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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be totally fed up with the sorry excuse that is the NHS?

109 replies

Carlie97 · 07/03/2026 13:41

I have gynaecology issues and I'm constantly bleeding heavy and leaky without a break as well as pain all the time.

I was told I had endometrial hyperplasia (abnormal cells - pre cancerous) last year and was due to have my six month check up last July to see if it's progressed. I heard nothing until I chased this and have an appointment for a hysteroscopy and biopsy in a few weeks time. They've outsourced this to a private company due to demand on the NHS but I've received my letter today and it says to take pain killers before the appointment as its going to be done without anaesthesia. This is an absolute nightmare as I've had it done without anaesthesia before and they had to stop because it was so painful. If they offer general, I think that's via a spinal which I can't have anyway. These are on my notes.

The coordination of my care has been an absolute shambles and my gynaes secretary is so unorganised, tells me thinks that aren't accurate which sends me round in a wild goose chase. She doesn't have a clue what she's doing. She also recently made it out like I wasn't going to attend my appointment as it's 50 miles away (where i used to live) and spoke to me like a child. As I'm bleeding non stop, suicidal (won't act on it) and severely anaemic, of course I'm going to attend! The gynae also tried to persuade me on the phone to have a mirena and take provera tablets. He obviously didn't see my notes that I've expelled two coils with flooding so much and I've told him numerous times that the tablets make me bleed even more.

They also scheduled me for iron infusion, months and months of me asking for this. I phoned the team who deal with this to query an appointment and they said I should never have been booked in with them as I'm out of area. They're still seeing me but what a fucking palaver!

I'm absolutely going to move my care to my new area when this is all done but in the meantime aibu to think this is unacceptable?

I'm sat here my heart beating so much every day because of the anaemia, I cry everyday, my mental health is on the floor and I'm honestly wishing each day that I go to bed and not wake up. I'm exhausted. I can't even go to A&E with the bleeding as friends have been and were sat in the waiting room for 27 hours waiting for a bed.

OP posts:
Carlie97 · 07/03/2026 18:01

Keepingongoing · 07/03/2026 17:53

If the NHS doesn’t exist any more, who or what has provided for my best friend since December:
GP appointment, out of hours GP appointment, X ray, CT scan, MRI scan, another MRI scan, 3 or 4 appointments with consultants in Respiratory clinic, liver biopsy, overnight stay in hospital, PET scan, 3 appointments with consultants in Haemotology, 4 or 5 appointments with a consultant oncologist who is a specialist in his field, one round of chemo, many phone calls with specialist oncology nurses, 7 nights in hospital following her chemo, fortnightly GP consultations since early December re pain management. Many many blood tests including one very specialised…Drugs including the chemo and many others, all free of charge…aids delivered to her house, care needs assessments, carers 3 times a day since coming out of hospital, provided for up to 6 weeks free of charge.
??
She sure didn’t pay for it.

How is your friend now?

OP posts:
Greybeardy · 07/03/2026 18:01

if it's not an anaesthetist delivered service then there won't be GA or spinal as an option. Local in that case is usually into the cervix. It might be best to give them a call and clarify exactly what they offer (? is entonox an option too). If you're currently living 50 miles away from the place you're having it done (is that what you meant in your OP?) then having a day case GA or spinal procedure is very unlikely to be an option - it would need to be done either closer to home or as an overnight stay.

Nursemumma92 · 07/03/2026 18:01

Carlie97 · 07/03/2026 17:46

Sorry, I did mean local anaesthetic as they may offer local at a push but definitely not a general. How would they administer a local anaesthetic? Is that via a spinal injection? I'm so scared of them and I don't mind needles anywhere else. In fact. I happily stabbed myself with a needle when on medication in the past and for the mounjaro.

It's being done in a health centre too as the hospital is so full so no hope of a general anaesthetic as I don't think an anaesthetist will be on hand for the procedure.

They wouldn't give a spinal block in a health centre as again it would need an anaesthetist to administer and monitor. For hysteroscopy it is usually injected into the cervix and sometimes into the uterus depending on what needs to be done.

You can have them done under general anaesthetic or spinal but the waiting lists are longer.

Being a woman really sucks, sorry you are going through this!

Carlie97 · 07/03/2026 17:58

Thanks everyone. They said on the phone they won't do it under general.

With the hysteroscopy and biopsy done in a medical practice instead of a hospital, I think that's why. Does anyone know if they have gas and air in a general medical practice as that has managed the pain in the past.

