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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think the NHS is far too secretive about our health records?

105 replies

whyisthissodifficultffs · 19/09/2026 20:16

I’m trying to access my records as part of a complaint I’m considering making. I want to access them before making the complaint.

I have our trust’s hospital connected app (it’s called my chart). I have submitted a request through there.

Last night it bounced back saying I needed to provide certified ID, and a signed subject access request form.

Now, I understand that these are confidential records. However, I have verified my ID to sign up to the app. I’ve submitted my request through the app. Why do they make things so difficult?!

The entire thing has really annoyed me, to be honest. It’s my medical information and I feel like it’s being held hostage from me. I have a right to access this.

AIBU to think they need to start being more open?

OP posts:
PinkCatCushion · 19/09/2026 22:11

They are the hospital’s notes, not yours. They are notes someone wrote about you but they aren’t yours.
It’s good they are secure and hard to access without definite proof of identity.

Nameychangington · 19/09/2026 22:13

whyisthissodifficultffs · 19/09/2026 21:25

The scan was in a&e. No consultant etc., it was back and reviewed within the hour. My discharge summary states I have “slurry” in my gallbladder. The doctor told me it was a stone.

I want to know which one it is, as if it’s gallstones I’ll just go private to get it out. I cannot get a copy of the report!

What sort of scan? If it was a CT or MRI it will have been ordered under a drs name, even if you don't know who. And it may have been released to the Dr treating you in A&E, to get your underway with treatment, but it's not reported until it's been reviewed by a radiographer. Only then will it be on MyChart because it's the radiographers report that makes it 'official'.

RafaistheKingofClay · 19/09/2026 22:38

whyisthissodifficultffs · 19/09/2026 21:12

I want to access a radiology report from a scan I had about two weeks ago. I’ve tried PALS, they’ve ignored my email, so I’ve submitted this request. I really can’t wait another four weeks for them to dick about delaying things.

I was going to ask how long ago it was. IME reports take a lot longer to get put on there than blood tests. I’ve never had the result of a CT/XRay or MRI on there in 2 weeks.

Blood tests, discharge letters and letters from consultants yes. Actual reports they aim for about 6 weeks in our trust.

Deadleaves77 · 19/09/2026 22:57

Christ this is a lot of drama for a scan on some gallbladder stones/sludge.

Usually theres a seperate department to request images from. Its data protection and information governance. They arent hiding your records from you

Alternatively contact your GP and they can probably see the scan report

Marymanna · 20/09/2026 00:03

Ive been frustrated about this before as well. My DS had some tests at Guys hospital and they said it should take 2-4 weeks to get the report. I normally get cc'd a copy of them. DS had a consultant follow up 8 weeks later in our local hospital as was due to have surgery based on these results.

7 weeks later and still no test results. I spoke to the consultants secretary and she didnt have them. So I called the department that did the tests and they said they had sent the report to the consultant. Went back to the secretary who still didnt have them. Went back to the testing department and asked if they could send again or send them to me directly. They said they couldnt send them to me but only to the requesting consultant (even though i had always been cc'd before).

Guys said the only thing i could do was to do a SAR to access the report so I could then send it to the consultant in time for my appointment. It arrived just in time. Absolutely ridiculous. So I sent the results to the consultant.

Went to the consultants appointment and they still said they didnt have them! Luckily I had foreseen this and printed out a copy to take with me otherwise it would have been a wasted appointment, and likely delayed the surgery as well.

It was literally just a Word attachment on an email. How is it that difficult to email a document from one hospital to another? The fact I had to do a SAR to get the information was ridiculous. If I hadnt it would have been a wasted appointment and a waste of NHS resources. Just seems crazy that as the parent of the child that the tests/surgery is about and I am his parent and carer I am not allowed to be given his test results. And a waste of NHS time when all they needed to do in the first place was email me or cc me on the email.

Marymanna · 20/09/2026 00:05

Just to add that I have private healthcare and get emailed all my test results and health information by encrypted email. If private hospitals can do it why cant the NHS?

aliceyyyy2654 · 20/09/2026 09:12

YABU, our personal data SHOULD be difficult to get to avoid strangers accessing it. As for complaining about the 28 day SAR wait! Do you think you are the only patient?? The 28 days is set by law not by the NHS and it allows data processors time to gather the information.
You sound incredibly naive about data protection and very impatient.

whyisthissodifficultffs · 20/09/2026 09:20

aliceyyyy2654 · 20/09/2026 09:12

YABU, our personal data SHOULD be difficult to get to avoid strangers accessing it. As for complaining about the 28 day SAR wait! Do you think you are the only patient?? The 28 days is set by law not by the NHS and it allows data processors time to gather the information.
You sound incredibly naive about data protection and very impatient.

I’m sorry but I disagree. It shouldn’t be this difficult for me to access information about my own health.

OP posts:
whyisthissodifficultffs · 20/09/2026 09:21

PinkCatCushion · 19/09/2026 22:11

They are the hospital’s notes, not yours. They are notes someone wrote about you but they aren’t yours.
It’s good they are secure and hard to access without definite proof of identity.

No, they’re my notes. About my body.

OP posts:
Sunbringer · 20/09/2026 09:23

bigboykitty · 19/09/2026 20:31

It's a legal requirement. If you save your password to your NHS app and someone requests your records without your knowledge, then you'll really complain.

Meanwhile all the GDPR protection is to ask your name, DOB and address. All public knowledge facts. I pretend to be my husband (with his permission) to talk to the doctors all the time for him and they never even question why ‘mans name’ sounds like a young woman

Mischance · 20/09/2026 09:29

There is a process for getting this stuff and it is always slow. Understaffed I guess - but I would rather funds went to frontline staff TBH.

