To struggle to believe this person is being left routinely passing out and unconscious for hours?

You can't "drag" someone to the hospital against their will. So unless this person lacks capacity, there is nothing anyone can do. They do have the right to make a bad decision, and a lot of bad decisions. You ask "why they are being allowed to drown by the people who ought to have been doing what I recently have been doing?" - likely for the same reason. The person has capacity to refuse all and every help from the professionals involved and prefer you to provide this help. It means that the "key workers" cannot do anything beyond what this person allows them to do.
No, it doesn't mean that you have to do it. You can also make a decision about your level of involvement.

I don't think that the OP is medically trained and the disabled person is trying to explain it to them.

They may not know themselves the correct term and may be saying what it feels like for them. It could be a state that feels like being paralysed or unable to move or they can't hear or respond.

I think unless the actual disabled person explains here (and we can ask them questions) then we won't know exactly what is happening

Unconcious may be the closest term for their state that they know about and that non medics they meet understand and a short hand term when they don't want to use long descriptions.

Unconsciousness is measured on the Glasgow coma scale.

See here for examples and how to assess.
https://www.glasgowcomascale.org/

sleep is a level of unconsciousness but it’s not what most people mean when they say unconscious.

many things (medically) can cause unconsciousness including seizures.

Extreme-sleepiness, or a state close to being unconscious isn't actual unconsciousness though. Ops friend states they are unconscious. Are people left at home in actual states of unconsciousness for hours on end? Apologies if I sound pedantic I'm autistic so extreme sleepiness or a sate close being unconscious is not how I interpret someone being unconscious, I interpret it as literally being unconscious. Maybe others have more casual definitions of it?

I can believe the way they describe their illness. You need to be clear how you will help , and what you need, eg house and shed keys. If they ask for something too onerous just say you don't have the time.

As if disabled people aren't routinely left to deal with some pretty awful things. Surely they'd do something! Is the cry of the naive.

I am not sure if I am reading this correctly. Apologies if I have it wrong.

If you are asking if a disabled person can be left at home alone with a medical condition that causes extreme sleepiness, weakness or being in a state close to being unconcious then the answer is Yes.

If you are asking if that person could be missing medical care that overlooks some pretty obvious things then the answer is Yes.

Yes, they can be home alone. I wonder where you think that they would be or what would be provided?

A friend who waited 40 years to be diagnosed with a particular disease is in mind when I answer this. I worked with her until she had to give up work.

This!!

decide YOUR limits and stick to them. Thats all you can do without driving yourself into the ground or round the bend.

I’m disabled.

following my accident I spend a lot of time going to various disability support groups. As a result I know a lot of disabled people.

epilepsy cannot always be controlled by drugs. People who are epileptic are often advised not to cook or bath on their own particularly if they have uncontrolled fits, and their driving license will be taken away. Not everyone with epilepsy lives with someone, and you won’t get taken into care for having epilepsy - your care needs have to be a lot higher.

generally it’s advised to get medically checked out in a and e on a first fit or if it lasts longer than ten minutes.

then there’s people like me who have non epileptic seizures, there’s no drugs to help with those, the medics think mine are due to the accident I was in. They don’t want you in hospital for those because there’s nothing they can do.

most people who have a disability do try to work around it (eg my deliveries go behind my bins and I have a key safe for my cleaner) but ultimately some people are difficult and some disabled people are difficult.

Surely it’s not discrimination if this is you helping out a friend? You are entitled to boundaries that ensure you keep your own physical and mental health intact. That includes you just not wanting to do something because plans have changed and it doesn’t suit you to rearrange for whatever reason (even if the other person thinks that you’re doing nothing so why shouldn’t you help).

If you are employed by this person then it’s different as employment laws and discrimination laws would apply.

Things can only be checked if the person in questions attends a GP appointment with this specific issue. You wouldn't believe how many people I work with who have a list of symptoms as long as their arm but never got a chance to report half of them to the GP. So this person may have been to their doctors weekly talking, say, about their pain and never once mentioning that they pass out on a regular basis.

You will need to emphasise your own limitations- unfortunately some people need a round of one-up-man-ship before they’ll settle. You need to be pretty brusque and make it clear there’s no room for negotiation.

So
“I will come and help with that job on Saturday. If we don’t get it finished that day, you will need to find someone else.”
”I can only come Saturday. I have medical appointments and work in the week, and Sunday I have to stick to my schedule so I am ready for the week ahead. With [disability] it’s important to have a regular routine so that I can manage my symptoms as well as I can]. No I won’t be able to come the week after.”

You can’t take on responsibility for someone who won’t take responsibility themselves.

Unless you have sole responsibility for this person, it sounds like you need to stop doing so much for them if they won’t be cooperative. Don’t arrange any more help or deliveries for them unless they give you a key.

Thanks for explaining.

I’m afraid that things are indeed quite bad now, but really that’s all the more reason why helpers like you would need a key for access, for example.

But please don’t take on more than you can manage. You can let social care know yourself that it’s not sustainable.

Yes things are so bad now that people who don't strongly advocate for themselves can be left unchecked and unsupported.

I'd be shocked if medical professionals thought it was ok for someone to be unconscious (not asleep) for hours at a time, home alone. Is this really actually happening? If it is that's awful, but surely not surprising (as it's frankly so terrible) that people would struggle to beleive it.

not sure what you mean about ops timely post?

Well they may or may not be collapsing and unconscious for hours and it is strange that it never seems to be in a public place. But either way, they must take some responsibility/initiative around their disability. They can't expect you to turn up and sort their life out without the tools to do so. That's untenable. So you must have a conversation with them, telling them just that.