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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

So worried about almost 3yo DS

33 replies

happybirthdayjism · 14/02/2026 23:35

Hey,

Didn’t get much of a response on the other boards so trying here.

my DS is three at the beginning or March but he seems really delayed I’m starting to get so worried. He has two older sisters who are 10 and 7.

He started preschool in the September and staff there can see my concerns so have some extra support for him. He has also started private speech therapy sessions recently but it’s too soon to see any difference yet.

These are my concerns:

He has lots of words (100s) and a few short 2/3 word sentences. Anything else he says are quotes or phrases like “big fast car” or “lovely day”. There what he’s heard from me or Paw Patrol

He never answers a question or engages
in conversation. He will occasionally say no in response to something he really doesn’t want to do bedtime, nappy change etc

He sometimes responds to his name but not always

He sometimes follows basic instructions but some days not at all

He doesn’t mind being around other kids but doesn’t seek interaction at all. He does at home with us

He has good eye contact when he wants to but not always if prompted

He sometimes stops saying certain words or phrases

He has never really pointed or waved. Sometimes looks if I point but not always

He can count to 10 if he wants to (won’t if I ask him to). He has no concept of colours, shapes or letters

He doesn’t really take part in imaginative play

It doesn’t feel normal at this age. My older two were having full on conversations at this age.

He doesn’t do these things

Flap his hands (maybe seen him do it a few times)

Never seen him walk on tip toes

He occasionally spin (few times a week max)

Doesn’t really have meltdowns or tantrums

Doesn’t get stressed in loud or new places

Not that bothered about routine

Doesn’t order or line things up

Has anyone else experience of this kind of development/behaviour?

We have been referred by the GP for an appointment with a paediatrician but have been warned of up to a 3 year wait.

I’m worried about what to do in the meantime. He starts school next September which means we’ll have to apply this November. I’m concerned mainstream won’t be for him.

I have no idea whether this is autism, a learning delay or something else.

Thanks for reading and sorry it was so long!

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happybirthdayjism · 15/02/2026 21:42

Thanks @AmplePlayer Thanks, that’s interesting. I’ll try and practice before him.

I need to try not to think about schools too much. Having a few friends that are teachers they keep trying to reassure me there’s no way he’ll go to a special school as he’s progressing even if a little behind.

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happybirthdayjism · 15/02/2026 21:39

@Pennyroses Maybe he just isn’t interested yet with girls and that will develop a bit later on.

I can imagine it’s a worry with him being away. Sounds like you’re brilliant at reading him!

So easy to blame ourselves isn’t it? I worry that I should have noticed DC3 was delayed sooner and that missed it because I was busy with the older two. Either way I’d have blamed myself!

You sound like a great mum and you’ve really reassured me!

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SpanThatWorld · 15/02/2026 19:30

AmplePlayer · 15/02/2026 01:12

A two year old shouldn't need to be able to follow instructions for a hearing test - was this organised by the Paediatric team at your local hospital?

Some 2 year olds have outgrown Visual Reinforcement Audiometry (distraction test) so they do need to understand how to do Cooperative Play Audiometry. There's often a few months where they've outgrown VRA but can't do CPA reliably enough to get a definite audiogram.

OP - before you go for the test, see if you can teach him how to play Ready, steady, go games or listen for a bell before racing/jumping or whatever.

As far as school is concerned, it sounds as though your child would be fine in a mainstream school. If other concerns emerge, there are lots of steps to get an EHCP or look at special schools so don't worry about that now.

Pennyroses · 15/02/2026 19:10

@happybirthdayjism I can only give you my son's experience and yours may be different I dont know, but he never struggled with friends or anything, always had a small close friend group. One thing though, he's never shown any interest in girls, I don't know if that means he's gay or he's just not bothered about a relationship, he's very independent and likes to be alone a lot. Which of course I worry about as he also has dyspraxia and is sooo clumsy so him living alone at uni worries me to death! 😂 But he is managing ok, of course I worry so much as he's quite sensitive and vulnerable but you wouldn't necessarily know this looking at him. Kids are so adaptable and I'm sure your son will do just fine, all you can do is watch and monitor it. At least you realise this now, I had no idea and feel terrible about that but at the same time it allowed him to develop and adapt in is own way and that seems to be working for him.
On the learning front, my son didn't know any of that really until he started school and he was never behind or anything, I wouldn't say he excelled but he didn't fall behind and passed his GCSEs fine, went to college and now he's studying law at university!

happybirthdayjism · 15/02/2026 18:54

Another concern is learning. Not yet knowing colours, shapes or the alphabet etc. He can count to 10 but that’s all. Should I be concerned about that?

