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There muat be some way of getting help with medical issues.

36 replies

ColdandConfused · 05/02/2026 21:40

What can someone do if they are not getting the help they need with a medical issues? My neighbour is really struggling and in pain and can't get the GP to support her. I haven't pried into the details but its a gynae issue.

From what I understand she tried for months to get a diagnosis for what is going on. She finally got a diagnosis and was given treatment but that made things worse. After more months of trying to get an appointment to find out what's going on, in desperation, she got a private appointment. The private consultant said the treatment is causing harm and making things worse and she needs to stop treatment and get a biopsy. She can't afford that privately so was told to go back to the GP with a letter and to get a referral. The GP has stated they won't follow any kind of private advice. So now she is stuck in limbo, in pain, with no idea what to do next.

Is there anyone she could turn to to help her fight her case? She's in pain and no one seems to be acknowledging that. And now shes worried the treatment has caused further long term damage. It certainly hasn't helped. What can she do?? I can understand that the NHS won't just follow a private diagnosis. But they don't seem willing to help at all even with just showing some compassion that a woman is in pain.

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Bourdic · 06/02/2026 09:48

ColdandConfused · 06/02/2026 09:35

Thanks for the advice. I'm not sure she has made an actual complaint yet, she is still trying to get help. She has been down to the practice in person to try and get an appointment or talk to someone.
I'll look up the local ICB.

Given what you’ve told us, she seems to have grounds for complaint. Sometimes, it’s only by formalising a matter that something might happen. What it appears she needs is a double appt with a GP who will actually listen and review her case . It doesn’t sound as though that’s likely - in fact, she’s probably been put in the ‘not to be taken seriously’ category already, a category which women with gynae problems end up in quite quickly.

ColdandConfused · 06/02/2026 09:35

Bourdic · 06/02/2026 09:14

Thus is my advice for your neighbour. She should email her complaint not telephone. She needs to write up a summary that is a clear, concise account of what has happened since she first saw her GP about the problem. She should include her approach to the practice manager and her response - this shows the ICB that she has done all she can. Also, have you a decent MP? If so, I would copy in the MP as, sadly, this sometimes means you get taken more seriously. My MP was very helpful in actually getting communications actually responded to. Do you know which ICB you come under?

Thanks for the advice. I'm not sure she has made an actual complaint yet, she is still trying to get help. She has been down to the practice in person to try and get an appointment or talk to someone.
I'll look up the local ICB.

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LilyBunch25 · 06/02/2026 09:25

ColdandConfused · 06/02/2026 09:22

That sounds awful! Sorry for your step daughter. It's just not acceptable to leave people in pain with no kind of idea how or when they might get treatment.

Yes it has been dreadful. I don't know how she's functioned and carried on working through it, it has been awful for her, and she never gave up fighting for treatment.

ColdandConfused · 06/02/2026 09:22

LilyBunch25 · 06/02/2026 09:09

There is a huge backlog for gynae diagnoses and treatment. My step daughter has waited nearly 3 years and has been in agony and desperate the entire time. She is only now receiving treatment.

That sounds awful! Sorry for your step daughter. It's just not acceptable to leave people in pain with no kind of idea how or when they might get treatment.

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Bourdic · 06/02/2026 09:14

Thus is my advice for your neighbour. She should email her complaint not telephone. She needs to write up a summary that is a clear, concise account of what has happened since she first saw her GP about the problem. She should include her approach to the practice manager and her response - this shows the ICB that she has done all she can. Also, have you a decent MP? If so, I would copy in the MP as, sadly, this sometimes means you get taken more seriously. My MP was very helpful in actually getting communications actually responded to. Do you know which ICB you come under?

LilyBunch25 · 06/02/2026 09:09

ColdandConfused · 05/02/2026 21:40

What can someone do if they are not getting the help they need with a medical issues? My neighbour is really struggling and in pain and can't get the GP to support her. I haven't pried into the details but its a gynae issue.

