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I suspect sepsis - have I been fobbed off?

133 replies

teamaven · 16/08/2026 11:26

I called an ambulance for my 5 year old daughter this morning (who is never ill and I’ve never phoned an ambulance so to me it was serious). She woke up at 1:30am screaming and crying that her lower left side hurt. She said she couldn’t move and wouldn’t settle all night despite us thinking she’ll be fine and trying to go back to sleep - then started complaining of a headache at the back of her head and her temp went up to 39.9.

She was extremely hot to the touch, a bit confused and lethargic so I panicked and called an ambulance. After an hour of Neurofen her temp went down to 38.4 and stayed like that for a couple of hours.

I suspected a urine infection (possibly that had developed into sepsis!) because she has had one before and her pull up (she’s still in them at night) was so heavy and absolutely reeked. Her urine test showed signs of infection so the doctor agreed it was probably an infection that had travelled up.

Now, I did ask him to do a blood test anyhow and he said it wouldn’t show anything, but would it not show how bad the infection is ie sepsis? He sent us home with 10 days oral antibiotics and daughter is asleep now but I’m scared that based on her symptoms it was much worse than just a urine infection? The very high temp, lethargy, confusion, headache?

Can anyone provide what the usual pathway is when a child comes in with those symptoms? I feel like we shouldn’t have been sent home - at least to be observed over a few hours?

OP posts:
Imightbeinthewronghere · 16/08/2026 19:08

BlackRowan · 16/08/2026 19:05

I agree, it’s just the UK with bizarre attitude towards blood tests as not informative. In my home country the approach is the same and blood tests is the first step in any illness

Blood tests do inform.
So does the clinical picture.

Imightbeinthewronghere · 16/08/2026 19:07

BlackRowan · 16/08/2026 19:06

Yes, but let’s not pretend just because someone didn’t die of sepsis they will be definitely okay. They can be or they can havd long term consequences

Edited

That isn't what I said.

Don't twist my words.

BlackRowan · 16/08/2026 19:06

Imightbeinthewronghere · 16/08/2026 19:04

Not for everyone.

Just because it happened to your father doesn't mean it happens to everyone.

Yes, but let’s not pretend just because someone didn’t die of sepsis they will be definitely okay. They can be or they can havd long term consequences

Springsummertime · 16/08/2026 19:05

Hope your little one is ok

BlackRowan · 16/08/2026 19:05

Natsku · 16/08/2026 16:38

Finland. They do the test as if its elevated over a certain level it indicates the infection has likely gone into the kidneys which requires a longer course of antibiotics than for a UTI. Very high levels are associated with sepsis (sepsis isn't the only cause of very high CRP levels but when combined with other symptoms it is a very good indicator). Its also very useful to have a CRP measurement prior to commencing treatment as if the patient doesn't seem to improve checking CRP levels again can indicate if the treatment is working or not. The test also often measures white blood count too, which is another useful indicator.

I agree, it’s just the UK with bizarre attitude towards blood tests as not informative. In my home country the approach is the same and blood tests is the first step in any illness

Coco852 · 16/08/2026 19:05

A&E are very happy to re-examine children because they change so fast. If you’re worried, you can go back.

Imightbeinthewronghere · 16/08/2026 19:04

BlackRowan · 16/08/2026 19:03

Lots of people with sepsis don’t die but it causes long term damage to their health anyway. I’m not even talking about limb amputations. My father had significant heart damage post sepsis and had to have 2 valves replaced and was disabled as a result

Not for everyone.

Just because it happened to your father doesn't mean it happens to everyone.

BlackRowan · 16/08/2026 19:03

Pinkocsb · 16/08/2026 18:02

Lots of people with sepsis don’t die. There’s so much misinformation on here!

Lots of people with sepsis don’t die but it causes long term damage to their health anyway. I’m not even talking about limb amputations. My father had significant heart damage post sepsis and had to have 2 valves replaced and was disabled as a result

BlackRowan · 16/08/2026 19:00

Imightbeinthewronghere · 16/08/2026 15:18

Any infection can cause sepsis.

