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Any idea what this could be, Dr doesn’t know!

194 replies

hubbabaloo · 17/04/2026 16:15

DD (8) has had swelling in her face all week. Drs originally thought it was down to her dermatitis so they prescribed some cream but it hasn’t made a difference. The swelling has been getting worse everyday, to the point this morning she could barely open her eyes, she also has swelling around her nose so she’s breathing through her mouth. It starts off worse in the morning and gets slightly better through the day but there is still some swelling there at the end of the day.
When we saw the Gp this morning her neck was also really swollen and he said every gland is up. She has no temp but a raised heart rate and says she doesn’t feel well but can’t really describe why. Dr said he has no idea, it could be something viral but her body is obviously trying to fight something as her glands are up. He said it will either get worse, in which case go to a&e or the body will fight it on its own.

anyone else’s child had this and have any clue what it could be?

OP posts:
RegimentalSturgeon · 18/04/2026 21:20

hadenoughofsnowflakes · 18/04/2026 20:38

My daughter had this - it was a mosquito bite - her face swelled up so badly she couldn’t see out of one eye

Well no, your daughter didn’t have ‘this’ at all, did she? She had a mosquito bite. This child apparently has sinusitis.

Gloriia · 18/04/2026 21:00

Mitzuko · 18/04/2026 20:46

I don't see why waiting, it's already quite serious, call 111 straight away. Your daughter might stop breathing if it's an unknown allergy. GPS by law tend to dismiss because they must prove it's at least 2 weeks you are affected. So if it's less than that they'll keep you on hold, at your own risk.

So call 111, you have truly nothing to lose.

Please let us know how it went.

She's been. If you click on 'see all' on ops posts she has updated.

Geminispark · 18/04/2026 20:49

hubbabaloo · 18/04/2026 15:55

Finally being sent home, they have said she has sinusitis but because her sinuses are so inflamed it has been pushing against her cyst which has caused the swelling. Being sent home with antibiotics, steroid nose spray and an ENT outpatient appt

I had a cyst on my sinus it burst and fluid came out my nose, they thought I had a brain fluid leak.
Did they give her Avamys? It helped me very quickly and every time I feel inflammation coming I used it, it’s very effective.
Hope she feels better soon.

Mitzuko · 18/04/2026 20:46

I don't see why waiting, it's already quite serious, call 111 straight away. Your daughter might stop breathing if it's an unknown allergy. GPS by law tend to dismiss because they must prove it's at least 2 weeks you are affected. So if it's less than that they'll keep you on hold, at your own risk.

So call 111, you have truly nothing to lose.

Please let us know how it went.

HelloDaisy · 18/04/2026 20:40

Similar thing happened to my DFS when he was little. He had sinusitis that was pushing his eye out. We ended up in hospital for 5 days as they were worried he would lose his sight.

Glad you got a diagnosis and plan from the hospital but a shame your go didn’t take it seriously enough to do something.

hadenoughofsnowflakes · 18/04/2026 20:38

My daughter had this - it was a mosquito bite - her face swelled up so badly she couldn’t see out of one eye

WhatMummyMakesSheEats · 18/04/2026 20:37

so my daughter had bacterial tonsillitis around a month ago (probably from strep) she had swollen neck glands and her temp was 39. The following week my baby got conjunctivitis and his eye and cheek swelled up it was massive, he has a super runny / blocked nose as well. He didn’t have a temperature so A and E didn’t care. I assume it was caused by strep too because there’s no way he didn’t catch it with my toddler coughing all over him. Babies can’t really get tonsillitis so I’ve assumed it went for somewhere else in him instead. Sorry you haven’t been taken seriously, I’m so sick of ‘it’s probably viral go home’.

DoAWheelie · 18/04/2026 19:57

It was a dust mite allergy when I had this. I swapped out all my bedding for hypoallergenic dust mite prevention stuff and started taking fexofenadine daily and it made a big difference.

It was worst in the morning as I had just spent the whole night exposed, and slowly got better through the day as it was wearing off. Only to start the cycle again as soon as I went to sleep.

See if your doctor will do an allergy test as it turns out I had several other allergies to common every day things that I had no idea about.

nocoolnamesleft · 18/04/2026 19:55

KilkennyCats · 18/04/2026 19:38

They can grow back??

Rarely, yes.

KilkennyCats · 18/04/2026 19:38

nocoolnamesleft · 18/04/2026 19:33

Unless she has tonsillar regrowth, of course.

