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I suspect sepsis - have I been fobbed off?

133 replies

teamaven · 16/08/2026 11:26

I called an ambulance for my 5 year old daughter this morning (who is never ill and I’ve never phoned an ambulance so to me it was serious). She woke up at 1:30am screaming and crying that her lower left side hurt. She said she couldn’t move and wouldn’t settle all night despite us thinking she’ll be fine and trying to go back to sleep - then started complaining of a headache at the back of her head and her temp went up to 39.9.

She was extremely hot to the touch, a bit confused and lethargic so I panicked and called an ambulance. After an hour of Neurofen her temp went down to 38.4 and stayed like that for a couple of hours.

I suspected a urine infection (possibly that had developed into sepsis!) because she has had one before and her pull up (she’s still in them at night) was so heavy and absolutely reeked. Her urine test showed signs of infection so the doctor agreed it was probably an infection that had travelled up.

Now, I did ask him to do a blood test anyhow and he said it wouldn’t show anything, but would it not show how bad the infection is ie sepsis? He sent us home with 10 days oral antibiotics and daughter is asleep now but I’m scared that based on her symptoms it was much worse than just a urine infection? The very high temp, lethargy, confusion, headache?

Can anyone provide what the usual pathway is when a child comes in with those symptoms? I feel like we shouldn’t have been sent home - at least to be observed over a few hours?

OP posts:
fryfryfry · 16/08/2026 17:50

I would also add, trust your instinct over a Mumsnet thread and even a doctor. You have mothers intuition for a reason, it isn’t a myth, it’s very real, trust it above all else.

fryfryfry · 16/08/2026 17:48

Always ask if it could be sepsis. Despite posters adorning the walls of what to look out for, they don’t see it until it’s too late. If you think she has sepsis, take her back.

ThatLilacTiger · 16/08/2026 17:42

Threetyy · 16/08/2026 11:35

Urine infections are very bad even without sepsis.

Sepsis is you die within 24 hours. If she gets worse go straight back.

Urine infections can kill you slower but still a risk. They are not mild things.

My daughter nearly died of one at 6 weeks old. She spent a week in hospital dripped up and was lucky that she only lost one kidney.

’Just a UTI’ is really not the phrase that comes to mind.

I am not trying to panic you by saying this. You have antibiotics. If she’s getting worse go straight back. Ask for a kidney check too - they can’t do this immediately they need to wait 6 months to see what the final damage is.

You do not die within 24 hours with sepsis, that's a gross generalisation. Very many people have sepsis for days before they're taken seriously and then continue with sepsis for weeks in and out of hospital. If you go into septic shock then you could die quickly but that could be hours or days.

ToffeePennie · 16/08/2026 17:32

InQuiresandplaceswheretheysing · 16/08/2026 17:19

@ToffeePenniean LP is the only procedure we try and get the parents to go out as it’s so distressing to witness.

My baby was dying, they were doing everything in their power to keep him alive. He had already “died” in the ambulance on the way to hospital and was on oxygen, after rescue breaths from the EMT.
I was so grateful they did what they did. My son survived and is now a healthy(ish) 8 year old who’s looking at a career in the entertainment industry.
I’m so grateful they hustled me out of there asap. Like I said, I still heard the screaming, but the lovely nurse just took me for a cuppa and sat me down and got me to tell her about my boy rather than having to be in there. When I finally got back, his little onesie was coated in blood; all up both his arms and his back. He had restrictors on his arms to stop him from tearing out his cannulas (in both hands) and massive bandages covering his entire chest and one around his foot to stop him yanking off the O2 Sat monitor.
It was just the worst week of my life.

HollyhocksandPeons · 16/08/2026 17:28

Imightbeinthewronghere · 16/08/2026 14:41

A blood test won't show sepsis.

There is no clear indicator if a patient is septic or not.

As health care professionals we never look at one number or indicator we look at the whole picture

Say this to those who set OSCE exams in UK universities and see them laugh.

Blushingm · 16/08/2026 17:23

Mrcollinswave · 16/08/2026 16:26

Agree!!!! A blood test will definitely show sepsis!! CRP, white cells and neutrophils and other results will be through the roof!!!
i was told by the Paediatric assessment unit my son just had gastritis and we were sent home, I asked for a blood test but they didn't do it. During the night he became delerious, high temperature and had the "sepsis smell" (very sour smell). He went straight back in and the bloods showed a CRP in the 200s (it's a marker of inflammation that's meant to be under 5). Turned out he had a ruptured appendix and had emergency surgery there and then.
I don't want to frighten you OP but definitely go back immediately if things don't get better/deteriorate. It's good she's on oral antibiotics but if they don't help she may need admitting for IV antibiotics.

