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AIBU?

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To think this wasn’t all in his head?

56 replies

Harlowla · 14/04/2026 12:18

I know nobody can diagnose anything but I just wondered if anyone had ever heard of anything like this before because I’m sure there must be an explanation somewhere.

Husband always lived life to the full right up until retirement and then he started to fall over a lot with no real explanation, he’d suddenly lose balance and fall.
Doctors could find no reason why but this continued and he would seem to find walking hard work until he just shuffled along very slowly with a stick.
Again doctors and hospital have no clue to why his legs apparently just don’t want to work.
In his words he knows what to do ie put one leg in front the other but he just can’t get his brain to get the coordination right and so his balance goes and over he falls.
Recently he has hardly been able to get out of the chair and only does for toilet breaks which I have to assist with to keep him stable.
Doctors have now concluded that he’s lost the use of his legs because he hasn’t walked for so long which while in theory yes he has but that doesn’t explain the cause only the affect.
Meanwhile we have no idea what’s wrong because nobody seems to be able to tell us anything and now I’m a full time caregiver to him and apart from the suggestion of it being psychological it doesn’t look like we’ll ever have any answers to what’s happening.

He now can’t balance to stand up anymore and when he falls he can’t get back up again so I have to get assistance from neighbours or call someone to pick him up but despite this his brain is still as sharp as ever but it’s just not getting messages to his legs it seems.

I just wondered if there was anybody anywhere that had experienced anything similar?

OP posts:
Tomselleckhaskindeyes · 14/04/2026 13:02

i would say MS tbh. There isn't one conclusive test for it. I would ring an MS charity and ask for information and advice.

Harlowla · 14/04/2026 12:59

bloomchamp · 14/04/2026 12:26

What tests has he had

Goodness everything under sun it seems. At one point he had a brain imaging scan as they suspected early onset Alzheimer’s could be behind it but no evidence there, he’s diabetic type 2 so it’s been suggested that it might be that but he’s had various tests and now they don’t think it is so still no answers.
He’s been back and forth to the doctors for almost a decade, nobody knows but they all seem quick to rule out other doctors suggestions.
I thought MS after a layman’s google search but the professionals don’t seem to agree.
I hadn’t heard of FND but just looked it up and it sounds like a possibility.
He’s been admitted to hospital after falls and is discharged again with no answers with one person suggesting he couldn’t walk because he wasn’t trying to but when he could walk he was unstable because it’s his balance that he has trouble, he just suddenly goes.

OP posts:
TFImBackIn · 14/04/2026 12:58

What kind of tests have they done? Has he seen a neurologist? Had a full range of scans?

bloomchamp · 14/04/2026 12:26

What tests has he had

SpiceGirlsNeedAComeBack · 14/04/2026 12:21

Fnd? MS?

TakeTheCuntingQuichePatricia · 14/04/2026 12:21

I've got a relative (young, early 30s) who totally lost the use of her legs. Doctors can find no physical cause. She now has 24/7 carers as she can't do anything herself.