How do you know what they have assessed her for, were you there?

I AM ASKING if they assessed her

HollyhocksandPeons · 16/08/2026 18:57

Imightbeinthewronghere · 16/08/2026 18:52

From memory Bawa was thrown to the wolves.
She wasn't supported at all.

Recollections may vary (c).

Imightbeinthewronghere · 16/08/2026 18:52

HollyhocksandPeons · 16/08/2026 18:49

The only person I feel sorry for is the poor nurse, who was struck off, her career destroyed. You see way-cism, I see classism. BMA sticks up for the precious doctors, but nurses - naaah, they are expendable.

From memory Bawa was thrown to the wolves.
She wasn't supported at all.

nocoolnamesleft · 16/08/2026 18:52

HollyhocksandPeons · 16/08/2026 18:47

Did the consultant also, before he fled the country, stopped the resuscitation attempts, or was it Bawa?

Resuscitation attempts rarely work. What was crucial was preventing that deterioration. The consultant clearly should have reviewed him the moment he heard about him, which was before he crashed.

Imightbeinthewronghere · 16/08/2026 18:51

HollyhocksandPeons · 16/08/2026 18:47

Did the consultant also, before he fled the country, stopped the resuscitation attempts, or was it Bawa?

The team leader of a resuscitation can stop it. That can be anyone who is ALS trained.

Once all reversible causes of a cardiac arrest have been explored and treated if the patient still has no cardiac output then it should be called.

HollyhocksandPeons · 16/08/2026 18:49

Imightbeinthewronghere · 16/08/2026 18:45

Not to mention, the parents actually gave the child a medication to lower his BP, when it was already critically low.

But yes let's blame the Registrar, working in horrendous conditions, with every single obstacle being put in her way.

The only person I feel sorry for is the poor nurse, who was struck off, her career destroyed. You see way-cism, I see classism. BMA sticks up for the precious doctors, but nurses - naaah, they are expendable.

HollyhocksandPeons · 16/08/2026 18:47

nocoolnamesleft · 16/08/2026 18:43

She wasn’t a consultant. She was a registrar, on her first day back after maternity leave, with no induction, understaffed, with a computer failure meaning no results available for hours. She told the actual consultant about that poor kid, and despite every paediatrician I know agreeing they’d have legged it down the corridor to review him, he couldn’t be fucking bothered to review him. It’s the consultant that should have been prosecuted and struck off, instead of being let flee the country. But he was white.

Did the consultant also, before he fled the country, stopped the resuscitation attempts, or was it Bawa?

Imightbeinthewronghere · 16/08/2026 18:45

HollyhocksandPeons · 16/08/2026 18:37

To add on: go with your instinct - ignore the so-called 'health professionals' - because Bawa Garba was one - even a paediatric consultant, my arse, and the patient, now dead, had sepsis.

Not to mention, the parents actually gave the child a medication to lower his BP, when it was already critically low.

But yes let's blame the Registrar, working in horrendous conditions, with every single obstacle being put in her way.

nocoolnamesleft · 16/08/2026 18:43

HollyhocksandPeons · 16/08/2026 18:37

To add on: go with your instinct - ignore the so-called 'health professionals' - because Bawa Garba was one - even a paediatric consultant, my arse, and the patient, now dead, had sepsis.

She wasn’t a consultant. She was a registrar, on her first day back after maternity leave, with no induction, understaffed, with a computer failure meaning no results available for hours. She told the actual consultant about that poor kid, and despite every paediatrician I know agreeing they’d have legged it down the corridor to review him, he couldn’t be fucking bothered to review him. It’s the consultant that should have been prosecuted and struck off, instead of being let flee the country. But he was white.

HollyhocksandPeons · 16/08/2026 18:37

To add on: go with your instinct - ignore the so-called 'health professionals' - because Bawa Garba was one - even a paediatric consultant, my arse, and the patient, now dead, had sepsis.