From what I understand she tried for months to get a diagnosis for what is going on. She finally got a diagnosis and was given treatment but that made things worse. After more months of trying to get an appointment to find out what's going on, in desperation, she got a private appointment. The private consultant said the treatment is causing harm and making things worse and she needs to stop treatment and get a biopsy. She can't afford that privately so was told to go back to the GP with a letter and to get a referral. The GP has stated they won't follow any kind of private advice. So now she is stuck in limbo, in pain, with no idea what to do next.

Is there anyone she could turn to to help her fight her case? She's in pain and no one seems to be acknowledging that. And now shes worried the treatment has caused further long term damage. It certainly hasn't helped. What can she do?? I can understand that the NHS won't just follow a private diagnosis. But they don't seem willing to help at all even with just showing some compassion that a woman is in pain.

There is a huge backlog for gynae diagnoses and treatment. My step daughter has waited nearly 3 years and has been in agony and desperate the entire time. She is only now receiving treatment.

ColdandConfused · 06/02/2026 09:02

Octavia64 · 06/02/2026 05:40

can’t comment on the gynae issue without more info but it is quite common in gynae issues for various meds to be tried and some do make some people worse.

if her meds are hormonal contraception of some kind then it may be worth asking to try a different brand of the same meds or different meds eg combined pill etc.

in theory if you are in pain the gp should be prescribing to help you, in practice…..

if her pain is uterus related then there are painkillers that are often prescribed for gynae issues - mefenamic acid and tranexamic acid are two I have been on.

there are issues with getting painkillers prescribed these days as opiate based painkillers (codeine, tramadol and similar) are only supposed to be prescribed at lowest possible levels due to risk of addiction.

in addition painkillers in the ibuprofen family the doctors are now wary of because of evidence of stomach problems so the guidance is that they are supposed to prescribe stomach “protectors” like omeprazole alongside but also they are under pressure to reduce prescribing of these drugs.

so … this basically leaves nothing, myself and lots of my friends (I’m disabled) have come under a lot of pressure to reduce painkillers.

however it’s not ok to leave someone in pain and if she really really hassles the doctors they will prescribe.

over the counter she can get paracetamol, ibuprofen and co-codamol which is paracetamol with codeine.

ask for painkillers and push that she is in pain and they’ll probably prescribe mefenamic acid or similar and stomach protector.

re the second opinion, if she has gynae issues the treatment is often some kind of hormones. Some of these are not suitable for eg people with a history of breast cancer so it’s possible that this was what the consultant was talking about?

biopsies are usually for cancer situations.

Thanks for reply. With this in mind, it seems even worse that she couldn't get an appointment when she felt the medication was making her worse. I think it might be something topical that shes applying. And the original consultant was gynae. But I'm sure she said the private appointment was with a derma specialist. Maybe this is where the conflict is coming in? Different specialisms.
I can understand the GP needing to speak to the original NHS specialist who prescribed the medication. They just haven't given her any reassurance that this will happen ASAP. Or any indication how long it will take to get seen again. But to just be so dismissive that she is in pain and not willing to do anything on that front just seems cruel. I will look at some of these medications. I did recommend some stronger things my husband had for a bad back. But I know there are a lot of medications you have to be careful with taking for a long time. Although, to my mind, that's all the more reason that the GP should want to be involved in prescribing pain killers.

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ColdandConfused · 06/02/2026 08:45

Bourdic · 06/02/2026 01:07

unfortunatrly PALS do not cover GP practices. We’re supposed to complain to the practice manager who is employed by the very GP we want to complain about. It’s an absolute disgrace. Is she up to ringing your local ICB ( integrated care board). They control the purse strings and will deal with GP complaints.

Oh, thanks for letting me know. I think she already spoke to the practice manager who also seems very un sympathetic of her position and she just doesn't feel like they are going to help. So now she just feels stuck in pain with no one even showing any empathy. I will tell her about IBC though. Thank you.

