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AIBU?

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AIBU to worry this exhaustion and confusion need neurological investigation?

38 replies

justTotalexhaustion · 10/04/2026 14:51

I’ve had so many tests and nothing has shown up but something is wrong. I’ve had my blood checked for multiple things including anaemia, thyroid issues , coeliac screen and other things every thing was normal.
I’ve had my hormone levels checked many many times as I thought perhaps it was perimenopause related but everything is showing good/normal and cycles still every 28 days.
I don’t have any deficiencies but take supplements for health anyway. I have a very healthy diet and BMI etc. I always exercised till this happened to me and now I can’t at all. It’s been 18 months of total exhaustion. Constant waking at night and I go back to sleep quickly but I just keep waking?? Wake up exhausted in the morning and can’t get up, struggle to force myself to eat as the cutlery is too heavy. Had to give up work a year ago as can’t think properly anymore.

One odd symptom that I’ve had is mind reversal - this whole time I will go to do something back to front eg open the cupboard the opposite side to the bin cupboard to throw something away. I’ll go to switch a light on but on the other side of the door to where it actually is, I’ll try to open a door with a handle that’s actually on the other side. If I make a drink I’ll pick up the cup to put back in the fridge not the milk. I’ll go to use the hot tap and use the cold and vice versa it’s like everything has got reversed in my brain ?

The only thing that I can pinpoint happening 19 months ago before this started was I had a very bad throat and sinus infection and it made me very tired and I never felt I fully recovered from that but it was treated with amoxicillin and wasn’t horrendously bad just very bad.

The gp is now saying we need to go down the psychological route but this isn’t in my mind it feels like illness not stress? Are there any possible things they’ve missed it tests I should ask for ? Should I save to see a neurologist privately ? AIBU to worry so much?

OP posts:
Goldfsh · 10/04/2026 15:10

It sounds like long covid, perfectly described.

You haven't mentioned your age. The long covid groups all seem to be women of menopausal age (+/-5 years of 50!) - how old are you?

Many people suspect that covid interacts with female hormones and may trigger something relating to menopause or a hormonal imbalance.

There is no test for it. It's just a matter of living as best you can within your symptoms. People do get better. I really improve around the 4-year mark and I'm probably now 80% back to where I was before it happened.

It's quite shocking though if it happens to you.

justTotalexhaustion · 10/04/2026 15:08

MewithME · 10/04/2026 15:06

Firstly, I would change GP.

Secondly, I would read up on long covid and MEcfs.

Unfortunately, services for this are hit and miss, but MEcfs is usually triggered by a virus. It was covid that triggered mine.

Google clinics in your area and try and get a referral if possible.

Thanks I will have a read up on that.

OP posts:
justTotalexhaustion · 10/04/2026 15:07

Bettercallsalli · 10/04/2026 15:02

Are you addicted to getting 'tests'. You mention health anxiety so it sounds like this is the problem.

No, I just want to feel better. I was never really unwell of the prior to this and have always been healthy and enjoyed a healthy active lifestyle. I feel more frustrated at my health than anxious about it. I want to just feel better magically or find the cause for this to fix it.

OP posts:
MewithME · 10/04/2026 15:06

Firstly, I would change GP.

Secondly, I would read up on long covid and MEcfs.

Unfortunately, services for this are hit and miss, but MEcfs is usually triggered by a virus. It was covid that triggered mine.

Google clinics in your area and try and get a referral if possible.

youalright · 10/04/2026 15:05

Bettercallsalli · 10/04/2026 15:02

Are you addicted to getting 'tests'. You mention health anxiety so it sounds like this is the problem.

Where has she mentioned health anxiety

youalright · 10/04/2026 15:04

justTotalexhaustion · 10/04/2026 14:59

It just felt like any other bad episode of tonsillitis/ sinusitis but every other time I’ve been ill with similar I’ve had a few days feeling bad and gradually got my energy back and that didn’t happen it just got worse and worse.

It doesn't matter how mild it is it can happen from any illness

youalright · 10/04/2026 15:03

I don't think you need a neurologist it sounds like brain fog you would be better seeing a dr who specialises in me/cfs, post viral fatigue,. Maybe a rheumatologist

Bettercallsalli · 10/04/2026 15:02

Are you addicted to getting 'tests'. You mention health anxiety so it sounds like this is the problem.

justTotalexhaustion · 10/04/2026 14:59

youalright · 10/04/2026 14:53

I was about to say was you ill just before then I read you where I've been the same since getting covid I never fully recovered

It just felt like any other bad episode of tonsillitis/ sinusitis but every other time I’ve been ill with similar I’ve had a few days feeling bad and gradually got my energy back and that didn’t happen it just got worse and worse.

OP posts:
justTotalexhaustion · 10/04/2026 14:57

iamfedupwiththis · 10/04/2026 14:54

Why do you think something is wrong?

For all the reasons put in my post. I feel unwell, I feel exhausted and can’t function and have the confusion that I detailed.

OP posts:
diamondradicchio · 10/04/2026 14:56

iamfedupwiththis · 10/04/2026 14:54

Why do you think something is wrong?

Did you even skim her post?

iamfedupwiththis · 10/04/2026 14:54

Why do you think something is wrong?

youalright · 10/04/2026 14:53

I was about to say was you ill just before then I read you where I've been the same since getting covid I never fully recovered