DLA Wait Times Part 5 2022

Ok great feeling alittle bit less nervous now thank you. Can I ask how long do they back date the claim for xx

@Polly21x congratulations!!!! I’m very happy for you as I know you were not feeling very hopeful!! Can I ask what rates you received and what evidence? Congrats once again 👏🏻👏🏻👏🏻👏🏻

@Gemma96x Hello, try not to be nervous, although I did pap my pants when the lady said why she was calling - haha! She only wanted to know about night time, so questions relating to that eg. how long for my daughter to settle, how often she'd wake up after, would she wander, how many times a week this happens etc. She was lovely, but didn't give anything away. She told me it would be 7-10 days, but she must have made her mind up pretty much straight away because my daughter was awarded that day. I too only had the diagnosis form, nothing else, so don't worry. Hope it all goes okay for you and you hear shortly, the same for everyone else waiting :)

Hi All, I’ve been following this thread for a while. Like all of you I’m so nervous and the wait is really adding to my anxiety. This thread has kept me going. Scan date 24th August so know I’m a long way off getting a decision.

DS is 7, on the ADHD and ASD pathway. so Worried I haven’t sent in enough evidence as he hasn’t been diagnosed yet.
Only sent in his initial assessment report.

He masks a lot at school and all though I’ve shown his Senco teacher videos of his 40minute meltdowns at home over a packet of wotsits having changed their packaging (limited Halloween ones!), often he goes into school late because he refuses to go in and I have to wait until he has calmed down and agreed to go, they often have to prise him off my legs screaming and crying to get him into class, he has fallen asleep in class several times as he wakes all throughout the night often up anywhere from 1am-5.30. He can be awake for hours or if he does sleep through it’s normally only until 4 then is awake for the day. The school failed to put any of this on the ‘supporting letter’ so I didn’t include it as it was literally one paragraph saying he lacks confidence and needs a sensory toy to help with his emotions!

Has anyone else been successful with just the initial assessment report?

sorry for the super long message x

i called back yesterday again on hold for 40 odd mins but the man I spoken to was amazing!!! He told me I was awarded yesterday! So not sure why the lady was so rude! I didn’t have a text even though it’s on my notes to Received text message a letter is on the way I literally didn’t have to ask him a single question he told me everything before I could even ask payment dates,backdate payment date, future payment dates,renewal dates he also told me about some extra help I’d be entitled to I can’t explain how helpful he was

It was a two year award last time. I hope they extend it this time round as her issues are ongoing she’s very dependent on the rectal irrigation. The only thing I didn’t add in was anything from school. Yet she has been given toilet pass and uses the toilet around 4-5 times during school time and has to change her continence pads

Yh me daughter is nearly 10, yh I got her bowel nurse to write a letter along with her school senior, hopefully it's a simple renewal for you and no fighting is yours on a yearly basis to? X

@Hayhoarematthews my daughter is 11. I sent in a lot of clinic letters even got her bowel nurses to fill out a section in the forms. I just hope this time it’s straight forward and not like the past where Iv had to really fight for it. My daughter was awarded hrc too hope she gets the same this time round

@Mummyjustmummy thank you so much yh my daughter is the same 4 lots of meds but not the sleep med just yet, I honestly didn't think she would get it, and then when the dm rang to double check before awarding her hrc I was so happy, it's only for a year and said to start keeping evidence for renewal if its no better how old is your daughter x

@Gemma96x from what I see on here the majority of children have autism , and are very successful in getting the help their dc needs so fingers crossed you’ll be fine ….my son has an autoimmune disorder which attacks his blood vessels causing severe rashes and pain and swelling on his legs feet and ankles ….henoch scholein purpura (HSP) the last 13 months have been terrible for him some days he can barely walk 😞my concern is as they don’t know how long it will affect him and that could affect his claim but it’s really rare to have the amount of flare ups he has x

That’s such good news @Hayhoarematthews. Iv sent my daughters renewal off on the 12th October. Her award runs out on the 27th November. My daughter is double incontinent. On a lot of medication for bladder and bowels along side rectal irrigation. Also has melatonin for sleep. Iv had to really fight for my daughter each time I have had to appeal and attend court hearings in the past. Her difficulties really affect her quality of life.
I’m so happy for you x

I no its taking ages to get a yes or no I'm very anxious due to my son has autism so is very hard to show evidence off this apart from his diagnosis report which is all I have so feeling very doubtfull for him to be honest x

@Gemma96x feels like forever waiting would rather just know now either way x

Hi my scan dates 3rd august x

Hello my scan date is 3rd august I'm just wondering what questions does the dm ask over the phone thank you I'm just so nervous

@Polly21x id just give them another call on Monday x

Thank you I got it in the post today I was hoping there was a quicker way but hopefully they get it all early next week. Good luck for yours.

@Hayhoarematthews no nothing

@Polly21x I know you got cut off but just call again, at least when you get through you’ll have another answer as to period of time! Might ease your mind for a little bit. I’m sure if there was any info they needed from you they would call you. I believe that DM’s have all different sized case loads they have to get through and they probably don’t all work at the same pace. Definitely try calling again today for a little update. Good luck 🥰 keep positive xx

@Polly21x Mine was with them a week, I had been told if they need to contact people you have listed it can take a while longer x

@alwaysonthegomum do you think there is a problem with mine?? For it to be with a dm for 2 weeks today x

@alwaysonthegomum thank you and you to it's Iver for another 9 months untill the time to renew 🙈

@Hayhoarematthews really pleased for you glad your wait is finally over too x

Yh she said she was going to award high but wanted to check a few things you and me both I know it's only for a year before renewal but even so that will help so much

I said it would be Friday aswell hahaha I better put the lottery on lol xx