Sepsis is not diagnosed just on blood tests. All those you’ve mentioned would just indicate an infection or inflammation

InQuiresandplaceswheretheysing · 16/08/2026 17:19

@ToffeePenniean LP is the only procedure we try and get the parents to go out as it’s so distressing to witness.

VividDeer · 16/08/2026 17:13

They would have assessed her vital signs and assessed her as fit to go home.
It might be worth you counting her heart rate and logging alongside temperature, and blood pressure if you have a machine (long shot).

Did they tell you what to look for e.g sucking in chest, mottled skin, confusion?

Is she getting worse? If so go back or call for advice. She will need a few doses of antibiotics in her to see a big difference

Imightbeinthewronghere · 16/08/2026 17:06

Mrcollinswave · 16/08/2026 16:26

Agree!!!! A blood test will definitely show sepsis!! CRP, white cells and neutrophils and other results will be through the roof!!!
i was told by the Paediatric assessment unit my son just had gastritis and we were sent home, I asked for a blood test but they didn't do it. During the night he became delerious, high temperature and had the "sepsis smell" (very sour smell). He went straight back in and the bloods showed a CRP in the 200s (it's a marker of inflammation that's meant to be under 5). Turned out he had a ruptured appendix and had emergency surgery there and then.
I don't want to frighten you OP but definitely go back immediately if things don't get better/deteriorate. It's good she's on oral antibiotics but if they don't help she may need admitting for IV antibiotics.

A blood test will not show sepsis.

JulietteHasAGun · 16/08/2026 16:44

Did they do observations, ie pulse, blood pressure, sats, resp rate? If so then she can’t have had a high enough PEWS score to need a sepsis bundle otherwise they’d have done one.

Natsku · 16/08/2026 16:38

Imightbeinthewronghere · 16/08/2026 15:12

Which country?
The child in question has an infection, hence a course of antibiotics.....so a blood test would show what? An infection....what's already being treated......

Once again, Sepsis, isn't diagnosed from a blood test, or one marker, or one result, it is diagnosed by looking at the bigger picture and assessing treatments and responses.

Finland. They do the test as if its elevated over a certain level it indicates the infection has likely gone into the kidneys which requires a longer course of antibiotics than for a UTI. Very high levels are associated with sepsis (sepsis isn't the only cause of very high CRP levels but when combined with other symptoms it is a very good indicator). Its also very useful to have a CRP measurement prior to commencing treatment as if the patient doesn't seem to improve checking CRP levels again can indicate if the treatment is working or not. The test also often measures white blood count too, which is another useful indicator.

Meaowth33 · 16/08/2026 16:36

If you are in any way worried read Martha Mills story and ask for a second opinion under Martha's rule.

Newsenmum · 16/08/2026 16:35

I think temp going down is a good sign. I dont think it does with sepsis.

OrangeSlices998 · 16/08/2026 16:33

Sepsis usually one of the symptoms is reduced urine output as the infection is widespread and affects other organs.

If your concern is there isn’t a UTI and something has been missed then trust your judgement and get her seen again if you need to. I presume they listened to her chest, palpated her tummy, checked all her other observations?

Trust your judgement.

RafaistheKingofClay · 16/08/2026 16:32

Mrcollinswave · 16/08/2026 16:26

Agree!!!! A blood test will definitely show sepsis!! CRP, white cells and neutrophils and other results will be through the roof!!!
i was told by the Paediatric assessment unit my son just had gastritis and we were sent home, I asked for a blood test but they didn't do it. During the night he became delerious, high temperature and had the "sepsis smell" (very sour smell). He went straight back in and the bloods showed a CRP in the 200s (it's a marker of inflammation that's meant to be under 5). Turned out he had a ruptured appendix and had emergency surgery there and then.
I don't want to frighten you OP but definitely go back immediately if things don't get better/deteriorate. It's good she's on oral antibiotics but if they don't help she may need admitting for IV antibiotics.

The OPschild has a known infection. Those markers will be high anyway. A CRP of 200 is high but doesn’t necessarily indicate sepsis you could get that with bacterial infection without sepsis. Hence the whole picture needing to be taken into account.

