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Autistic teenage vegetarian daughter refusing prescription meds.

218 replies

taratill · 17/03/2026 16:55

Posting on AIBU for traffic.

Does anyone have any experience of this and how to work around it?

DD is 16 (so she has to consent to treatment), she is autistic and has very fixed views.

She takes vegetarianism to the extreme generally and this has been an increasing issue over the years with her refusing cross contamination and not wanting to be near where meat is prepared or sweet wrappers even because of gelatine.

She's normally fit and healthy but the last few months she hasn't felt well and has been experiencing headaches and dizziness and palpatations so she's just had bloods done and it turns out, perhaps unsurprisingly that she's anaemic and has low B12 and vit D. The doctor has phoned and has left the prescription at the surgery pharmacy wanting bloods redone in 3 months.

I've called her and she has said she will not take the prescription if it is not specifically vegetarian, the doctor does know she is vegetarian and autistic but I'm not sure if the meds prescribed will be!

She is an intelligent child but her views on this are horrible. She would rather be ill than break her own rules around products being vegetarian.

I just don't know how to sensibly approach this. I guess if the prescription isn't suitable i can make an appointment for her to explain to dr why she is refusing treatment.

Does the Mumsnet hive mind have any other ideas/ experience? She's at 80% attendance at college due to frequently feeling too washed out to attend and she is county level sport and this is impacted her in that too.

There is just no reasoning with her so it's exhausting.

OP posts:
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6
likelysuspect · 19/03/2026 19:53

MummyWillow1 · 19/03/2026 17:03

Until she is 18 you are responsible for her medical decisions. Of course it is better that she makes those decisions herself but if she is risking her long term health then this needs to be addressed.

My autistic teen has a very limited diet, she has to supplement folic acid and vitamin d.

We found out she was having vit d issues as her joints were hurting, prescription strength to get it resolved and then OTC stuff to maintain. Then she passed out one day, she was folic acid deficient , another prescription strength course but now a regular OTC multi vitamin is proving to maintain things (blood tests have confirmed).

There are so many good multi vitamins available, once you have got passed this blip hopefully a daily dose of a quality multi vitamin will help long term. DD will have to take them for life unless she suddenly starts eating fruit and vegetables (they make her retch so unlikely!)

OPs daughter is 16, she will need to give consent for treatment/referrals etc

No doctor is going to do something/give something/treat something/refer for something without her consent.

And its pointless anyway, what sort of therapy or intervention/education session could take place with either her not turning up or she turns up and just sits there saying 'no thank you I dont want this service'.

CarrotVan · 19/03/2026 19:26

You can get a liquid vit d supplement on prescription - my son is taking it. You can mix with a drink or just take in a medicine syringe like calpol. He’s on a very high dose for a couple of months. If you can get some things in liquid form and only have tablets when there’s no alternative that might be a little easier. My son is autistic and struggles with tablets. He is totally fine with needles though and positively loves a vaccination.

the liquid vit D we have is THORENS and only contains colecalciferol (vit d) and olive oil

Pinkfluffypencilcase · 19/03/2026 18:55

Vegan option on Amazon vit d3 too

Pinkfluffypencilcase · 19/03/2026 18:46

This is the one I use hux d3. 20000 iu Vegetarian.

And my dd used sunvit 400iu

taratill · 19/03/2026 18:37

MummyWillow1 · 19/03/2026 17:03

Until she is 18 you are responsible for her medical decisions. Of course it is better that she makes those decisions herself but if she is risking her long term health then this needs to be addressed.

My autistic teen has a very limited diet, she has to supplement folic acid and vitamin d.

We found out she was having vit d issues as her joints were hurting, prescription strength to get it resolved and then OTC stuff to maintain. Then she passed out one day, she was folic acid deficient , another prescription strength course but now a regular OTC multi vitamin is proving to maintain things (blood tests have confirmed).

There are so many good multi vitamins available, once you have got passed this blip hopefully a daily dose of a quality multi vitamin will help long term. DD will have to take them for life unless she suddenly starts eating fruit and vegetables (they make her retch so unlikely!)

That's not quite right 16 year olds are deemed medically competent.

https://www.nhs.uk/tests-and-treatments/consent-to-treatment/children/

nhs.uk

Consent to treatment - Children and young people

Find out how consent applies to children under 16 years of age and young people aged 16 or over.

https://www.nhs.uk/tests-and-treatments/consent-to-treatment/children

OP posts:
taratill · 19/03/2026 18:35

Mumofteenandtween · 19/03/2026 16:25

Op - I am someone who naturally has very rigid thinking. (Probably undiagnosed ND.)

One thing that I have realised is that when I am tired or ill it is much harder for me to think about my rules and whether they are sensible or whether I should break them. (“Yes I always go for a walk at lunchtime and it does make me feel more awake but there is currently gale force winds and horrendous rain so maybe I should delay. But I always go. Oh - I’ll just put my hood up.”)