I also don't have anyone to go home with afterwards so I'll stay in the hotel a few minutes walk away. I know they wouldn't allow me to leave alone if I had a general but with a local they will, won't they?

OP posts:
Keepingongoing · 07/03/2026 17:53

AgnesMcDoo · 07/03/2026 16:30

The NHS doesn’t exist anymore.

its pure luck if you access treatment.

it needs a complete overhaul. Transformational change.

If the NHS doesn’t exist any more, who or what has provided for my best friend since December:
GP appointment, out of hours GP appointment, X ray, CT scan, MRI scan, another MRI scan, 3 or 4 appointments with consultants in Respiratory clinic, liver biopsy, overnight stay in hospital, PET scan, 3 appointments with consultants in Haemotology, 4 or 5 appointments with a consultant oncologist who is a specialist in his field, one round of chemo, many phone calls with specialist oncology nurses, 7 nights in hospital following her chemo, fortnightly GP consultations since early December re pain management. Many many blood tests including one very specialised…Drugs including the chemo and many others, all free of charge…aids delivered to her house, care needs assessments, carers 3 times a day since coming out of hospital, provided for up to 6 weeks free of charge.
??
She sure didn’t pay for it.

FoxgloveGarden05 · 07/03/2026 17:51

Just wanted to say that I've had minor gynae procedures carried out under a general several times. Usually it would have been carried out with with a local however, due to personal reasons I wouldn't have managed this. You are entitled to request a general and you should do if you feel that is right for you. They might try and convince you not to despite not being meant to do that, but just stick by it. It is your body so you know what is right for you. Good luck with your procedure and hope all goes well!

UniquePinkSwan · 07/03/2026 17:51

WhynotJanet · 07/03/2026 14:13

Not great care, but what would you prefer? Do you think we should go to an insurance model? So you only get care if you can afford to pay? Most rational people would think the NHS needs better funding. Interested to know how tou
think this situation could be improved

Yes we should get an insurance model. It’s completely not fit for purpose. Go the European way

NoMoreLifts · 07/03/2026 17:46

Carlie97 · 07/03/2026 15:49

Hello, thank you for sharing your experience. I thought that all generals are done via spinal. How was yours administered? I feel hope now!

Had one earlier this year, under GA, did an infusion in the back of my hand and a face mask of gas, completely out.
NHS did advise that it would be longer wait, but was only 1 week longer. Felt some disapproval when rejected "2 paracetamol" option, but just rode it out.
Was home as day case.

Carlie97 · 07/03/2026 17:46

Sorry, I did mean local anaesthetic as they may offer local at a push but definitely not a general. How would they administer a local anaesthetic? Is that via a spinal injection? I'm so scared of them and I don't mind needles anywhere else. In fact. I happily stabbed myself with a needle when on medication in the past and for the mounjaro.

It's being done in a health centre too as the hospital is so full so no hope of a general anaesthetic as I don't think an anaesthetist will be on hand for the procedure.

OP posts:
PatsFishTank · 07/03/2026 17:40

I had a hysteroscopy done under general anaesthetic through the NHS fairly recently. I would push for that.

I think the funding of the NHS needs an overhaul but I do think some parts of it work. I'm currently receiving cancer treatment and the care I've had has been exceptional. I really can't fault it.

Tiptopflipflop · 07/03/2026 17:32

Greybeardy · 07/03/2026 17:08

spinals and epidurals are very different techniques.

Yes sorry you're quite right. Serves me right for trying to do three things at once. But to the OP's concern, do you agree ahe doesn't need to worry that not being able to have a spinal doesn't mean she can't have a general anaesthetic?

Greybeardy · 07/03/2026 17:08

Tiptopflipflop · 07/03/2026 17:05

General anaesthesia are done via a cannula in the back of your hand. Or sometimes initially via a gas mask until you're asleep.

Spinals are for epidurals.

spinals and epidurals are very different techniques.

Tiptopflipflop · 07/03/2026 17:05

Carlie97 · 07/03/2026 15:49

Hello, thank you for sharing your experience. I thought that all generals are done via spinal. How was yours administered? I feel hope now!

General anaesthesia are done via a cannula in the back of your hand. Or sometimes initially via a gas mask until you're asleep.

Spinals are for epidurals.

EleanorReally · 07/03/2026 16:37

i would have thought the GP would make the transfer
otherwise the hospital would be charged

Boomer55 · 07/03/2026 16:36

The NHS is a shitshow that needs total reform instead of endless wasted millions thrown at it. But, until a government does that, it will continue to be less than good. 🙄

AgnesMcDoo · 07/03/2026 16:30

The NHS doesn’t exist anymore.

its pure luck if you access treatment.

it needs a complete overhaul. Transformational change.