OP posts:
Octavia64 · 06/02/2026 05:40

can’t comment on the gynae issue without more info but it is quite common in gynae issues for various meds to be tried and some do make some people worse.

if her meds are hormonal contraception of some kind then it may be worth asking to try a different brand of the same meds or different meds eg combined pill etc.

in theory if you are in pain the gp should be prescribing to help you, in practice…..

if her pain is uterus related then there are painkillers that are often prescribed for gynae issues - mefenamic acid and tranexamic acid are two I have been on.

there are issues with getting painkillers prescribed these days as opiate based painkillers (codeine, tramadol and similar) are only supposed to be prescribed at lowest possible levels due to risk of addiction.

in addition painkillers in the ibuprofen family the doctors are now wary of because of evidence of stomach problems so the guidance is that they are supposed to prescribe stomach “protectors” like omeprazole alongside but also they are under pressure to reduce prescribing of these drugs.

so … this basically leaves nothing, myself and lots of my friends (I’m disabled) have come under a lot of pressure to reduce painkillers.

however it’s not ok to leave someone in pain and if she really really hassles the doctors they will prescribe.

over the counter she can get paracetamol, ibuprofen and co-codamol which is paracetamol with codeine.

ask for painkillers and push that she is in pain and they’ll probably prescribe mefenamic acid or similar and stomach protector.

re the second opinion, if she has gynae issues the treatment is often some kind of hormones. Some of these are not suitable for eg people with a history of breast cancer so it’s possible that this was what the consultant was talking about?

biopsies are usually for cancer situations.

Bourdic · 06/02/2026 01:07

Theunamedcat · 05/02/2026 23:44

PALs might be her next step if there is a genuine belief the treatment is causing harm in dont know why the drs want to harm her though

unfortunatrly PALS do not cover GP practices. We’re supposed to complain to the practice manager who is employed by the very GP we want to complain about. It’s an absolute disgrace. Is she up to ringing your local ICB ( integrated care board). They control the purse strings and will deal with GP complaints.

ColdandConfused · 06/02/2026 00:12

49mumof6 · 06/02/2026 00:06

If she is in really bad pain visit A&E they can do a CT and refer you gyne if they feel it is needed. I went to A&E with lower back pain CT found a lesion on my spine do they did and MRI there is thickening and a mass in my uterus so I’m having a biopsy on Wednesday as there is a possibility it could be uterine cancer, she needs to get it checked ASAP and if the GP won’t help go to A&E

Thanks for your advice. Sorry you are suffering too. 💐
I did suggest 111 but she said she had been told that she needed to go via the GP. But if that isn't getting her anywhere I will suggest A&E.

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ColdandConfused · 06/02/2026 00:08

explanationplease · 06/02/2026 00:03

Odd title. Is there a privatisation campaign running, to warm us up?

I didn't know how to phrase my title to be honest. Just trying to get some advice. Not sure this would work as a campaign for privatisation. That seems to be getting her nowhere

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49mumof6 · 06/02/2026 00:06

If she is in really bad pain visit A&E they can do a CT and refer you gyne if they feel it is needed. I went to A&E with lower back pain CT found a lesion on my spine do they did and MRI there is thickening and a mass in my uterus so I’m having a biopsy on Wednesday as there is a possibility it could be uterine cancer, she needs to get it checked ASAP and if the GP won’t help go to A&E

ColdandConfused · 06/02/2026 00:03

jessr1990 · 05/02/2026 23:52

She can use right to treatment if in uk. If she gets the GP to fo another referral, that referral can be directed to a private hospital near her that has a shorter waiting list (if the waiting time for gynae nhs appt is longer than their published waiting time) as long as the private accepts right to treatment/nhs patients. Google right to treatment for more info.

I will look into that. Thank you. I think she is worried now that she GP isn't willing to help her. They seem very dismissive about the private referral.

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explanationplease · 06/02/2026 00:03

Odd title. Is there a privatisation campaign running, to warm us up?

ColdandConfused · 06/02/2026 00:01

TheSquareMile · 05/02/2026 23:51

In which way did the treatment make her condition worse, OP?

The pain has got worse

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ColdandConfused · 06/02/2026 00:00

Barnbrack · 05/02/2026 23:51

She is telling you she has had x,y,z conversation with her doctors, you have no idea how true her account is. You realize that? I say that only because you seem so invested and horrified by this but by your own admission know little about

She is suffering. She is worrying about what she can do to get help. I just thought Mumsnet might have some useful advice (and they do). I know I don't have the full picture. But I thought if I could help with some practical next steps that might be useful.
I know if I was in constant pain and being dismissed I would be feeling pretty awful. Particularly if the treatment shes been given is making her worse and the second opinion has said that it's causing long term damage!