HollyhocksandPeons · 16/08/2026 18:33

RichPetuniaAgain · 16/08/2026 14:54

My friend presented at A&E. Can't remember what for, but they took bloods. He seemed fine and was about to go home when the blood work came back. He had sepsis. Infection markers were through the roof. The medical practitioner was very surprised as that's not how he was presenting.
Anyway, it was the result of the blood work that triggered his treatment (two weeks of intravenous antibiotics).
If you are thinking about taking your daughter to A&E, I'd do it. Better to be safe than sorry.

Thank you. Because there are 'health professionals' here, saying all sorts of rubbish.

Imightbeinthewronghere · 16/08/2026 18:26

Pinkocsb · 16/08/2026 18:01

Not true. They ignored my sister twice when she did have sepsis. She survived but was very poorly.

You can be ill with an infection.

Sepsis has a very wide continum.

I liken it to a motorway.

Junction 1 mild
Junction 20 severe.

You can be anywhere along the motorway.

But I'll say it again, sepsis isn't diagnosed on one blood test alone.

If you have an infection your inflammatory markers will be up, it doesn't mean you're septic.

Imightbeinthewronghere · 16/08/2026 18:20

HollyhocksandPeons · 16/08/2026 17:28

Say this to those who set OSCE exams in UK universities and see them laugh.

We say it every day in hospital and in ICU.

Sepsis isn't diagnosed by one test alone.

Never has been.

Purposefulactivity · 16/08/2026 18:10

Pinkocsb · 16/08/2026 18:02

Lots of people with sepsis don’t die. There’s so much misinformation on here!

Agreed!

And the absolutely shameful fearmongering about lumbar punctures, illustrated with gory, and entirely made up, stories.

These medical threads always bring out the excitable ghouls, absolutely the worst of Munsnet. Shame on you all, including @ToffeePennie

Pinkocsb · 16/08/2026 18:02

Threetyy · 16/08/2026 11:35

Urine infections are very bad even without sepsis.

Sepsis is you die within 24 hours. If she gets worse go straight back.

Urine infections can kill you slower but still a risk. They are not mild things.

My daughter nearly died of one at 6 weeks old. She spent a week in hospital dripped up and was lucky that she only lost one kidney.

’Just a UTI’ is really not the phrase that comes to mind.

I am not trying to panic you by saying this. You have antibiotics. If she’s getting worse go straight back. Ask for a kidney check too - they can’t do this immediately they need to wait 6 months to see what the final damage is.

Lots of people with sepsis don’t die. There’s so much misinformation on here!

Pinkocsb · 16/08/2026 18:01

ToffeePennie · 16/08/2026 11:34

If she had sepsis she wouldn’t be back at home. My baby had sepsis at 6 weeks old. They are really careful about it.
She is on antibiotics and that’s all they can do for her anyway, even if she does have sepsis, it’s not like “here’s a magic pill that cures it” it’s just more and more antibiotics.
All of her symptoms point to a nasty UTI, possibly cystitis and they seem to have done the right thing (would you rather she risks getting a worse infection being in hospital, or that she’s home, safe and being cared for by her mum?) and given her antibiotics.
If she gets worse after a few days, take her back, but I would put money on it that she’ll be feeling better once the fluids and antibiotics have started to work.

Not true. They ignored my sister twice when she did have sepsis. She survived but was very poorly.

nocoolnamesleft · 16/08/2026 17:58

As a very crude rule of thumb, in kids (not babies) if you get the temperature down and their obs settle and they perk up, it usually is not sepsis. If you get their temp down and their obs are still abnormal and they haven’t perked up, it may well be. So if she’s cooled down and still looks and feels shit it’s worth going back. With regards to bloods, they’re done less routinely in small children than in other groups because it’s a balance between the distress caused and the usefulness. I’ve seen meningococcal sepsis in someone with a normal CRP (thank god my spidey sense was tingling on that one), and non septic kids with a CRP over 200. Lactate and blood gas can sometimes be helpful.