an address I can email or write to? Thanks to anyone who can help me with this :)

trace34567 · 28/09/2023 17:13

Hi all i am 17 weeks today and have revived an new Record of involvement report from school should i send it to DLA?

Chloec211 · 27/09/2023 14:48

@Mumofkidsx3 that's what I was thinking! Surely their job is to read what the other professionals say and make a decision based on that information. Sorry just realised it was you talking about ehcp. Good luck with that as well. My local authority probably dread my phone calls 😂 just don’t let it go. I got it in the end 💪

Mastersstudent83 · 27/09/2023 14:26

Thanks so much @Chloec211 and @Mumofkidsx3 . I'll let you know how I get on. Just on hold to citizens advice to see if they can help with appeal. So exhausted but I'll keep fighting! 💪

Mumofkidsx3 · 27/09/2023 14:00

Mastersstudent83 · 27/09/2023 13:48

Thanks @Mumofkidsx3. I know! It seems like this particular DM just doesn't believe in/understand her profile at all.

. I had a lot of trouble with “professionals” aka teachers and drs telling me, the way my son was, was due to shyness and laziness when he was younger. He was noticeably behind in his understanding of the world and desire to engage with it, but he had reached his early years milestones JUST about. The way he was treated and misunderstood in schools meant I ended up homeschooling him until he was 9, because he just couldn’t cope with it. He is 14 now and diagnosed with ASD and focal epilepsy at age 11. He’s struggling through high school but he’s doing it and caught up to his peers with education.
The professionals have diagnosed your daughter so I don’t really think the DLA Dms are qualified enough to say they’re wrong 😑.Hang in there 💪 I’ve got everything crossed 🤞 for you

Chloec211 · 27/09/2023 13:57

@Mastersstudent83 sounds like you’ll definitely win on appeal or mandatory reconsideration whatever it is. Can’t believe you got no award! That’s crazy! Yeah I’ve managed to just get EHCP approved after 2 declines 🙄 just have to fight for everything. Bigger back dates payment for you when you finally get paid though

Mastersstudent83 · 27/09/2023 13:48

Thanks @Mumofkidsx3. I know! It seems like this particular DM just doesn't believe in/understand her profile at all.

Mumofkidsx3 · 27/09/2023 13:45

Mastersstudent83 · 27/09/2023 13:41

Thanks @Chloec211 . I used the cerebra guide to help me and included so much detail about refusal episodes to leave house, to continue walking, to go to the loo, have a drink even. Sensory stress causing meltdowns and avoidance of busy or unfamiliar places, use of ear defenders etc. Multiple times a day cleaning up after soiled nappies and clothing due to toilet avoidance. She is 9 years old and still in nappies, not sure how this is a normal amount of care for her age 🤔 Daily meltdowns, physical violence. Report from senco and paediatrician both support she is home educated because of anxiety, not lifestyle choice. So confused.

Wow reading all that it’s ridiculous that she’s been declined. Sounds like you’ve covered everything as well.I hope 🤞 when you do MR you will get a better DM

Mastersstudent83 · 27/09/2023 13:41

Thanks @Chloec211 . I used the cerebra guide to help me and included so much detail about refusal episodes to leave house, to continue walking, to go to the loo, have a drink even. Sensory stress causing meltdowns and avoidance of busy or unfamiliar places, use of ear defenders etc. Multiple times a day cleaning up after soiled nappies and clothing due to toilet avoidance. She is 9 years old and still in nappies, not sure how this is a normal amount of care for her age 🤔 Daily meltdowns, physical violence. Report from senco and paediatrician both support she is home educated because of anxiety, not lifestyle choice. So confused.

Mumofkidsx3 · 27/09/2023 13:41

Chloec211 · 27/09/2023 13:18

@Mastersstudent83 whose dismissing them as tantrums? Dwp? I sent in no evidence but the evidence isn’t the main thing that just backs up your claim. You need to prove that the care you provide is over and above what a child a similar age is given. I’ve never had a mandatory reconsideration but can they send out what you put to review that? It’s hard to say what you do on a day to day basis as we’re just used to doing it. Not having an EHCP proves nothing! That’s another battle in itself x

Yeah I’m now going to enter the battlefield of EHCPs 😏 my boys both need it for when they move forwards in education, one in yr5 one in yr10 so I’m hoping that’s enough time to get it sorted. I’ve been waiting on SENDIASS for help but seems like they’re too full.

Mumofkidsx3 · 27/09/2023 13:37

zoeybrooks45 · 27/09/2023 12:44

Anybody had success backdating till the day of call to request form? My scan date if a few days after due to them taking a while to scan it in. The lady said that award date on the system is when I originally called but scan date is after and ultimately it’s up to DM. I didn’t realised you had to send it first tracked back then, just used the free post.

First time I ever heard that, when I called for the forms I was told then that all successful claims are backdated to day of the call. There is one person on here that downloaded the forms and didn’t call so I guess in that circumstance it would be scan date

Mumofkidsx3 · 27/09/2023 13:34

Chloec211 · 27/09/2023 12:04

@Mumofkidsx3 i rang this morning and found out they made the decision to award yesterday. My scan date was 30th may x

whoo hoo congrats my scan date was 25/05 my 2 boys were awarded MRC and LRM.

Mumofkidsx3 · 27/09/2023 13:33

@Chloec211 it’s just the letter telling me that I am the responsible adult for his claim and about informing them of change in circumstances ect ect.

Chloec211 · 27/09/2023 13:18

@Mastersstudent83 whose dismissing them as tantrums? Dwp? I sent in no evidence but the evidence isn’t the main thing that just backs up your claim. You need to prove that the care you provide is over and above what a child a similar age is given. I’ve never had a mandatory reconsideration but can they send out what you put to review that? It’s hard to say what you do on a day to day basis as we’re just used to doing it. Not having an EHCP proves nothing! That’s another battle in itself x

Mastersstudent83 · 27/09/2023 12:54

Scan date 23/5. Decision made yesterday. My claim was rejected despite senco report, ASC and anxiety diagnosis report, list of prescriptions, paediatrician reports, selective mutism diagnosis report. Dd has a demand avoidant profile but her refusal episodes were basically dismissed as tantrums and her anxiety based school avoidance has been deemed a choice as no EHCP! I'm so gutted. Going to go for Mandatory Reconsideration. Anyone else had successful award with similar evidence? Do I have a good case for MR? Don't know what further evidence I can provide tbh!

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