Greybeardy · 07/03/2026 16:09

anaesthetist pov - a general anaesthetic is where you are unconscious. During a spinal block you remain awake but numb to the pain. Both are options for hysteroscopy where simple analgesia/cervical local are not ideal, but the relative pros and cons depend on the individual patient's medical history. Epidural would be a most unusual choice for a hysteroscopy.

Carlie97 · 07/03/2026 15:53

Thank you so much everyone. I can move to my local hospital after this procedure. My GP in my new area recommended I get the procedure under my old trust so there was no delay. I'm just biding time til I can switch, which I'll do as soon as the procedure is done.

My GP surgery says its the gynae surgery who will have to switch my hospital care to my new area but my gynae secretary (who I don't trust) insists it's my GP who has to do it. Does anyone know what the actual case is? Thanks 😊

OP posts:
Carlie97 · 07/03/2026 15:49

frightright · 07/03/2026 14:48

Moving and being out of area does make things far more complicated (even though it really shouldn’t). When can you move all the services to your new area.
What makes you think a GA for your hysteroscopy would be a spinal? That indicates it would be an epidural not a GA. I had a hysteroscopy last year and made it clear from the start that I would only have it under general. No way was I willing to try it without. We are entitled to this under NICE guidelines so quote those to them. They have to honour this (though you may wait longer)

Hello, thank you for sharing your experience. I thought that all generals are done via spinal. How was yours administered? I feel hope now!

OP posts:
frightright · 07/03/2026 14:48

Moving and being out of area does make things far more complicated (even though it really shouldn’t). When can you move all the services to your new area.
What makes you think a GA for your hysteroscopy would be a spinal? That indicates it would be an epidural not a GA. I had a hysteroscopy last year and made it clear from the start that I would only have it under general. No way was I willing to try it without. We are entitled to this under NICE guidelines so quote those to them. They have to honour this (though you may wait longer)

EasternStandard · 07/03/2026 14:46

BeautifulSongsofLove · 07/03/2026 14:23

YANBU, regarding the hysteroscopy (and biopsy), is there a reason that you would need a spinal anaesthetic instead of a general?

Like you, I cannot tolerate a hysteroscopy without anaesthesia and when these have been needed have had the procedure done as a day case with a general anaesthetic.

You can ask for a general anaesthetic, for example https://www.guysandstthomas.nhs.uk/health-information/hysteroscopy/hysteroscopy-in-day-theatres

Sounds awful op but I’d push for a general anaesthetic as pp says, although ik it might not be easy.

Fibrous · 07/03/2026 14:42

I was in a similar situation last year but it was my arse causing lots of problems. In the end I paid for private consultations and treatment (I don't have insurance) as I was so desperate and in so much pain and missing months of work (self employed). Everything got so much worse because I was mishandled and misdiagnosed due to delays with the NHS. It's a joke. I'm just glad I have enough savings, but I actually told the surgeon I would remortgage my house just to make the pain go away.

WildCritic · 07/03/2026 14:39

I agree that the NHS has sacred cow status but,I tend to find that in my personal experience those who find most fault are those who can opt for private for at least part of a course of care. Those who have no such option are less quick to criticise. Also I had a friend who had private health care who was incredibly snobby about using the NHS until her grand child was born at 26 weeks gestation and needed the highest level of NICU care. Suddenly the NHS was wonderful. It was a bit awkward for her to admit that her private health insurance didn't cover everything.

MigGirl · 07/03/2026 14:37

I think part of the problem your having is that you moved. While I'd love to think the NHS is fully connected it just isn't. I had to be seen at 4 different hospitals for different reasons. Only 2 are technically in my area which seems to make communication with my GP very difficult. GP couldn't see results from one hospital as not in same area. The smoothest care I've had has been with the two hospitals in my area and with them everything has actually been fine. Also the one outside area who deals with the issue I have, that no in area hospital deals with has also been OK, but then my GP doesn't need to coordinate anything with them, I just deal directly with them.

Things are just not very joined up and they all use different computer systems as well so how I get results are totally different. Why we have such a misjointed system in this day and age is anyone's guess. But it does seem to make some things very difficult to deal with.

Ritaskitchen · 07/03/2026 14:34

I am 100% in agreement with you @Carlie97Also your iron infusion should make a difference within 2-3 days. I have had many (not in UK)
Keep taking iron tablets with vitamin c as if you are bleeding you will need to keep your iron up.

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