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ColdandConfused · 05/02/2026 23:53

Theunamedcat · 05/02/2026 23:44

PALs might be her next step if there is a genuine belief the treatment is causing harm in dont know why the drs want to harm her though

Well I obviously don't think the doctors have wanted to cause harm. But the medication seems to be, and the private consultant told her to stop immediately and get a biopsy. She only went private as she couldn't get another appointment when the treatment was making her worse. I will look up PALs. Thanks

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jessr1990 · 05/02/2026 23:52

She can use right to treatment if in uk. If she gets the GP to fo another referral, that referral can be directed to a private hospital near her that has a shorter waiting list (if the waiting time for gynae nhs appt is longer than their published waiting time) as long as the private accepts right to treatment/nhs patients. Google right to treatment for more info.

Barnbrack · 05/02/2026 23:51

ColdandConfused · 05/02/2026 23:49

Well obviously medical professionals know more than me! I haven't even asked and specific details as no my place. But she is really desperate and in a lot of pain. I'm just asking Mumsnet for some advice on what else she can do to try and help. There always seems to be a lot of knowledgeable people on here. I'm looking for next steps, not diagnosis and cure.
She has said it is a life long condition. And said one medical professional had told her to just 'get used to your new normal'. But she is saying if this is it for the rest of her life then she doesn't have a life. And the fact that the treatment has made it worse indicates it is not the right treatment. At the very least she needs help managing the pain.

She is telling you she has had x,y,z conversation with her doctors, you have no idea how true her account is. You realize that? I say that only because you seem so invested and horrified by this but by your own admission know little about

TheSquareMile · 05/02/2026 23:51

In which way did the treatment make her condition worse, OP?

ColdandConfused · 05/02/2026 23:49

Barnbrack · 05/02/2026 23:21

Not all medical conditions can be treated, or resolved or cured.

Some illnesses are horrific and yet there is no known way to improve things, also sometimes someone thinks 1 condition is the main cause of their issues when actually it's another.

It's very likely that this woman's medical team know a lot more about what is happening with her than you do.

Well obviously medical professionals know more than me! I haven't even asked and specific details as no my place. But she is really desperate and in a lot of pain. I'm just asking Mumsnet for some advice on what else she can do to try and help. There always seems to be a lot of knowledgeable people on here. I'm looking for next steps, not diagnosis and cure.
She has said it is a life long condition. And said one medical professional had told her to just 'get used to your new normal'. But she is saying if this is it for the rest of her life then she doesn't have a life. And the fact that the treatment has made it worse indicates it is not the right treatment. At the very least she needs help managing the pain.

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Theunamedcat · 05/02/2026 23:44

PALs might be her next step if there is a genuine belief the treatment is causing harm in dont know why the drs want to harm her though

ColdandConfused · 05/02/2026 23:43

Georgiepud · 05/02/2026 23:07

I do know my GP was not allowed to convert a private prescription to an NHS one for me, but I've never experienced him refusing to follow a private consultant's advice. That sounds very strange.
Can your neighbour request an appointment with a different GP in the practice? Also, private consultants usually send quite clear reports of their diagnoses to both patient and GP. I would get your neighbour to make a copy of hers, underline the important bits in red, and put it down on the desk when speaking to the GP.

She has letters from the private consultant. That's what she has been trying to take to the GP but they are just being very dismissive of her. She went out of desperation because the treatment was making her worse and they are saying it could be causing long term damage. So now she's really worried.

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ColdandConfused · 05/02/2026 23:40

Allthesnowallthetime · 05/02/2026 22:42

Who made the diagnosis? GP or gynaecologist? Could she ask for an NHS gyn referral for review (I know the waiting lists are long)?

I agree with pain clinic referral if GP can't manage her pain. I found them really helpful personally when I had difficult to manage pain

It was a specialist clinic that gave the diagnosis and treatment. But when the treatment made things worse, she couldn't get another appointment to review.

I will suggest the pain clinic though

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