She sounds physically very ill right now so is not going to be able to make those types of decision. Don’t think about the future and the fact that what she is doing is long term very problematic - just do what you practically can to get her feeling a bit better.

thank you, I think this is good advice.

OP posts:
taratill · 19/03/2026 18:34

CanterThroughChaos · 19/03/2026 16:53

Former prescriptions clerk here, people used to request vegan medication often. It’s a ball ache and the doctors practice and pharmacy won’t love you for it but I’ve never known a medication not to have a vegan form or suitable alternative. You need to let them know you require this, the doctor isn’t going to be trying to source this for you they don’t have time. The pharmacy team will be able to but tell them asap so they don’t have to do it twice.

The pharmacy said it was the doctor who had to write the correct script.

They can only prescribe the prescribed medication and can't change it for a vegan alternative.

Doctor was useless, said he didn't know.

I had to google and try and find it when i was with him.

Even then the 'vegan friendly' medication had a dye which is not vegan.

OP posts:
Pearlstillsinging · 19/03/2026 18:17

I really wouldn't bother consulting a dietician, ime they know less than the patient. However a pharmacist will get able to tell you which supplements are vegetarian/ vegan. Some surgeries have a pharmacist as a member of the team but any dispensing pharmacist will be able to tell you and find suitable supplements. You might have to stand your ground to be heard, though.

Lilactimes · 19/03/2026 17:58

Chattanoogachoo · 19/03/2026 16:03

I use the b12 and vitamin d sprays, very easily taken and tolerated. The situation may be difficult but you need to respect her views re gelatine.

Yes I agree. My DD also won't eat bits with gelatine in. But there's good advice on here and options for her for versions without gelatine and hopefully through taking vits regularly she can keep on top of this.
Good luck! X

MrFluffyDogIsMyBestFriend · 19/03/2026 17:04

Better You B12 spray states it's vegetarian, as does the Better You D spray. Both on Amazon.

MummyWillow1 · 19/03/2026 17:03

taratill · 19/03/2026 12:23

I need someone other than me to tell her that.

She won't even access autism services any more and I can't speak to a doctor to get them onside for the conversation without her consent I don't think?

Until she is 18 you are responsible for her medical decisions. Of course it is better that she makes those decisions herself but if she is risking her long term health then this needs to be addressed.

My autistic teen has a very limited diet, she has to supplement folic acid and vitamin d.

We found out she was having vit d issues as her joints were hurting, prescription strength to get it resolved and then OTC stuff to maintain. Then she passed out one day, she was folic acid deficient , another prescription strength course but now a regular OTC multi vitamin is proving to maintain things (blood tests have confirmed).

There are so many good multi vitamins available, once you have got passed this blip hopefully a daily dose of a quality multi vitamin will help long term. DD will have to take them for life unless she suddenly starts eating fruit and vegetables (they make her retch so unlikely!)

CanterThroughChaos · 19/03/2026 16:53

Former prescriptions clerk here, people used to request vegan medication often. It’s a ball ache and the doctors practice and pharmacy won’t love you for it but I’ve never known a medication not to have a vegan form or suitable alternative. You need to let them know you require this, the doctor isn’t going to be trying to source this for you they don’t have time. The pharmacy team will be able to but tell them asap so they don’t have to do it twice.

wishingonastar101 · 19/03/2026 16:45

Get her to drink orange juice with iron pills. It helps absorption. Also, she may need laxatives and iron can bung you up

Mumofteenandtween · 19/03/2026 16:25

Op - I am someone who naturally has very rigid thinking. (Probably undiagnosed ND.)

One thing that I have realised is that when I am tired or ill it is much harder for me to think about my rules and whether they are sensible or whether I should break them. (“Yes I always go for a walk at lunchtime and it does make me feel more awake but there is currently gale force winds and horrendous rain so maybe I should delay. But I always go. Oh - I’ll just put my hood up.”)

She sounds physically very ill right now so is not going to be able to make those types of decision. Don’t think about the future and the fact that what she is doing is long term very problematic - just do what you practically can to get her feeling a bit better.

girlwhowearsglasses · 19/03/2026 16:20

OP I am veggie but not as strict as your daughter.

is she restricting her diet in other ways? Did the GP ask wider questions and put her diet and health into context? Because it’s not uncommon that autism and eating disorders go hand in hand, and it’s also a known thing for restrictive diets to become anorexia in adolescents.

I think the GP might need to widen out the issues your daughter is dealing with - she needs help to pull the different issues apart

Fiftyandme · 19/03/2026 16:11

Ferrous numerate, bit D and bit B12 are vegetarian.