They can grow back??

nocoolnamesleft · 18/04/2026 19:36

hubbabaloo · 18/04/2026 19:35

we asked another Dr about this and he said she doesn’t have any regrowth

Oh, okay.

hubbabaloo · 18/04/2026 19:35

nocoolnamesleft · 18/04/2026 19:33

Unless she has tonsillar regrowth, of course.

we asked another Dr about this and he said she doesn’t have any regrowth

OP posts:
nocoolnamesleft · 18/04/2026 19:33

whynotwhatknot · 18/04/2026 19:22

2 doctors missed that she hasnt ven got tonsils? thats poor

glad shes ok

Unless she has tonsillar regrowth, of course.

DreamTheMoors · 18/04/2026 19:23

hubbabaloo · 17/04/2026 16:22

She’s been taking antihistamines and it’s made no difference. She’s also been taking regular calpol and ibuprofen. The DR made is sound like we didn’t need to go to a&e unless it got worse and because the swelling goes down towards the end of the day I’m tempted to go in the morning or through the night when the swelling is at its worst so they don’t just fob us off.

Why is it that GPs make you wait to go to hospital until the patient is halfway dead?

”Uh, Mrs. @hubbabaloolittle Annie is only a third of the way dead, so I wouldn’t take her to hospital just yet,” says Dr. Ikillem. “Now if the little dear were halfway dead, that would be altogether another matter.”

It makes me want to scream!

whynotwhatknot · 18/04/2026 19:22

2 doctors missed that she hasnt ven got tonsils? thats poor

glad shes ok

Deb2D2 · 18/04/2026 19:20

Could it be mumps?

Partypants83 · 18/04/2026 19:13

I'd say allergy. Or auto immune.
I know you said she been tested, but, for everything?

Hopingtohelp25 · 18/04/2026 18:57

That sounds like a good result. I hope the antibiotics and spray do the trick pronto. Well done, it must have been exhausting!

Beautifulsiro56 · 18/04/2026 18:54

hubbabaloo · 17/04/2026 16:15

DD (8) has had swelling in her face all week. Drs originally thought it was down to her dermatitis so they prescribed some cream but it hasn’t made a difference. The swelling has been getting worse everyday, to the point this morning she could barely open her eyes, she also has swelling around her nose so she’s breathing through her mouth. It starts off worse in the morning and gets slightly better through the day but there is still some swelling there at the end of the day.
When we saw the Gp this morning her neck was also really swollen and he said every gland is up. She has no temp but a raised heart rate and says she doesn’t feel well but can’t really describe why. Dr said he has no idea, it could be something viral but her body is obviously trying to fight something as her glands are up. He said it will either get worse, in which case go to a&e or the body will fight it on its own.

anyone else’s child had this and have any clue what it could be?

Sounds dental relates

hubbabaloo · 18/04/2026 18:54

@Gloriia yes I agree. If I’m honest some of the drs we saw at the hospital weren’t much better! Two different drs told us her tonsils were infected.. despite the face she had her tonsils removed 3 years ago, when I mentioned this they said “oh yeh I can see that now”. Also since we’ve got home I’ve read her discharge notes and they’ve also diagnosed her with strep which wasn’t mentioned to us once whilst we were there. I’m guessing they are just so overstretched these things can happen but it’s a bit of a worry!

OP posts:
SomethingSScintillating · 18/04/2026 18:50

@Gloriia it's so worrying isn't it.all that extra time and worry also

Gloriia · 18/04/2026 18:44

hubbabaloo · 18/04/2026 15:55

Finally being sent home, they have said she has sinusitis but because her sinuses are so inflamed it has been pushing against her cyst which has caused the swelling. Being sent home with antibiotics, steroid nose spray and an ENT outpatient appt

Glad you're home. All things your useless GP could've done instead of you having an overnighter in hospital.

The steroid spray and antibiotics shouldve been started with the caveat go to a&e if any deterioration.

Antibiotics don't work if it's a viral illness obviously, but they do work in bacterial and with a dc with an elevated heart rate and obvious signs of illness the GP shouldve done the basics at least.

Daisy105 · 18/04/2026 18:42

Does she have an infection, or has she had one recently? Xx

MaldivesBlue · 18/04/2026 18:31

It could be caused by ibuprofen so only use paracetamol until you know what the cause is. My friend knew she was allergic to aspirin but too ibuprofen and nearly had anaphylaxis. Be proactive and push for an answer.

Mischance · 18/04/2026 18:30

I agree about seeing a differet GP. I do not think his response was anywhere near good enough.

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