LIZS · 20/09/2026 10:11

If you only had a scan two weeks ago are you certain there is a full report yet? If you were diagnosed and discharged from ED your scan might still be in the system for full review by radiology and reporting. Initial reporting especially if out of hours/weekend will look for acute causes and treatment, not take a longer term view.

comealongdobbeh · 20/09/2026 10:20

The report should also have been sent to your GP. Could you contact them?

blythet · 20/09/2026 10:23

LIZS · 19/09/2026 20:29

A DSAR is separate to your access via the app and more comprehensive. They will include scans of any paper records, scans/xrays which may not yet have been digitised.

Yes but they either trust the security processes they put in place when setting up their app and giving us information to some of our data - in which case give us all of it.

or they don’t feel it’s secure enough in terms of data privacy - in which case why give access to any sensitive medical data?

AvogadrosNumber · 20/09/2026 10:27

whyisthissodifficultffs · 20/09/2026 09:21

No, they’re my notes. About my body.

Not according to the law.

Ifailed · 20/09/2026 10:37

AvogadrosNumber · 20/09/2026 10:27

Not according to the law.

Same as a police statement that you've signed, you can only get a copy via a SAR. All sorts of public bodies may have reports etc. about you, but they won't just hand them out willy nilly.

Goldengirl123 · 20/09/2026 10:40

It’s because these records are very confidential and this is completely right to make sure the information is going to the correct person. Imagine if someone else could access your records!

ApiratesaysYarrr · 20/09/2026 10:40

whyisthissodifficultffs · 19/09/2026 21:25

The scan was in a&e. No consultant etc., it was back and reviewed within the hour. My discharge summary states I have “slurry” in my gallbladder. The doctor told me it was a stone.

I want to know which one it is, as if it’s gallstones I’ll just go private to get it out. I cannot get a copy of the report!

Firstly, every test requested in hospital will have a named consultant, even if you didn't see them, this is how it works, in the same way that a manager in a shop is ultimately responsible for staff conduct and decisions, even they didn't meet you, someone appropriately qualified is ultimately responsible for the care you get in hospital.

The restrictions on access are there to protect your privacy, and it's not just the NHS, it's the government and in some cases, the EU that were responsible for these laws being passed. This is not just a UK/Europe thing - in the US there is HIPAA. The risks of providing a required process to access your records are much less than the risks of that information being released to someone with no legitimate reason for access.

You may also not be aware that your health records have to be checked for information about 3rd party data before they are released, or we have breached that 3rd party's right to privacy. For example - separated parents, NRP requests access to child's records, but the records contain information about RP's address or information about the RP that should not be disclosed.

(Edit: information can also be withheld from your notes if there is a concern that the specific information may be harmful to the person requesting the notes - this is incredibly rare though)

If you have attended hospital then there will 100% be things in your record that aren't visible on the app - nursing notes would be the most obvious thing, but also more detailed notes about assessment and conversations with other healthcare professionals, so having access on the app is not the same as seeing your entire record.

While I appreciate that you want to know ASAP, a 4 week timeframe is not unreasonable, especially in the circumstances that you have outlined.

I hope that you get the information that you need soon.

Gwenhwyfar · 20/09/2026 10:42

ProfessionalTeaDrinker · 19/09/2026 20:22

So you'd be happy for them to just hand out medical records to anyone with no proof of ID and no signed consent? You can't possibly see why that might be a bad idea?

She IDed herself to get into the app. They're just making it harder for her.
YANBU OP.

aliceyyyy2654 · 20/09/2026 10:44

whyisthissodifficultffs · 20/09/2026 09:20

I’m sorry but I disagree. It shouldn’t be this difficult for me to access information about my own health.

you may disagree but that doesn’t mean you are right

Gwenhwyfar · 20/09/2026 10:44

Goldengirl123 · 20/09/2026 10:40

It’s because these records are very confidential and this is completely right to make sure the information is going to the correct person. Imagine if someone else could access your records!

But she was already in the app where all her confidential information already is!

whyisthissodifficultffs · 20/09/2026 10:45

LIZS · 20/09/2026 10:11

If you only had a scan two weeks ago are you certain there is a full report yet? If you were diagnosed and discharged from ED your scan might still be in the system for full review by radiology and reporting. Initial reporting especially if out of hours/weekend will look for acute causes and treatment, not take a longer term view.

Just how long do you think it takes for there to be a reportv

OP posts:
Yellowundermarine · 20/09/2026 10:49

Once your gp has received the report it will be uploaded to your records and visible on the app. You can chase this by ringing the department and asking to send them across asap. We need the SAR & ID for legal auditing purposes. We'd get slammed by CQC if we didn't have this in place.

whyisthissodifficultffs · 20/09/2026 10:52

Yellowundermarine · 20/09/2026 10:49

Once your gp has received the report it will be uploaded to your records and visible on the app. You can chase this by ringing the department and asking to send them across asap. We need the SAR & ID for legal auditing purposes. We'd get slammed by CQC if we didn't have this in place.

Then why have an app?

OP posts:
LavenderDisco · 20/09/2026 11:01

Your problem is that you're thinking about the NHS as a homogeneous blob of an institution. You imagine that the different departments have good communication, that the IT systems are joined up, the the infrastructure has been stress tested, that it functions effectively and and efficiently. It doesn't.
Half of it is outsourced, contracts go to the lowest bidder. Integration between systems, processes, teams is patchy to non existent.

So you provided ID for an app, and made a request through that app. It would make logical sense that the approved ID check on the app could be passed on to the process that pulls up your record and sends it to you. But in practice it won't function like that. Blame capaltism, blame the dismantling of the NHS, blame the people selling it off in chunks to private business. Blame the rich and the media for pushing a narrative.