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AIBU?

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AIBU to seek a mandatory reconsideration of my son’s DLA award?

132 replies

Blinmey · 15/07/2026 13:15

I have just got my son’s renewal back, they have awarded him low-rate care and low rate mobility. However I think he should have got a higher award, he has autism, adhd and a gastrointestinal diagnosis. Whilst all his needs means he consistently needs help with lots of things, his gastrointestinal issue is one of the most significant as he soils throughout the day and night and with his autism he needs help with this (changing pants, washing underwear, washing hands, showering, hygiene). He gets up during the night and needs help with this, as he will do things like put soiled pants back on or not wash his hands or leave the toilet in a state. I put all of this on his form and gave the evidence which is letters from his paediatrician confirming all of this. The reasons DLA gave for low-rate was that he is at a mainstream school, he doesn’t have an EHCP and he’s described as being clever and happy.

He is 12.

Does this sound right to experts on here or should I be putting in a mandatory reconsideration?

OP posts:
TheJuryIsOut · 15/07/2026 13:50

I would say it's worth giving it a go, at worst it'll be rejected but you never know.

Katemax82 · 15/07/2026 13:49

Given your son needs help throughout the night should mean he gets a higher rate! How ridiculous. I applied for a mandatory reconsideration and got a higher rate for my son so you could try

Blinmey · 15/07/2026 13:47

Pistachiocake · 15/07/2026 13:45

Someone very close to me went through this-even got it to some kind of court (tribunal? not sure) and it caused a lot of stress for nothing. I don't know you, obviously, but I almost wish I'd advised her not to do it, as it almost broke her for nothing.

The reason why I am wanting to challenge is because online it says help for up to one hour a day for low rate, my sons bowel condition alone means he has over an hour of extra care a day, not even considering his care for his neurodivergence

OP posts:
Pistachiocake · 15/07/2026 13:45

Someone very close to me went through this-even got it to some kind of court (tribunal? not sure) and it caused a lot of stress for nothing. I don't know you, obviously, but I almost wish I'd advised her not to do it, as it almost broke her for nothing.

Blinmey · 15/07/2026 13:42

ToffeeCrabApple · 15/07/2026 13:38

Does he not have an ehcp for support with the soiling at school?

Also school has says it would be extremely difficult to get one as he is so academically able and because it’s a private school there isn’t much point.

OP posts:
Blinmey · 15/07/2026 13:41

ToffeeCrabApple · 15/07/2026 13:38

Does he not have an ehcp for support with the soiling at school?

No, he is at a private school (which helps immensely, if he was at state we would likely have school refusal on our hands). He has a toilet pass. At school he will do everything and anything to avoid using the bathrooms (ironically he says the school toilets are disgusting) we time his laxative medication so it kicks in in the evening. This is one of the reasons he has bad soiling, constipation and stretched bowel and rectum because he will avoid using the toilet for those 7 hours, if he soils he will just not realise, thankfully we have been ok as it doesn’t seem other children have noticed and he hadn’t been bullied.

OP posts:
ToffeeCrabApple · 15/07/2026 13:38

Does he not have an ehcp for support with the soiling at school?