Kimmers4334 · 16/08/2026 16:28

Kidney infections can make you feel absolutely awful. I had one with such a bad fever that I was hallucinating. Antibiotics tend to give some improvement within 24 hours and a lot of improvement within 3 days. I would see how she is tomorrow. She has been checked by a medical professional and they have ruled out sepsis, tbf it doesn’t sound like she has the usual symptoms such as not passing urine

RafaistheKingofClay · 16/08/2026 16:27

Purposefulactivity · 16/08/2026 14:57

This is absolute rubbish. Sepsis is not diagnosed from a blood test alone.

It isn’t diagnosed by blood work alone but as a consultant once said to me ‘you’re young, you can look ok until you are suddenly not.’ It forms part of the picture sometimes it’s a bigger part than others if the body is compensating.

Mrcollinswave · 16/08/2026 16:26

HollyhocksandPeons · 16/08/2026 11:35

What does he mean blood tests won't show anything? How dares he? Abject, disgusting liar. If you really really really suspect it is sepsis, take her to a different A&E yourself, but pronto, if you think this is sepsis.

Agree!!!! A blood test will definitely show sepsis!! CRP, white cells and neutrophils and other results will be through the roof!!!
i was told by the Paediatric assessment unit my son just had gastritis and we were sent home, I asked for a blood test but they didn't do it. During the night he became delerious, high temperature and had the "sepsis smell" (very sour smell). He went straight back in and the bloods showed a CRP in the 200s (it's a marker of inflammation that's meant to be under 5). Turned out he had a ruptured appendix and had emergency surgery there and then.
I don't want to frighten you OP but definitely go back immediately if things don't get better/deteriorate. It's good she's on oral antibiotics but if they don't help she may need admitting for IV antibiotics.

RafaistheKingofClay · 16/08/2026 16:19

teamaven · 16/08/2026 13:55

No she’s fine with the light and no rash, it did cross my mind but I don’t think it’s that.

I would welcome any other thoughts, I just want to get to the source of her pain because she’s in agony - her urine had signs of infection ie blood, he said it wasn’t clear cut but agreed it could be that so I guess there could be a different reason.

I’ve started her on the antibiotics so will see how she goes over the next couple of days. My worry was that if it was sepsis she would deteriorate faster than could be dealt with

I’ve had terrible utis with and without then developing sepsis.

Did they do basic obs on her? If they did and they are fine then I’d expect them to send you home with safety netting advice.

A temp that high will cause a headache. And a kidney infection will make you feel pretty rough. If she gets worse after starting to take the antibiotics or they aren’t working at all after 24hrs then she needs to be seen again by somebody. Otherwise, keep her fluids up and make sure she is still passing urine and carry on with the antibiotics.

Imightbeinthewronghere · 16/08/2026 16:02

ChillWith · 16/08/2026 15:47

OP, if you are worried just take her back and trust your instinct. A UTI shouldn't mean she can't lift her head.

There is something called Martha's Rule but you have to be in hospital and condition deteriorating rapidly.

Your condition doesn't have to be deteriorating rapidly to ask for a review under Martha's law.

Your condition doesn't even have to be deteriorating.

As a carer, relative, member of staff, anyone can ask for a review or a second opinion under Martha's.

However not all hospitals have a a team responding to those calls. Its an initiative that's being rolled out.

ChillWith · 16/08/2026 15:47

OP, if you are worried just take her back and trust your instinct. A UTI shouldn't mean she can't lift her head.

There is something called Martha's Rule but you have to be in hospital and condition deteriorating rapidly.

Imightbeinthewronghere · 16/08/2026 15:18

BlackRowan · 16/08/2026 15:15

First of all UTI can cause sepsis

second it is not clear if they assessed her for appendicitis?

Any infection can cause sepsis.

How do you know what they have assessed her for, were you there?

BlackRowan · 16/08/2026 15:15

First of all UTI can cause sepsis

second it is not clear if they assessed her for appendicitis?

Imightbeinthewronghere · 16/08/2026 15:12

Natsku · 16/08/2026 14:58

In my country she would get her infection markers checked with a fingerprick test as a matter of course

Which country?
The child in question has an infection, hence a course of antibiotics.....so a blood test would show what? An infection....what's already being treated......

Once again, Sepsis, isn't diagnosed from a blood test, or one marker, or one result, it is diagnosed by looking at the bigger picture and assessing treatments and responses.