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happybirthdayjism · 15/02/2026 18:13

@Pennyroses Thanks so much. Your son sounds lovely and most importantly happy most of the time.

The thing I stuggle with the most is what will his future be like. Will he feel different. I worry he won’t be able to have a job, house, relationships etc. I know I’m jumping ahead a lot there but I don’t seem to be able to stop it! It’s the not knowing 😕

I do need to remember he is progressing every day even if it is slower than his friends.

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Pennyroses · 15/02/2026 17:09

I honestly wouldn't worry too much. My eldest son was very much the same. He had speech therapy at 3 due to him not speaking much at all or clearly, he also didn't respond to his name much, he wasn't very affectionate, was a very picky eater etc. I did notice he was different after I had my other two kids as they developed more 'normally'. But I was very young when I had him (20) so we kind of just accepted that was how he was. He sailed through school fine really, never really had any issues with him. It's only now he's 19 at university and struggling a bit socially that I'm realising he's probably autistic. He's had a couple of 'meltdowns' whilst being there and I notice other traits a lot more now (he's very direct and fixed in his thinking and communication). But he's actually a lovely person and I can't say it hinders him too much, I'm not sure if he realises it himself but he seems generally happy most of the time. So what I'm saying is if it's a mild case like my son I don't think it needs labelling really, keep an eye on it and if it starts to affect him at school or anything then maybe look into support but just wanted to say it's not always something to worry about

happybirthdayjism · 15/02/2026 15:49

He’s actually started saying all sorts of new things today (all phrases still). Some days he seems to be really trying hard to talk and others it feels like he doesn’t see the need at all

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happybirthdayjism · 15/02/2026 08:50

Thanks all.

@ThisAquaFinch Yes his therapist has said he’s possibly a gestalt language processor and that it can be linked with autism but not always. She’s explained how from this he could develop typical language so that’s helpful. Although I do just feel like it’s an autism sign to add to my metal list 😭

@Sprinklesandsprinkles So expensive!! How often is your son having sessions? We’re every other week. Hoping that’s enough as we can’t really afford more. We have an appointment with the HV coming up so hoping that will help.

@AmplePlayer It was just a self referral through the GP. He needed to stand still and press a button when he heard a sound and look up. He just didn’t want to do it. He wanted to explore the room and all the cupboard he knew has toys in.

@SunMoonandChocolate Thanks. Looking back at videos 18 months ago he is a lot different but not as much as I’d expect.

He is very vocal and chats all day. Most of it doesn’t make any sense but the odd word or phrase is in there. For example:

”babble babble babble where’s daddy babble babble shops babble apples, bananas”

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ThisAquaFinch · 15/02/2026 05:27

sounds like you’re really advocating for your son! I agree there’s quite a few traits of autism you’ve listed so it’s good to be questioning it. What does his speech therapist think about his delayed language?
he sounds like he could be a gestalt language processor (this is not a diagnosis) but a way that children learn language, different to the typical language development route. Sometimes associated with autism, and sometimes not. Look it up and see what you think and maybe ask your SLT about it if you think it’s a fit.

Sprinklesandsprinkles · 15/02/2026 01:30

You're doing a great thing getting him started on speech therapy, we are getting it for our son too ouch it is expensive!! But he's making great progress in. I would definitely raise your concerns with a health visitor, give them a call. It's good to get onto lists and get investigation with them asap, they'll have a better sense of rest might be going on for him too

AmplePlayer · 15/02/2026 01:12

A two year old shouldn't need to be able to follow instructions for a hearing test - was this organised by the Paediatric team at your local hospital?

SunMoonandChocolate · 15/02/2026 01:09

My nephew was like this, barely talked at all at age 3, and his Mum was really worried, and then suddenly when he started nursery, you couldn't shut him up. It was as if he couldn't be bothered to talk at home, but then when he started to see lots of other kids and they would talk to him, he talked back.