Chattanoogachoo · 19/03/2026 16:03

I use the b12 and vitamin d sprays, very easily taken and tolerated. The situation may be difficult but you need to respect her views re gelatine.

taratill · 19/03/2026 15:57

likelysuspect · 19/03/2026 15:51

Can you remember the item of the ingredient, because thats really unusual, these things are checked so much, is it possible she made a mistake?

no it's a food colouring in the brand.

I just don't think our GP / Pharmacist were desperately helpful.

I ended up googling. The drug itself is generally suitable for vegetarians but the brand they prescribed is not.

OP posts:
taratill · 19/03/2026 15:52

Miyagi99 · 19/03/2026 15:50

What was the ingredient? I’d go back and explain they’d prescribed the wrong medication.

Edited

I have managed to source something now, thanks.

OP posts:
likelysuspect · 19/03/2026 15:51

taratill · 19/03/2026 15:47

i have tried speaking to both GP and pharmacist.

They prescribed a vegetarian mediation only it wasn't when she actually read the ingredients & checked them.

Can you remember the item of the ingredient, because thats really unusual, these things are checked so much, is it possible she made a mistake?

Miyagi99 · 19/03/2026 15:50

taratill · 19/03/2026 15:47

i have tried speaking to both GP and pharmacist.

They prescribed a vegetarian mediation only it wasn't when she actually read the ingredients & checked them.

What was the ingredient? I’d go back and explain they’d prescribed the wrong medication.

Sixpence39 · 19/03/2026 15:47

taratill · 19/03/2026 13:58

I mean I don't know how to explain how extreme this is:

She won't go in a room where someone has been eating sweets with gelatin.

She won't open our front door with a key because the rest of the family are not vegetarian and will have touched the key.

She won't eat food prepared by anyone other than me unless it is marked vegetarian on the product label or on a menu.

She literally would starve herself than eat under other circumstances.

Her vegetarian diet is extremely limited / fussy which is why she is lacking in vitamins and feeling ill. She refused supplements.

She is now refusing prescription medicine even though dr / pharmacist has said vegetarian because it isn't labeled.

But yeh according to some of you this is a me problem !

This actually sounds horrendous! Im sorry, now I've got the full picture I can really see your difficulties - it goes way beyond vegetarianism. Sounds more like obsessive compulsive thinking than eating disorder, since it's to do with touching keys or being in the same room?

taratill · 19/03/2026 15:47

Miyagi99 · 19/03/2026 15:45

You can request the vegetarian options with the pharmacist, lots of people won’t take medication that isn’t. For health, compassionate and religious reasons, it’s not an unusual request.

i have tried speaking to both GP and pharmacist.

They prescribed a vegetarian mediation only it wasn't when she actually read the ingredients & checked them.

OP posts:
taratill · 19/03/2026 15:46

likelysuspect · 19/03/2026 15:40

This may not be helpful, but is she aware that if she collapses somewhere and gets taken to hospital, they'll probably (possibly) just give her stuff, they wont be waiting around for her to read ingredients.

Not saying that to scare her but would it be enough of a push for her to think, I better take the best stuff I can, or have an infusion so I dont risk blacking out somewhere and not being concious enough to give consent for care?

Another good point. She has felt like she will pass out a couple of times now. Thanks.

OP posts:
Miyagi99 · 19/03/2026 15:45

taratill · 17/03/2026 16:55

Posting on AIBU for traffic.

Does anyone have any experience of this and how to work around it?

DD is 16 (so she has to consent to treatment), she is autistic and has very fixed views.

She takes vegetarianism to the extreme generally and this has been an increasing issue over the years with her refusing cross contamination and not wanting to be near where meat is prepared or sweet wrappers even because of gelatine.

She's normally fit and healthy but the last few months she hasn't felt well and has been experiencing headaches and dizziness and palpatations so she's just had bloods done and it turns out, perhaps unsurprisingly that she's anaemic and has low B12 and vit D. The doctor has phoned and has left the prescription at the surgery pharmacy wanting bloods redone in 3 months.

I've called her and she has said she will not take the prescription if it is not specifically vegetarian, the doctor does know she is vegetarian and autistic but I'm not sure if the meds prescribed will be!

She is an intelligent child but her views on this are horrible. She would rather be ill than break her own rules around products being vegetarian.

I just don't know how to sensibly approach this. I guess if the prescription isn't suitable i can make an appointment for her to explain to dr why she is refusing treatment.

Does the Mumsnet hive mind have any other ideas/ experience? She's at 80% attendance at college due to frequently feeling too washed out to attend and she is county level sport and this is impacted her in that too.

There is just no reasoning with her so it's exhausting.

You can request the vegetarian options with the pharmacist, lots of people won’t take medication that isn’t. For health, compassionate and religious reasons, it’s not an unusual request.