Get the hearing test done, but try not to worry OP, they all develop at different rates, and actually when they're this age, an awful lot can happen in 18 months, think back to how he was 18 months ago, I bet he's made a lot of progress since then, hasn't he?

Pryceosh1987 · 15/02/2026 00:46

Its early days, as he grows older he will say more words and form better sentences together. I believe in his growth and education.

SMM2020 · 15/02/2026 00:23

happybirthdayjism · 15/02/2026 00:17

@SMM2020 He has had a few throat and chest infections. During one of those his ears were inflamed.

It really is. It’s school I’m getting concerned about. I know it’s a year and a half away but it’s going to come around so fast.

Edited

So this is what we’d have on top of the ear infection - no oozy ears but red and inflamed, the obvious infection bit would be his throat and chest. Basically the ENT said, every time he got a cold his inner ear, sinuses and adenoids would swell more, causing more of a blockage, none of the mucus could drain, get stuck allowing for any bacteria to thrive which would then cause an infection further down. I’m probably simplifying it but this was the gist.

happybirthdayjism · 15/02/2026 00:17

@SMM2020 He has had a few throat and chest infections. During one of those his ears were inflamed.

It really is. It’s school I’m getting concerned about. I know it’s a year and a half away but it’s going to come around so fast.

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SMM2020 · 15/02/2026 00:13

Yes ear infections, we’d had a fairly clean spell without for about 8 months and his speech started to slowly improve, then he was hammered again for 8 weeks and it went backwards.

I know so many people who have had to go the private route for things like this, it puts you as a parent in a rock and a hard place.

happybirthdayjism · 15/02/2026 00:08

@SMM2020 Were they ear infections?

I might call a few places I know that for possible diagnosis incase we go down that route.

I get confused looking online as I keep thinking autism but he symptoms don’t seem to quite match.

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SMM2020 · 15/02/2026 00:06

happybirthdayjism · 14/02/2026 23:56

@SMM2020 Was your son a similar age at the time. Great he’s been able to catch up.
Really would like to get the hearing ruled out.
Yes the wait time is so bad. I think we’d have to consider private if we could stretch to that.

He was 3 years and 3 months - we’d held off purely because it was very borderline in the sense of nursery and HV being worried but he had 3 back to back infections, so we called it especially with him being a summer babe and already on the back foot starting school.

Maybe just start getting some quotes - initial consultation is about £150-250 dependent on who you go to. It seems a mad price to pay for a 15-30 minute appointment though.

Brinny · 15/02/2026 00:04

happybirthdayjism · 14/02/2026 23:54

@Brinny That’s great news he’s made lots of progress.

Thank you , you it can be so many things ,hearing, eyes. Just see what the experts say x

happybirthdayjism · 14/02/2026 23:56

@SMM2020 Was your son a similar age at the time. Great he’s been able to catch up.
Really would like to get the hearing ruled out.
Yes the wait time is so bad. I think we’d have to consider private if we could stretch to that.

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happybirthdayjism · 14/02/2026 23:54

@Brinny That’s great news he’s made lots of progress.

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SMM2020 · 14/02/2026 23:51

happybirthdayjism · 14/02/2026 23:44

@SMM2020 Thanks, I should have said we’re due a hearing test next month. Was your son ever diagnosed with anything? Has he caught up?

He was diagnosed with glue ear - his ear canals are also extremely narrow so would get build up and his adenoids were enlarged so every time he had any kind of virus, nothing could drain making him deaf in essence. He’s caught up a lot in 3 months, speaking in full sentences although diction isn’t always there, we can have conversations with him, he’s playing with his brother a lot more, more roleplay and interest in colours, shapes, letters etc We’re starting speech therapy this week to give him a bit of a helping hand before starting school. The fact you have the hearing test soon will hopefully give you some answers - the result of that in theory should bump you up the nhs list but the wait times are awful, so feel for you.

Brinny · 14/02/2026 23:51

happybirthdayjism · 14/02/2026 23:47

@Brinny Thansk. Did your son catch up or was he ever diagnosed with anything? X

At 5yrs old he was prescribed glasses, also dyslexic, yes he caught up and made lots of freinds and very creative.

happybirthdayjism · 14/02/2026 23:49

@Dreamingofdaffodils We have a hearing test next month. We did attempt one but he didn’t really understand what he needed to do

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